1. < Autoimmune Diseases
Profile picture for humbug

Myfortic: Experiences re: long-term use?

Posted by humbug @humbug, Feb 15 10:21am

I'm wondering if people have had any negative/concerning effects using the immunosuppressant Myfortic longterm?
My doctor told me it's generally well tolerated and safe.
I've only been on it for about 4 months at this point for AIH, but in case I have to be on it long-term I would love to hear from others re: their experiences with it.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

Profile picture for Becky, Volunteer Mentor
Mentor
Becky, Volunteer Mentor | @becsbuddy | Feb 15 9:04pm

@humbug I was on Myfortic or about2.5 years with not a single problem. I had been on cellcept before but had a serious side effect (out of control diarrhea). It was later determined to be EPI, epocrine pancreatic insufficiency. The only problem I had was the waiting! Not eating for 2 hours after a pill or 1 hour before the pill.
We still eat dinner at the same time I was taking the pill-6pm! Old habits die hard and that was an old habit.

REPLY
1 reply
Profile picture for humbug
humbug | @humbug | Feb 21 5:51pm
In reply to @becsbuddy "@humbug I was on Myfortic or about2.5 years with not a single problem. I had been..." + (show)
Profile picture for Becky, Volunteer Mentor @becsbuddy

@humbug I was on Myfortic or about2.5 years with not a single problem. I had been on cellcept before but had a serious side effect (out of control diarrhea). It was later determined to be EPI, epocrine pancreatic insufficiency. The only problem I had was the waiting! Not eating for 2 hours after a pill or 1 hour before the pill.
We still eat dinner at the same time I was taking the pill-6pm! Old habits die hard and that was an old habit.

Jump to this post

@becsbuddy Thanks for sharing your experiences with myfortic! Glad you didn't experience anything adverse with usage.
I admit that there are times I forget about the time restrictions around food. I take it twice a day around the same times.
I seem to be experiencing itching that coincides with starting it, but it could just be dry air. I'll see if it goes away after winter.
Thanks again!!

REPLY
Please sign in or register to post a reply.