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sevey41
@sevey41

Posts: 14
Joined: Sep 22, 2017

My 17 yr old grandson has diabetes and now has Lyme Disease

Posted by @sevey41, Sep 22, 2017

we don’t know what to do its been 6 months and has not improved gets worse every day anxiety, out bursts, paranoid extremely bad, can’t be left alone and etc.

REPLY

Have you tried cutting out gluten, dairy and sugar to see if that changes his behavior? I think Nutrition Response Testing is very helpful in situations like these. Brennan Family Chiropractic in Rochester is my practitioner.

I’m so sorry to hear this. My 16 year old grandson has Tourettes syndrom, which includes OCD, ADDHD, and lack of impulse control. He too has outbursts of yelling, threatening to kill himself or hurt others, which are totally opposite his behavior/attitude when he is feeling “normal” on his medications. He spent a week in the children’s ward of the hospital last August because he had a butcher knife and was threatening to kill himself.

They changed his medications and he’s doing better since then. Have you had your grandson checked for Attention Deficit/hyperactivity? It sounds like he needs to talk with a psychologist and psychiatrist to see if he needs further evaluation & help. Good luck, Gail B

Being a diabetic since young child his immune system is already compromised, now with the Lyme disease diagnosis in 6 months he is a wreck, we live in Oregon and there are very few Drs who know about or will treat Lyme disease. It seems it has attacked him neurologicly nothing they have tried on him has worked. We are going to take him to Mayo Clinic hoping for some answers.

I took my wife to Mayo in July for her care and while I was there I found out I had PMR. Mayo Rochester is Outstanding! Every doctor, every member of the staff we came in contact with and all of the volunteers and facilities are just the best. They really care. Lots of hotels. We stayed at the Homewood Suites which is also very good. One mile to Mayo and they have a shuttle several times a day. I have been to all 3 of the Mayo’s and can not say enough good things about them.

@sevey41

Being a diabetic since young child his immune system is already compromised, now with the Lyme disease diagnosis in 6 months he is a wreck, we live in Oregon and there are very few Drs who know about or will treat Lyme disease. It seems it has attacked him neurologicly nothing they have tried on him has worked. We are going to take him to Mayo Clinic hoping for some answers.

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My husband just happened to have a heart attack while we were visiting a friend in Rochester, Minnesota on New Years Eve,1999. I took him to St Mary’s Hospital affiliated with Mayo there. His care was outstanding and he had 2 stents inserted in his arteries. He’s never had a problem since then. The Mayo called him once a year for 15 years to find out how he was doing!

When I had a large area of basal cell skin cancer on the area between my upper lip and nose on the right side, I decided to go to Mayo for the surgery and skin grafting. That was in 2004. They did Mohs surgery and did an excellent job. No problems since.

I trust Mayo when I need medical care beyond simple things. They are careful and detailed and work as a team to give the besy coordinated healthcare. You can feel secure that they will find the problem and recommend care. Best of luck to you and your grandson.

Gail B Ledesma

@sevey41

Being a diabetic since young child his immune system is already compromised, now with the Lyme disease diagnosis in 6 months he is a wreck, we live in Oregon and there are very few Drs who know about or will treat Lyme disease. It seems it has attacked him neurologicly nothing they have tried on him has worked. We are going to take him to Mayo Clinic hoping for some answers.

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Thank you that was so sweet of you to share that it’s very reassuring. As grandparents it’s so frustrating to not be able to help them, other than financially and emotionally and lots of prayers. Thank you and God Bless…

Thank you for reassuring us that was so kind of you.

@alanbruce

I took my wife to Mayo in July for her care and while I was there I found out I had PMR. Mayo Rochester is Outstanding! Every doctor, every member of the staff we came in contact with and all of the volunteers and facilities are just the best. They really care. Lots of hotels. We stayed at the Homewood Suites which is also very good. One mile to Mayo and they have a shuttle several times a day. I have been to all 3 of the Mayo’s and can not say enough good things about them.

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Do you know if they have a group that addresses Lyme disease or does it just fall under autoimmune disease?

