Nervous system collapse from Clonazepam withdrawal

Posted by skyglider1 @skyglider1, May 31 8:44am

I took 1 mg Clonazepam for sleep for three months for insomnia after Covid outbreak started, then tried to wean off rapidly. Was not able to and had severe symptoms. Spent the next 14 months weaning off and endured absolute hell. Been off for 7 months and continue to go downhill. I would like to point out that I never took any illegal drugs of any kind ever. My nervous system and brain are in complete chaos. Never smoked and only had a beer every few weeks or so. Now my insomnia is intractable, and I never feel sleepy tired and only get a couple hours of broken sleep per night. I can't feel light touch anywhere on my body, My skin burns, I developed POTS and standing heart rate is often 120 bpm when it used to be 50 bpm. I have been dizzy the whole time with DR/DP. I am losing control of my muscles. I have all the symptoms of RA and my joints pop when I move even the slightest bit (even when I inhale my chest pops). I believe I developed an autoimmune disease from Clonazepam. I developed dystonia in my abdomen that spasms and cramps all the time. My toes and hands are going more and more numb as time goes on, and I have bad nerve pain throughout my body. I have horrible food sensitivities. I cannot experience pleasure at all. I went from lifting weights and jogging three miles three times a week to not being able to stand for very long. All in all I experience about 80 different horrible withdrawal symptoms. I didn't mention things like tinnitus, light sensitivity, noise sensitivity, hot/cold sensitivity, loss of appetite, etc. I don't know what to do and feel that the medical community has poisoned me with that neurotoxin. I am afraid to take any other mind-altering drug ever, but I cannot continue like this for long. It will surely kill me as I will succumb to a heart attack or worse. I spoke with several Johns Hopkin's doctors and all they came up with was sending me to "end-of-life" specialists to manage the pain and suffering. I don't want to be drugged up anymore. I don't know where to turn. Has anyone experienced this and come out the other side?

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IM LITERALLY IN YOUR SAME SPOT 😭😭😭😭😭 it caused me to fall down 6 steps- resulting in 4 ER visits and 3 EMS rides.. and the doctors who told me I’m overprescribed on pharmaceutical medicine but not one put it for my medical record to show another doctor… I thought I was alone…

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I just had my Psychiatrist tell me this today (what to do from my withdrawls) AND they have me on 4MG of klonopin for over 7 years AND adderall sense I was a freshman in highschool back in 2014.. which the ERs send me home and I told her that. They’re literally sending us person to person…

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I’m new to this app and clinic (I haven’t started applying yet..) but if you’dlike you can message me if that’s possible and we can talk. I cried when I saw this because I thought I was the ONLY ONE 🥺 we can help eachother..

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@wwgd1

I just had my Psychiatrist tell me this today (what to do from my withdrawls) AND they have me on 4MG of klonopin for over 7 years AND adderall sense I was a freshman in highschool back in 2014.. which the ERs send me home and I told her that. They’re literally sending us person to person…

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I am sorry you are suffering from the damaging effects of these drugs like I am. I would advise you NOT to go to the hospital or any detox center to get off of these horrible drugs. They will take you off abruptly and that will plunge you into an unimaginable hell from which you will not be able to escape. Once you are off for any length of time, you will not be able to reinstate because of something called kindling where you nervous system becomes hypersensitive to the drug and reinstating will only make things worse. You are on an extremely high dose (4 mg Klonopin = 80 mg Valium), and will probably have to take well over a year to wean off of it slowly. You have the advantage of being young, and that is in your favor. I am 61 now, which does not bode well for me. You should start by looking up Heather Ashton who ran a clinic in England for over a decade to get people off these terrible drugs. Her protocol was to reduce by 10% of your CURRENT dose every two weeks. I could not do that because it was too horrific. I had to go much slower. Perhaps you can tolerate it. If not, you will have to do what I did and go to a compounding pharmacy and have a liquid titration made off so that you can microdose as you get lower and lower. I am sorry you have to endure this. It is hell on earth. But, you need to wean off of these terrible drugs. They are worse for you than heroin or any other narcotic out there.

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@wwgd1

I’m new to this app and clinic (I haven’t started applying yet..) but if you’dlike you can message me if that’s possible and we can talk. I cried when I saw this because I thought I was the ONLY ONE 🥺 we can help eachother..

