Lyme Disease and its Co-Infections, Morgellons Disease and Parasites

Posted by basslakeview @basslakeview, Aug 30, 2018

UPDATED 6/16/2019
Hi,
I am Elizabeth Bass and I live in Southeast Texas very close to Galveston and Houston Texas with my companion Millie, a Yorkie. I moved here in March 2018 from Northeast Texas (Longview/Tyler) with a scalp condition that keeps morphing into something else, each time getting worse. It began in May 2016, and here it is 2019 and I still have "it," but I've learned a whole lot I never really wanted to know.

I have no idea what exactly is wrong with me, but because of what I found in July 2018 on my pillow I'm thinking Morgellons because I found the same looking thing someone else had posted and they were talking about Morgellons. I have attached two photos, one close up and the other is the original so you can have an idea of the actual size.

I also have these white sparkly/shiny critters on every inch of my body, especially my hair/scalp, and face/neck. They can only be seen if I take a picture using my camera with the FLASH ON. Otherwise, no one would know there is anything wrong with me.

This was discovered by accident when in May 2016 I got my long hair all cut off. Right after that (about a month) my head started itching in the upper center back. I couldn't see anything in a mirror so I picked up my phone and took a picture. I still couldn't see very well so I turned the flash on. THAT WAS IT!! (I saw more than I wanted to see.) At first I thought I had bed bugs and did everything I could to get rid of them, including lice treatment. Then I started seeing these shiny, sparkly-looking things. I accidentally caught some of them on camera flying around my head. I kept trying everything I could to rid myself of "them," but nothing has worked so far. However, it is now June 2019 and "the condition" only changes (morphs). It never goes away. I have seen 9 dermatologists, 2 derm PAs, 2 internists, and 2 GPs, a total of 16 (maybe more), counting the one I'm with now since "it" began. My hair fell out in that spot, I had lesions where the hair was missing, and when a new lesion would begin it was always itchy, then that hair would fall out, too. My hair grew back, but not quite as thick.

The fever and rash went away, but the achiness and lethargy/fatigue has stayed with me all these years. About a year or two after that fever, and after going to many, many doctors between Shreveport, Dallas, Tyler, and Houston, one of them said I have Fibromyalgia & Chronic Fatigue. I simply took his word for it. I was so very tired of seeing doctors, doing lab work, driving and working a full time, stressful job. I needed a break!

Then in 1999 I lost my left kidney to an oncocytoma (tumor the size of a softball), benign. Lost my gallbladder in 2004, had carpal tunnel surgery on both wrists at the same time in 2005. I don't think there's much left. I had already had a thyroidectomy in my 20s (Graves Disease), and a hysterectomy in 1986. Then, the BIGGEST loss of my life…my only child in 2013. I honestly did not think I was going to make it.

I had told every single one of ALL those doctors the story of the high fever and rash and how my GP thought it was Lymes, but lab was negative, and not ONE of them (nor me) simply thought of running another Lyme test until last year 2018. On Sept 18, 2018, my 72nd birthday the results were in and I was at my doctor's office with my sister to get the results. That test came back with all sorts of red flags, 30 years later!

Now I am 72 and the second antibiotic I'm on is not doing anything. After one month on Doxycycline (had to stop because my liver didnt like it) and two months on Clindamycin I haven't noticed anything positive, but that doesn't mean nothing is happening, RIGHT?!!. For some reason she didn't put me on anything else right away after the Doxy. Maybe I had to give my liver time to heal. She never said why, and I forget to ask these questions. I think I am going to simply start feeling POSITIVE about things no matter which way they go!!

UPDATE: I finally found a doctor who 'seems' to want to help me. She ran a Lyme test on my blood and was very excited she could help me which was very encouraging as you can imagine.

I have had Lyme Disease and a co-infection called Rocky Mountain Spotted Fever (since 1988-1990ish, 30 years ago). I remember it like it was yesterday. I had a high fever, achiness all over like a flu sickness, and a rash. It was not a flu. And the first thing he said to me was, "It looks like Lymes Disease to me!" Unfortunately, the lab report came back negative and neither one of us thought to do another test.

Yet, for some reason, I keep replaying one of my favorite songs in my head, Eric Clapton's, "NO MORE TEARS IN HEAVEN." (It makes me smile because I know I WILL see my son again and be able to talk to him.)

Ever heard of of the song? Check it out. Just Google it and listen.

