So I went to my neurology appt this past Friday and tell her i been having seizures almost everyday some days 4 to 6. There was an intern following her around and she told her that “I was her complicated patient!” Gee thanks, that made me feel great! NOT!!! Im doing the medical marijuana and friday she increased my Lyrica from 100mg to 150mg and im also on Briviact and Onfi. Have been on and tried everything!!! I was there to get Botox injections for my migraines so we couldnt talk about everything, have to make another appointment for that ,but i dont know how I can keep having these every day and be “okay”. Im taking Briviact and Onfi as well have a VNS at the highest settings and had my right temperol lobe removed. Was told I have an abnormality on my hippocampus but I think they said it cant be removed. I feel so alone with this. I forgot to mention I been having complex partials and absence seizures, I use to have the gran mal seizures but once they removed the abnormality I havent had one since. Im 40 yrs old but definitely dont feel 40 more like 80! My memory is so bad, im so scared its just going to get worse with each seizure. I dont think my doctor knows what else to do with me. My husband just says I should be thankful I dont have the “bad ones” anymore and I am thankful, the ones im having now are just scary and trying not to lose hope but its so hard when nothing is working or helping. Is anybody going through anything like me or similar? I love to crochet and its been therapy for me, but now im having them while im crocheting. Feeling very depressed and anxious ALOT!! The medical marijuana does help with the anxiety and sleep, thats about it! Sorry its so long, didnt know where else to go to…thank you guys in advance for any helpful tips, info anything!
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