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I am sorry to hear I am not alone in my suffering. What was your use history? Are you still taking these poisons? If you are off of them, how long have you been drug free? Do you have the same problems sleeping as I do? My days are torture, but my nights are even worse. The medical community is to blame here because they are totally incompetent when it comes to benzos. They have no clue what horrific damage they do to your central nervous system.

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@wwgd1

IM LITERALLY IN YOUR SAME SPOT 😭😭😭😭😭 it caused me to fall down 6 steps- resulting in 4 ER visits and 3 EMS rides.. and the doctors who told me I’m overprescribed on pharmaceutical medicine but not one put it for my medical record to show another doctor… I thought I was alone…

Jump to this post

Sorry to hear that. Sounds like you are still taking that rat poison. You will not get better until you get off that horrible neurotoxin. However, if you are already experiencing such horrible symptoms, it sounds like you are in tolerance withdrawal. That is where you suffer because you body demands more and more of the drug to function properly. You have two choices, go up in dose, or get off the poison. What you do is a personal choice and depends on how old you are. You have to get off slowly, or else your level of suffering will go up exponentially. Even weaning off slowly will be very difficult. What drug are you taking, and at what dose? i hope its not Klonopin/Clonazepam, because that seems to be the worst of them all. Unfortunately, that is what has poisoned me.

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I must say that I am discouraged by the fact that no one posted that they have beat this terrible fate that benzos inflict on the unsuspecting. I made the fatal mistake of trusting my doctor to help me with insomnia, and instead of relief I was handed a death sentence. It would have been more humane if they just killed me there and then in the office. The level of agony I am enduring on a daily basis is beyond horrific. I hope the absence of positive posts just reflects the fact that those people who healed have moved on with their lives and are not stuck in purgatory like I am.

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@skyglider1

I am sorry you are suffering from the damaging effects of these drugs like I am. I would advise you NOT to go to the hospital or any detox center to get off of these horrible drugs. They will take you off abruptly and that will plunge you into an unimaginable hell from which you will not be able to escape. Once you are off for any length of time, you will not be able to reinstate because of something called kindling where you nervous system becomes hypersensitive to the drug and reinstating will only make things worse. You are on an extremely high dose (4 mg Klonopin = 80 mg Valium), and will probably have to take well over a year to wean off of it slowly. You have the advantage of being young, and that is in your favor. I am 61 now, which does not bode well for me. You should start by looking up Heather Ashton who ran a clinic in England for over a decade to get people off these terrible drugs. Her protocol was to reduce by 10% of your CURRENT dose every two weeks. I could not do that because it was too horrific. I had to go much slower. Perhaps you can tolerate it. If not, you will have to do what I did and go to a compounding pharmacy and have a liquid titration made off so that you can microdose as you get lower and lower. I am sorry you have to endure this. It is hell on earth. But, you need to wean off of these terrible drugs. They are worse for you than heroin or any other narcotic out there.

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I’m sorry that you are going through this as well.. it’s horrific. I can’t get any help.. my BP was 120-130 range in the ERs.. they did nothing. I’m not going to be able to get help from a hospital or doctor I tried, they think I’m just crazy and I specially was told “you don’t have withdrawls coming off this medication because you’re being weaned down” I wanted to punch her and cry even more. I’ve been trying to get off of this medicine for almost a year now- well I recently rekindled my relationship with God and ever sense then- I have finally had the courage to speak up against these doctors.. I was 15 when they put me on this.. I’m now 23 and on week 13 (I think) of going down and everytime I go down/even everyday I’m afraid it’ll be my last day and my parents will come home to find me dead. I’m sorry that you’re going through this too😣 BigPharma doesn’t truly care about our health..only their money.. otherwise I’d have answers by now and I’ve been living in hospitals and doctors from the age 11-now. I started working when I was 15 and by 17 years old I was applying for disability (a lot of neuro and GI health issues). If you’d like you can always message me.. I can’t make it stop but I can be there for you. I know how I feel and it’s kripling me- I haven’t drove sense March 10- I fell down 6 steps from becoming dizzy ON camera(my parents have them set up) and nothing done. I was supposed to have PT Homecare come to my house today but they haven’t called me back the 2 times I was told I would be. Not to mention she upped my adderall to 60 MG- then started weaning me off of klonopin..

