Lyme Disease and its Co-Infections, Morgellons Disease and Parasites

Posted by basslakeview @basslakeview, Aug 30, 2018

UPDATED 6/16/2019
Hi,
I am Elizabeth Bass and I live in Southeast Texas very close to Galveston and Houston Texas with my companion Millie, a Yorkie. I moved here in March 2018 from Northeast Texas (Longview/Tyler) with a scalp condition that keeps morphing into something else, each time getting worse. It began in May 2016, and here it is 2019 and I still have "it," but I've learned a whole lot I never really wanted to know.

I have no idea what exactly is wrong with me, but because of what I found in July 2018 on my pillow I'm thinking Morgellons because I found the same looking thing someone else had posted and they were talking about Morgellons. I have attached two photos, one close up and the other is the original so you can have an idea of the actual size.

I also have these white sparkly/shiny critters on every inch of my body, especially my hair/scalp, and face/neck. They can only be seen if I take a picture using my camera with the FLASH ON. Otherwise, no one would know there is anything wrong with me.

This was discovered by accident when in May 2016 I got my long hair all cut off. Right after that (about a month) my head started itching in the upper center back. I couldn't see anything in a mirror so I picked up my phone and took a picture. I still couldn't see very well so I turned the flash on. THAT WAS IT!! (I saw more than I wanted to see.) At first I thought I had bed bugs and did everything I could to get rid of them, including lice treatment. Then I started seeing these shiny, sparkly-looking things. I accidentally caught some of them on camera flying around my head. I kept trying everything I could to rid myself of "them," but nothing has worked so far. However, it is now June 2019 and "the condition" only changes (morphs). It never goes away. I have seen 9 dermatologists, 2 derm PAs, 2 internists, and 2 GPs, a total of 16 (maybe more), counting the one I'm with now since "it" began. My hair fell out in that spot, I had lesions where the hair was missing, and when a new lesion would begin it was always itchy, then that hair would fall out, too. My hair grew back, but not quite as thick.

The fever and rash went away, but the achiness and lethargy/fatigue has stayed with me all these years. About a year or two after that fever, and after going to many, many doctors between Shreveport, Dallas, Tyler, and Houston, one of them said I have Fibromyalgia & Chronic Fatigue. I simply took his word for it. I was so very tired of seeing doctors, doing lab work, driving and working a full time, stressful job. I needed a break!

Then in 1999 I lost my left kidney to an oncocytoma (tumor the size of a softball), benign. Lost my gallbladder in 2004, had carpal tunnel surgery on both wrists at the same time in 2005. I don't think there's much left. I had already had a thyroidectomy in my 20s (Graves Disease), and a hysterectomy in 1986. Then, the BIGGEST loss of my life…my only child in 2013. I honestly did not think I was going to make it.

I had told every single one of ALL those doctors the story of the high fever and rash and how my GP thought it was Lymes, but lab was negative, and not ONE of them (nor me) simply thought of running another Lyme test until last year 2018. On Sept 18, 2018, my 72nd birthday the results were in and I was at my doctor's office with my sister to get the results. That test came back with all sorts of red flags, 30 years later!

Now I am 72 and the second antibiotic I'm on is not doing anything. After one month on Doxycycline (had to stop because my liver didnt like it) and two months on Clindamycin I haven't noticed anything positive, but that doesn't mean nothing is happening, RIGHT?!!. For some reason she didn't put me on anything else right away after the Doxy. Maybe I had to give my liver time to heal. She never said why, and I forget to ask these questions. I think I am going to simply start feeling POSITIVE about things no matter which way they go!!

UPDATE: I finally found a doctor who 'seems' to want to help me. She ran a Lyme test on my blood and was very excited she could help me which was very encouraging as you can imagine.

I have had Lyme Disease and a co-infection called Rocky Mountain Spotted Fever (since 1988-1990ish, 30 years ago). I remember it like it was yesterday. I had a high fever, achiness all over like a flu sickness, and a rash. It was not a flu. And the first thing he said to me was, "It looks like Lymes Disease to me!" Unfortunately, the lab report came back negative and neither one of us thought to do another test.

Yet, for some reason, I keep replaying one of my favorite songs in my head, Eric Clapton's, "NO MORE TEARS IN HEAVEN." (It makes me smile because I know I WILL see my son again and be able to talk to him.)

Ever heard of of the song? Check it out. Just Google it and listen.

USEFUL WEBSITES:

(https://thecehf.org).
To contact them: http://thecehf.org/contact.html

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6287027/ (You have to create a sign in with a password, but it's very simple and it's free.)

@beryl

I am so glad that something is happening and more people are coming forward to tell about their experiences with this horrible thing ….Elizabeth was the first person and since then more of you have come forward ….including a dog …..which I said there was a connection …..they get it from cows it seems ……my Italian vet many years ago said that in Wales……I hope all this brings it to the surface and some body starts a very much needed look into this and finds a cure ……..Bery.

