Lyme Disease and its Co-Infections, Morgellons Disease and Parasites

Posted by basslakeview @basslakeview, Aug 30, 2018

UPDATED 6/16/2019
Hi,
I am Elizabeth Bass and I live in Southeast Texas very close to Galveston and Houston Texas with my companion Millie, a Yorkie. I moved here in March 2018 from Northeast Texas (Longview/Tyler) with a scalp condition that keeps morphing into something else, each time getting worse. It began in May 2016, and here it is 2019 and I still have "it," but I've learned a whole lot I never really wanted to know.

I have no idea what exactly is wrong with me, but because of what I found in July 2018 on my pillow I'm thinking Morgellons because I found the same looking thing someone else had posted and they were talking about Morgellons. I have attached two photos, one close up and the other is the original so you can have an idea of the actual size.

I also have these white sparkly/shiny critters on every inch of my body, especially my hair/scalp, and face/neck. They can only be seen if I take a picture using my camera with the FLASH ON. Otherwise, no one would know there is anything wrong with me.

This was discovered by accident when in May 2016 I got my long hair all cut off. Right after that (about a month) my head started itching in the upper center back. I couldn't see anything in a mirror so I picked up my phone and took a picture. I still couldn't see very well so I turned the flash on. THAT WAS IT!! (I saw more than I wanted to see.) At first I thought I had bed bugs and did everything I could to get rid of them, including lice treatment. Then I started seeing these shiny, sparkly-looking things. I accidentally caught some of them on camera flying around my head. I kept trying everything I could to rid myself of "them," but nothing has worked so far. However, it is now June 2019 and "the condition" only changes (morphs). It never goes away. I have seen 9 dermatologists, 2 derm PAs, 2 internists, and 2 GPs, a total of 16 (maybe more), counting the one I'm with now since "it" began. My hair fell out in that spot, I had lesions where the hair was missing, and when a new lesion would begin it was always itchy, then that hair would fall out, too. My hair grew back, but not quite as thick.

The fever and rash went away, but the achiness and lethargy/fatigue has stayed with me all these years. About a year or two after that fever, and after going to many, many doctors between Shreveport, Dallas, Tyler, and Houston, one of them said I have Fibromyalgia & Chronic Fatigue. I simply took his word for it. I was so very tired of seeing doctors, doing lab work, driving and working a full time, stressful job. I needed a break!

Then in 1999 I lost my left kidney to an oncocytoma (tumor the size of a softball), benign. Lost my gallbladder in 2004, had carpal tunnel surgery on both wrists at the same time in 2005. I don't think there's much left. I had already had a thyroidectomy in my 20s (Graves Disease), and a hysterectomy in 1986. Then, the BIGGEST loss of my life…my only child in 2013. I honestly did not think I was going to make it.

I had told every single one of ALL those doctors the story of the high fever and rash and how my GP thought it was Lymes, but lab was negative, and not ONE of them (nor me) simply thought of running another Lyme test until last year 2018. On Sept 18, 2018, my 72nd birthday the results were in and I was at my doctor's office with my sister to get the results. That test came back with all sorts of red flags, 30 years later!

Now I am 72 and the second antibiotic I'm on is not doing anything. After one month on Doxycycline (had to stop because my liver didnt like it) and two months on Clindamycin I haven't noticed anything positive, but that doesn't mean nothing is happening, RIGHT?!!. For some reason she didn't put me on anything else right away after the Doxy. Maybe I had to give my liver time to heal. She never said why, and I forget to ask these questions. I think I am going to simply start feeling POSITIVE about things no matter which way they go!!

UPDATE: I finally found a doctor who 'seems' to want to help me. She ran a Lyme test on my blood and was very excited she could help me which was very encouraging as you can imagine.

I have had Lyme Disease and a co-infection called Rocky Mountain Spotted Fever (since 1988-1990ish, 30 years ago). I remember it like it was yesterday. I had a high fever, achiness all over like a flu sickness, and a rash. It was not a flu. And the first thing he said to me was, "It looks like Lymes Disease to me!" Unfortunately, the lab report came back negative and neither one of us thought to do another test.

Yet, for some reason, I keep replaying one of my favorite songs in my head, Eric Clapton's, "NO MORE TEARS IN HEAVEN." (It makes me smile because I know I WILL see my son again and be able to talk to him.)

Ever heard of of the song? Check it out. Just Google it and listen.

USEFUL WEBSITES:

(https://thecehf.org).
To contact them: http://thecehf.org/contact.html

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6287027/ (You have to create a sign in with a password, but it's very simple and it's free.)

