Lyme Disease and its Co-Infections, Morgellons Disease and Parasites

Posted by basslakeview @basslakeview, Aug 30, 2018

UPDATED 6/16/2019
Hi,
I am Elizabeth Bass and I live in Southeast Texas very close to Galveston and Houston Texas with my companion Millie, a Yorkie. I moved here in March 2018 from Northeast Texas (Longview/Tyler) with a scalp condition that keeps morphing into something else, each time getting worse. It began in May 2016, and here it is 2019 and I still have "it," but I've learned a whole lot I never really wanted to know.

I have no idea what exactly is wrong with me, but because of what I found in July 2018 on my pillow I'm thinking Morgellons because I found the same looking thing someone else had posted and they were talking about Morgellons. I have attached two photos, one close up and the other is the original so you can have an idea of the actual size.

I also have these white sparkly/shiny critters on every inch of my body, especially my hair/scalp, and face/neck. They can only be seen if I take a picture using my camera with the FLASH ON. Otherwise, no one would know there is anything wrong with me.

This was discovered by accident when in May 2016 I got my long hair all cut off. Right after that (about a month) my head started itching in the upper center back. I couldn't see anything in a mirror so I picked up my phone and took a picture. I still couldn't see very well so I turned the flash on. THAT WAS IT!! (I saw more than I wanted to see.) At first I thought I had bed bugs and did everything I could to get rid of them, including lice treatment. Then I started seeing these shiny, sparkly-looking things. I accidentally caught some of them on camera flying around my head. I kept trying everything I could to rid myself of "them," but nothing has worked so far. However, it is now June 2019 and "the condition" only changes (morphs). It never goes away. I have seen 9 dermatologists, 2 derm PAs, 2 internists, and 2 GPs, a total of 16 (maybe more), counting the one I'm with now since "it" began. My hair fell out in that spot, I had lesions where the hair was missing, and when a new lesion would begin it was always itchy, then that hair would fall out, too. My hair grew back, but not quite as thick.

The fever and rash went away, but the achiness and lethargy/fatigue has stayed with me all these years. About a year or two after that fever, and after going to many, many doctors between Shreveport, Dallas, Tyler, and Houston, one of them said I have Fibromyalgia & Chronic Fatigue. I simply took his word for it. I was so very tired of seeing doctors, doing lab work, driving and working a full time, stressful job. I needed a break!

Then in 1999 I lost my left kidney to an oncocytoma (tumor the size of a softball), benign. Lost my gallbladder in 2004, had carpal tunnel surgery on both wrists at the same time in 2005. I don't think there's much left. I had already had a thyroidectomy in my 20s (Graves Disease), and a hysterectomy in 1986. Then, the BIGGEST loss of my life…my only child in 2013. I honestly did not think I was going to make it.

I had told every single one of ALL those doctors the story of the high fever and rash and how my GP thought it was Lymes, but lab was negative, and not ONE of them (nor me) simply thought of running another Lyme test until last year 2018. On Sept 18, 2018, my 72nd birthday the results were in and I was at my doctor's office with my sister to get the results. That test came back with all sorts of red flags, 30 years later!

Now I am 72 and the second antibiotic I'm on is not doing anything. After one month on Doxycycline (had to stop because my liver didnt like it) and two months on Clindamycin I haven't noticed anything positive, but that doesn't mean nothing is happening, RIGHT?!!. For some reason she didn't put me on anything else right away after the Doxy. Maybe I had to give my liver time to heal. She never said why, and I forget to ask these questions. I think I am going to simply start feeling POSITIVE about things no matter which way they go!!

UPDATE: I finally found a doctor who 'seems' to want to help me. She ran a Lyme test on my blood and was very excited she could help me which was very encouraging as you can imagine.

I have had Lyme Disease and a co-infection called Rocky Mountain Spotted Fever (since 1988-1990ish, 30 years ago). I remember it like it was yesterday. I had a high fever, achiness all over like a flu sickness, and a rash. It was not a flu. And the first thing he said to me was, "It looks like Lymes Disease to me!" Unfortunately, the lab report came back negative and neither one of us thought to do another test.

