Lyme Disease and its Co-Infections, Morgellons Disease and Parasites

Posted by basslakeview @basslakeview, Aug 30, 2018

UPDATED 6/16/2019
Hi,
I am Elizabeth Bass and I live in Southeast Texas very close to Galveston and Houston Texas with my companion Millie, a Yorkie. I moved here in March 2018 from Northeast Texas (Longview/Tyler) with a scalp condition that keeps morphing into something else, each time getting worse. It began in May 2016, and here it is 2019 and I still have "it," but I've learned a whole lot I never really wanted to know.

I have no idea what exactly is wrong with me, but because of what I found in July 2018 on my pillow I'm thinking Morgellons because I found the same looking thing someone else had posted and they were talking about Morgellons. I have attached two photos, one close up and the other is the original so you can have an idea of the actual size.

I also have these white sparkly/shiny critters on every inch of my body, especially my hair/scalp, and face/neck. They can only be seen if I take a picture using my camera with the FLASH ON. Otherwise, no one would know there is anything wrong with me.

This was discovered by accident when in May 2016 I got my long hair all cut off. Right after that (about a month) my head started itching in the upper center back. I couldn't see anything in a mirror so I picked up my phone and took a picture. I still couldn't see very well so I turned the flash on. THAT WAS IT!! (I saw more than I wanted to see.) At first I thought I had bed bugs and did everything I could to get rid of them, including lice treatment. Then I started seeing these shiny, sparkly-looking things. I accidentally caught some of them on camera flying around my head. I kept trying everything I could to rid myself of "them," but nothing has worked so far. However, it is now June 2019 and "the condition" only changes (morphs). It never goes away. I have seen 9 dermatologists, 2 derm PAs, 2 internists, and 2 GPs, a total of 16 (maybe more), counting the one I'm with now since "it" began. My hair fell out in that spot, I had lesions where the hair was missing, and when a new lesion would begin it was always itchy, then that hair would fall out, too. My hair grew back, but not quite as thick.

The fever and rash went away, but the achiness and lethargy/fatigue has stayed with me all these years. About a year or two after that fever, and after going to many, many doctors between Shreveport, Dallas, Tyler, and Houston, one of them said I have Fibromyalgia & Chronic Fatigue. I simply took his word for it. I was so very tired of seeing doctors, doing lab work, driving and working a full time, stressful job. I needed a break!

Then in 1999 I lost my left kidney to an oncocytoma (tumor the size of a softball), benign. Lost my gallbladder in 2004, had carpal tunnel surgery on both wrists at the same time in 2005. I don't think there's much left. I had already had a thyroidectomy in my 20s (Graves Disease), and a hysterectomy in 1986. Then, the BIGGEST loss of my life…my only child in 2013. I honestly did not think I was going to make it.

I had told every single one of ALL those doctors the story of the high fever and rash and how my GP thought it was Lymes, but lab was negative, and not ONE of them (nor me) simply thought of running another Lyme test until last year 2018. On Sept 18, 2018, my 72nd birthday the results were in and I was at my doctor's office with my sister to get the results. That test came back with all sorts of red flags, 30 years later!

Now I am 72 and the second antibiotic I'm on is not doing anything. After one month on Doxycycline (had to stop because my liver didnt like it) and two months on Clindamycin I haven't noticed anything positive, but that doesn't mean nothing is happening, RIGHT?!!. For some reason she didn't put me on anything else right away after the Doxy. Maybe I had to give my liver time to heal. She never said why, and I forget to ask these questions. I think I am going to simply start feeling POSITIVE about things no matter which way they go!!

UPDATE: I finally found a doctor who 'seems' to want to help me. She ran a Lyme test on my blood and was very excited she could help me which was very encouraging as you can imagine.

I have had Lyme Disease and a co-infection called Rocky Mountain Spotted Fever (since 1988-1990ish, 30 years ago). I remember it like it was yesterday. I had a high fever, achiness all over like a flu sickness, and a rash. It was not a flu. And the first thing he said to me was, "It looks like Lymes Disease to me!" Unfortunately, the lab report came back negative and neither one of us thought to do another test.

Yet, for some reason, I keep replaying one of my favorite songs in my head, Eric Clapton's, "NO MORE TEARS IN HEAVEN." (It makes me smile because I know I WILL see my son again and be able to talk to him.)

Ever heard of of the song? Check it out. Just Google it and listen.

USEFUL WEBSITES:

(https://thecehf.org).
To contact them: http://thecehf.org/contact.html

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6287027/ (You have to create a sign in with a password, but it's very simple and it's free.)