USEFUL WEBSITES:

(https://thecehf.org).
To contact them: http://thecehf.org/contact.html

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6287027/ (You have to create a sign in with a password, but it's very simple and it's free.)

@shelby99

You can also mix epson salt with shampoo and wash hair etc. it does help and safer than borax. It definitely won’t cure but used daily or more you may feel less itchy etc

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Also the book is called “Bitten: the secret history of Lyme disease and biological weapons” By Kris Newby

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@1kayk

The head and shoulders shampoo with zinc seems to be good. Even the Dollar store brand.

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Nizoral shampoo prescribed shampoo helps at least from what I’ve tried but no matter what you can’t spend every minute or even hour trying to comfort yourself w/o making a dent overall in your condition. It consumes your life and your back to square one once you stop. It’s wrong and at some point I’d think you’d see how other ailments are involved too like chronic fatigue, cognitive issues, pain etc.

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Your story so similar to mine. Mine started with what I thought a virus, fever, breathlessness over 4 years ago. Then continuous symptoms, chronic reflux leading to asperation to lungs. Bloating, producing saliva constantly for months. B12, folate an vitamin D deficiency, Raynaud's, carpal tunnel. The most difficult to deal with is the depression and anxiety which I never suffered before. Hair started breaking then going patchy. Scalp itched and burned, then hair loss.
Doctors did tests at first but they never gave any answers. After more and more symptoms I researched to try and help myself. I went on a health checker and one outcome was Morgellons.
I remember reading about it and thinking how bad the disease was. The one symptom I did nt have was the fibres.
So when brown specks came through skin not long after, I went hysterical as it confirmed what I had.
My major problem at moment is scalp and eybrows, whatever I do is not helping at all. I can see and feel it worsening. It's gone past unbearable. I don't live, just exist. Getting through a day is an achievement. I can totally relate to everything you have suffered.

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@basslakeview

Thank you ever so much!!!

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Hi Elizabeth how’s everything going? Any new news?

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@shelby99

I don’t believe for one second that’s the issue especially when I got this shit immediately after vaccinations. But there is a new book out called “Bitten” that appears to fit the bill quite nicely!

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Thanks for the information. I will buy the book.

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@sharonmoy

Your story so similar to mine. Mine started with what I thought a virus, fever, breathlessness over 4 years ago. Then continuous symptoms, chronic reflux leading to asperation to lungs. Bloating, producing saliva constantly for months. B12, folate an vitamin D deficiency, Raynaud's, carpal tunnel. The most difficult to deal with is the depression and anxiety which I never suffered before. Hair started breaking then going patchy. Scalp itched and burned, then hair loss.
Doctors did tests at first but they never gave any answers. After more and more symptoms I researched to try and help myself. I went on a health checker and one outcome was Morgellons.
I remember reading about it and thinking how bad the disease was. The one symptom I did nt have was the fibres.
So when brown specks came through skin not long after, I went hysterical as it confirmed what I had.
My major problem at moment is scalp and eybrows, whatever I do is not helping at all. I can see and feel it worsening. It's gone past unbearable. I don't live, just exist. Getting through a day is an achievement. I can totally relate to everything you have suffered.

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Sharonmoy:
Before washing your hair use a lice comb and put a bath towel over your shoulders. You have to comb several times, spend more than half hour until your hair is untangled. You will see black speck, and tangled "look alike hair" coming down. Also, very short "look alike hair" coming down. Then, wash your hair.

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basslakeview: How are you doing ? MariaO

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@basslakeview

Thank you so very much for your kind words, Lita (My assumption. I apologize if it's wrong.)

Yes it's been a very interesting last 3 years with all this crazy medical mysteries that seem to have taken over my body. I am, thankful, and more than grateful to my God for no physical pain so far anyway. The only pain has been "mental," and some days aren't so bad.

I probably need to write an update to my profile page because things are changing all the time. I don't know if you've read everything I've written to others, but there are updates with time progression of this condition goes on.

I found out in Sept (2018) I have had Lyme Disease and Rocky Mountain Spotted Fever since around 1990, maybe even two or three years before that. It's been about 30 years with no treatment since no doctor really knows what to do with me. But there is more information every day on the internet.

