Myasthenia Gravis and Stiff Person Syndrome

Posted by Southern Bell @southernbell, Oct 5, 2011

I have been diagnosed with both these autoimmune diseases in 2009. Has anyone had an experience with both or either?

I”m told that each disease is very rare and to have both is about 1 in 1million chances.

Southern Bell

@adscheer

I realize this may be an older post, but I will comment anyway. I was diagnosed with Myasthenia Gravis in 2006. I recieved treatment both with a neurologist in Waterloo, IA, as well as haveing treatment and surgery preformed at the Mayo Clinic/ St. Marys Hospital in Rochester MN. I have been symptom free for about 5 years now, and am not on any sort of medication. If you have any comments or questions please let me know and I will try to give you any answers I can.

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Yes my left leg has a twitch from my hip to my toes. This has been going on for a couple years. There is no pain with this. The twitches are spaced apart in ten seconds. It is mostly seen while in a recliner with the foot rest in the up position.A lot of nights I wake up and my toes are turned up with pain. I then get out of bed and stand on the floor and it all goes away, only takes a few seconts to get back to normal.

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Hi Southernbell, my name is Schuyler and I too have both. Your post was 7 years ago but if you are still connected, let’s chat!

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@schuyler

Hi Southernbell, my name is Schuyler and I too have both. Your post was 7 years ago but if you are still connected, let’s chat!

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Hello, @schuyler, and welcome to Mayo Clinic Connect.

Hoping @southernbell and @nan45 come share some of their experiences with you, particularly in regard to myasthenia gravis and stiff person syndrome.

I also wanted to point you to these discussions you may want to check out and participate in:

https://mayocl.in/2spGMYI, about myasthenia gravis
https://mayocl.in/2H6NRms, about stiff person syndrome.

All the best.

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