Undiagnosed autoimmune, may be MG
Hi I am new to this group. I just happened to find you all. I am dealing with a lot of unexplained medical problems. I think I have some type of autoimmune disease. I don’t know what yet. This has been going on for almost three years now. I got hurt in WA. I was thrown against a wall at work and on conscious for 3 minutes. I could not walk by myself after wards. I was shaking all over. Like when your body is scared. After I left the emergency room I was walking in the market by myself and I looked down and noticed my rt foot was curled and I was standing on my ankle. Later I started experiencing falls. I fell all the time. My students pushed me down like a stack of cards. I started dropping things. I was very tired. The things I loved I now found frustrating. I went to about six doctors in WA. They told me to resign from my job. This was all I knew for 16 years. I had just finished my Master’s Degree. I had two MRIs of my Brain, two of my cervical spine, and one of my lumber spine. I am now in CA. I have a wonderful neurologist who is trying to figure me out. I have Cerebral Palsy that affects my left side. It is my strong side now. Before everything changed for me I was walking, running, hiking, driving, and very independent. Now My right side is my weak side. i drop things. I have to use a walker to get around. I don’t drive anymore. I get tired easily. I also found out I have many allergies to foods, insects, animals, trees, dust, etc. I also found out recently that I have sleep appnea. So I am a part of a group that focuses on eating a low carb diet. I had to go gluten free because I am allergic to wheat. . I went to a nuerooptimologist a few days ago She said I have thinning of my optic nerves in both eyes. She said it is that way in my brain too. I am scared. I want so much to know what is up with me. I went to see an MS specialist last march. He said I did not have MS.. I am wondering if I do. I did not have these new symptoms when he evaluated me. My cousin has MS. My doctor thought I might have MG. She did tests and said no. When I had my first MRI on my brain it said I had something on my brain like people get who have MS. Now my doctor says I have narrowing of my cervical spine. So I had another MRI today. I have been dealing with this uncertainty for qutie a while. It has been so upsetting to me that my bangs fail out. There is more to share. I thank you all for letting me be a part of this group.