Need help transferring my care to the Mayo in Phoenix/Scottsdale
I am a patient at the Cleveland Clinic that is faced with having to transfer my care to the Mayo in Phoenix/Scottsdale Arizona. This is because my husband can no longer be my caregiver and I will be moving to live with my brother.
I have Lynch Syndrome and for the last 30 years I have battled cancer 8 times leaving me with a short bowel. I have a peg tube to aspirate my stomach, an illyostom, 2 nephrostomy tubes, a Hickman catheter and my total nutrition is supplied by TPN. I currently have a home Healthcare nurse and aide that come twice a week.
I am so overwhelmed with this task, what do I do?