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lexie4444

my brother has just been diagnosed with als. it is the worst

Posted by @lexie4444 in Just Want to Talk, Jan 8, 2012

my brother has just been diagnosed with als. it is the worst disease one can get. we're all very devastated and sad. he's only 52 yearrs old. it totally sucks. even the medical community has no answers. phone calls are not returned promptly. they tell you to have hope how can you when no one really cares. i feel like i'm going around in a circle it'e totally awful that nothing has been done in research to find a drug to slow it down. try to get in a trial and that's another area where you don't get straight answers. it's only been 2 months since his diagnoses and i'm already tired of all the uncertainty with this disease. they tell you a cure is coming that's another lie. has anyone been on a trial?please let me know how its going /

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