Lyme Disease and its Co-Infections, Morgellons Disease and Parasites

Posted by basslakeview @basslakeview, Aug 30, 2018

UPDATED 6/16/2019
Hi,
I am Elizabeth Bass and I live in Southeast Texas very close to Galveston and Houston Texas with my companion Millie, a Yorkie. I moved here in March 2018 from Northeast Texas (Longview/Tyler) with a scalp condition that keeps morphing into something else, each time getting worse. It began in May 2016, and here it is 2019 and I still have "it," but I've learned a whole lot I never really wanted to know.

I have no idea what exactly is wrong with me, but because of what I found in July 2018 on my pillow I'm thinking Morgellons because I found the same looking thing someone else had posted and they were talking about Morgellons. I have attached two photos, one close up and the other is the original so you can have an idea of the actual size.

I also have these white sparkly/shiny critters on every inch of my body, especially my hair/scalp, and face/neck. They can only be seen if I take a picture using my camera with the FLASH ON. Otherwise, no one would know there is anything wrong with me.

This was discovered by accident when in May 2016 I got my long hair all cut off. Right after that (about a month) my head started itching in the upper center back. I couldn't see anything in a mirror so I picked up my phone and took a picture. I still couldn't see very well so I turned the flash on. THAT WAS IT!! (I saw more than I wanted to see.) At first I thought I had bed bugs and did everything I could to get rid of them, including lice treatment. Then I started seeing these shiny, sparkly-looking things. I accidentally caught some of them on camera flying around my head. I kept trying everything I could to rid myself of "them," but nothing has worked so far. However, it is now June 2019 and "the condition" only changes (morphs). It never goes away. I have seen 9 dermatologists, 2 derm PAs, 2 internists, and 2 GPs, a total of 16 (maybe more), counting the one I'm with now since "it" began. My hair fell out in that spot, I had lesions where the hair was missing, and when a new lesion would begin it was always itchy, then that hair would fall out, too. My hair grew back, but not quite as thick.

The fever and rash went away, but the achiness and lethargy/fatigue has stayed with me all these years. About a year or two after that fever, and after going to many, many doctors between Shreveport, Dallas, Tyler, and Houston, one of them said I have Fibromyalgia & Chronic Fatigue. I simply took his word for it. I was so very tired of seeing doctors, doing lab work, driving and working a full time, stressful job. I needed a break!

Then in 1999 I lost my left kidney to an oncocytoma (tumor the size of a softball), benign. Lost my gallbladder in 2004, had carpal tunnel surgery on both wrists at the same time in 2005. I don't think there's much left. I had already had a thyroidectomy in my 20s (Graves Disease), and a hysterectomy in 1986. Then, the BIGGEST loss of my life…my only child in 2013. I honestly did not think I was going to make it.

I had told every single one of ALL those doctors the story of the high fever and rash and how my GP thought it was Lymes, but lab was negative, and not ONE of them (nor me) simply thought of running another Lyme test until last year 2018. On Sept 18, 2018, my 72nd birthday the results were in and I was at my doctor's office with my sister to get the results. That test came back with all sorts of red flags, 30 years later!

Now I am 72 and the second antibiotic I'm on is not doing anything. After one month on Doxycycline (had to stop because my liver didnt like it) and two months on Clindamycin I haven't noticed anything positive, but that doesn't mean nothing is happening, RIGHT?!!. For some reason she didn't put me on anything else right away after the Doxy. Maybe I had to give my liver time to heal. She never said why, and I forget to ask these questions. I think I am going to simply start feeling POSITIVE about things no matter which way they go!!

UPDATE: I finally found a doctor who 'seems' to want to help me. She ran a Lyme test on my blood and was very excited she could help me which was very encouraging as you can imagine.

I have had Lyme Disease and a co-infection called Rocky Mountain Spotted Fever (since 1988-1990ish, 30 years ago). I remember it like it was yesterday. I had a high fever, achiness all over like a flu sickness, and a rash. It was not a flu. And the first thing he said to me was, "It looks like Lymes Disease to me!" Unfortunately, the lab report came back negative and neither one of us thought to do another test.

