Lyme Disease and its Co-Infections, Morgellons Disease and Parasites

Posted by basslakeview @basslakeview, Aug 30, 2018

UPDATED 6/16/2019
Hi,
I am Elizabeth Bass and I live in Southeast Texas very close to Galveston and Houston Texas with my companion Millie, a Yorkie. I moved here in March 2018 from Northeast Texas (Longview/Tyler) with a scalp condition that keeps morphing into something else, each time getting worse. It began in May 2016, and here it is 2019 and I still have "it," but I've learned a whole lot I never really wanted to know.

I have no idea what exactly is wrong with me, but because of what I found in July 2018 on my pillow I'm thinking Morgellons because I found the same looking thing someone else had posted and they were talking about Morgellons. I have attached two photos, one close up and the other is the original so you can have an idea of the actual size.

I also have these white sparkly/shiny critters on every inch of my body, especially my hair/scalp, and face/neck. They can only be seen if I take a picture using my camera with the FLASH ON. Otherwise, no one would know there is anything wrong with me.

This was discovered by accident when in May 2016 I got my long hair all cut off. Right after that (about a month) my head started itching in the upper center back. I couldn't see anything in a mirror so I picked up my phone and took a picture. I still couldn't see very well so I turned the flash on. THAT WAS IT!! (I saw more than I wanted to see.) At first I thought I had bed bugs and did everything I could to get rid of them, including lice treatment. Then I started seeing these shiny, sparkly-looking things. I accidentally caught some of them on camera flying around my head. I kept trying everything I could to rid myself of "them," but nothing has worked so far. However, it is now June 2019 and "the condition" only changes (morphs). It never goes away. I have seen 9 dermatologists, 2 derm PAs, 2 internists, and 2 GPs, a total of 16 (maybe more), counting the one I'm with now since "it" began. My hair fell out in that spot, I had lesions where the hair was missing, and when a new lesion would begin it was always itchy, then that hair would fall out, too. My hair grew back, but not quite as thick.

The fever and rash went away, but the achiness and lethargy/fatigue has stayed with me all these years. About a year or two after that fever, and after going to many, many doctors between Shreveport, Dallas, Tyler, and Houston, one of them said I have Fibromyalgia & Chronic Fatigue. I simply took his word for it. I was so very tired of seeing doctors, doing lab work, driving and working a full time, stressful job. I needed a break!

Then in 1999 I lost my left kidney to an oncocytoma (tumor the size of a softball), benign. Lost my gallbladder in 2004, had carpal tunnel surgery on both wrists at the same time in 2005. I don't think there's much left. I had already had a thyroidectomy in my 20s (Graves Disease), and a hysterectomy in 1986. Then, the BIGGEST loss of my life…my only child in 2013. I honestly did not think I was going to make it.

I had told every single one of ALL those doctors the story of the high fever and rash and how my GP thought it was Lymes, but lab was negative, and not ONE of them (nor me) simply thought of running another Lyme test until last year 2018. On Sept 18, 2018, my 72nd birthday the results were in and I was at my doctor's office with my sister to get the results. That test came back with all sorts of red flags, 30 years later!

Now I am 72 and the second antibiotic I'm on is not doing anything. After one month on Doxycycline (had to stop because my liver didnt like it) and two months on Clindamycin I haven't noticed anything positive, but that doesn't mean nothing is happening, RIGHT?!!. For some reason she didn't put me on anything else right away after the Doxy. Maybe I had to give my liver time to heal. She never said why, and I forget to ask these questions. I think I am going to simply start feeling POSITIVE about things no matter which way they go!!

UPDATE: I finally found a doctor who 'seems' to want to help me. She ran a Lyme test on my blood and was very excited she could help me which was very encouraging as you can imagine.

I have had Lyme Disease and a co-infection called Rocky Mountain Spotted Fever (since 1988-1990ish, 30 years ago). I remember it like it was yesterday. I had a high fever, achiness all over like a flu sickness, and a rash. It was not a flu. And the first thing he said to me was, "It looks like Lymes Disease to me!" Unfortunately, the lab report came back negative and neither one of us thought to do another test.

