Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Doctors

Posted by karina77 @karina77, Sun, May 5 3:20pm

I know someone who's looking for a doctor at the Mayo Clinic Rochester who specializes in ME/CFS. Looking at the website, all of them except one work in children and adolescents Pediatrics. I know adults can't make appointments with doctors in pediatrics. In some cases it would be nice! Does anyone recommend or know of any doctor that works with chronic fatigue syndrome at Mayo?!

Hi @karina77 its great that you are helping another member try to find a doctor. Your opening search is a great start. Another possible way to find which doctors at Mayo treat Myalgic Encephalomyelitis/Chronic Fatigue Syndrome would be to call the appointment office. Here's the contact information http://mayocl.in/1mtmR63

REPLY

Hi @karina77 Thanks for trying to help someone with CFS. It is often misunderstood by many. I chose not to go the Mayo route since their website isn't even up to date on CFS — continue to recommend cognitive behavior therapy and graded exercise therapy which in 2017 were proven inneffective or can even worsen the disease. According to the CDC it is a physical, multisystem illness. I have been on a lot of online support groups and have not come across anyone who said that Mayo was helpful with CFS. Some sufferers were even declined an appointment. I really dont want to sound all negative! Many have found improvement by working with functional or naturopathic doctors. If this person has other ongoing issues, maybe Mayo can help. We are all unique. I wish this person healing soon!

REPLY
Please login or register to post a reply.