@maequinn27

Thurst. Just want to say that this forum really gave me hope. I have this horrific morgellons– white stuff growing from my facre– and also have lyme/bartonella. Appt with a lyme doc next week. So you all have had success reducing morgellons symtpoms with lyme/bartonella protocol of antibiotics through a lyme literate doctor ? I have a light of hope after reading this. Thank you and any specifics would help.

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Got better with praziquantel and fenbendazole

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Thanks. Will lyme doctors presrcribe Fenbendazole?

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A lot of what they are taking advantage of is energy. Particularly negative. You must surround yourself with "LIGHT" only. Some things that have helped me:
Ivermectin Rx
Selson Blue rubbed over the body
Eating 1-3 cloves garlic per day
Oregano oil supplement
MSM supplement
Vitamin C (you MUST boost the immune system)
Tea tree oil and coconut oil rubbed over body
Prayer and worship music
Support

Whatever you do, do not give up. I believe that's what they want.

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@maliney

Got better with praziquantel and fenbendazole

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Will doctors prescribe fenben or does it need to be purchased at farm stores?

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Hello Elizabeth, hello all fellow warriors – I apologize as I’m not sure if I’m highjacking this thread or exactly how this works, but upon reading your story (Elizabeth) and all the comments, I finally feel like there’s some hope for me… at least others who’d understand the hell I’m going through…

I’m a single mother (41 years old) of 2 rowdy boys and my life, which I thought would get better after leaving my abusive ex, has only spiraled downwards into a state of despair, embarrassment and shame. What I thought was hormonal acne, then thought was fungal acne, has bloomed into full-blown Morgellons (coloured fibres sprouting, hard, splinter-like debris being painfully pushed out of my skin, black specks which upon close examination are tightly-wound black fibres) – and it only appears on my face. My nose, mostly, which unfortunately is already my most prominent feature. I feel terrible as I’m so incredibly embarrassed to go out – I do for groceries, but only where I can checkout the items myself… I can’t even bear the thought of looking a cashier in the eye. I am trying to be strong for my boys, but it’s sooooooo hard. The guilt I feel from not taking my boys out and about as we used to do only compounds the feelings of shame. I’m not even sure why I’m sharing all of this, I’ve just felt so isolated and lonely and like a freak show… I’m typing furiously here, crying my eyes out… I guess I just need to connect with people who understand. 😭

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@thurst

I wanted to get a quick update… My skin is almost healed, but there are certain times when my face and ears feel extremely hot and flushed and that area starts to swell back up. I have to remind myself to stay calm, make sure I don’t have make up or anything else on, and apply topicals. But I received the urine lab that detects the DNA of tickborne bacteria. I tested positive for Borrelia miyamotoi-NPS; and Ehrlichia chaffensis-NPS. The NPS stands for non- predicted size, Meaning the organisms are extremely small and reproduce/morph quickly And are indicative of long-term infection. I don’t see that either one of these bacteria or necessarily lead to more gallons, although I know generally speaking lyme bacteria is. I also know that long-term infections are still disputed within the medical community, Even know they have found the lime bacteria within morgellons lesions and fibers. It’s crazy that there is proof, but still disputed that it even exists. I had switched to amoxicillin per the last dermatologist I went to, but my doctor has encouraged me to go back on doxycycline. If you use amoxicillin for Lyme, it’s recommended three times daily. I’m not sure if the steroid shot, the amoxicillin, the penicillin cream, or the small sonar device are responsible for improved healing on my skin, but I will keep using all because I’m finally feeling confident enough to leave my house!

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Hi @thurst I’ve been reading a ton of your posts. They have been extremely helpful. I’ve been researching/suffering with this illness for 7 years. Thank God we are past the talk of nano fibers, aliens, and the like. Like you, I too have a passion/business of healing and healthy living. I keep praying and holding my head up that God has given us to show others how to heal. Fortunately I don’t have a lot of symptoms except for the endless lesions all over my face and white rice things projecting from my skin. It’s getting so bad, I’m having a hard time covering it. It takes so long to put makeup on to just leave the house to GE groceries. I realize this is an early post of yours. I’m responding nearly a year later. How are you doing today (1/7/20)? What had been the most effective topical treatment you have found? Are you still taking the antibiotics and the Biocidin LSF and Monolaurian combo? I’ve used the food grade peroxide, grapefruit seed extract, and a host of DoTerra essential oils. Nothing seems to do the trick and if it does, it’s short lasting. I’ve tried steroid topicals and that just caused a fungal outbreak.

Just when I think I’ve gotten a topical protocol and flare up happens and I’m back at ground zero. I’ve been working with a Lyme literate DO PA for 2 1/2 years. Mostly herbals, Byron White stuff, and a few RX like Alinia and some crazy new anti malarial. While some months my Lyme gets beat back, and we focus on fungus, mold and other co-infections, nothing seems to change with the only symptoms I have; the awful lesions, the crazy fibers that Ill find in my eye lashes and other areas of my face, extremely red eyes, and the twitching hair. The lesions are the worst of them.