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@skyglider1

I am sorry to hear I am not alone in my suffering. What was your use history? Are you still taking these poisons? If you are off of them, how long have you been drug free? Do you have the same problems sleeping as I do? My days are torture, but my nights are even worse. The medical community is to blame here because they are totally incompetent when it comes to benzos. They have no clue what horrific damage they do to your central nervous system.

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My use history – I drank alcohol like every teenager but I couldn’t after 2 shots of Jack it would look (what looked like to others) like I was having alcohol poisoning. Cigarettes yes:/ marijuana yes-
By the way CBD and THC gummies have HELPED some of the spams/inflammation in our back..
I wish I was off of them.. it took me 1 full year to get her to do this- I started weaning down may 12 and why I was in the ER (no one listened to me), I was supposed to go down a dose and she gave me 4 MG and I had to hold two klonopin pills in my mouth so I didn’t take 4MG!! I’m down to 2MG. I should be at 2 .25MG but due to the hospitals mistake I just jumped down 1/2 a MG rapidly why they gave me morphine- which I said no and she kept pushing me “it’s a different pain maybe it will help your back” because I didn’t want meds but my breathing was extremely loud/exhaustion I couldn’t keep arguing about morphine makes my pain worse..well let’s just say I was in that ER screaming and crying in pain.
I do have sleep issues like you yes. It’s sporadic sometimes though, especially depending on my mood… I read my boyfriend what you wrote and he pointed at me and said “that’s you too”.. also- my nights are switching. It was night time was hell and day time I slept now it’s day is Hell and night is ehh…
i say big pharma and fda because they are the ones who approve these medications to be given to us… I’ve been going through the medical system all of my life- that’s all I know.. if I told my life story.. a lot of people in different states – would be out in jail for the illegal prescriptions given that almost killed me-lying to me about my diagnosis’- so much more..

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@skyglider1

Sorry to hear that. Sounds like you are still taking that rat poison. You will not get better until you get off that horrible neurotoxin. However, if you are already experiencing such horrible symptoms, it sounds like you are in tolerance withdrawal. That is where you suffer because you body demands more and more of the drug to function properly. You have two choices, go up in dose, or get off the poison. What you do is a personal choice and depends on how old you are. You have to get off slowly, or else your level of suffering will go up exponentially. Even weaning off slowly will be very difficult. What drug are you taking, and at what dose? i hope its not Klonopin/Clonazepam, because that seems to be the worst of them all. Unfortunately, that is what has poisoned me.

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It is klonopin/clonasepam😔 4MG dose.. due to ER messing with my dosage I’m at 2MG now..

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@skyglider1

I must say that I am discouraged by the fact that no one posted that they have beat this terrible fate that benzos inflict on the unsuspecting. I made the fatal mistake of trusting my doctor to help me with insomnia, and instead of relief I was handed a death sentence. It would have been more humane if they just killed me there and then in the office. The level of agony I am enduring on a daily basis is beyond horrific. I hope the absence of positive posts just reflects the fact that those people who healed have moved on with their lives and are not stuck in purgatory like I am.

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I pray that as well. I didn’t want to point out no one has commented relating.. most people die first.. they gave me multiple benzos at once. Wait. Valium is a benzo too? I’m on 2mg as need Valium for vestibular migraines I haven’t taken it in months but – I also said I’d rather them kill me or I wish I would have felt wish the anxiety instead of asking for help.. we will get through this! Now we both know we’re not alone.. We have to remember this is not who we are. We’re stuck but only for now…

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@wwgd1

I pray that as well. I didn’t want to point out no one has commented relating.. most people die first.. they gave me multiple benzos at once. Wait. Valium is a benzo too? I’m on 2mg as need Valium for vestibular migraines I haven’t taken it in months but – I also said I’d rather them kill me or I wish I would have felt wish the anxiety instead of asking for help.. we will get through this! Now we both know we’re not alone.. We have to remember this is not who we are. We’re stuck but only for now…

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Yes, Valium is a weak benzo. 1 mg Klonopin = 20 mg Valium. It is another poison that you should not take. I only take melatonin to help with sleep, but it doesn't really work anymore. Yes, it would have been more humane if they just shot me in the office and got it over with. I don't want to live like this much longer. Sad to say, these drugs cause brain damage, and it is unclear how much of it is reversible.

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