Yet, for some reason, I keep replaying one of my favorite songs in my head, Eric Clapton's, "NO MORE TEARS IN HEAVEN." (It makes me smile because I know I WILL see my son again and be able to talk to him.)

Ever heard of of the song? Check it out. Just Google it and listen.

USEFUL WEBSITES:

(https://thecehf.org).
To contact them: http://thecehf.org/contact.html

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6287027/ (You have to create a sign in with a password, but it's very simple and it's free.)

@beryl

It's Beryl wishing you the best of British luck with the new Doctor…..let us know how you get on…….

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Beryl, I definitely will. After a few complications I missed my first appointment, but have rescheduled for Sept. 18 (my birthday). I plan to write down questions for her, take photos, and specimens I've been keeping in Ziploc bags.

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@gardeningjunkie

Your photos clearly show white circular matter. Are they really that size or are the globes just shiny and reflective so it appears magnified.

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I posted the original photo which hasn't been altered at all, and the one I saved "after" zooming in. I try to always post the original photo with any other I've enlarged/zoomed/written on, etc.
Is this not interesting? You open the original photo on your computer and enlarge to see what it looks like and let me know. It may just be my camera?!

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@jerrygeneckty

I'm sorry for your losses. I wish the sincere best. Perhaps through counseling you may have resolve of your illusory symptoms. It is an unfortunate matter when a brain begins deterioration and such manifestations begin to work on one's mind creating disconnect from sensible reality. I would recommend psychiatric evaluation in it being the most hopeful resolve to such a condition of the psyche. I would strongly suggest referencing the CDC study and as well other institutional studies confirming Morgellons and the like to be delusional parasitosis. This response has no ill will, please be assured. I cannot imagine the steps one must take to come to realize and accept such things are manifestations of the mind, in order to try to begin healing and repairing, or the mind floating away forever lost. Best regards, wishes and luck.

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Have you not viewed the photos I've posted? If you have, how do you explain what is seen? If you have not, please do so. If, after viewing the photos, you think the same way all I can say is everyone is entitled to their opinions. Best to you and your health and I hope you never experience any parasitic reactions in your lifetime.

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Go to this link for information on serious studies all over the world of thousands of scientists who all work together comparing notes and communicating their findings. It has become a serious study and I have been trying to follow; however, I am not a scientist, only a lay person, but for those out there who are also interested. I feel this is a reputable website.
https://www.ncbi.nlm.nih.gov/pubmed/29774138
Elizabeth

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Just a few more recent photos, before shower on 9/15/18.
Please use your computer monitor to view photos unless you have a large phone screen which enables you to zoom in on photographs without distorting too much.

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These two photos are of what I found after showering on 9/15/18. Please use your computer monitor to view so that you can zoom in on them with little distortion. Otherwise, you can't really see the evidence clearly.

I use to have lesions on other parts of my body, too, but I found some debriding soap solution that has worked great so far on my body, but still have problems with my scalp, but I've only been using these products for a few weeks. It's better than going to , so far, 12 board certified doctors, 9 of whom are dermatologists.

It's called "NG (Natures Gift) Debriding Soap". This debriding soap, he said, is based on angstrom technology or quantum chemistry. He goes on to say angstroms or the tiniest particles of physical matter known to science. There is much more VERY INTERESTING information in his book entitled, "How To Get Your Life Back from Morgellons and other Skin Parasites" and you can download it for free without having to buy anything http://www.debridingsoap.com.

I have also been using other Natures Gift products as well, plus other minerals (like MSM capsules of organic sulfur, "Allicin" (Garcillin) (allicin is a part of garlic, but much stronger) which I take internally to try to help the situation, and another one that eludes my memory at the moment, but if you are interested go to the website, register, and he will send you the link to download the book free.

