Neurofibromatosis and going to Mayo Clinic in Rochester
I am the pastor of a person with serious issue in which he is constantly gaining new tumors inside his body. Last count was around 54. His current doctors basically treat him with surgery after surgery. He recently requested an appointment at Mayo Clinic- Jacksonville (6 hour drive). They said he should make application to Rochester. He truly needs a patient advocate that could walk him through logistics on getting to Minnesota more easily, possibilities for housing while he is there (he is basically indigent and lives on on a small disability payment), and other factors that might lead to better care.