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Funny that you said that… read an article at ncbi that talks about cattle receiving much more interest in obtaining a diagnosus and cure than human beings are (because I guess they can’t accuse cattle of being dilutional)

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It's good to see that people are coming together as this can definitely make you feel like you're crazy and alone. I am on day 4 sitting in my car because I can't go into my house anymore it is overrun by the more gelon's that nobody else seems to see or care about. I believe mine was brought on by a toxic mold environment which lowered my immune system and allowed the freak show to begin. Unfortunately through all of my research and i am talking hours days piles and piles I don't look for the medical community to acknowledge this any time soon as there doesn't appear to be a pharmaceutical cure. I am completely in belief that this is a fungus and has a bio film slime mold whatever you wanna call it component. The things that I have heard the best about skii potassium iodine as well as NAC and vitamin C. The borax baths help along with baking soda and vinegar and a little gem as bentonite clay. There is definitely an animal connection as well as I feed feral cats and have seen the morgellons in one of them.. I'm in the San Diego California or Southern California area and now that I know what to look for I see it everywhere on people's cars in stores and restaurants just everywhere and the only thing I can think of is that those of us that are affected by it take care of ourself discontinue eating meat unfortunately because I love a good fat juicy steak and use the probiotic, potassium iodine the NAC and the vitamin C as well as vitamin D and never hurts to use some b for energy. I'm going to go try and find the most help full links I found and hopefully they can help somebody else.
For you guys in Texas you guys are super lucky there happens to be a lady that specializes in fungus which is what morgellons ultimately is if you've watched it close enough you've seen it spore and spread.
Ps, Also along with it comes a lot of CO infections which I do believe to Bay parasitic in nature From what I read cleaning out your gut near intestines is the best thing to do for that.
Shampoo that has helped me is doctor boner's pepperman it's all natural you can find it online it's not very expensive. There's also bar soap I use the same.
https://goop.com/wellness/health/how-to-identify-hidden-mold-toxicity-and-what-to-do-about-it/

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I just realized how many pages this post actually is and I really wish I wouldn't have. to the people that are actually suffering from morgellons don't listen to these people that are telling you you're Delusional or crazy. The original posters pictures clearly clearly show what is going on it's sad to see folks come on here and recommend that you take psychiatric drugs and just cover up your symptoms that's what this world thinks will fix problems is covering up one symptom with 1 drug and then taking another drug to cover up the symptoms that the 1st drug caused. unfortunately it's not that simple there are so many infections that go along as a result of the morgellons that the medical community is dumbfounded if you can't use Google to find an answer and you actually have to be a clinician and pull out your microscope and do the grunt work If you don't have the $$$$$ from a pharmaceutical company backing you why are you gonna go the extra step because one patient is standing there showing you clearly right in front of your eyes what's going on it's easier to not believe it it's easier to sweep it under the rug it's easier if you can't explain it to act like it doesn't exist keep acting like that folks until it happens to your child or to your animal or Spouse or to yourself this disease is a lonely debilitating if not treated nightmare that many people die from not the disease it self but because their families and friends abandon them people claim their delusional they can't handle it any longer and they kill themselves so before you come on here and tell Somebody they need to seek psychiatric help think about what you're saying and if you're a medical professional go back to school and learned because when you refuse to keep learning and just act like you know you need to find another job. I'm sorry for this rant to those of you don't wanna hear it please pass over it that's another symptom of the morgellons and toxic mold infection or fungus infections short temper . Again till the original poster I apologize if you'd ever like to share photos or videos I have many similar to the photos you've shown and some exactly alike I wanted to check and see if you've noticed if your hair is actually your hair still I know that sounds crazy to someone without this element but someone with will understand what I mean. Peace & Love to all of you and again sorry for the rant
PIC ONE CAME OUT OF MY HAND Looks like a black speck small to the human eye
PIC 2 CORNER OF MY EYE

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@thurst

Funny that you said that… read an article at ncbi that talks about cattle receiving much more interest in obtaining a diagnosus and cure than human beings are (because I guess they can’t accuse cattle of being dilutional)

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Hi @thurst, I believe this is the NCBI article you were wishing to post.
– Filament formation associated with spirochetal infection: a comparative approach to Morgellons disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3257881/

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@beryl

I am so glad that something is happening and more people are coming forward to tell about their experiences with this horrible thing ….Elizabeth was the first person and since then more of you have come forward ….including a dog …..which I said there was a connection …..they get it from cows it seems ……my Italian vet many years ago said that in Wales……I hope all this brings it to the surface and some body starts a very much needed look into this and finds a cure ……..Bery.

Jump to this post

Thanks, Bery. I found out in September its closely related to Lyme Disease , which I've had now , according to test results, for 27 years along with Rocky Mountain Spotted Fever. I was on a Lyme and RMSF antibiotic for a month but my liver didn't like it so waiting until my doctor comes up with something else. The Morgellons is still with me, but maybe a little better. Not sure why or I could be wrong and it may be worse. I have no clue except what I can see or feel.
Hope you are doing well.
BTW, there are thousands of scientists all over the world looking at Morgellons so I'm hoping our younger people have hope.
Take care.
Elizabeth.