Just found out that if your post has a ‘less than symbol’ in it, every word after that symbol will be deleted and left off your posting

REPLY

– thread-like filaments – blue (most found), red (about 5-10% of total) sometimes black or dark green (1%) are present in all cases and indicative of Morgellon’s Disease. I have found traces of these blue, red and black threads below the dermal layer of both my cat and my skin through use of the digital microscope. Other organisms found that resemble ‘balls of thread’ are found in many, but not all instances I’ve seen as reported.
– I have not seen or heard any evidence other than my own of organisms that seem to be entomology related in shape, activity, rate of reproduction, defense mechanisms, source of origination, pods used for transport and/or feeding purposes. An occasional remnants found were larvae-like in shape.
– transmission is proven to be airborne*. How did I get to this conclusion? My cat and I desperately needed a break and get away from this apartment that is totally compromised (clothes, furniture, walls, computer keyboard, television, etc…..everything.) On three separate occasions, we spent 2-3 nights at different hotels with a thorough inspection of the room immediately upon entry. By the end of the second day/evening, the rooms were ‘infested’ (term I’ve used for 7 years describing my apartment) with this problem as bad as I had with my own apartment. I suspected this could be a problem about a year ago, when I saw remnants that were indicative of a problem on things that I just touched (for example, the iPad I’m using now has tiny spots where I touched the screen or had fallen from my scalp or face. If I touch that tiny spot, most times I will get a very sharp sting from its defense mechanism. I cannot just wipe them off with a dry cloth, because they will continue to sting and are planted in that spot and unmovable, the cloth must be moistened so that they will release from where they have fallen on the screen. For this reason, I have always turned down offers to stay with or even visit friends.
– occurs in cycles (lifecycles?) daily cycles of severity are consistent, however, I’ve not been able to determine the amount of time between major cycles that seem to be yearly and thought were tied to seasonality, but now I recognize that the progression of severity is worse over time and occur with higher frequency (currently, I’m experiencing the second major cycle in one year with a 2 month low activity between cycles and the severity of pain induced is exponentially greater than any previous incidents)
– there seems to be conflicting views of whether this is a parasite or a fungus. As being a fungus was new to me, I tried some of the recommendations to lessen the problem for myself and Joy (my cat) and found that anti-fungals do work somewhat to reduce the effects, but as some have noted, it does not kill them. I have found that they work temporarily and perhaps rely on strength (maybe type also) of ingredient used as anti-fungal agent. I have had success with ‘Nizoral’ generic is Ketoconazole Shampoo 2% by prescription only (1% available OTC) and some luck with OTC Medicated Fungicure Anti-Fungal Wash that uses Homeopathic ingredient Sepia 12X (???) as it’s agent. I have verified that an anti-fungal does have an effect on the fungus when viewed under the microscope. The tissue does shrink when the agent is applied by spray, but returns to original state TBD at some point (I have not tried different strength solutions as yet) Also, I forgot to mention that I have also verified that water does encourage growth of the organism/tissue which might explain the increase in activity in moist environments.
– Besides using each anti-fungus wash full strength for washing hands, face, scalp, etc once per day ( should probably do twice) I also create a solution using 8 parts water to 1 part anti-fungal liquid and put it in a spray bottle to carry with me for a quick shot on the skin when needed. It a temporary fix, but it sure helps

There’s more, but I will put it in my next posting. I’m exhausted since a good restful night of sleep is a thing of the past. Any questions, please ask. I’m always asking or seeking answers to WHY since childhood. Without question, that is one reason for many of my sleepless nights.

Last word: This really sucks. Suicide? No, already did that in 2015… didn’t work, because ‘somebody’ (like a neighbor) found me and called an ambulance in what little time was left in the survival window and just screwed up all my plans…..
I wouldn’t do it again for two reasons – one is 2 weeks in ICU then 4 weeks in lockdown psych ward all because I was seriously dealing with bed bug and flea infestations in my apartment AND wasn’t aware I had this Morgellon’s Disease going on in addition so when my apartment was treated many times for bugs and I continued to experience more bites and stinging for many months thereafter year after year (and have tons of photographic proof of my arms, legs, feet, torso and of Joy) my psychiatrist refused to see any proof I offered to show him, so he diagnosed me as DP and said, ‘No, I don’t want to see your proof. I have seen the same from a few patients before. I don’t need to. I know what I’m doing’. That crushed me and I somehow muttered, but I wasn’t really asking him a question, ‘But….but why is my cat is so itchy also? It didn’t make sense any of this reaction. And to that my answer was a very terse ‘I don’t know why your cat is scratching. Ask her vet.’ So, what horror I went through those 6 weeks and the long long road to recovery afterwards is something I would never want anyone to experience. Especially when it was forced for no reason and I had no say whatsoever. The second I’ll save for now….

