Lyme Disease and its Co-Infections, Morgellons Disease and Parasites

Posted by basslakeview @basslakeview, Aug 30, 2018

UPDATED 6/16/2019
Hi,
I am Elizabeth Bass and I live in Southeast Texas very close to Galveston and Houston Texas with my companion Millie, a Yorkie. I moved here in March 2018 from Northeast Texas (Longview/Tyler) with a scalp condition that keeps morphing into something else, each time getting worse. It began in May 2016, and here it is 2019 and I still have "it," but I've learned a whole lot I never really wanted to know.

I have no idea what exactly is wrong with me, but because of what I found in July 2018 on my pillow I'm thinking Morgellons because I found the same looking thing someone else had posted and they were talking about Morgellons. I have attached two photos, one close up and the other is the original so you can have an idea of the actual size.

I also have these white sparkly/shiny critters on every inch of my body, especially my hair/scalp, and face/neck. They can only be seen if I take a picture using my camera with the FLASH ON. Otherwise, no one would know there is anything wrong with me.

This was discovered by accident when in May 2016 I got my long hair all cut off. Right after that (about a month) my head started itching in the upper center back. I couldn't see anything in a mirror so I picked up my phone and took a picture. I still couldn't see very well so I turned the flash on. THAT WAS IT!! (I saw more than I wanted to see.) At first I thought I had bed bugs and did everything I could to get rid of them, including lice treatment. Then I started seeing these shiny, sparkly-looking things. I accidentally caught some of them on camera flying around my head. I kept trying everything I could to rid myself of "them," but nothing has worked so far. However, it is now June 2019 and "the condition" only changes (morphs). It never goes away. I have seen 9 dermatologists, 2 derm PAs, 2 internists, and 2 GPs, a total of 16 (maybe more), counting the one I'm with now since "it" began. My hair fell out in that spot, I had lesions where the hair was missing, and when a new lesion would begin it was always itchy, then that hair would fall out, too. My hair grew back, but not quite as thick.

The fever and rash went away, but the achiness and lethargy/fatigue has stayed with me all these years. About a year or two after that fever, and after going to many, many doctors between Shreveport, Dallas, Tyler, and Houston, one of them said I have Fibromyalgia & Chronic Fatigue. I simply took his word for it. I was so very tired of seeing doctors, doing lab work, driving and working a full time, stressful job. I needed a break!

Then in 1999 I lost my left kidney to an oncocytoma (tumor the size of a softball), benign. Lost my gallbladder in 2004, had carpal tunnel surgery on both wrists at the same time in 2005. I don't think there's much left. I had already had a thyroidectomy in my 20s (Graves Disease), and a hysterectomy in 1986. Then, the BIGGEST loss of my life…my only child in 2013. I honestly did not think I was going to make it.

I had told every single one of ALL those doctors the story of the high fever and rash and how my GP thought it was Lymes, but lab was negative, and not ONE of them (nor me) simply thought of running another Lyme test until last year 2018. On Sept 18, 2018, my 72nd birthday the results were in and I was at my doctor's office with my sister to get the results. That test came back with all sorts of red flags, 30 years later!

Now I am 72 and the second antibiotic I'm on is not doing anything. After one month on Doxycycline (had to stop because my liver didnt like it) and two months on Clindamycin I haven't noticed anything positive, but that doesn't mean nothing is happening, RIGHT?!!. For some reason she didn't put me on anything else right away after the Doxy. Maybe I had to give my liver time to heal. She never said why, and I forget to ask these questions. I think I am going to simply start feeling POSITIVE about things no matter which way they go!!

UPDATE: I finally found a doctor who 'seems' to want to help me. She ran a Lyme test on my blood and was very excited she could help me which was very encouraging as you can imagine.

I have had Lyme Disease and a co-infection called Rocky Mountain Spotted Fever (since 1988-1990ish, 30 years ago). I remember it like it was yesterday. I had a high fever, achiness all over like a flu sickness, and a rash. It was not a flu. And the first thing he said to me was, "It looks like Lymes Disease to me!" Unfortunately, the lab report came back negative and neither one of us thought to do another test.

Yet, for some reason, I keep replaying one of my favorite songs in my head, Eric Clapton's, "NO MORE TEARS IN HEAVEN." (It makes me smile because I know I WILL see my son again and be able to talk to him.)

Ever heard of of the song? Check it out. Just Google it and listen.

USEFUL WEBSITES:

(https://thecehf.org).
To contact them: http://thecehf.org/contact.html

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6287027/ (You have to create a sign in with a password, but it's very simple and it's free.)