Yet, for some reason, I keep replaying one of my favorite songs in my head, Eric Clapton's, "NO MORE TEARS IN HEAVEN." (It makes me smile because I know I WILL see my son again and be able to talk to him.)

Ever heard of of the song? Check it out. Just Google it and listen.

USEFUL WEBSITES:

(https://thecehf.org).
To contact them: http://thecehf.org/contact.html

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6287027/ (You have to create a sign in with a password, but it's very simple and it's free.)

@colleenyoung

Hi @thurst, I believe this is the NCBI article you were wishing to post.
– Filament formation associated with spirochetal infection: a comparative approach to Morgellons disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3257881/

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Thank you for posting the article on Morgellons. So my Italian vet was right. Beryl

Liked by desi1

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@colleenyoung

Hi @thurst, I believe this is the NCBI article you were wishing to post.
– Filament formation associated with spirochetal infection: a comparative approach to Morgellons disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3257881/

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Yes, thank you so much!! I was unable to post the link.

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@basslakeview

Thanks, Bery. I found out in September its closely related to Lyme Disease , which I've had now , according to test results, for 27 years along with Rocky Mountain Spotted Fever. I was on a Lyme and RMSF antibiotic for a month but my liver didn't like it so waiting until my doctor comes up with something else. The Morgellons is still with me, but maybe a little better. Not sure why or I could be wrong and it may be worse. I have no clue except what I can see or feel.
Hope you are doing well.
BTW, there are thousands of scientists all over the world looking at Morgellons so I'm hoping our younger people have hope.
Take care.
Elizabeth.

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I have a Friend in another group that was also diagnosed with Lyme and Rocky Mountain spotted fever about a year ago when she 1st started suffering from the morgellons She did rounds of antibiotics with no success only temporary relief. I'm still at the belief that the medical community is not going to be able to solve this problem anytime soon because there is no pay off for them.
That is not to say that the doctors themselves aren't trying but without Big pharmas
Incentive being able to profit From this because it is diet and such There is no reason for them to fund research and well The research I've done is from people that started researching in the nineties the stuff has been around for a while and those folks are doctors biologist and scientists and they say without the actual suffer themselves doing the work by changing their diet taking the supplements the NAC the vitamin C the probiotic nothing will change. There's just some things that you have to take initiative and take care of yourself. The worst part about it as it starts with diet so if you have poor eating habits you may find temporary relief at times of different experiments being done by your doctor but you will not find any kind of long term effects
And although my post start being replied to I also agree with barrels veterinarian from Italy.

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Tools for successful relief: salt, coconut oil, baking soda, lysol spray, rubbing alcohol in a spray bottle (can use peroxide spray nozzle directly in alcohol bottle) Bathe in salt water or pour salt water over hair& skin before leaving shower. Apply coconut oil to skin. Put baking soda in baby powder shaker bottle. Sprinkle on carpet, keep in or near bed to sprinkle on skin when u feel crawlies at night. Carry small shaker jar (from spices) with baking soda or salt in purse & car to sorinkle down shirt ir oants as needed. Salt packet at restaurant will work too.Wash clothes daily. If not possible, then spray with rubbing alcohol or lysol. Use them in any areas u feel buggy. Lysol is safer around electronics than alcohol. Vacuum daily. Clean clutter. Play HZ (for parasites & bacteria, fungus) from youtube or other source at bedtime & play near areas u sit or closets that feel buggy. U can add 1/2 tsp. (Not more) to glass of water & drink it once a day untill u feel better, then as needed.

There is no cure, but this combination removed symptoms enough to feel & look as if cured & helped to sleep which reduced fatigue. It also reduces chance of spreading it to others.

We got exposed at a movie theatre 2011. Both felt bugs crawling & biting on our lower legs.

Tried everything till this combination worked. They are also attracted to magnets (saw under own microscope). These appear to be a bacteria/fungus that attaches to our dna & nervous system. So no, you are not crazy. Its not in your head. We do not take mood pills for it, but benadryl or valarian root at night does help as needed.