@alanbruce

I took my wife to Mayo in July for her care and while I was there I found out I had PMR. Mayo Rochester is Outstanding! Every doctor, every member of the staff we came in contact with and all of the volunteers and facilities are just the best. They really care. Lots of hotels. We stayed at the Homewood Suites which is also very good. One mile to Mayo and they have a shuttle several times a day. I have been to all 3 of the Mayo’s and can not say enough good things about them.

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Hello @sevey41,

If you would like to make an appointment at Mayo Clinic, please call one of our appointment offices. You can also request an appointment online.
The contact information for Minnesota, Arizona and Florida can be found here: http://www.mayoclinic.org/appointments
When you call, Mayo Clinic representatives will ask questions to help direct you to the best specialist, either at Mayo or closer to home.

Here’s some information you may wish to view, about care at Mayo Clinic with regard to Lyme disease:
http://www.mayoclinic.org/diseases-conditions/lyme-disease/care-at-mayo-clinic/patient-stories/con-20019701

In the meantime, I’d also like to introduce you to @danny59 @carnes @hazelblumberg @shoregal45 @cbrackle @smiles2016 @parus @ihatediabetes who have posted Lyme disease, and I’m certain they will join this discussion with their insights.

@sevey41, may I ask how your grandson may have contracted Lyme disease? Was it diagnosed early? Have his doctors prescribed any antibiotics?

@alanbruce

I took my wife to Mayo in July for her care and while I was there I found out I had PMR. Mayo Rochester is Outstanding! Every doctor, every member of the staff we came in contact with and all of the volunteers and facilities are just the best. They really care. Lots of hotels. We stayed at the Homewood Suites which is also very good. One mile to Mayo and they have a shuttle several times a day. I have been to all 3 of the Mayo’s and can not say enough good things about them.

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He was diagnosised by blood work , yes he had two series with antibiotics , he is a brittle diabetic and can not seem to control his blood sugars it has attacked him mostly neurologically has terrible anxiety, paranoid terribly bad. Has been seeing a Natural path and taking all kinds of supplements been six months and gets worse every day.. I sure hope the Mayo Clinic can help him we are desperate…

@alanbruce

I took my wife to Mayo in July for her care and while I was there I found out I had PMR. Mayo Rochester is Outstanding! Every doctor, every member of the staff we came in contact with and all of the volunteers and facilities are just the best. They really care. Lots of hotels. We stayed at the Homewood Suites which is also very good. One mile to Mayo and they have a shuttle several times a day. I have been to all 3 of the Mayo’s and can not say enough good things about them.

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Hi @sevey41,

Please keep us updated about your grandson’s appointments and progress; and let us know if you have any questions…we’re listening.
I wish your grandson the best of luck.

@sevey41 Hello so very sorry to hear about your grandson. When I initially got sick my very first symptom was a panic attack (Oct 8th 2016). First one of my life. My hands started to convulse inward, heart racing, ice cold limbs, head drenched in sweat, in and out of consciousness. I was taken to the ER and doctors said it was nothing more than a panic attack. This turned into daily anxiety and panic attacks for me, none stop every day for 6-7 months. Then came along all the other symptoms: Visual Snow/Static, eye floaters, BFEP, ghosting or trailing in vision, flickering in vision, light sensitivity, tinnitus, daily headaches, stiff neck, migraine aura, fatigue, muscle spasms, pain in diaphragm. I could name a few more.

I eventually got rid of my anxiety, migraine aura, and fatigue is better. I practice mindfullness, meditation, deep breathing and take a host of daily vitamins. I believe you grandson can do away with his anxiety. It has to be multiple times daily effort. I believe I was able to re-train my brain to understand that I wasn’t going to die. Despite the daily pain I live with I’m glad to be rid of the anxiety.

Truly sorry about your grandson, I wish this on no one. Wish you and your family well.

Danny

Hi @danny59,

I just want to say thank you so much for answering my shout-out to you; I’m sure @sevey41 appreciates it too.

Yes so nice of you to encourage us , it helps

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