@basslakeview Are these parasites related to lice at all? I cannot imagine having them for so long. I think that's very considerate of you to miss out on things with your daughters because you don't want to expose them, since it seems it is so difficult to get rid of this. I hope you and the others suffering from this can find a doctor somewhere who can help.
JK

REPLY
@beryl

Hello Elizabeth it's Beryl….I wondered how you were getting on …..you I hope are winning the struggle …..but you have now found out that there are many others with the same unbelievable disease ……hopefully you will,win in the end but meantime you are helping others that thought they were crackers….
I am in Sicily not very far from Etna which I expect you have heard has come to life and is erupting …..we had a quiet night last night …its been a bit scary as the house shakes and rocks when it blows …..still streams of smoke and steam coming from it but we are ok……Beryl

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@beryl I guess I have been too busy to pay much attention to the news, I had no idea that Etna was erupting. We have vacationed in Taormina two times and loved it. My husband's father came from Trecastagni so we visited there also. All of the people we met were so helpful and welcoming.
JK

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@basslakeview

More photos as requested…

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Well, I have the same thing going on here. If I feel a sting or crawling sensation, I will rub some clove oil on the area and something usually surfaces to emerge from my skin.
I read an article that stated Morgellons gas three stages. Stage 1 is the itching and white, granular objects will appear from hair follicles. Stage 2 is the black, pepper-like specks which are what I usually find when I hit them with clove oil. Stage 3 is when the fibers appear from lesions.
I seem to have held my disease at Stage 2 with regression to Stage 1.
I got anti-fungal cream from the doctor and it is helping.
I also use baking soda and antibacterial liquid on my head and use a solution of lemon juice, bleach, and water on my body. Weak enough to not burn my skin.
I am also trying to get probiotics into my gut as fast as I can while cutting out as much sugar as possible.
I hope to find a dermatologist to help me kill this crap and wish you luck.

Liked by beryl

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Hi @lover710115 and welcome to Connect! It's great that you are finding some solutions to the side effects and that you think there has been some regression.

I wanted to introduce you to @basslakeview @sarahbearas and @gregcuratolo as they have all experienced this as well.

Have you had any luck at finding a dermatologist yet?

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I am in complete disbelief at the similarities in our stories and the pictures! I would love to hear any updates you might have, and I will share my story and the things I have done and am doing that have given me so much relief.

I have been to so many forums and websites and have had a difficult time relating with the posters. But seeing your story and hearing your words, I that you are credible, and I feel your pain. I am a 38-year-old Mom around the Dallas-Fort Worth area. I have never had a single acne scar until this nightmare started in about a year and a half ago. But I did notice prior to that that I would get pimples that seem to take forever to heal, and there also seem to be some sort of a film involved on my skin, I assume to protect whatever the culprit was (maybe a biofilm). So instead of my scalp, my face has been most heavily attacked. But I was like you, in the beginning I thought I had scabies or bedbugs or something horrific like that, I wouldn’t lie down with my kids at night, didn’t really hug them, and spent every waking moment trying to figure this out so I could go back to my every day life. I had forgotten my kids had a microscope, so every time I would see these black specs on my face, I would look at them magnified. They always look like some kind of black shiny thread twisted around. I kept thinking that I was accidentally looking at a piece of a washcloth or my fibers from my clothing etc.

Then things started going beyond my skin. I would find odd unexplainable “things”, usually black, in my house. I began losing weight, and wasn’t sure if that was from stress or an also unexplained phenomenon. My thyroid suddenly tested extremely low on my lab work, which was odd because I am down to about 105 pounds (I’m only 5’3 so I’m not dying 😉) And the veins in my arms began to bulge, which is embarrassing.

Anyway, I have been to so many dermatologist who have treated me like I’m a lunatic and I have left in tears almost every time. Finally my general practitioner met with me again yesterday and apologized that he had not been more proactive. He truly believes in morgellons, and he has also spent a lot of time researching lyme. I have also found that they are linking the bacteria that causes Lyme with morgellons. So we did probably $500 worth of lab work yesterday which should be back in a week. I know the labs may not show anything, and my basic labwork certainly has not, except my thyroid. I also did a three day stool analysis last week, because I know there has been a parasitic component all of this, and I am also awaiting those results.