Liked by beryl, desi1

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@desi1

I have a Friend in another group that was also diagnosed with Lyme and Rocky Mountain spotted fever about a year ago when she 1st started suffering from the morgellons She did rounds of antibiotics with no success only temporary relief. I'm still at the belief that the medical community is not going to be able to solve this problem anytime soon because there is no pay off for them.
That is not to say that the doctors themselves aren't trying but without Big pharmas
Incentive being able to profit From this because it is diet and such There is no reason for them to fund research and well The research I've done is from people that started researching in the nineties the stuff has been around for a while and those folks are doctors biologist and scientists and they say without the actual suffer themselves doing the work by changing their diet taking the supplements the NAC the vitamin C the probiotic nothing will change. There's just some things that you have to take initiative and take care of yourself. The worst part about it as it starts with diet so if you have poor eating habits you may find temporary relief at times of different experiments being done by your doctor but you will not find any kind of long term effects
And although my post start being replied to I also agree with barrels veterinarian from Italy.

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Yes. And sugar makes sumptoms worse.

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I have the EXACT same issue!
Started after an infested plant I bought. I saw a very white flying insect in my closet at the same time it all stated. Looked like a tiny moth. It was very white, pearly white.
Then I had white fuzz all over my apartment, super strange.
I’ve been battling this for 10 months now. My scalp is getting better but still “things” under the skin that comes out.
Nightmare!

Of all I’ve tried this is what seems to work best: feenbendazole, ivermectin, mineral supplement, tea tree oil, UV therapy, zinc shampoo

I was also on antibiotics 3 weeks doxycycline and Bactrin

That helped my joint pain and fatigue go away but not the scalp critters.

It is definitely some kind of flying white fly/mite/moth/aphid /flea involved in this.

I feel it is some kind of agricultural pest that infest fruit crops. The ones that ovipositor eggs inside of fruit. Micro leaf miner of some sort.

Google lint bug or lint mites
So many people dealing with this micro bug, but nobody seems to know what it is.
So confusing!

If you have found out anything new please let me know

Stay strong
Marilyn in NYC

Liked by beryl

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Hi @mallney and welcome to Connect! Thank you for sharing what has worked for you.

I wanted to introduce you to @basslakeview @sarahbearas @gregcuratolo @htowngrandma @desi1 @thurst and @beryl would like to hear about your success.

How did you arrive at the list of treatments that works? Did you run through several options before finding the best combination?

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@htowngrandma

Tools for successful relief: salt, coconut oil, baking soda, lysol spray, rubbing alcohol in a spray bottle (can use peroxide spray nozzle directly in alcohol bottle) Bathe in salt water or pour salt water over hair& skin before leaving shower. Apply coconut oil to skin. Put baking soda in baby powder shaker bottle. Sprinkle on carpet, keep in or near bed to sprinkle on skin when u feel crawlies at night. Carry small shaker jar (from spices) with baking soda or salt in purse & car to sorinkle down shirt ir oants as needed. Salt packet at restaurant will work too.Wash clothes daily. If not possible, then spray with rubbing alcohol or lysol. Use them in any areas u feel buggy. Lysol is safer around electronics than alcohol. Vacuum daily. Clean clutter. Play HZ (for parasites & bacteria, fungus) from youtube or other source at bedtime & play near areas u sit or closets that feel buggy. U can add 1/2 tsp. (Not more) to glass of water & drink it once a day untill u feel better, then as needed.

There is no cure, but this combination removed symptoms enough to feel & look as if cured & helped to sleep which reduced fatigue. It also reduces chance of spreading it to others.

We got exposed at a movie theatre 2011. Both felt bugs crawling & biting on our lower legs.

Tried everything till this combination worked. They are also attracted to magnets (saw under own microscope). These appear to be a bacteria/fungus that attaches to our dna & nervous system. So no, you are not crazy. Its not in your head. We do not take mood pills for it, but benadryl or valarian root at night does help as needed.

Jump to this post

Thanks for the spice shaker idea for car!! Have you tried vinegar mixed with sea salt or Himalayan salt? ( also borax) I've found it is almost like a repellant. Do you take any supplements?? I feel like we are crash test dummies sometimes.