Yet, for some reason, I keep replaying one of my favorite songs in my head, Eric Clapton's, "NO MORE TEARS IN HEAVEN." (It makes me smile because I know I WILL see my son again and be able to talk to him.)

Ever heard of of the song? Check it out. Just Google it and listen.

USEFUL WEBSITES:

(https://thecehf.org).
To contact them: http://thecehf.org/contact.html

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6287027/ (You have to create a sign in with a password, but it's very simple and it's free.)

@basslakeview

Do you ever leave the sulfur conditioner in overnight with like a plastic cap to sleep in? I do that sometimes and it seems to "thin the herd" some.
Mine use to be these shiny looking organisms. It wasn't really bug-looking things, but some could fly. I accidentally caught them on camera, but you can't see them without the flash on.
Now it seems to be less of them and more other things like other white things, different shapes and sizes. Then my hair started looking like it wasn't hair anymore. A lot of the so-called hair was bigger and somehow branched into 3 or four more, then ….

I'm going to stop there or everyone will really think I am a mental case. One dermatologist PA said I had "parasitic psychosis"!!! That was early on! (Now, after reading scientific research papers, she probably wouldn't know what to call me.) Well, she would have made me angry had I not been waiting for at least one of the 8, at that point she was the 9th, to say that. I had already read somewhere that's what they were telling people. Why are they (physicians) so afraid to simply say, "I don't know?" There is not ONE thing wrong with anyone saying that.
I don't get it!!

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You don’t get it because it’s beyond criminal. There is too much money to be made by not knowing the underlying cause and treating things that appear to be symptoms and of course while other areas of the body go awry. Like the thyroid, heart, skin, eyes, etc etc. it’s kinda brilliant cause your paying for it too. I realized a lot after getting this. As I’ve said before I was functioning albeit with some unresolved medical issues until mandated vaccinations and boom within 48 hours I had wounds and hair loss. They don’t care if your life was ruined there is money to be made by putting you on antidelusional or other mental health scripts for a long time. Then when you have something wrong with your thyroid, heart, kidney, gallbladder etc your sent to that specialist to start the process over again. People just need to wake up and see. The only people who see the truth are the ones living it unfortunately. I hope shit hits the fan in the near future!

REPLY
@lita0417

Has anyone tried magnetic treatment?

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I tried it and it did absolutely nothing for me but I only can speak for me. I’d recommend a good probiotic (over 200 billion) which you can order on amazon if your not already doing that. I really feel for you and sorry if I sound angry. I am very angry but only because people are suffering and being shoved under the carpet. Thanks to the CDC, etc!!!!

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@lita0417

I just feel like a big bunch of nothing. Waisted life . Taking space

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Your children need you to be strong! Every life is precious including yours sweetie!

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@basslakeview

Shelby,
I still have not done that yet, but I will on Monday. I have do do it Mondat, Tuesday or Wednesday or have to wait till the next week.
BUT. I also was suppose to go to my regular lab, too, and it's been at least a month since I was suppose to do both of those.
I got really down this past month. Could not get it together enough to do it.
Elizabeth.

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That’s ok Elizabeth. Just wanted to make sure your getting tested for babesia due to your age (it gets worse with age) and you maybe able to tolerate the treatment for it too. It would also help your immune system fight this crap if other things are treated.

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@shelby99

That’s ok Elizabeth. Just wanted to make sure your getting tested for babesia due to your age (it gets worse with age) and you maybe able to tolerate the treatment for it too. It would also help your immune system fight this crap if other things are treated.

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Thank you ever so much!!!

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@basslakeview

Do you ever leave the sulfur conditioner in overnight with like a plastic cap to sleep in? I do that sometimes and it seems to "thin the herd" some.
Mine use to be these shiny looking organisms. It wasn't really bug-looking things, but some could fly. I accidentally caught them on camera, but you can't see them without the flash on.
Now it seems to be less of them and more other things like other white things, different shapes and sizes. Then my hair started looking like it wasn't hair anymore. A lot of the so-called hair was bigger and somehow branched into 3 or four more, then ….