Final thought: Why people look at me funny when I have to get my shoes and socks off as quickly as possible due to severe pain and then spray them with my homemade solution, I just can’t understand….. wide grin….

Liked by basslakeview

REPLY

P.S. – There are two other tenants in my apartment building experiencing similar issues as I do, but not to the extent as I have. I’m a terrible neat freak and one of the two other ‘victims’ I will not go inside his apartment that I refer to it as ‘The Original LaBrea Tar Pits’ when he asks me to come over. The second person, I don’t know well. The three of us it just occurred to me are long time tenants here, over 10 years while most others usually only stay (last) 2-5 years. I have spotted the same type of ceiling and wall nodules that seem to grow/shrink in size and more seem to pop up in other areas of the ceiling all with the same debris on the floor as I have found in my apartment throughout the building’s common areas.
On rainy days, I do feel the same drops from the ceiling in the hallway to the elevator and the trash room. I have been complaining to building management for 7 years about feeling things drop from my apartment ceiling. I also have a video from April 2012 when I first noticed tiny dark spots ‘bugs’ all over my ceiling which management denied there was any problem to be worried about. Because of this evidence was quite visible on my ceiling and now the problem still exists but is not visible, I feel the problem might be or also involve parasites that use fleas as hosts. The CDC recently found an unusually large number of fleas with parasites concentrated in a homeless encampment, but the parasites on the fleas were not native to the U.S and the CDC could not identify them. After a long arduous search they eventually found them in a very remote area in Africa or South America, I don’t remember which at the moment. I’m thinking this, because I live in an ‘Affordable Housing’ apartment in San Francisco that has now depleted my life savings ($100,000 +) over the past 7 years to survive all this, so not so affordable after all. There are quite a number of formerly chronic homelessness residents living here for short periods (they don’t assimilate and spend free time with their friends who live on the street) and some that continue to live as a homeless person like my next door neighbor with very strange winged insects periodically sitting/standing/hanging out on his front door.
My next thing to research…lll

What frightens me is that everyone is clueless what this could all mean if my analysis is validated as correct about transmission. This could turn into one major public health issue and legal problem in the not so distant future if it spreads as rapidly as i’m seeing…..
I pray that I’m wrong…

REPLY

Thank you for taking the time out to post pictures in your post you probably have no idea how many people you're helping just by that I can't imagine having this and nobody believing me but at first my spouse thought I was going crazy I also have sayings having a carnival I like to call it on my skin without my permission they're trespassers. If I didn't use my sense of humor I would be completely bananas. I figure it out that I had morgellons several weeks ago I realized it was definitely that but I had an idea just from research for probably 2 months or less it took me until today to take my first hot soak in baking soda and it was as traumatizing as I thought it was going to be times 1000 clearly I've had this for a very long time they just went I noticed because they weren't active. About a month ago I noticed that we had moth living in our closet so we were told to remove everything from her closets pull everything 12in away from the wall and the exterminator would come in and exterminate them when we took everything from our closets and moved at 12 in from the wall we noticed that there was quite a bit of mold on a lot of our items we had to throw away we've been renting this house for a little over 2 years and thought that it was damp feeling and sometimes mildew smelling but just bought a bunch of those are purifiers that take the humidity out of the air and ignored it well this was a big mistake because when we lit the mold up it knocked the morgellons in the high gear. Basically I'm just wanting to tell my share and relate with anybody on the planet because I feel that we are suffering severely and alone. I've read so many people don't have family that believe them like I said my family didn't believe me in the beginning but you can't deny what appears right in front of your eye thank goodness for that I don't know how the doctors in the CDC or managing to deny it. Along with my first tub soak today change the appearance of what I see people calling biofilm this is unnerving scary I don't have enough adjective but what happened was I have hair too the small of my back I've had a pretty healthy and now it's turning into wire it moves by itself and when I wash my hair with the dandruff antifungal so my goodness gracious it was like I open floodgates because things started to pour into my eyes and ears I don't know what the things are so I just called him things it was a miserable experience scary and I'll never do it alone again without my spouse I literally had the cake dial antibacterial soap in my ears and eyes in order to rinse the shampoo out of my hair and then when I got out I used Packers moving tape and just kept plugging them off my face and eyebrows and eyelids and ears. Right now they seem to be having a party even though it's 4 in the morning here apparently it was couples nights because they're dancing everywhere. Does anybody else suffer from anything that I mentioned there and what do they do and how do they do it and is your house slowly becoming destroyed by them? would love to connect with anybody who can relate I'm in southern California my family consists of just my spouse my wife she's an RN which is awesome because I've had my first medical professional believe me.