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If you search carnucorn or morgellons exposed or even watch some of his vids he is on point with a lot of info.
https://youtu.be/inVwVDdPCLg

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I know this is long, but I included a lot of details and my own experience with trial and error. So let me know if any of this helps you, or if you have already tried these things and it didn’t work.

I’m definitely not one to argue with holistic healing, and I think that is a big part of this. I was a practicing nutritional health coach before extreme fatigue set in 4 years ago. But what scares me is managing the symptoms with natural remedies and feeling better, but not knowing what could still be inside of our bodies. So first the facts… We know they have finally been able to link morgellons to the bacteria that causes Lyme. I am just learning, and many of you probably know this, that when it comes to Lyme other tickborne and insect borne illnesses, we are typically also infected with parasites that carry the same bacteria. In reputable studies, they have found these parasites in the brains of deceased lyme patients who have been treated with antibiotics. So I definitely believe there has to be a protocol that involves antibiotics and aggressive parasite protocol.

When I started seeing my life turn into a sci-fi movie, I knew I was going to lose my mind if I did not do something fast, and the doctors/ derms were no help at all. The first dermatologist did put me on minocycline which is one of the approved medications, especially if you cannot tolerate Doxy, but it did nothing for me at all. I believe at that point the parasitic load was so heavy that the antibiotics couldn’t put a dent in it. When no one would listen about the parasites, I began researching like crazy and bit the bullet with the ivermectin. It was not a cure, but it definitely calmed everything down immediately. But when I was still not cured, my doctor put me on Bactrim… We were still shooting bullets in the dark. We had not connected it to a possible Lyme diagnosis or any other chronic disease. It helped, but again no cure. Soon after, I used Albenzanole for 2 days. I think that would have done the trick if I would’ve had enough of it, and if I would have been taking antibiotics simultaneously. After that, I no longer had the weird gray streaking across my face, itching let up and my finger nail infection cleared up completely. However, I was still having a few symptoms and knew that it would likely come back. With almost all cutaneous parasitic infections, the suggested duration of meds are longer than a typical intestinal / stomach infection. At that point, I stopped taking everything and let it all clear it all from my body, then did the 3 day comprehensive stool analysis, which I am awaiting results on, and we did approximately $500 worth of lab testing for Lyme and related diseases, which I’m still waiting for as well. I know I may not get answers with either test, but for me it was worth a try. I also have so many Bartonella symptoms. My new doctor suspects Lyme and or Bartonella as well, so now that I have finished the testing, I am already on doxycycline and have been taking pyrantel pomiate (purchased from amazon) as I wait for my one-week supply of Albenzanole. Once or twice a day I start feeling very itchy, and I feel horrible, probably from the die off of the bacteria. But all of my other symptoms are fading away. The last lesion on my face is drying up. It might leave a scar, but at this point that’s the least of my worries. At this point, I feel deep down that I will be healed from this nightmare and I know that I am on the right track. Lots and lots of prayer and lots of research.

I’m going to share a protocol that I found. I am working on stocking up on some of these medications as we speak. I don’t want to take more than necessary, and I don’t want to take as much as was recommended in this book, but he makes some great points that are also validated by other physicians who specialize in morgellons and Lyme. I’ll copy that in my next reply.

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This comes from the book “Freedom from Lyme”, and he talks ALOT about the morgellons connection. This information is freely shared on his website, but I’ll paste some of the most relevant info, as well as the protocol he suggests, along with standard antibiotic treatment:

👉🏻 “As it turns out, these larger worms or parasites have some surprising properties. First, they can live outside the gut and throughout the rest of the body. Historically, worms and worm-like parasites were believed to be mostly confined to the gut. These new worms or parasites can take up residence with Borrelia, Babesia and Bartonella, take shelter within biofilm communities, and become important partners in the survival of the infections.”

👉🏻 “The anti-parasitic treatments included in most over-the-counter herbal cleanses are not typically powerful enough to accomplish the goals we are after; therefore, even if you’ve done parasite cleanses, you probably haven’t addressed more extensive parasitic infestations.”