When all of this started and I suspected some type of parasite, I was prescribed Mebendezol Because that was about all they could find around here. But everything I’ve read shows that Albenzanole is so much more effective when it comes to these cutaneous infections. Lyme is known to open you up to a larger parasitic load, so it makes sense that is one reason why line patients feel so badly. So my thinking was, if no doctor can help me call that I am at least going to try to kill off some of the parasites. I broke down and ordered albendazole from EBay/ India. It was a desperate move, but I received more relief from that within hours that I had for me anything else. I haven’t developed any more lesions, weird streaks in my skin or felt that intense itchy feeling. However, they lesions that were already there will not heal, so yesterday my doctor started me on Doxycycline. He said if the line test is positive, that is the antibiotic he would prescribe anyway, and it is also prescribed for skin infections. I can definitely say that it is healing the enormous lesion that had developed between my eyes, and I just started on it yesterday so that’s a plus.

To be honest, once my symptoms start to go away for a little while, I seem to forget a lot of what I’ve seen and I start second-guessing myself. But to see your post and hear your story, it gives me hope that I am not completely neurotic and that we will find a cure. Even with proof, my husband is skeptical of the things that I tell him, and I am just learning that people really see and hear exactly what they want to see & hear. It is too disruptive for people to believe this could be happening in someone’s body.

Liked by beryl

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@basslakeview

Hello, neighbor.
This is basslakeview (Elizabeth Bass) in El Lago, TX (between Houston and Galveston on Clear Lake near Trinity Bay), just off I-45 at NASA BYPASS.
I've have also just been formally tested and found out that I've had Lymes Disease and Rocky Mountain Spotted Fever for 27 years, and now have Morgellons as well. I also have just acquired what ophthalmologists call blepharitis, but is actually Demodex Mites (EVERY human has them except some newborns), but for some unknown reason they choose to call it Blepharitis. I'm sure someone knows why they do it. I just don't know what it is.

I, too, was diagnosed in 1991 after a high fever I thought was the flu, with Fibromyalgia/Chronic Fatigue, but just found out it was the Rocky Mountain Spotted Fever/Lyme Disease. I wonder how many others like us have it as well?!!

My doctor in Houston told me a lot of people dont make it through the fever. I will never forget it because of the pain and suffering that came along with it and stayed so far now for 27 years this winter.

I have heard that we need to be disinfecting our homes on a constant basis, but the main thing is eating a special diet (of everything I dont like). Lots of meat, rice, very few vegetables, lots of butter, nothing sweet except for Stevia sweetener and more food than I've listed, but can't remember everything now. If you're interested and have never heard of Richard Kuhn, I will send you a link to his information. His theory is that most of us can cure ourselves with only the special diet. We dont need all the other stuff except for comfort and to lessen the itchyness. The diet has been the hardest for me because I'm not much of a meat eater. I will eat grilled chicken and a nice, perfectly grilled steak, and some tender bbq and ribs. I like pork, but I try not to eat too much. I dont feel it's good for me.

If you just sign up on Richard's website he will let you download his book for free. There are many other books and places on the internet where you can read people's research papers.
If you're interested I will send the links.

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Hi! Nice to know not alone in the struggle. Took dog to vet and no one listened to looking at soars under microscope. I get the crazy star I guess. BF actually shaved his head fighting this. I seen first hand the fibers in his skin thru the miscroscope. Please feel free to contact me via text at 281-851-3234 when you have time. Since we are both in Houston area I would like to compare notes if you have time. Thanks and best wishes for you!

Liked by beryl

REPLY
@thurst

I am in complete disbelief at the similarities in our stories and the pictures! I would love to hear any updates you might have, and I will share my story and the things I have done and am doing that have given me so much relief.

I have been to so many forums and websites and have had a difficult time relating with the posters. But seeing your story and hearing your words, I that you are credible, and I feel your pain. I am a 38-year-old Mom around the Dallas-Fort Worth area. I have never had a single acne scar until this nightmare started in about a year and a half ago. But I did notice prior to that that I would get pimples that seem to take forever to heal, and there also seem to be some sort of a film involved on my skin, I assume to protect whatever the culprit was (maybe a biofilm). So instead of my scalp, my face has been most heavily attacked. But I was like you, in the beginning I thought I had scabies or bedbugs or something horrific like that, I wouldn’t lie down with my kids at night, didn’t really hug them, and spent every waking moment trying to figure this out so I could go back to my every day life. I had forgotten my kids had a microscope, so every time I would see these black specs on my face, I would look at them magnified. They always look like some kind of black shiny thread twisted around. I kept thinking that I was accidentally looking at a piece of a washcloth or my fibers from my clothing etc.