I'm going to stop there or everyone will really think I am a mental case. One dermatologist PA said I had "parasitic psychosis"!!! That was early on! (Now, after reading scientific research papers, she probably wouldn't know what to call me.) Well, she would have made me angry had I not been waiting for at least one of the 8, at that point she was the 9th, to say that. I had already read somewhere that's what they were telling people. Why are they (physicians) so afraid to simply say, "I don't know?" There is not ONE thing wrong with anyone saying that.
I don't get it!!

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Hi- Yes I leave sulphur 8 in over nite sometimes ,it's really greasy takes 3-4 shampos to wash out. I also put it in my skin face and back. Lately I've been taking vitamins with sulphur. Yet, on days that it rains the bugs seem to invade. I get them off one part of my body they move to another part.Wears you out! I can't get copy of my lab report until I go back again and pay Dr. another $200.00. Still paying first visit. Hope ur better.

REPLY
@shelby99

Hey Elizabeth. Still hoping to hear what test you took that came up positive for Lyme and RMSF in 2018

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I happened to see this again so here is the info I think you wanted:

She ordered the following: (wish we could just give each other our email addresses. I could then just send you a copy of my LabCorp Report):

#1.%CDS-/CD57+Lymphs (mine was 1.8) normal is 2.0-17.0

#2. Abs.CDS-CD57+Lymphs (mine was 16) Normal is 60-360

#3. Lyme, Western Blot, Serum, (I'm not going to write all of that one's information, too long & complicated and I'm on my cell phone.)Mine was Negative

#4. Lyme, Ab, IgM by WB. Included with this is: Lyme IgM WB Interpret. (Mine=negative)

#5. Bartonella Antibody Panel – includes henselae and Quintana (mine was negative)

#6. Ehrlichia Ab Panel (Contains 4 tests)

a. E. Chaffeensis ((HME) IgG Titer
AND
b. E. Chaffeensis (HME) IgM Titer
(Mine were both Negative)
c. HGE IgG Titer (Mine=Negative)
d. HGEIgM Titer (Mine=Neg.)

#6. Babesia microti Antibody Panel:
Babesia micro IgM
Babesia microti IgG
(Mine=Negative for both)

#7. Lyme Ab/Western Blot Reflex. Includes:
Lyme IgG/IgM Ab and
Lyme Disease Ab, Quant, IgM. (Mine=Negative for both)

#8. Trans. Growth Fact. beta 1" (Normal is 867-6662) (Mine was 7037)
LabCorp says: "Assay range is 98 – 400,000. CDC ref. range is 867-6662."
Make sense? So not sure what that means.

#9. Complement C4a
(Normal is 0.0-650.0 ng/mL)
Mine=513.4)

#10. Rocky Mountain Spotted Fever (RMSF), IgG, Qn

RMSF, IgG, EIA
(Mine=Positive Abnormal)

RMSF, IgG, IFA should be <1:64
(Mine=1:128 HIGH)

#11. RMSF, IgM (Normal is 0.00-0.89)
(Mine=0.13 Negative!)

That's all kiddo besides some regular lab work like CBC!! Didn't you say Babesia was the bad one?

REPLY
@basslakeview

I happened to see this again so here is the info I think you wanted:

She ordered the following: (wish we could just give each other our email addresses. I could then just send you a copy of my LabCorp Report):

#1.%CDS-/CD57+Lymphs (mine was 1.8) normal is 2.0-17.0

#2. Abs.CDS-CD57+Lymphs (mine was 16) Normal is 60-360

#3. Lyme, Western Blot, Serum, (I'm not going to write all of that one's information, too long & complicated and I'm on my cell phone.)Mine was Negative

#4. Lyme, Ab, IgM by WB. Included with this is: Lyme IgM WB Interpret. (Mine=negative)

#5. Bartonella Antibody Panel – includes henselae and Quintana (mine was negative)

#6. Ehrlichia Ab Panel (Contains 4 tests)

a. E. Chaffeensis ((HME) IgG Titer
AND
b. E. Chaffeensis (HME) IgM Titer
(Mine were both Negative)
c. HGE IgG Titer (Mine=Negative)
d. HGEIgM Titer (Mine=Neg.)

