Share this:
rockypoint67
@rockypoint67

Posts: 1
Joined: Sep 02, 2016

MS diagnosis and Cavernous Angioma

Posted by @rockypoint67, Sep 2, 2016

My neuro wants me to do a spinal tap to r/o MS. I have a cavernous angioma, is it safe to do this test???

REPLY

Welcome @rockypoint67
Please meet @sebley12 @manysilver @jessejames4534 @carolyns and @lal2, who have all written about multiple sclerosis on Connect. You may be interested in these discussions.

https://connect.mayoclinic.org/discussion/i-have-had-a-batch-of-seemingly-unrelated-symptoms-for-a-few/
https://connect.mayoclinic.org/discussion/are-my-symptoms-early-signs-of-multiple-sclerosis/
https://connect.mayoclinic.org/discussion/multiple-sclerosisdepression/

Have you discussed your concerns about the spinal tap with your neurologist given that you have cavernous angioma? Perhaps there is a less invasive test to rule out MS.

Hi @rockypoint67, to piggyback off of the great information @colleenyoung provided, the Angioma Alliance offers a list of questions to ask the doctor, many of which concerning treatment options and what to expect such as:

In your opinion, what are the conditions under which you recommend surgery to remove a cavernous angioma?

Are there any other treatments you consider?

What tests do you recommend? (MRI, functional MRI, MRA, angiogram, etc)

The full list is here: http://www.angiomaalliance.org/pages.aspx?content=63

Maybe this is a jumping off point for having a conversation with your doctor. Ultimately you want to be comfortable with the treatment you select and any testing, so it’s very important to ask questions and get all the info you need to make the best choice for yourself. A Second opinion is also something to consider!

Seen your Post Rocky Point ! I live in Port Jefferson, when I had an up coming app. With Dr I would start writing my questions down and hand them to the doctor as beginning of appointment this way you wont forget when you get their! Good luck D

Hi @rockypoint67,

Just wondering if you went ahead with the spinal tap? If so, how did everything go? We would love to hear back from you.

@colleenyoung

Welcome @rockypoint67
Please meet @sebley12 @manysilver @jessejames4534 @carolyns and @lal2, who have all written about multiple sclerosis on Connect. You may be interested in these discussions.

https://connect.mayoclinic.org/discussion/i-have-had-a-batch-of-seemingly-unrelated-symptoms-for-a-few/
https://connect.mayoclinic.org/discussion/are-my-symptoms-early-signs-of-multiple-sclerosis/
https://connect.mayoclinic.org/discussion/multiple-sclerosisdepression/

Have you discussed your concerns about the spinal tap with your neurologist given that you have cavernous angioma? Perhaps there is a less invasive test to rule out MS.

Jump to this post

Their are other tests to rule out MS but spinal tab can be very gently administered. I have MS and MRI, blood work, eye test( a long word and do not remember what it is) and spinal tab were all done to not rule out MS. Please talk to your doctor

Please login or register to post a reply.