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@basslakeview

Thanks, Bery. I found out in September its closely related to Lyme Disease , which I've had now , according to test results, for 27 years along with Rocky Mountain Spotted Fever. I was on a Lyme and RMSF antibiotic for a month but my liver didn't like it so waiting until my doctor comes up with something else. The Morgellons is still with me, but maybe a little better. Not sure why or I could be wrong and it may be worse. I have no clue except what I can see or feel.
Hope you are doing well.
BTW, there are thousands of scientists all over the world looking at Morgellons so I'm hoping our younger people have hope.
Take care.
Elizabeth.

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Did you read the article that was posted today seems it is bad in cattle. Beryl.

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@colleenyoung

Hi @thurst, I believe this is the NCBI article you were wishing to post.
– Filament formation associated with spirochetal infection: a comparative approach to Morgellons disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3257881/

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Thank you for posting the article on Morgellons. So my Italian vet was right. Beryl

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@colleenyoung

Hi @thurst, I believe this is the NCBI article you were wishing to post.
– Filament formation associated with spirochetal infection: a comparative approach to Morgellons disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3257881/

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Yes, thank you so much!! I was unable to post the link.

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@basslakeview

Thanks, Bery. I found out in September its closely related to Lyme Disease , which I've had now , according to test results, for 27 years along with Rocky Mountain Spotted Fever. I was on a Lyme and RMSF antibiotic for a month but my liver didn't like it so waiting until my doctor comes up with something else. The Morgellons is still with me, but maybe a little better. Not sure why or I could be wrong and it may be worse. I have no clue except what I can see or feel.
Hope you are doing well.
BTW, there are thousands of scientists all over the world looking at Morgellons so I'm hoping our younger people have hope.
Take care.
Elizabeth.

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I have a Friend in another group that was also diagnosed with Lyme and Rocky Mountain spotted fever about a year ago when she 1st started suffering from the morgellons She did rounds of antibiotics with no success only temporary relief. I'm still at the belief that the medical community is not going to be able to solve this problem anytime soon because there is no pay off for them.
That is not to say that the doctors themselves aren't trying but without Big pharmas
Incentive being able to profit From this because it is diet and such There is no reason for them to fund research and well The research I've done is from people that started researching in the nineties the stuff has been around for a while and those folks are doctors biologist and scientists and they say without the actual suffer themselves doing the work by changing their diet taking the supplements the NAC the vitamin C the probiotic nothing will change. There's just some things that you have to take initiative and take care of yourself. The worst part about it as it starts with diet so if you have poor eating habits you may find temporary relief at times of different experiments being done by your doctor but you will not find any kind of long term effects
And although my post start being replied to I also agree with barrels veterinarian from Italy.

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Tools for successful relief: salt, coconut oil, baking soda, lysol spray, rubbing alcohol in a spray bottle (can use peroxide spray nozzle directly in alcohol bottle) Bathe in salt water or pour salt water over hair& skin before leaving shower. Apply coconut oil to skin. Put baking soda in baby powder shaker bottle. Sprinkle on carpet, keep in or near bed to sprinkle on skin when u feel crawlies at night. Carry small shaker jar (from spices) with baking soda or salt in purse & car to sorinkle down shirt ir oants as needed. Salt packet at restaurant will work too.Wash clothes daily. If not possible, then spray with rubbing alcohol or lysol. Use them in any areas u feel buggy. Lysol is safer around electronics than alcohol. Vacuum daily. Clean clutter. Play HZ (for parasites & bacteria, fungus) from youtube or other source at bedtime & play near areas u sit or closets that feel buggy. U can add 1/2 tsp. (Not more) to glass of water & drink it once a day untill u feel better, then as needed.

There is no cure, but this combination removed symptoms enough to feel & look as if cured & helped to sleep which reduced fatigue. It also reduces chance of spreading it to others.

We got exposed at a movie theatre 2011. Both felt bugs crawling & biting on our lower legs.

Tried everything till this combination worked. They are also attracted to magnets (saw under own microscope). These appear to be a bacteria/fungus that attaches to our dna & nervous system. So no, you are not crazy. Its not in your head. We do not take mood pills for it, but benadryl or valarian root at night does help as needed.

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@desi1

I have a Friend in another group that was also diagnosed with Lyme and Rocky Mountain spotted fever about a year ago when she 1st started suffering from the morgellons She did rounds of antibiotics with no success only temporary relief. I'm still at the belief that the medical community is not going to be able to solve this problem anytime soon because there is no pay off for them.
That is not to say that the doctors themselves aren't trying but without Big pharmas
Incentive being able to profit From this because it is diet and such There is no reason for them to fund research and well The research I've done is from people that started researching in the nineties the stuff has been around for a while and those folks are doctors biologist and scientists and they say without the actual suffer themselves doing the work by changing their diet taking the supplements the NAC the vitamin C the probiotic nothing will change. There's just some things that you have to take initiative and take care of yourself. The worst part about it as it starts with diet so if you have poor eating habits you may find temporary relief at times of different experiments being done by your doctor but you will not find any kind of long term effects
And although my post start being replied to I also agree with barrels veterinarian from Italy.

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Yes. And sugar makes sumptoms worse.

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