#6. Babesia microti Antibody Panel:
Babesia micro IgM
Babesia microti IgG
(Mine=Negative for both)

#7. Lyme Ab/Western Blot Reflex. Includes:
Lyme IgG/IgM Ab and
Lyme Disease Ab, Quant, IgM. (Mine=Negative for both)

#8. Trans. Growth Fact. beta 1" (Normal is 867-6662) (Mine was 7037)
LabCorp says: "Assay range is 98 – 400,000. CDC ref. range is 867-6662."
Make sense? So not sure what that means.

#9. Complement C4a
(Normal is 0.0-650.0 ng/mL)
Mine=513.4)

#10. Rocky Mountain Spotted Fever (RMSF), IgG, Qn

RMSF, IgG, EIA
(Mine=Positive Abnormal)

RMSF, IgG, IFA should be <1:64
(Mine=1:128 HIGH)

#11. RMSF, IgM (Normal is 0.00-0.89)
(Mine=0.13 Negative!)

That's all kiddo besides some regular lab work like CBC!! Didn't you say Babesia was the bad one?

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Wow Elizabeth sorry that you had to do all that typing. I sent you my email on one the the private messages through this site several months ago I thought but I’m not sure how you even access it. I put my email on this before but it was taken down. I understand the reason. At any rate, it appears you are definitely positive for Rocky Mountain which you remember being ill and misdiagnosed etc. Also there is another Babesia. It is babesia Ducani which is suppose to be rare but funny cause I tested positive for it. Usually a healthy immune system can tolerate it but obvious ours are not healthy and being over 50 adds to it. Did you take the igenex lab yet? It takes a few weeks to get the results so please keep us updated. Also are you being treated by a LLMD at this point? God Bless!!

REPLY
@basslakeview

Do you ever leave the sulfur conditioner in overnight with like a plastic cap to sleep in? I do that sometimes and it seems to "thin the herd" some.
Mine use to be these shiny looking organisms. It wasn't really bug-looking things, but some could fly. I accidentally caught them on camera, but you can't see them without the flash on.
Now it seems to be less of them and more other things like other white things, different shapes and sizes. Then my hair started looking like it wasn't hair anymore. A lot of the so-called hair was bigger and somehow branched into 3 or four more, then ….

I'm going to stop there or everyone will really think I am a mental case. One dermatologist PA said I had "parasitic psychosis"!!! That was early on! (Now, after reading scientific research papers, she probably wouldn't know what to call me.) Well, she would have made me angry had I not been waiting for at least one of the 8, at that point she was the 9th, to say that. I had already read somewhere that's what they were telling people. Why are they (physicians) so afraid to simply say, "I don't know?" There is not ONE thing wrong with anyone saying that.
I don't get it!!

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You said you hair look like it is not your own hair any more. I feel the same way.
When I use the metal lice comb I pull all those "look alike hair" fibers. Like you said they do sometime branch into 3 or 4. However, when I pull those look alike fibers I feel no pain.
Some times I spend 2 or 3 hrs combing my hair with the lice comb and I pull as much "hair look alike fibers" as I can.
I am sure it is not my own hair because I don't feel any pain. Scalp hurts when real hair is pulled
If those fiber would be my hair, I would be bald by now.

It seems that Morgellon produces a sticky silk (hair look alike) that get glue into our hair.

Physicians won't believe us. The term delusional parasitosis was introduced in 1946 by a doctor that believed his patients were delusional. Since then physicians instead of investigating they just label delusional those patients that are suffering from this type of infestation.

Even if they are suspicious that there is a real infestation, they are so afraid of being labeled a quack doctor and lose their prestige, that they won't investigate. They won't investigate except if they get Morgellon themselves.

