Mayo Clinic Connect
My 15 year old daughter has been diagnosed with this and I would like to talk to others who have this and then would hope it would be a safe place for her to talk to others also about this. She is very smart for her age
Sorry didn’t say what it was she diagnosed with, its Conversion Disorder
How brave of you to post to the Connect community. Finding a safe place to connect with others who have similar conditions is exactly what this community is about. At the moment, we are concentrating on making the website look better and work better to connect people. Maybe you could help us with this.
Have you ever met another parent whose child has conversion disorder? Who do you talk with about it?
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I haven’t met anyone else that has her condition. Most people look at me like I’ve just lost it and should be getting another opinions and more test. But when the doctors tell you their diagnoses it is just so final that is it.
I don’t have anyone else to talk to about this except a couple of my girlfriends who mean well, but all they do is tell me more test that should be run which I can’t make the Doctors do.
That is tough. At the moment, I can’t connect you with anyone else who has a child with this condition, but I will try to find someone. It’s hard to get understanding from people who are not living what you’re experiencing.
I guess part of your (not easy) job is also helping other people understand the condition, so they can support you and daughter better. Have you been able to find good information about Conversion Disorder? I found this on the Mayo Clinic website http://www.mayoclinic.org/diseases-conditions/conversion-disorder/basics/definition/con-20029533 but I suspect you know much more than this by now.
Has your healthcare team given you useful strategies to manage the condition with your daughter?
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