Nerve Stimulation for Neurogenic Bladder

Posted by markpsp @markpsp, Aug 27 11:10am

Has anyone ever done ( and had success with ) Nerve Stimulation, or Neuromodulation, for Neurogenic bladder? I am currently using intermittent catheters but have been reading about neuro stimulation to treat bladder control for both overactive and underactive bladder and would like to explore this option,

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I have never heard of this before, but will look into it. I’m also using intermittent catheters. I have the interstim implant, but still getting recurring UTIS. Really interested in any finding a solution to this problem. Will surely post if I come up with something helpful.

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It sounds like Interstim may be what I am referencing. Not sure if there are also other options. My issue neurogenic bladder, not overactive bladder, so I am wondering if Interstim can help. I can feel when I need to go, I just can’t. Interstim seems to be geared more towards overactive bladder, but I will find out more. You say you are using intermittent caths. Is your situation neurogenic? Aside from the UTI’s does Interstim help reduce the number of times you have to cath?

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Yes, I have neurogenic bladder, and have the Instertim, and now I’m voiding more on my own. I was only cathetarizing twice a day, but was getting the UTIS more often. Since May, I’ve had three episodes, so my Urologyst increased Catheter use to four times a day. I’ll keep you updated on my progress. Wish me luck.

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I’ve had neurogenic bladder for about 15 years. I’ve never had any help with it. Had the definitive tests done in a lab, was told what I had, and then sorry, byebye.
Luckily, I never had to self cath. I figured out which incontinence pads worked, and somehow got on with my life. The first decade was a dance between can’t pee and pee accidents dripping down my legs due to overflow.
Gradually, my abdominal muscles learned to push against my bladder and almost empty it. And, the accidents became less and less.
Really hope you find that sweet spot so you can live more normally.
Raylene (Ray)

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Thank you so much! I’m glad you found a way to deal with your situation.

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89 yr old female , rarely had a uti. Then past 2 yrs I had a uti twice a year, but last spring I had a continuous burning , itching tenderness &frequent voiding symptoms of a uti. But in Dr office & specimen sent to lab it was Negative . Finally back in NY / LI I saw urologist & then aGyn specializing in the Vulva. Since the loss of hormones following menopause causes a reaction similar to a uti ! It happens in much younger women & older than I. TheGyn Dr specialist prescribed Estradiol inserted into vagina 2X wk & a topical medication to soothe the rawness / tenderness that came from the pads worn & frequent urinations. Also I had to apply the estradoil cream on my fingertip inside &!around the opening of the vulva 2x daily & before a month I was cleared of symptoms.i will most likely continue applying the hormone cream for the rest of my my days.
continue

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Profile picture for markpsp @markpsp

It sounds like Interstim may be what I am referencing. Not sure if there are also other options. My issue neurogenic bladder, not overactive bladder, so I am wondering if Interstim can help. I can feel when I need to go, I just can’t. Interstim seems to be geared more towards overactive bladder, but I will find out more. You say you are using intermittent caths. Is your situation neurogenic? Aside from the UTI’s does Interstim help reduce the number of times you have to cath?

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@markpsp this is why I didnt go for the InterStim , I feel it is more geared towards overactive bladder which is not my issue...even more so I feel its about making $ off people suffering. Once the urologist I was seeing heard I wasn't interested in this device he "fired" me as a patient, telling me maybe He wasn't a good fit for me. I was so devastated..So many I've heard that have the Interstim still have to self Cath-and there's where the increase of UTIs comes it-no thank you!

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