I am pretty sure that sooner or later they will get Morgellon and then they will start investigating.
So, it is a matter of time.

https://www.dovepress.com/delusional-infestation-are-you-being-bugged-peer-reviewed-fulltext-article-OPTH Here is some information why they don't believe us

REPLY
@shelby99

You don’t get it because it’s beyond criminal. There is too much money to be made by not knowing the underlying cause and treating things that appear to be symptoms and of course while other areas of the body go awry. Like the thyroid, heart, skin, eyes, etc etc. it’s kinda brilliant cause your paying for it too. I realized a lot after getting this. As I’ve said before I was functioning albeit with some unresolved medical issues until mandated vaccinations and boom within 48 hours I had wounds and hair loss. They don’t care if your life was ruined there is money to be made by putting you on antidelusional or other mental health scripts for a long time. Then when you have something wrong with your thyroid, heart, kidney, gallbladder etc your sent to that specialist to start the process over again. People just need to wake up and see. The only people who see the truth are the ones living it unfortunately. I hope shit hits the fan in the near future!

Jump to this post

Hi !
Physicians won't believe us. The term delusional parasitosis was introduced in 1946 by a doctor that believed his patients were delusional. Since then physicians instead of investigating they just label delusional to people that are suffering from this type of infestation. They are afraid of being labeled a quack doctor and lose prestige so they won't investigate except if they get Morgellons themselves.

https://www.dovepress.com/delusional-infestation-are-you-being-bugged-peer-reviewed-fulltext-article-OPTH

When a physician told me that I was delusional. I told him I am not delusional, and I changed the conversation to another issue. I had to see him again for another issue and then he asked me if my skin and hair condition improved. I told him I am sorry to tell you that my skin and hair condition did not improved at all. I also know you don't understand this condition, so forget about this issue. Then, I changed the conversation to another topic.

I don't even try to convince them. I don't even try to explain them, I know they won't help us. So, I am controlling Morgellon using a lice comb, mixing my shampoo with anti bacterial soap, using coconut oil moisturizer, cutting my hair short, washing my hair every day, changing sheets every day, etc.

When I use the metal lice comb I pull all those "like hair" fibers that sometime branch into 3 or 4 and I feel no pain. That means is not my hair is some type of fiber that get attached or tangle with my own hair. I discovered it long ago, but I don't tell any doctor because they will probably think that I am delusional.
Some times I spend 2 or 3 hrs combing my hair with the lice comb and I pull as much "hair look alike fibers" as I can. I am sure it is not my hair because I don't feel any pain. Scalp hurts when real hair is pulled
Otherwise I would be bald by now.
It seems that Morgellon produces a sticky silk (hair look alike) that get glue into our hair.
Best wishes.

REPLY
@basslakeview

Do you ever leave the sulfur conditioner in overnight with like a plastic cap to sleep in? I do that sometimes and it seems to "thin the herd" some.
Mine use to be these shiny looking organisms. It wasn't really bug-looking things, but some could fly. I accidentally caught them on camera, but you can't see them without the flash on.
Now it seems to be less of them and more other things like other white things, different shapes and sizes. Then my hair started looking like it wasn't hair anymore. A lot of the so-called hair was bigger and somehow branched into 3 or four more, then ….

I'm going to stop there or everyone will really think I am a mental case. One dermatologist PA said I had "parasitic psychosis"!!! That was early on! (Now, after reading scientific research papers, she probably wouldn't know what to call me.) Well, she would have made me angry had I not been waiting for at least one of the 8, at that point she was the 9th, to say that. I had already read somewhere that's what they were telling people. Why are they (physicians) so afraid to simply say, "I don't know?" There is not ONE thing wrong with anyone saying that.
I don't get it!!

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Elizabeth I found the borax hair wash recipe in hints for home remedies book. It's 1 oz borax and 1/2 oz camphor dissolved bouling water. The camphor will have lumps but be effective. Haven't tried it yet. I've been putting lots salt in my hair and bath water. The parasite s don't like it so they ate trying to multiply which is the survival technick for these things that's why they are so hard to get rid of. K

REPLY
@mariao

Hi !
Physicians won't believe us. The term delusional parasitosis was introduced in 1946 by a doctor that believed his patients were delusional. Since then physicians instead of investigating they just label delusional to people that are suffering from this type of infestation. They are afraid of being labeled a quack doctor and lose prestige so they won't investigate except if they get Morgellons themselves.

https://www.dovepress.com/delusional-infestation-are-you-being-bugged-peer-reviewed-fulltext-article-OPTH

When a physician told me that I was delusional. I told him I am not delusional, and I changed the conversation to another issue. I had to see him again for another issue and then he asked me if my skin and hair condition improved. I told him I am sorry to tell you that my skin and hair condition did not improved at all. I also know you don't understand this condition, so forget about this issue. Then, I changed the conversation to another topic.