Liked by basslakeview

REPLY
@desi1

Thank you for taking the time out to post pictures in your post you probably have no idea how many people you're helping just by that I can't imagine having this and nobody believing me but at first my spouse thought I was going crazy I also have sayings having a carnival I like to call it on my skin without my permission they're trespassers. If I didn't use my sense of humor I would be completely bananas. I figure it out that I had morgellons several weeks ago I realized it was definitely that but I had an idea just from research for probably 2 months or less it took me until today to take my first hot soak in baking soda and it was as traumatizing as I thought it was going to be times 1000 clearly I've had this for a very long time they just went I noticed because they weren't active. About a month ago I noticed that we had moth living in our closet so we were told to remove everything from her closets pull everything 12in away from the wall and the exterminator would come in and exterminate them when we took everything from our closets and moved at 12 in from the wall we noticed that there was quite a bit of mold on a lot of our items we had to throw away we've been renting this house for a little over 2 years and thought that it was damp feeling and sometimes mildew smelling but just bought a bunch of those are purifiers that take the humidity out of the air and ignored it well this was a big mistake because when we lit the mold up it knocked the morgellons in the high gear. Basically I'm just wanting to tell my share and relate with anybody on the planet because I feel that we are suffering severely and alone. I've read so many people don't have family that believe them like I said my family didn't believe me in the beginning but you can't deny what appears right in front of your eye thank goodness for that I don't know how the doctors in the CDC or managing to deny it. Along with my first tub soak today change the appearance of what I see people calling biofilm this is unnerving scary I don't have enough adjective but what happened was I have hair too the small of my back I've had a pretty healthy and now it's turning into wire it moves by itself and when I wash my hair with the dandruff antifungal so my goodness gracious it was like I open floodgates because things started to pour into my eyes and ears I don't know what the things are so I just called him things it was a miserable experience scary and I'll never do it alone again without my spouse I literally had the cake dial antibacterial soap in my ears and eyes in order to rinse the shampoo out of my hair and then when I got out I used Packers moving tape and just kept plugging them off my face and eyebrows and eyelids and ears. Right now they seem to be having a party even though it's 4 in the morning here apparently it was couples nights because they're dancing everywhere. Does anybody else suffer from anything that I mentioned there and what do they do and how do they do it and is your house slowly becoming destroyed by them? would love to connect with anybody who can relate I'm in southern California my family consists of just my spouse my wife she's an RN which is awesome because I've had my first medical professional believe me.

Jump to this post

Hi, @desi1 – Welcome to Mayo Clinic Connect. Thanks for sharing about what you call the trespassers having a carnival on your skin.

You indicated that your spouse, an RN, believes you about your condition. What kind of reaction have you gotten from other professionals? Do you have a diagnosis yet, or are you still awaiting one?

REPLY
@gregcuratolo

P.S. – There are two other tenants in my apartment building experiencing similar issues as I do, but not to the extent as I have. I’m a terrible neat freak and one of the two other ‘victims’ I will not go inside his apartment that I refer to it as ‘The Original LaBrea Tar Pits’ when he asks me to come over. The second person, I don’t know well. The three of us it just occurred to me are long time tenants here, over 10 years while most others usually only stay (last) 2-5 years. I have spotted the same type of ceiling and wall nodules that seem to grow/shrink in size and more seem to pop up in other areas of the ceiling all with the same debris on the floor as I have found in my apartment throughout the building’s common areas.
On rainy days, I do feel the same drops from the ceiling in the hallway to the elevator and the trash room. I have been complaining to building management for 7 years about feeling things drop from my apartment ceiling. I also have a video from April 2012 when I first noticed tiny dark spots ‘bugs’ all over my ceiling which management denied there was any problem to be worried about. Because of this evidence was quite visible on my ceiling and now the problem still exists but is not visible, I feel the problem might be or also involve parasites that use fleas as hosts. The CDC recently found an unusually large number of fleas with parasites concentrated in a homeless encampment, but the parasites on the fleas were not native to the U.S and the CDC could not identify them. After a long arduous search they eventually found them in a very remote area in Africa or South America, I don’t remember which at the moment. I’m thinking this, because I live in an ‘Affordable Housing’ apartment in San Francisco that has now depleted my life savings ($100,000 +) over the past 7 years to survive all this, so not so affordable after all. There are quite a number of formerly chronic homelessness residents living here for short periods (they don’t assimilate and spend free time with their friends who live on the street) and some that continue to live as a homeless person like my next door neighbor with very strange winged insects periodically sitting/standing/hanging out on his front door.
My next thing to research…lll

What frightens me is that everyone is clueless what this could all mean if my analysis is validated as correct about transmission. This could turn into one major public health issue and legal problem in the not so distant future if it spreads as rapidly as i’m seeing…..
I pray that I’m wrong…

Jump to this post

Hi there,
I am living with the exact same symptoms.Im in a neverending nightmare, but you already know that. I am in Houston Texas. My Husband thinks going to our family doctor will fix it.I know thats not the case. How are you now? Any new developments?