Then things started going beyond my skin. I would find odd unexplainable “things”, usually black, in my house. I began losing weight, and wasn’t sure if that was from stress or an also unexplained phenomenon. My thyroid suddenly tested extremely low on my lab work, which was odd because I am down to about 105 pounds (I’m only 5’3 so I’m not dying 😉) And the veins in my arms began to bulge, which is embarrassing.

Anyway, I have been to so many dermatologist who have treated me like I’m a lunatic and I have left in tears almost every time. Finally my general practitioner met with me again yesterday and apologized that he had not been more proactive. He truly believes in morgellons, and he has also spent a lot of time researching lyme. I have also found that they are linking the bacteria that causes Lyme with morgellons. So we did probably $500 worth of lab work yesterday which should be back in a week. I know the labs may not show anything, and my basic labwork certainly has not, except my thyroid. I also did a three day stool analysis last week, because I know there has been a parasitic component all of this, and I am also awaiting those results.

When all of this started and I suspected some type of parasite, I was prescribed Mebendezol Because that was about all they could find around here. But everything I’ve read shows that Albenzanole is so much more effective when it comes to these cutaneous infections. Lyme is known to open you up to a larger parasitic load, so it makes sense that is one reason why line patients feel so badly. So my thinking was, if no doctor can help me call that I am at least going to try to kill off some of the parasites. I broke down and ordered albendazole from EBay/ India. It was a desperate move, but I received more relief from that within hours that I had for me anything else. I haven’t developed any more lesions, weird streaks in my skin or felt that intense itchy feeling. However, they lesions that were already there will not heal, so yesterday my doctor started me on Doxycycline. He said if the line test is positive, that is the antibiotic he would prescribe anyway, and it is also prescribed for skin infections. I can definitely say that it is healing the enormous lesion that had developed between my eyes, and I just started on it yesterday so that’s a plus.

To be honest, once my symptoms start to go away for a little while, I seem to forget a lot of what I’ve seen and I start second-guessing myself. But to see your post and hear your story, it gives me hope that I am not completely neurotic and that we will find a cure. Even with proof, my husband is skeptical of the things that I tell him, and I am just learning that people really see and hear exactly what they want to see & hear. It is too disruptive for people to believe this could be happening in someone’s body.

Jump to this post

I am so glad that something is happening and more people are coming forward to tell about their experiences with this horrible thing ….Elizabeth was the first person and since then more of you have come forward ….including a dog …..which I said there was a connection …..they get it from cows it seems ……my Italian vet many years ago said that in Wales……I hope all this brings it to the surface and some body starts a very much needed look into this and finds a cure ……..Bery.

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Hi. I feel for your dilemma. I just wanted to send you a possible solution. Can you make a bunch of mud? Put it all over your body and smother them. I am not sure it will work, I just had to write it in case. ( papergarden under itchy allergy)

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@beryl

I am so glad that something is happening and more people are coming forward to tell about their experiences with this horrible thing ….Elizabeth was the first person and since then more of you have come forward ….including a dog …..which I said there was a connection …..they get it from cows it seems ……my Italian vet many years ago said that in Wales……I hope all this brings it to the surface and some body starts a very much needed look into this and finds a cure ……..Bery.

Jump to this post

Funny that you said that… read an article at ncbi that talks about cattle receiving much more interest in obtaining a diagnosus and cure than human beings are (because I guess they can’t accuse cattle of being dilutional)

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It's good to see that people are coming together as this can definitely make you feel like you're crazy and alone. I am on day 4 sitting in my car because I can't go into my house anymore it is overrun by the more gelon's that nobody else seems to see or care about. I believe mine was brought on by a toxic mold environment which lowered my immune system and allowed the freak show to begin. Unfortunately through all of my research and i am talking hours days piles and piles I don't look for the medical community to acknowledge this any time soon as there doesn't appear to be a pharmaceutical cure. I am completely in belief that this is a fungus and has a bio film slime mold whatever you wanna call it component. The things that I have heard the best about skii potassium iodine as well as NAC and vitamin C. The borax baths help along with baking soda and vinegar and a little gem as bentonite clay. There is definitely an animal connection as well as I feed feral cats and have seen the morgellons in one of them.. I'm in the San Diego California or Southern California area and now that I know what to look for I see it everywhere on people's cars in stores and restaurants just everywhere and the only thing I can think of is that those of us that are affected by it take care of ourself discontinue eating meat unfortunately because I love a good fat juicy steak and use the probiotic, potassium iodine the NAC and the vitamin C as well as vitamin D and never hurts to use some b for energy. I'm going to go try and find the most help full links I found and hopefully they can help somebody else.
For you guys in Texas you guys are super lucky there happens to be a lady that specializes in fungus which is what morgellons ultimately is if you've watched it close enough you've seen it spore and spread.
Ps, Also along with it comes a lot of CO infections which I do believe to Bay parasitic in nature From what I read cleaning out your gut near intestines is the best thing to do for that.
Shampoo that has helped me is doctor boner's pepperman it's all natural you can find it online it's not very expensive. There's also bar soap I use the same.
https://goop.com/wellness/health/how-to-identify-hidden-mold-toxicity-and-what-to-do-about-it/