I don't even try to convince them. I don't even try to explain them, I know they won't help us. So, I am controlling Morgellon using a lice comb, mixing my shampoo with anti bacterial soap, using coconut oil moisturizer, cutting my hair short, washing my hair every day, changing sheets every day, etc.

When I use the metal lice comb I pull all those "like hair" fibers that sometime branch into 3 or 4 and I feel no pain. That means is not my hair is some type of fiber that get attached or tangle with my own hair. I discovered it long ago, but I don't tell any doctor because they will probably think that I am delusional.
Some times I spend 2 or 3 hrs combing my hair with the lice comb and I pull as much "hair look alike fibers" as I can. I am sure it is not my hair because I don't feel any pain. Scalp hurts when real hair is pulled
Otherwise I would be bald by now.
It seems that Morgellon produces a sticky silk (hair look alike) that get glue into our hair.
Best wishes.

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I don’t believe for one second that’s the issue especially when I got this shit immediately after vaccinations. But there is a new book out called “Bitten” that appears to fit the bill quite nicely!

REPLY
@mariao

You said you hair look like it is not your own hair any more. I feel the same way.
When I use the metal lice comb I pull all those "look alike hair" fibers. Like you said they do sometime branch into 3 or 4. However, when I pull those look alike fibers I feel no pain.
Some times I spend 2 or 3 hrs combing my hair with the lice comb and I pull as much "hair look alike fibers" as I can.
I am sure it is not my own hair because I don't feel any pain. Scalp hurts when real hair is pulled
If those fiber would be my hair, I would be bald by now.

It seems that Morgellon produces a sticky silk (hair look alike) that get glue into our hair.

Physicians won't believe us. The term delusional parasitosis was introduced in 1946 by a doctor that believed his patients were delusional. Since then physicians instead of investigating they just label delusional those patients that are suffering from this type of infestation.

Even if they are suspicious that there is a real infestation, they are so afraid of being labeled a quack doctor and lose their prestige, that they won't investigate. They won't investigate except if they get Morgellon themselves.

I am pretty sure that sooner or later they will get Morgellon and then they will start investigating.
So, it is a matter of time.

https://www.dovepress.com/delusional-infestation-are-you-being-bugged-peer-reviewed-fulltext-article-OPTH Here is some information why they don't believe us

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Elizabeth Thank you for your valuable information. Here's my new trial.. the salt cure. I disolve lots salt in water sea salt or regular salt. Pour on body, splash on face. If you rub some on eyelids it will sting however, after couple days it will get the parasites off your eyelids takes a week or so if you get to dry put baby oil on. Pour in hair put plastic cap on wash out any time you feel a crawling feeling dab with a hand full of pure salt. It will kill some parasites not all. It helps. K

REPLY
@1kayk

Elizabeth Thank you for your valuable information. Here's my new trial.. the salt cure. I disolve lots salt in water sea salt or regular salt. Pour on body, splash on face. If you rub some on eyelids it will sting however, after couple days it will get the parasites off your eyelids takes a week or so if you get to dry put baby oil on. Pour in hair put plastic cap on wash out any time you feel a crawling feeling dab with a hand full of pure salt. It will kill some parasites not all. It helps. K

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You can also mix epson salt with shampoo and wash hair etc. it does help and safer than borax. It definitely won’t cure but used daily or more you may feel less itchy etc

REPLY
@shelby99

You can also mix epson salt with shampoo and wash hair etc. it does help and safer than borax. It definitely won’t cure but used daily or more you may feel less itchy etc

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The head and shoulders shampoo with zinc seems to be good. Even the Dollar store brand.

REPLY
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