What causes the loss of mucus membrane?

Posted by learningstudent @learningstudent, May 3, 2020

Hi all, I am just wondering what causes losing all mucus membrane or sweating, saliva or any secretion? Recently I seem to lose oil on my face, do not sweat, dried mouth and dried skin and also lose all the snot and nasal mucus? No doctors could diagnose what is happening and that makes me scare and anxious.

@learningstudent

Yes I will it it if they cannot diagnose. I am just wondering how much does it cost for diagnosis in Mayo Clinic? I went to see specialists in Swedish and cardiologist said my heart is fine. But the problem is my heart rhythm is fine but whenever I wake up from sleep I have heart palpitation and heart rate increases rapidly and sometimes up to 110 and then drops after several secs. This week I m seeing the ent specialist regarding my nose and I am just afraid that the specialist will not give me a diagnosis cuz some other specialists – lung doc or neurological doc cannot find out what happens.

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@learningstudent If you contact Mayo Clinic (I posted the link to the appointment desk) they can give you information on how your insurance would work for appointments at Mayo. You do need some additional help. If a diagnosis helps you feel better and gets you back to work it might be worthwhile.
What do you think?

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@learningstudent

Yes I will it it if they cannot diagnose. I am just wondering how much does it cost for diagnosis in Mayo Clinic? I went to see specialists in Swedish and cardiologist said my heart is fine. But the problem is my heart rhythm is fine but whenever I wake up from sleep I have heart palpitation and heart rate increases rapidly and sometimes up to 110 and then drops after several secs. This week I m seeing the ent specialist regarding my nose and I am just afraid that the specialist will not give me a diagnosis cuz some other specialists – lung doc or neurological doc cannot find out what happens.

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Hi,

1. You need to contact Mayo in Scottsdale,Az for their fees. Do you have health insurance?
2. You have Virginia Mason clinics, and U of Wash.
3. Somebody needs to take charge of your health care, and that is YOU.
with complex issues, it does take multiple doctors. That is why places like teaching universities are best, your records are all under one roof.
Have you had liver function tests, bile ducts gull bladder Been checked out?
Keep us posted.
Funcountess

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@learningstudent

Just wonder what the cause is that triggers the loss of mucous membrane? I have seen several docs and all tests come back normal. The few symptoms that I have which l have listed or discussed in other sections of this forum or community. I have had echo, ekg, Holter monitor and stress test for my heart, everything is ok. I have also had Ana reflex panel for immune disorder, everything comes back negative or normal. According to the comments

“ Screen negative by IFA and multiplex.
Therefore negative for the following specific antibodies: dsDNA,
chromatin, ribosomal P, Sm, RNP, SSA/Ro, SSB/La, Centromere, Scl70
and Jo1.”

Also the ANTI SSA/RO & ANTI SSB/LA are less than 0.2.

And then VITAMIN B12,SRM and FOLATE,SERUM are also normal within range.

In addition I have also had the brain mri without contrast and everything seems normal too.
On top of that, I have lung ct scan everything comes back normal too. Unfortunately I have still been suffering the undiagnosed health condition

1) bloated stomach and feel full all the times and do not feel thirsty. Only too small meals a day and if I eat too much it becomes difficult for me to breathe. In addition, I also have infrequent bowel movement, and yellow thin stool all the times and sometimes diarrhea.

2) feel cold in the left soft palate when mouth breathing. I also cannot talk for long and have to pause and take a deep breath half a min or so because I feel cold air in my left chest. The sinking left chest feeling where the left and right chest do not align with each other.

3) Difficulty breathing occurs every day but that happens in a certain time in a day. When that happens, the back of the area below my right shoulder blade hurts as well as the middle of my right chest. And I have to breathe through mouth. Then I feel cold air entering into the airway of my left lung. Then my left chest twitches.

4) it seems it is getting worse, my nose seems to dysfunctions. Without water or gel, it seems there is no airflow resistance. When I breathe there seems to be a lot of air especially cold air entering both of my nostrils. The nasal passages are empty with no mucus or boogers. On top of that my turbinates do not work. They do not swell or shrink and moisturize Or humidify the air I breathe in. They do not know how to adapt to the weather change. So I have to use nasal gel or saline wrist to make moisturize and block the nasal passage to feel slightly better. In addition when things flare up, I also have right throat and pin and needle sensation in my face.

5) Cold band and feet and they keep sweating and this occurs throughout the day. They do not happen at night.

6) heart pounding or heart rate increases whenever I wake up from sleep. Also dizziness occurs when getting up from bed or couch. The cardiologist said I do not have pots and he checked my blood pressure, everything is normal. Also while eating, my heart rate increases from 80 or 85 to 110.

7) It seems that I have lost mucus function, I have dried mouth, no nasal mucus and my eyes are pretty dried too esp after waking up, I have pink eyes. Also my face does not seem to produce oil and if ther is just too little.

I am just wondering if anybody knows or at least shed some light on this. Or at least could pinpoint one of the specific symptoms mentioned above and what is the likely or possible cause? Because most docs do not seem to care esp those who work in the clinic without communicating with one another or they cannot diagnose the symptom.