Please forgive this long post. I pray that you are still active in this forum. Perhaps we can put our respective health business heads together to heal ourselves and help others.

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@basslakeview

More photos as requested…

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Salt, it will kill it , I have same thing, soars on my body and my hair. I caught it in my drinking water, look at your water , for bubbles that have little eyes in them. Salt is the only thing I have found to break it down,

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@kimpossible

Hi @thurst I’ve been reading a ton of your posts. They have been extremely helpful. I’ve been researching/suffering with this illness for 7 years. Thank God we are past the talk of nano fibers, aliens, and the like. Like you, I too have a passion/business of healing and healthy living. I keep praying and holding my head up that God has given us to show others how to heal. Fortunately I don’t have a lot of symptoms except for the endless lesions all over my face and white rice things projecting from my skin. It’s getting so bad, I’m having a hard time covering it. It takes so long to put makeup on to just leave the house to GE groceries. I realize this is an early post of yours. I’m responding nearly a year later. How are you doing today (1/7/20)? What had been the most effective topical treatment you have found? Are you still taking the antibiotics and the Biocidin LSF and Monolaurian combo? I’ve used the food grade peroxide, grapefruit seed extract, and a host of DoTerra essential oils. Nothing seems to do the trick and if it does, it’s short lasting. I’ve tried steroid topicals and that just caused a fungal outbreak.

Just when I think I’ve gotten a topical protocol and flare up happens and I’m back at ground zero. I’ve been working with a Lyme literate DO PA for 2 1/2 years. Mostly herbals, Byron White stuff, and a few RX like Alinia and some crazy new anti malarial. While some months my Lyme gets beat back, and we focus on fungus, mold and other co-infections, nothing seems to change with the only symptoms I have; the awful lesions, the crazy fibers that Ill find in my eye lashes and other areas of my face, extremely red eyes, and the twitching hair. The lesions are the worst of them.

Please forgive this long post. I pray that you are still active in this forum. Perhaps we can put our respective health business heads together to heal ourselves and help others.

Jump to this post

Salt, it kills the fungus

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@shyzen

Hello Elizabeth, hello all fellow warriors – I apologize as I’m not sure if I’m highjacking this thread or exactly how this works, but upon reading your story (Elizabeth) and all the comments, I finally feel like there’s some hope for me… at least others who’d understand the hell I’m going through…

I’m a single mother (41 years old) of 2 rowdy boys and my life, which I thought would get better after leaving my abusive ex, has only spiraled downwards into a state of despair, embarrassment and shame. What I thought was hormonal acne, then thought was fungal acne, has bloomed into full-blown Morgellons (coloured fibres sprouting, hard, splinter-like debris being painfully pushed out of my skin, black specks which upon close examination are tightly-wound black fibres) – and it only appears on my face. My nose, mostly, which unfortunately is already my most prominent feature. I feel terrible as I’m so incredibly embarrassed to go out – I do for groceries, but only where I can checkout the items myself… I can’t even bear the thought of looking a cashier in the eye. I am trying to be strong for my boys, but it’s sooooooo hard. The guilt I feel from not taking my boys out and about as we used to do only compounds the feelings of shame. I’m not even sure why I’m sharing all of this, I’ve just felt so isolated and lonely and like a freak show… I’m typing furiously here, crying my eyes out… I guess I just need to connect with people who understand. 😭

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Salt , it's been working for me , lots of salt. Eat salty foods, it breaks it down and kills it

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@basslakeview

It was inside my skin. I didn't see it come out and don't know where on my body it came from. I think because my scalp is the most involved part of this disease, it had to have come from there. It was on a pillow on my couch just exactly in a spot where it had to have come from my head.

I haven't been able to speak to a professional that knows about Morgellons so I have only what I can learn off the internet. There is research going on all over the world. I just watched a video from the Charles E. Holman Foundation in Austin Texas that was very enlightening. Some have it much worse than I.

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Hi. I am not sure if you are still checking this. It is possible that you have either dust mites on your skin, which really live on dust and dead skin (people can be allergic to them as well). The other option could be dendruff mites. These are on dogs usually and can live on humans but cant reproduce on people. These also are very small and they do bite. Once the animal is treated (which sometimes they need more than one type of treatment) they should stop bugging you. As far as tiredness etc…it could be a side effect of immune reaction that you are clearly having. Your immune system is 'overreacting'. The inflammation etc and being run down creates the tiredness. I would try to calm the immune system and stay away from anything that may exacerbate inflammation in your body. Give us an update on how you are. Agi

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