The website also tries to help those who cannot afford these products so it's not JUST a for profit company. This man didn't have Morgellons, but he fought another parasite for about 10 years before he found a solution, mostly in the form of a diet he has formulated through those years of trial and error. Some say the diet is the real secret. (Hey, I've gone from a size 14 pant to a size 10). He kept a diary and ended up writing a book about his experiences.

He really does try to help people. His name is Richard Kuhns, B.S. Ch.E.

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@basslakeview

I posted the original photo which hasn't been altered at all, and the one I saved "after" zooming in. I try to always post the original photo with any other I've enlarged/zoomed/written on, etc.
Is this not interesting? You open the original photo on your computer and enlarge to see what it looks like and let me know. It may just be my camera?!

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To: gardenjunkie (in answer to your inquiry)

Use the ORIGINAL photo, look closely at it, and zoom in on the white dot. That's how I saw it.

I almost deleted the photograph because I couldn't see anything of significance, then there was a minute white dot on the right side of the photo so I enlarged it and that is what I saw.

No altering done, honestly!! I'm not saying what it is because I don't know, but thought it was interesting enough to post. Maybe someone else knows and will post a scientific response…NOT an alien science fiction one!
Elizabeth

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@basslakeview

To: gardenjunkie (in answer to your inquiry)

Use the ORIGINAL photo, look closely at it, and zoom in on the white dot. That's how I saw it.

I almost deleted the photograph because I couldn't see anything of significance, then there was a minute white dot on the right side of the photo so I enlarged it and that is what I saw.

No altering done, honestly!! I'm not saying what it is because I don't know, but thought it was interesting enough to post. Maybe someone else knows and will post a scientific response…NOT an alien science fiction one!
Elizabeth

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You photos are amazing. If these flecks could be collected for examination by a lab you would get answers. It could be a parasite or just just sloughed skin. Even dandruff flakes and floats off, I know because I need to clean around my husbands office chair upsholstered with dark leather and has black handles, easy to see as the dandruff is white. Also if not a parasite living externally but a bacteria similar to Lyme disease inside your skin which causes waste particles to be erupted from your cells. The article I read about this strand forming form of bacteria said the waste was made up of collagen and something else, but it was a shiny matter. As clear as these flecks are it does seem they would be easy to capture if you laid on plastic for a few hours, either combing hair or running hands through your hair and then the samples could be gathered. Perhaps try doing this, read a book or watch TV, and then see if you can get photos of the particles.
When others talk about things they can't see and don't understand I always think of man believing the world was flat. Common sense right? That is all we could comprehend with our limited knowledge.

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@basslakeview

To: gardenjunkie (in answer to your inquiry)

Use the ORIGINAL photo, look closely at it, and zoom in on the white dot. That's how I saw it.

I almost deleted the photograph because I couldn't see anything of significance, then there was a minute white dot on the right side of the photo so I enlarged it and that is what I saw.

No altering done, honestly!! I'm not saying what it is because I don't know, but thought it was interesting enough to post. Maybe someone else knows and will post a scientific response…NOT an alien science fiction one!
Elizabeth

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Elizabeth – I do believe you. My husband has suffered with some kind of skin malady for a decade now and I did investigate Morgellons back when his malady began, am sure there is much more and better information now. We did go thru 2 years of h*** during topical steroid withdrawal – that's a whole different story, but also one which many drs – even allergists and dermatologist do not believe and refuse to work with you. I thought I could find the dr who has begun a program to study Morgellons, but that was several years ago … I'll keep looking. In the meantime – Godspeed for us all.

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@gardeningjunkie

You photos are amazing. If these flecks could be collected for examination by a lab you would get answers. It could be a parasite or just just sloughed skin. Even dandruff flakes and floats off, I know because I need to clean around my husbands office chair upsholstered with dark leather and has black handles, easy to see as the dandruff is white. Also if not a parasite living externally but a bacteria similar to Lyme disease inside your skin which causes waste particles to be erupted from your cells. The article I read about this strand forming form of bacteria said the waste was made up of collagen and something else, but it was a shiny matter. As clear as these flecks are it does seem they would be easy to capture if you laid on plastic for a few hours, either combing hair or running hands through your hair and then the samples could be gathered. Perhaps try doing this, read a book or watch TV, and then see if you can get photos of the particles.
When others talk about things they can't see and don't understand I always think of man believing the world was flat. Common sense right? That is all we could comprehend with our limited knowledge.

