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Cat
@cat

Posts: 2
Joined: Aug 13, 2011

myelodysplastic syndrome (MDS)

Posted by @cat, Aug 13, 2011

2 months ago dianosted with MDS on the border to actute leumkemia. On third cycle of Vidaza and talking booster shots for red blood cells with ocassional transfusions.

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lauriekay2
@lauriekay2

Posts: 2
Joined: Nov 28, 2011
Posted by @lauriekay2, Nov 28, 2011

Hi, Cat. Sorry to hear about your diagnosis, and that you’re already approaching leukemia! 🙁 I was diagnosed in June 2010 (classified as mild) but I believe I’ve head this disease for years and gone un-diagnosed. My symptoms have worsened, so I’m heading to IU hopefully for some answers, or better treatment. So far I’m not even on meds except for Bvitamins (I’m deficient) and now iron for the new anemia. God bless you as you continue your treatment.


Cat
@cat

Posts: 2
Joined: Aug 13, 2011
Posted by @cat, Nov 28, 2011

Unfortunately my wife of 54 years died last month. In a short time span, sehe had all kind of physical problems leading to dropping the 4th
Vidaza cycle and going into hospice. I am crushed. I am not satisfied with the answers I have received so I will seek advice from Mayo. She had a worst case MSD on top of a previous liver transfplant. I hope you have better luck.


lauriekay2
@lauriekay2

Posts: 2
Joined: Nov 28, 2011
Posted by @lauriekay2, Dec 1, 2011

I’m so sorry to hear of your wife’s passing. This disease seems to be very misunderstood, misdiagnosed, and mistreated. I hope you can find some healing. 54 years is a very long time to have someone. What a blessing.


eva marie
@evamarie1

Posts: 2
Joined: Nov 15, 2012
Posted by @evamarie1, Nov 22, 2012

my husband has just been diagnosed with mds and is now getting chemo and transfusions of blood and platelets at Anderson Banner treatment center has anyone had any treatments there?

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