20181220_153333

20181220_153211

Liked by basslakeview

REPLY
@desi1

Thank you for taking the time out to post pictures in your post you probably have no idea how many people you're helping just by that I can't imagine having this and nobody believing me but at first my spouse thought I was going crazy I also have sayings having a carnival I like to call it on my skin without my permission they're trespassers. If I didn't use my sense of humor I would be completely bananas. I figure it out that I had morgellons several weeks ago I realized it was definitely that but I had an idea just from research for probably 2 months or less it took me until today to take my first hot soak in baking soda and it was as traumatizing as I thought it was going to be times 1000 clearly I've had this for a very long time they just went I noticed because they weren't active. About a month ago I noticed that we had moth living in our closet so we were told to remove everything from her closets pull everything 12in away from the wall and the exterminator would come in and exterminate them when we took everything from our closets and moved at 12 in from the wall we noticed that there was quite a bit of mold on a lot of our items we had to throw away we've been renting this house for a little over 2 years and thought that it was damp feeling and sometimes mildew smelling but just bought a bunch of those are purifiers that take the humidity out of the air and ignored it well this was a big mistake because when we lit the mold up it knocked the morgellons in the high gear. Basically I'm just wanting to tell my share and relate with anybody on the planet because I feel that we are suffering severely and alone. I've read so many people don't have family that believe them like I said my family didn't believe me in the beginning but you can't deny what appears right in front of your eye thank goodness for that I don't know how the doctors in the CDC or managing to deny it. Along with my first tub soak today change the appearance of what I see people calling biofilm this is unnerving scary I don't have enough adjective but what happened was I have hair too the small of my back I've had a pretty healthy and now it's turning into wire it moves by itself and when I wash my hair with the dandruff antifungal so my goodness gracious it was like I open floodgates because things started to pour into my eyes and ears I don't know what the things are so I just called him things it was a miserable experience scary and I'll never do it alone again without my spouse I literally had the cake dial antibacterial soap in my ears and eyes in order to rinse the shampoo out of my hair and then when I got out I used Packers moving tape and just kept plugging them off my face and eyebrows and eyelids and ears. Right now they seem to be having a party even though it's 4 in the morning here apparently it was couples nights because they're dancing everywhere. Does anybody else suffer from anything that I mentioned there and what do they do and how do they do it and is your house slowly becoming destroyed by them? would love to connect with anybody who can relate I'm in southern California my family consists of just my spouse my wife she's an RN which is awesome because I've had my first medical professional believe me.

Jump to this post

When I read about your use of Packers Tape, I wanted to hug you & get you to laugh with me as I tell you that before I even heard the word Morgellon, I would use the vacuum hose (no attachments) and press the open nozzle all over my scalp & continue on every inch of my face imagining it was sucking everything off my skin that was causing me all those problems (including blackheads, which I didn’t really have)
Ahhhhh…I had a couple of reddish hose nozzle rings left on my face, but ahhhhhh it felt so heavenly, if only for a few seconds!

Liked by basslakeview

REPLY

Lyme disease/Morgellons/fibromyalgia, never ending skin infections and now my dog and boyfriend in Houston, TX area! Home infected? Microscope shows fibers embedded in skin. Read about nanotechnology as well. I’m truly worried and every day is a struggle for me still. I was on IV rocephin for over 2.5 years. On top of that another 5+ years alternating IV vancomycin and oral Zyvox to “cure” of Lyme yet it left me quite devastated. Have chronic pain degenerative disc diseasr and beyond stressed. My boyfriend and I both have found very fine filament type fibers floating in air and attaching and embedding themselves to us. My dog never had runny eyes. She’s lethargic and has sores on her paws and legs as well as joint swelling and missing patches of hair (bad) and I am certain it’s not mange. I will try to come back and post some pics from our microscope. I fear there is no cure and like most life is a mental and financial struggle. I also fear that my home needs to be condemned. Any insight in what to do? Thanks for listening.

