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marie
@mariemarie

Posts: 82
Joined: Feb 22, 2017

Neupro patch

Posted by @mariemarie, Dec 13, 2017

I have been on sinemet (generic) for a month. One pill a day. The only side effect is stomach upset and head feels like cotton (stuffed). Neurologist asked if i want to try the patch and stop taking sinemet. Anyone had experience with patch?

REPLY

Hi Marie @mariemarie

I have never tried the patch. Perhaps someone of our other Members have.

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If you have ever used the neuro patch for treatment of Parkinson’s please share your experiences with @mariemarie.

Teresa

I guess no one on neupro patch. Im on 10th day. So far so good. No side effects. This is only med I’m on.

Hi Marie,
It looks like no one else so far has first-hand experience with the Neupro Patch (rotigotine transdermal patch) for treatment of symptoms of Parkinson’s. I found these 10 patient evaluations of the drug however: https://www.patientslikeme.com/treatment_evaluations/browse/963-neupro-patch-side-effects-and-efficacy. The effectiveness, side effects and burden of taking vary quite a bit between patients.

Do you find it burdensome to change the patch daily? Have you noticed improvements in your Parkinson’s symptoms? If yes, which ones?

I change the patch each morning at 8 am. Takes a minute. The cost for 30 patches is $20 as of today. I have silver scripts as my prescription plan. My stiffness is practically gone. I do pedaling for Parkinson three times week which helps a lot. I’m going to try chair yoga. So far no side effects from patch. Patch is size of thumb nail. Any questions, let me know.

Happy New Year

@mariemarie

I change the patch each morning at 8 am. Takes a minute. The cost for 30 patches is $20 as of today. I have silver scripts as my prescription plan. My stiffness is practically gone. I do pedaling for Parkinson three times week which helps a lot. I’m going to try chair yoga. So far no side effects from patch. Patch is size of thumb nail. Any questions, let me know.

Happy New Year

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@mariemarie

Hello Marie:

I’m glad to hear that your patch is working so well for you. I’m especially glad to hear the stiffness is so much better. Stiffness is my one big problem right now. I’m doing some Tai Chi chair exercises as well as some stretching for the stiffness in the thigh. It has helped a lot.

How is the chair yoga working for you?

Teresa

@mariemarie

I change the patch each morning at 8 am. Takes a minute. The cost for 30 patches is $20 as of today. I have silver scripts as my prescription plan. My stiffness is practically gone. I do pedaling for Parkinson three times week which helps a lot. I’m going to try chair yoga. So far no side effects from patch. Patch is size of thumb nail. Any questions, let me know.

Happy New Year

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Teresa, i haven’t started chair yoga yet. Will let you know. Whaat meds are you on?

@mariemarie

Hi Marie: I take 2 Sinemet per day and 1 Stalevo (Stalevo has a smaller amount of Sinemet plus Entacapone). The Entacapone makes the Sinemet last longer. I also take a small amount of Amantadine in the evening. I would like to try the patch, however, my insurance plan does not cover it. The Sinemet lowers the blood pressure and that is a problem for me.

Teresa

Thanks teresa. Did u mean the patch lowers blood pressure? U wrote sinemet.

@mariemarie

Thanks teresa. Did u mean the patch lowers blood pressure? U wrote sinemet.

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Marie: No, sorry, I meant that Sinemet lowers the BP and I would like to try the patch to see how that would work for me.

Teresa

@mariemarie

Thanks teresa. Did u mean the patch lowers blood pressure? U wrote sinemet.

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Oh, ok. The patch was a tier 4. However, as of today its a tier 2. The price went from $253 to $20 a month. I was in that stupid donut hole. Why don’t they get rid of it.

@mariemarie

Thanks teresa. Did u mean the patch lowers blood pressure? U wrote sinemet.

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i think the donut hole will disappear (by 2020?) not sure on the exact year.

Teresa

Good.

@mariemarie

Marie: If I may ask, was your stiffness all over or just in a particular area? Mine is mainly in my right thigh.

Teresa

The stiffness was in ham strings only. But now gone.

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