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agpoland

My 15mth old has so far been diagnosed w/ unilateral coronal synostosis

Posted by @agpoland in Just Want to Talk, Aug 16, 2011

My 15mth old has so far been diagnosed w/ unilateral coronal synostosis and saggital synostosis, ceberal palsy, bilateral vas. reflux, syndactyl, horseshoe kidney, scoliosis, fused vertebrae, hypertension and many more. I am trying to find others w/ these same issues or doctor that is willing to take the time to focus on all my sons medical concerns for an optimal treatment plan. I'm doing the best I can to keep all specialists informed but sometimes my word is not enough and specialists do not seem to communicate well w/ one another. Anybody have any ideas to help?

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