REPLY
@basslakeview

I posted the original photo which hasn't been altered at all, and the one I saved "after" zooming in. I try to always post the original photo with any other I've enlarged/zoomed/written on, etc.
Is this not interesting? You open the original photo on your computer and enlarge to see what it looks like and let me know. It may just be my camera?!

Jump to this post

Hi, friend,
I am so sorry , but I just saw these questions. I simply never knew this part of my page even existed.

The white things you see in the photographs are not visible to the naked eye, meaning a person would have to have a microscope, magnifying glass, or camera that can zoom into a part of the picture without distorting it a lot, making it blurry. A plain camera (I use my smartphone camera, my phone is a Samsung Note 8 with a built in Sony Camera, 12 MP) as I use needs to have a flash turned on as well. I cannot see the white things without the flash turned on with my camera. I do own a bigger camera (a Canon EOS) which I have never used on my parasites, mites, morgellons, etc. I just dont think I could maneuver it around my body so I've never used it. I should try one of these days.

Anyway, to get to the point, the pictures that say "originals" only mean that I havent zoomed in or taken it without a flash or any kind of special POWERFUL camera.

Liked by basslakeview

REPLY
@morgellonsintx2

Lyme disease/Morgellons/fibromyalgia, never ending skin infections and now my dog and boyfriend in Houston, TX area! Home infected? Microscope shows fibers embedded in skin. Read about nanotechnology as well. I’m truly worried and every day is a struggle for me still. I was on IV rocephin for over 2.5 years. On top of that another 5+ years alternating IV vancomycin and oral Zyvox to “cure” of Lyme yet it left me quite devastated. Have chronic pain degenerative disc diseasr and beyond stressed. My boyfriend and I both have found very fine filament type fibers floating in air and attaching and embedding themselves to us. My dog never had runny eyes. She’s lethargic and has sores on her paws and legs as well as joint swelling and missing patches of hair (bad) and I am certain it’s not mange. I will try to come back and post some pics from our microscope. I fear there is no cure and like most life is a mental and financial struggle. I also fear that my home needs to be condemned. Any insight in what to do? Thanks for listening.

Jump to this post

Hello, neighbor.
This is basslakeview (Elizabeth Bass) in El Lago, TX (between Houston and Galveston on Clear Lake near Trinity Bay), just off I-45 at NASA BYPASS.
I've have also just been formally tested and found out that I've had Lymes Disease and Rocky Mountain Spotted Fever for 27 years, and now have Morgellons as well. I also have just acquired what ophthalmologists call blepharitis, but is actually Demodex Mites (EVERY human has them except some newborns), but for some unknown reason they choose to call it Blepharitis. I'm sure someone knows why they do it. I just don't know what it is.

I, too, was diagnosed in 1991 after a high fever I thought was the flu, with Fibromyalgia/Chronic Fatigue, but just found out it was the Rocky Mountain Spotted Fever/Lyme Disease. I wonder how many others like us have it as well?!!

My doctor in Houston told me a lot of people dont make it through the fever. I will never forget it because of the pain and suffering that came along with it and stayed so far now for 27 years this winter.

I have heard that we need to be disinfecting our homes on a constant basis, but the main thing is eating a special diet (of everything I dont like). Lots of meat, rice, very few vegetables, lots of butter, nothing sweet except for Stevia sweetener and more food than I've listed, but can't remember everything now. If you're interested and have never heard of Richard Kuhn, I will send you a link to his information. His theory is that most of us can cure ourselves with only the special diet. We dont need all the other stuff except for comfort and to lessen the itchyness. The diet has been the hardest for me because I'm not much of a meat eater. I will eat grilled chicken and a nice, perfectly grilled steak, and some tender bbq and ribs. I like pork, but I try not to eat too much. I dont feel it's good for me.

If you just sign up on Richard's website he will let you download his book for free. There are many other books and places on the internet where you can read people's research papers.
If you're interested I will send the links.

Liked by basslakeview

REPLY
@gregcuratolo

When I read about your use of Packers Tape, I wanted to hug you & get you to laugh with me as I tell you that before I even heard the word Morgellon, I would use the vacuum hose (no attachments) and press the open nozzle all over my scalp & continue on every inch of my face imagining it was sucking everything off my skin that was causing me all those problems (including blackheads, which I didn’t really have)
Ahhhhh…I had a couple of reddish hose nozzle rings left on my face, but ahhhhhh it felt so heavenly, if only for a few seconds!

Jump to this post

I like that. May try it some day.

REPLY
@basslakeview

I like that. May try it some day.

