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My husband was diagnosed back in feb with EBV.since then his lips [...]

Posted by @jatl in Infectious Diseases, Mar 18, 2014

My husband was diagnosed back in feb with EBV.since then his lips have been swollen with blisters with white coating on lips and tongue. He sleeps all the time. Has anyone else gone through this or know anything about EBV? We aren't gwtting any answers from our doctors.

Tags: disease, EBV, Infectious Disease, blisters

Posted by @Margaret_Marie, Mar 18, 2014

Hi, @jatl. I'm so sorry to hear about your husband's diagnosis. I'll see if I can find someone to answer your question. In the meantime, a search on the Connect site for EBV might help you connect with other patients who've had the same diagnosis: Hope this helps!


Posted by @jatl, Mar 19, 2014

Thank you Margaret.

Posted by @Margaret_Marie, Mar 20, 2014

HI, @jatl. I asked a doctor about your post and she shared this information with me: she's not entirely convinced his symptoms are due to EBV. Most adults in the US are infected with EBV, but it is latent in their body, so sometimes EBV is erroneously blamed for other symptoms. She suggests being evaluated by your physician. You may find a search for EBV on helpful for additional resources: Let me know if you have any other questions.


Posted by @jatl, Mar 21, 2014

Thank you so much...we have two doctors that say its EBV and two that say it not and they dont know what is going on..he is still so tired..and when he sleeps he still gets up tired..the swelling in his lips has gone down, he still has days when he is dizzy most of the day..i got on mayo site and was looking.I wonder if it might be CFS.


Posted by @Margaret_Marie, Mar 21, 2014

I'm glad you are finding the references on helpful, @jatl.

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