👉🏻 “Many physicians and researchers now believe that there are also other, recently discovered community members living within the infectious colonies inside the body of an infected person. Modern science hasn’t solved all the mysteries surrounding this discovery, but we are beginning to uncover some answers to important questions. For example, we know that these community members are larger than Borrelia, Bartonella and Babesia, and we know that they play an important role in the Lyme complex. They are likely worm, or worm-like organisms, or even a number of different species of worm-like organisms. It is also possible that these organisms may have merged with Borrelia, creating a type of hybrid organism with shared DNA.”

👉🏻 “But there’s more. At least one top practitioner has discovered that worm DNA can be found in bacterial biofilm, meaning that larger and more complex organisms (worms) may be involved, to some degree, in the proliferation and survival of much smaller bacteria, such as Borrelia. In fact, it may be impossible to adequately treat Lyme disease biofilms without addressing this worm component. So, as you can see, the use of anti-parasite (and anti-worm) treatments may go a lot further than merely killing a few worms that may be living in the gut. Anti-worm therapies may have the capability to destabilize entire Lyme disease colonies located in deep tissue throughout the body, helping to destroy Lyme disease.”

👉🏻 “Profound Improvement Experienced with Parasite Treatment. These theories aren’t just academic. In fact, many Lyme sufferers are noticing huge improvements when using various anti-worm protocols. But it is important to be very clear here: Most of the well-known and often-used anti-parasite cleanses and herbal preparations are not capable of eradicating the parasites involved in Lyme disease. Keep reading to discover new solutions which offer much greater efficacy.”

👉🏻BASIC PARASITE PROTOCOL (This is on an “at your own risk” basis. I know that such a long durations of any medication can be very toxic, but I also believe that seeing so many things coming out of my body & feeling like a beaten dog every day is proof that there is already a big issue with toxicity. For me, I’ll take the risk, even if I do not take all of the meds or follow the exact duration. If you do not follow it completely, at least this gives us an idea of what has worked for the author & so many other sufferers with the same symptoms we are having).

“The following drugs are listed in the order in which they should be used. They are not used in combination; they are used separately and sequentially.

Biltricide—Use for 4 days.

Pyrantel pamoate—Use for 17 days.

Ivermectin—Use for 17 days.

Albendazole—Use for 17 days.

Alinia—Use for 17 days.

Notes on the Basic Parasite Protocol:

While the above recommendation for the number of days to use each drug can serve as a general guideline, I recommend that you tailor these recommendations based on the Antibiotic Rotation Protocol principles (see chapter 3).”

Liked by beryl

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One last thing… the only thing that has TOPICALLY helped active lesions, as many other posters have also said, is peroxide. I buy food grade, and I keep a diluted spray bottle for cleaning, door knobs & handles, pillows, etc. Putting straight peroxide on the lesions hurts like hell, and I was nervous about scarring and causing more damage, but the damage is greater the longer these nasty open lesions hang around. For me, I have to keep them DRY. So peroxide only. They love moisture, so the steroid cream and mupiceron made them last longer and kept them “puffy”. Perixide also helped to healed the weird fingernail infection I developed at the same time. I believe using the antiparasitic meds, along with peroxide on fingertips and nails as soon as the flareups start, has kept that completely dormant. It’s weird… when the infection is in an accute phase, it’s like a hundred needles poking me when the peroxide touches my skin. That initially scared me from using it. But now I know if you can bear it, it works.

Liked by beryl, shello2u

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Hi. I've got this too. Only on my scalp. Jeff it for so long now I thought I'd never hear the same symptoms as none of the usual pictures or verbage come close to my situation. Im gonna try not to happier into too much but let's just say that so far your post is identical to mine in many ways. When you speak of the"top layer " of hair its simply a labyrinth that cannot be undone! I've tried for over 10 years & have had short remissions or low laying bouts but have been fighting war, a solo, continual, hidden secret war! I'm hoping for anything that provides validation of my condition. I too have"specimens" that I've saved. And let me tell you there are some doozies! 🙁 Ive tossed most of my samples after reading how doctors react when in receipt of such collections to "inspect'. It's borderline hopeless & I would love to talk more with anyone living this hell

Liked by thurst

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I am so sorry. I cannot imagine what you must be going through. Indeed, it sounds like living hell. Stay strong. Keep searching for answers.

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