I am sure it is due to the nervous system or some kinds of immune diseases.

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@learningstudent . I do hope you see a infectious disease specialist . With yellow stools sounds like you need to see s G.I Dr and tell him of your yellow stools Are you eyes yellow? A lot of this sounds like a gallblader or liver problem . Dont put this off please see one of these Dr.s or both. The G.I Dr would be the first one I think

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I have Erosive Lichen Planus, It began with the soft tissue in my mouth stuffing off which has now affected all my soft tissues. The Mayo Clinic may be great for you. But before leaving your home turf in Seattle, why not check with a couple of the finest Health Centers in the USA. The University of Washington Hospital and clinics. If necessary they would refer you to the Fred Hutch of there is any cancer involve. With my elusive and progressive disease, I have found 2 things to be true. 1. Stress makes it worse so I exercise vigorously. 2. The University Hospitals have the more research available to you and are interested in having the tenacity to search and stick with you until they can diagnose and keep treating you as needed. I don't have personal experience with Mayo because I can only be seen in Rochester and I live on the West Coast. The costs can be prohibitive and those are things we all need to be aware of. I wish you good health. Over the last 35 years my best treatment and help have been at SFU and San Francisco and the University of Washington) Hospital clinic.

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Good morning @learningstudent . Sounds to me like you may have an autoimmune disease. They can be strange and difficult to diagnose. Mine took at least 8 months before I got a diagnosis. I agree with going to a major medical center or university medical center near you. I found this web site from the National rare diseases organization that discusses losing mucous membranes. Strangely enough, all autoimmune diseases come under rheumatologist. I wish you luck in quickly finding a diagnosis and treatment.
https://rarediseases.org/rare-diseases/mucous-membrane-pemphigoid/

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@learningstudent

Yes I will it it if they cannot diagnose. I am just wondering how much does it cost for diagnosis in Mayo Clinic? I went to see specialists in Swedish and cardiologist said my heart is fine. But the problem is my heart rhythm is fine but whenever I wake up from sleep I have heart palpitation and heart rate increases rapidly and sometimes up to 110 and then drops after several secs. This week I m seeing the ent specialist regarding my nose and I am just afraid that the specialist will not give me a diagnosis cuz some other specialists – lung doc or neurological doc cannot find out what happens.

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I suggest you read about panic attacks and how to stop them on the web. A paramedic explained it to me and I learned on my own to not have any more attacks, without going to the doctor. My older sister had them for years, would not follow instructions from the doctors, took the wrong medicine in the wrong way, and was told to not call the squad and go to the emergency room anymore. She continued this way for many years and lived to her late nineties, avoiding her family. If that is not the reason for the increased heart rate, at least you will be educated about the matter. Sometimes we can learn to be our own advocate for solving problems. I have a heart rhythm problem but the doctor said don't worry about it. That's no reassurance, so I work on diet and exercise because I am knowledgeable about the nutrition and I raise my own garden. If I have any serious problems in the night, my former paramedic son is available to check on me and calm me down. I don't need a doctor for everything anymore but I still read all I can about health. Dorisena

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Seeing specialists need referral but messaging the docs take a while to get back to u. My primary doc keeps saying anxiety causes all these, which is not true. I might be a little anxious about health due to undiagnosis but it is not anxiety that causes this. So I am so frustrated and decide to switch docs.

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Hi,
This is what I’m talking about. Too many run of the mill doctors have little to no experience with complex cases.
The sooner you get to a teaching university the better. Why not U of Wash. they have a medical school and clinic.
Try not to waste too much time. It’s your health.
Funcountess

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@learningstudent . I agree with funcountess YOU need to go to a teaching hospital to get a diagnosis the longer you put it of the worse it will be for you . So go to this University hospital if you cant get into Mayo . They are both researching hospitals that will find out your problem . Tell them about the yellow stools your having .

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@funcountess

Hi,
This is what I’m talking about. Too many run of the mill doctors have little to no experience with complex cases.
The sooner you get to a teaching university the better. Why not U of Wash. they have a medical school and clinic.
Try not to waste too much time. It’s your health.
Funcountess

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What “membrane”are you discussing? The BBB?

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At this moment they do not allow in person visit in uw. Would u guys give me a bit of specific details about how to deal with this? Like how to make the docs diagnose the problem? Get a primary doc there?

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@learningstudent

At this moment they do not allow in person visit in uw. Would u guys give me a bit of specific details about how to deal with this? Like how to make the docs diagnose the problem? Get a primary doc there?

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@learningstudent I think you might try calling a university medical center, say you are a new patient, and that you have some very unusual things going on with your body. See if you can get a virtual appointment in the rheumatology Clinic because you assume it’s autoimmune. Before you have the appointment, write down everything that you can think of that has happened in the past months (even if you don’t think they’re related to the mucous membranes. Have some photos that you can email the doctor if she wants them.

My husband had to do this for me when I got so sick 2 years ago. While I was hospitalized, he called the university med center and got us an appointment. They knew what I had and have been treating me ever since. Most local doctors have not seen or heard of all the immune diseases, so you really have to advocate for yourself.

Best of luck to you and please let me know what you do!

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