Jump to this post

Hello Elizabeth it's Beryl….I wondered how you were getting on …..you I hope are winning the struggle …..but you have now found out that there are many others with the same unbelievable disease ……hopefully you will,win in the end but meantime you are helping others that thought they were crackers….
I am in Sicily not very far from Etna which I expect you have heard has come to life and is erupting …..we had a quiet night last night …its been a bit scary as the house shakes and rocks when it blows …..still streams of smoke and steam coming from it but we are ok……Beryl

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@desi1

Thank you for taking the time out to post pictures in your post you probably have no idea how many people you're helping just by that I can't imagine having this and nobody believing me but at first my spouse thought I was going crazy I also have sayings having a carnival I like to call it on my skin without my permission they're trespassers. If I didn't use my sense of humor I would be completely bananas. I figure it out that I had morgellons several weeks ago I realized it was definitely that but I had an idea just from research for probably 2 months or less it took me until today to take my first hot soak in baking soda and it was as traumatizing as I thought it was going to be times 1000 clearly I've had this for a very long time they just went I noticed because they weren't active. About a month ago I noticed that we had moth living in our closet so we were told to remove everything from her closets pull everything 12in away from the wall and the exterminator would come in and exterminate them when we took everything from our closets and moved at 12 in from the wall we noticed that there was quite a bit of mold on a lot of our items we had to throw away we've been renting this house for a little over 2 years and thought that it was damp feeling and sometimes mildew smelling but just bought a bunch of those are purifiers that take the humidity out of the air and ignored it well this was a big mistake because when we lit the mold up it knocked the morgellons in the high gear. Basically I'm just wanting to tell my share and relate with anybody on the planet because I feel that we are suffering severely and alone. I've read so many people don't have family that believe them like I said my family didn't believe me in the beginning but you can't deny what appears right in front of your eye thank goodness for that I don't know how the doctors in the CDC or managing to deny it. Along with my first tub soak today change the appearance of what I see people calling biofilm this is unnerving scary I don't have enough adjective but what happened was I have hair too the small of my back I've had a pretty healthy and now it's turning into wire it moves by itself and when I wash my hair with the dandruff antifungal so my goodness gracious it was like I open floodgates because things started to pour into my eyes and ears I don't know what the things are so I just called him things it was a miserable experience scary and I'll never do it alone again without my spouse I literally had the cake dial antibacterial soap in my ears and eyes in order to rinse the shampoo out of my hair and then when I got out I used Packers moving tape and just kept plugging them off my face and eyebrows and eyelids and ears. Right now they seem to be having a party even though it's 4 in the morning here apparently it was couples nights because they're dancing everywhere. Does anybody else suffer from anything that I mentioned there and what do they do and how do they do it and is your house slowly becoming destroyed by them? would love to connect with anybody who can relate I'm in southern California my family consists of just my spouse my wife she's an RN which is awesome because I've had my first medical professional believe me.

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Des1,
I'm ashamed to say that I am the one who began this section, "Morgelllon Disease and Parasites;" under "Skin Conditions." It's been a while since I have felt well enough to even read the other posts or post more pictures, not to mention write something. Actually, I wouldn't mind posted more pictures, but, of course I would have to explain each one in order for them to make sense and it's all I can do to make it through a day.

I have posted one update on my original post. All I did was add some things to what I had written in the first post to bring it up to date
, which should be at the beginning of the section on Morgellon Disease and Parasites.

Lately, I've been strangely better mentally, but worse physically. I know it doesn't make sense to me either! How can that be?!! I think in some mentally twisted way I am almost relieved I am getting worse. Then I can finally start to see the light at the end of what's been a very long tunnel of physical & mental suffering (since 1991 to now has been 28 years since I have had Lyme Disease and Rocky Mountain Spotted Fever. Then my husband died in 2010, and last, but more important, my only child died in 2013 at 33). That was the last straw. Then I started having problems with mites, the Demodex mites in my scalp, my lashes (top and bottom of both eyes) and both eyes themselves. Not only the mite, but along with them I have a biofilm wherever the parasites are, which is EVERYWHERE, even on my eyes…not totally yet but so much that it's getting hard to see some days.

I'm ready to go 'home.' At my age (72), even if there were a cure, I don't think I have enough time to be cured. I'm not upset about it.

But, honestly, it is an uncomfortable and lonely disease because I don't want to give it to anyone else, I discourage people from coming over, and I've made my sisters mad at me because I won't go anywhere. They don't believe me when I tell them it HAS TO BE contagious. I can see the bacteria, the biofilm, and all the other microscopic things that go with it all. I've sent them pictures of almost everything, but one sister never says she doesn't believe me. She says I see them, I just don't know what each one does. I'm not a doctor so I can't form an opinion!! The other sister is VERY BLUNT. She says how she feels right up front…she and one of her daughters say it doesn't matter, come on up here and visit for Christmas. We're not worried and the daughter has a 5 month old and a 4 year old. I could not expose those babies to this. I didn't care if they got angry.