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Yes, I agree. It could be something simple and I hope it is. The thing is, I think I am just tired. I wish I could simply stick my head in the sand and be oblivious to everything around me or that God would just take me home so I can rest with no worries. Ah, that sounds so wonderful!

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@barbarn

Elizabeth – I do believe you. My husband has suffered with some kind of skin malady for a decade now and I did investigate Morgellons back when his malady began, am sure there is much more and better information now. We did go thru 2 years of h*** during topical steroid withdrawal – that's a whole different story, but also one which many drs – even allergists and dermatologist do not believe and refuse to work with you. I thought I could find the dr who has begun a program to study Morgellons, but that was several years ago … I'll keep looking. In the meantime – Godspeed for us all.

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@barbarn
I found a doctor in Houston back in the mid 90s. I lived in northeast Texas (Longview) and drove 4-1/2 hours each way to see her.

Where do you live? Not a physical address. Just an area.

I met her and used her expertise at the time since no one else knew anything about fibromyalgia and chronic fatigue in the mid 90s. After going to almost every neurologist between Shreveport, La. and Dallas, Tx. she was a God send. I moved to her area in March 2018 and have re-established a patient/doctor relationship again.

I went to her about my scalp/skin issues (Morgellons), but to my surprise (and hers I might add) they found another issue, "Lyme Disease". After 7 vials of blood and other tests such as an EEG, it turns out that intead of the flu (I thought I had in 1991) it was Rocky Mountain Spotted Fever. She said I was very lucky. A lot of people have died from the fever. I will never forget that winter. I had NEVER had the flu before. I thought I was literally dying! I wondered, how do people go through this? I've known some who have had the flu many times.
Because of the severity, Morgellons got put on the "back burner." (Just for a little while.) But it is still a parasite disorder so maybe by treating the Lyme, it will also help the Morgellons. That's the only new thing so far with me. I am still on the King's Diet for Morgellons, however, and I have lost 12 pounds so far…YAY!! I am still using other Nature's Gift products to help.
God bless and best wishes for an answer soon.
Elizabeth

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@basslakeview

@barbarn
I found a doctor in Houston back in the mid 90s. I lived in northeast Texas (Longview) and drove 4-1/2 hours each way to see her.

Where do you live? Not a physical address. Just an area.

I met her and used her expertise at the time since no one else knew anything about fibromyalgia and chronic fatigue in the mid 90s. After going to almost every neurologist between Shreveport, La. and Dallas, Tx. she was a God send. I moved to her area in March 2018 and have re-established a patient/doctor relationship again.

I went to her about my scalp/skin issues (Morgellons), but to my surprise (and hers I might add) they found another issue, "Lyme Disease". After 7 vials of blood and other tests such as an EEG, it turns out that intead of the flu (I thought I had in 1991) it was Rocky Mountain Spotted Fever. She said I was very lucky. A lot of people have died from the fever. I will never forget that winter. I had NEVER had the flu before. I thought I was literally dying! I wondered, how do people go through this? I've known some who have had the flu many times.
Because of the severity, Morgellons got put on the "back burner." (Just for a little while.) But it is still a parasite disorder so maybe by treating the Lyme, it will also help the Morgellons. That's the only new thing so far with me. I am still on the King's Diet for Morgellons, however, and I have lost 12 pounds so far…YAY!! I am still using other Nature's Gift products to help.
God bless and best wishes for an answer soon.
Elizabeth

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You are one tough cookie, going through hell and still persevering. Please keep at it and keep us posted on your (successful) progress.

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