Liked by desi1

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I just realized how many pages this post actually is and I really wish I wouldn't have. to the people that are actually suffering from morgellons don't listen to these people that are telling you you're Delusional or crazy. The original posters pictures clearly clearly show what is going on it's sad to see folks come on here and recommend that you take psychiatric drugs and just cover up your symptoms that's what this world thinks will fix problems is covering up one symptom with 1 drug and then taking another drug to cover up the symptoms that the 1st drug caused. unfortunately it's not that simple there are so many infections that go along as a result of the morgellons that the medical community is dumbfounded if you can't use Google to find an answer and you actually have to be a clinician and pull out your microscope and do the grunt work If you don't have the $$$$$ from a pharmaceutical company backing you why are you gonna go the extra step because one patient is standing there showing you clearly right in front of your eyes what's going on it's easier to not believe it it's easier to sweep it under the rug it's easier if you can't explain it to act like it doesn't exist keep acting like that folks until it happens to your child or to your animal or Spouse or to yourself this disease is a lonely debilitating if not treated nightmare that many people die from not the disease it self but because their families and friends abandon them people claim their delusional they can't handle it any longer and they kill themselves so before you come on here and tell Somebody they need to seek psychiatric help think about what you're saying and if you're a medical professional go back to school and learned because when you refuse to keep learning and just act like you know you need to find another job. I'm sorry for this rant to those of you don't wanna hear it please pass over it that's another symptom of the morgellons and toxic mold infection or fungus infections short temper . Again till the original poster I apologize if you'd ever like to share photos or videos I have many similar to the photos you've shown and some exactly alike I wanted to check and see if you've noticed if your hair is actually your hair still I know that sounds crazy to someone without this element but someone with will understand what I mean. Peace & Love to all of you and again sorry for the rant
PIC ONE CAME OUT OF MY HAND Looks like a black speck small to the human eye
PIC 2 CORNER OF MY EYE

20190106_153010

20190105_004119

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@thurst

Funny that you said that… read an article at ncbi that talks about cattle receiving much more interest in obtaining a diagnosus and cure than human beings are (because I guess they can’t accuse cattle of being dilutional)

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Hi @thurst, I believe this is the NCBI article you were wishing to post.
– Filament formation associated with spirochetal infection: a comparative approach to Morgellons disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3257881/

REPLY
@beryl

I am so glad that something is happening and more people are coming forward to tell about their experiences with this horrible thing ….Elizabeth was the first person and since then more of you have come forward ….including a dog …..which I said there was a connection …..they get it from cows it seems ……my Italian vet many years ago said that in Wales……I hope all this brings it to the surface and some body starts a very much needed look into this and finds a cure ……..Bery.

Jump to this post

Thanks, Bery. I found out in September its closely related to Lyme Disease , which I've had now , according to test results, for 27 years along with Rocky Mountain Spotted Fever. I was on a Lyme and RMSF antibiotic for a month but my liver didn't like it so waiting until my doctor comes up with something else. The Morgellons is still with me, but maybe a little better. Not sure why or I could be wrong and it may be worse. I have no clue except what I can see or feel.
Hope you are doing well.
BTW, there are thousands of scientists all over the world looking at Morgellons so I'm hoping our younger people have hope.
Take care.
Elizabeth.

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@basslakeview

Thanks, Bery. I found out in September its closely related to Lyme Disease , which I've had now , according to test results, for 27 years along with Rocky Mountain Spotted Fever. I was on a Lyme and RMSF antibiotic for a month but my liver didn't like it so waiting until my doctor comes up with something else. The Morgellons is still with me, but maybe a little better. Not sure why or I could be wrong and it may be worse. I have no clue except what I can see or feel.
Hope you are doing well.
BTW, there are thousands of scientists all over the world looking at Morgellons so I'm hoping our younger people have hope.
Take care.
Elizabeth.

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Did you read the article that was posted today seems it is bad in cattle. Beryl.

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