I will send more pictures soon.

I have sent many, but I noticed all but one in the 1st posting has disappeared.

Love to all and I'm hoping the best for everyone,
Elizabeth (El Lago, TX)

Liked by basslakeview, beryl

REPLY
@sarahbearas

Hi there,
I am living with the exact same symptoms.Im in a neverending nightmare, but you already know that. I am in Houston Texas. My Husband thinks going to our family doctor will fix it.I know thats not the case. How are you now? Any new developments?

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Hi, Sarah!
I am Elizabeth. I haven't been on here in a while. I am so glad there are more pictures. I had posted quite a bit, but noticed tonight they have all disappeared but one. I don't know why, but I will check it out with one of the moderators.

What kind of camera are you using? They are very good. Would love to see more.

I just use my smartphone. It's a Galaxy Note 8, with a Sony 12 mp camera built in. It's very handy when one of these critters is biting me, it so much faster to grab the phone and quickly take a picture, otherwise I can't see what is biting me; or I can feel something moving around.

I keep my flash in the "on" position. I never take it off. That's the only way mine will show up.

Liked by basslakeview

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@basslakeview

Des1,
I'm ashamed to say that I am the one who began this section, "Morgelllon Disease and Parasites;" under "Skin Conditions." It's been a while since I have felt well enough to even read the other posts or post more pictures, not to mention write something. Actually, I wouldn't mind posted more pictures, but, of course I would have to explain each one in order for them to make sense and it's all I can do to make it through a day.

I have posted one update on my original post. All I did was add some things to what I had written in the first post to bring it up to date
, which should be at the beginning of the section on Morgellon Disease and Parasites.

Lately, I've been strangely better mentally, but worse physically. I know it doesn't make sense to me either! How can that be?!! I think in some mentally twisted way I am almost relieved I am getting worse. Then I can finally start to see the light at the end of what's been a very long tunnel of physical & mental suffering (since 1991 to now has been 28 years since I have had Lyme Disease and Rocky Mountain Spotted Fever. Then my husband died in 2010, and last, but more important, my only child died in 2013 at 33). That was the last straw. Then I started having problems with mites, the Demodex mites in my scalp, my lashes (top and bottom of both eyes) and both eyes themselves. Not only the mite, but along with them I have a biofilm wherever the parasites are, which is EVERYWHERE, even on my eyes…not totally yet but so much that it's getting hard to see some days.

I'm ready to go 'home.' At my age (72), even if there were a cure, I don't think I have enough time to be cured. I'm not upset about it.

But, honestly, it is an uncomfortable and lonely disease because I don't want to give it to anyone else, I discourage people from coming over, and I've made my sisters mad at me because I won't go anywhere. They don't believe me when I tell them it HAS TO BE contagious. I can see the bacteria, the biofilm, and all the other microscopic things that go with it all. I've sent them pictures of almost everything, but one sister never says she doesn't believe me. She says I see them, I just don't know what each one does. I'm not a doctor so I can't form an opinion!! The other sister is VERY BLUNT. She says how she feels right up front…she and one of her daughters say it doesn't matter, come on up here and visit for Christmas. We're not worried and the daughter has a 5 month old and a 4 year old. I could not expose those babies to this. I didn't care if they got angry.

I will send more pictures soon.

I have sent many, but I noticed all but one in the 1st posting has disappeared.

Love to all and I'm hoping the best for everyone,
Elizabeth (El Lago, TX)

Jump to this post

Oh! My Goodness Elizabeth had no idea that you were in so much trouble still….I thought that someone would be helping you out of your terrible predicament now that they have found out what was wrong with you……

There has to be a Doctor somewhere that knows how to deal with this ……

It was many years ago that my Alsatian dog had something similar .and at the time the vet. who happened to be Italian said it was caught from cows so what do farmers do if a cow gets this thing…….I was in the States and my son had taken my dog over when I left so I don't know what happened or what the vet did ……I did ask my son but he couldn't remember….All I know is that in dogs you can put medicine on a part of there body, usually by the tail and on the neck and this goes into the blood stream and kills any unwanted visitors such as mites etc……

Sounds like it would be a good idea if the two professions got together about this to see if they could find anything that would be safe for humans……this might be an outlandish idea but you never know something could come out of it …..

So sorry you are so miserable Elizabeth but I hope somehow the new year will bring relief to you …….Beryl

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