The only assumption I can come up with is that the Lyme and the RMSF have morphed into something that no one knows how to treat except with heavy antibiotics…the Lyme treatments. Problem with that (for me at least) is I lost my left kidney in 1999, and gallbladder in 2004. And my liver didn't like the first antibiotic regimen (Doxycycline). My doctor has had me on a low dose of Clindamycin since the Doxycycline, but, personally, I don't think it's doing much good. I have an intuition it's just not strong enough, but what do I know?!!!

That's about it today. I will post more updated pictures, too.

I appreciate your encouragement, kind words, and especially a prayer (to your God) for me.

What seems to be your problem, and I would love to read about your miracle, too?

Elizabeth 🥀♥️

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Elizabeth – Ive had a lot of luck with this Adams product. It is a carpet powder u can also use on furniture, bedspreads, etc. It's Adams carpet powder with Linalool and Nylar (a IGR). K

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@1kayk

Elizabeth – Ive had a lot of luck with this Adams product. It is a carpet powder u can also use on furniture, bedspreads, etc. It's Adams carpet powder with Linalool and Nylar (a IGR). K

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There are also new products like vacuum to be used on hair and skin.
lice/vacuum that can absorb morgellons like hair, black specks, etc. Also, there a lice/flea vacuum for dogs that can be used in humans.
There are a vacuum for skin. Are inexpensive, small, run on batteries and most people feel much better.

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Hello. I have some of the same things you are describing. And I too have a family member who committed suicide, my mom. I thought this was interesting.

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@basslakeview

Going to a Vet Tuesday (for my little dog who is scratching herself like crazy). And, yes, I hope he's an older person with more knowledge, and will be able to help us both.

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Have you heard of the human screw worm? Or the human botfly (new world order species) …the basic jist is that they lay there eggs on either mosquito or fleas and when they bite you the fly lava will burrow through the bite or open wounds or even hair follicles.

when the worm first borrows if it is disturbed it burrows deeper down. The fly lava develops tunnels, and paupatates and comes out the skin. They look like regular houseflys.

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I thought for long time was psoriasis but it progressed and now i find lofs of evidence and treat myself with ivermectin horse paste. I have been to the doctors and have laughed at me and shunned me with sreroid creams for 7 years and its getting worse,which by the way make parasites and fungal infections worse by altering your immune responce and changes the appearance so it becomes difficult to diagnose .i think there are strong links between parasites and "auto immune diseases ".

I dont believe that my body is attacking healthy cells i think it is an immune response to parasite infections and after all the reasearch i have done most poepole dont have any symptoms when they have parasites.

Unless it worsens then they treat servere cases but even then i suspect its often misdiagnosed and treated as auto immune diseases or ibs or something else that they dont know whats the cause is and theres no "known" cure!!! I just dont believe this and when you express concern of parasites or something seriously wrong the doctors belittle you and fob you off and then you end up diagnosed with terminal ovarian cancer at stage 4 at age 45, after years of struggling through and being turned away. Like my mum did. So now i do not trust the doctors and reasearch my symptoms myself.

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@kate19

I thought for long time was psoriasis but it progressed and now i find lofs of evidence and treat myself with ivermectin horse paste. I have been to the doctors and have laughed at me and shunned me with sreroid creams for 7 years and its getting worse,which by the way make parasites and fungal infections worse by altering your immune responce and changes the appearance so it becomes difficult to diagnose .i think there are strong links between parasites and "auto immune diseases ".

I dont believe that my body is attacking healthy cells i think it is an immune response to parasite infections and after all the reasearch i have done most poepole dont have any symptoms when they have parasites.

Unless it worsens then they treat servere cases but even then i suspect its often misdiagnosed and treated as auto immune diseases or ibs or something else that they dont know whats the cause is and theres no "known" cure!!! I just dont believe this and when you express concern of parasites or something seriously wrong the doctors belittle you and fob you off and then you end up diagnosed with terminal ovarian cancer at stage 4 at age 45, after years of struggling through and being turned away. Like my mum did. So now i do not trust the doctors and reasearch my symptoms myself.

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Yes, I believe there is a parasite connection here. I'm on my fourth dose of ivermectin. I felt better after the first 2 but then it started again. Never heard of screw worms. I've been to many Drs and a dermatologist and they all are disinterested and I can tell they think I'm mentally ill. And I am… now after all this. I was only given ivermectin because I asked for it. 4 different diagnoses! These people studied medical science for 7-10 years and took an oath to help. Very discouraged.

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