My Mysterious Illness
I've been trying to figure out what is wrong with my body for over a year now. I have been posting this on a number of websites to try and get some answers let me know if something comes to mind:
"I'm a guy. January of last year I was changing a sink out in my kitchen when I started to get unusually tired and dizzy. It occurred to me that I may have been breathing in something that was causing me to become asphyxiated. I immediately started searching for a cause and found it to be (not a cleaner or chemical under the sink, but) the gas from my stove. I hadn't even smelled it. I shut it off and ventilated the house, but the damage was done. About 5 hours later my heart rate spiked, adrenaline felt like it was being forced into my body and I started shaking. Then it stopped as fast as it all happened, my brain became super fuzzy and hazy, and I lost all strength in my limbs. I collapsed on all fours and lasted about 1 second in that position. I just remember feeling so drained that I didn't care what happened next as long as I was able to sleep. I felt like I might even die there on the floor. I felt like I was about to lose consciousness when suddenly I felt normal again. This all took about 30 seconds. My vision flashed a few times during the night, and sleeping was difficult. Scary as it was, this was nothing compared to the next several months.
The next day I called out of work because I couldn't form a sentence, I was starting to have sensory sensitivity and I was feeling dizzy almost all the time. These symptoms grew exponentially worse by the next week. I had curtains that blacked out all the light in my room, and that's where I stayed all day every day as long as I could. Even the glow around the curtains would send me through the roof. I refused to move as any small movement made instantly made me feel nauseas, regardless of whatever I had eaten. Just someone touching my bed would make my whole world spin. Any contact I had with the outside world was done with my phone. I used to have it on the brightest setting, now I had it at it's dimmest, and even that was too much sometimes. If I wanted to text, I had to do it in portions and I would cover one eye to reduce the amount of stimuli. (If I winked one eye shut it would make me dizzy, so I needed to cover it.) The stimuli didn't cause me pain as much as it did discomfort, if I had to compare it to something I would say it was like being next to a gunshot. It doesn't cause you pain, but the noise is highly uncomfortable and your body will try to do anything to reduce it. But you would have to imagine that gunshot being a continuous noise, not brief.
This was my life for 3 months. As a 28 year old, this was highly unusual and was absolutely unbearable at times. There were times I wanted my life to end so badly, but I knew that if I moved I would throw up. It was literal hell on earth. The worst part is, I developed what seemed to be seizures. The less sleep I got, the more seizures I would have. The more seizures I would have, the less probable it would be to get any sleep (because your body jolts and it wakes you up). At first my neurologist thought that they were Juvenile Myoclonic Seizures, but further tests showed absolutely no signs of seizure activity whatsoever. The doc had no explanation. I have been to all sorts of specialists since then and no one has been able to find anything wrong with me. It was only after my 3rd month of going through this that an extended family member suggest that I try a hyperbaric chamber. That was the most daunting car ride of my life, as currently, a 10 minute car ride made me want to throw up, and this was going to be a 5 hour drive. Somehow with dramamine, pepto, and hope, I made it that 5 hours and got in that chamber. Lo and behold, the first treatment had a significant effect on my body. The seizure-like episodes dissipated and I was able to sleep for the first time in 3 months. We did about 5 more treatments, and now about a year later I am feeling normal again. However, some new symptoms have arisen.
I can no longer work or exercise much. If I jog, I can only go about 40 yards before I feel like I am going to pass out. If I do run, I have to lay sprawled on the ground for 45 minutes upwards to about 3 hours before my body can fully recover. That, and my digestive system is all out of whack. I can't eat very many dressings or sauces now. Peppers and pasta are a no go, though I can eat them if I really want to and work through the pain. But if I eat too much of this stuff, my guts feel like sandpaper. Anything that goes in after that, will hurt regardless until I heal. I had a specialist look at that too, and they found nothing irregular. He chalked it up to Irritable Bowel Syndrome, but I was completely fine before the incident. I now need occasional antacids to help with the pain. Been trying some probiotics which help a bit, but the condition still persists. I also have to watch how I sit, if I rest with my back against something or sit my butt/legs on something hard, I start to feel like I'm going to pass out again.
Does anybody have any advice? Do you know what this is? Have you gone through something similar? Or do you have some decent resources that I can look into? Any help would be appreciated."
As an added note: I feel like this has something to do with my blood which is why I posted this here. But hopefully I can get an answer either way. My insurance will not allow me to go to The Mayo Clinic and I feel this is my last resort.