neuromyelitis optica spectrum disease

Posted by vicky1228 @vicky1228, Aug 21 11:52am

My 24yr old son was recently diagnosed with NMO and I'm wanting to see what information is out there for the disease. Treatment and ect.. I have never heard of this before. He had a headache then lost his vision in one eye then blurry in the other had hospital stay for over a week with steroids they thought it was MS and now they did test and say its NMO. Any help would be greatly appreciated. Thank you

Hi @vicky1228, welcome to Mayo Clinic Connect. I am sorry to hear about your son's diagnosis. Below are some past discussions about Devic's Disease / Neuromyelitis Optica (NMO). One of them has a video attached of a Mayo Physician discussing the disease.
NMO Devic's Disease – https://connect.mayoclinic.org/discussion/nmo-devics-disease/
Devic's Disease / Neuromyelitis Optica (NMO) – https://connect.mayoclinic.org/discussion/hi-i-came-here-looking-for-the-same-kind-of-info-about/
Nerve Pain – https://connect.mayoclinic.org/discussion/nerve-pain-1/
Did your son's physician offer any helpful information? How does he feel about the diagnosis?

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