Lyme Disease and its Co-Infections, Morgellons Disease and Parasites

Posted by basslakeview @basslakeview, Aug 30, 2018

UPDATED 6/16/2019
Hi,
I am Elizabeth Bass and I live in Southeast Texas very close to Galveston and Houston Texas with my companion Millie, a Yorkie. I moved here in March 2018 from Northeast Texas (Longview/Tyler) with a scalp condition that keeps morphing into something else, each time getting worse. It began in May 2016, and here it is 2019 and I still have "it," but I've learned a whole lot I never really wanted to know.

I have no idea what exactly is wrong with me, but because of what I found in July 2018 on my pillow I'm thinking Morgellons because I found the same looking thing someone else had posted and they were talking about Morgellons. I have attached two photos, one close up and the other is the original so you can have an idea of the actual size.

I also have these white sparkly/shiny critters on every inch of my body, especially my hair/scalp, and face/neck. They can only be seen if I take a picture using my camera with the FLASH ON. Otherwise, no one would know there is anything wrong with me.

This was discovered by accident when in May 2016 I got my long hair all cut off. Right after that (about a month) my head started itching in the upper center back. I couldn't see anything in a mirror so I picked up my phone and took a picture. I still couldn't see very well so I turned the flash on. THAT WAS IT!! (I saw more than I wanted to see.) At first I thought I had bed bugs and did everything I could to get rid of them, including lice treatment. Then I started seeing these shiny, sparkly-looking things. I accidentally caught some of them on camera flying around my head. I kept trying everything I could to rid myself of "them," but nothing has worked so far. However, it is now June 2019 and "the condition" only changes (morphs). It never goes away. I have seen 9 dermatologists, 2 derm PAs, 2 internists, and 2 GPs, a total of 16 (maybe more), counting the one I'm with now since "it" began. My hair fell out in that spot, I had lesions where the hair was missing, and when a new lesion would begin it was always itchy, then that hair would fall out, too. My hair grew back, but not quite as thick.

The fever and rash went away, but the achiness and lethargy/fatigue has stayed with me all these years. About a year or two after that fever, and after going to many, many doctors between Shreveport, Dallas, Tyler, and Houston, one of them said I have Fibromyalgia & Chronic Fatigue. I simply took his word for it. I was so very tired of seeing doctors, doing lab work, driving and working a full time, stressful job. I needed a break!

Then in 1999 I lost my left kidney to an oncocytoma (tumor the size of a softball), benign. Lost my gallbladder in 2004, had carpal tunnel surgery on both wrists at the same time in 2005. I don't think there's much left. I had already had a thyroidectomy in my 20s (Graves Disease), and a hysterectomy in 1986. Then, the BIGGEST loss of my life…my only child in 2013. I honestly did not think I was going to make it.

I had told every single one of ALL those doctors the story of the high fever and rash and how my GP thought it was Lymes, but lab was negative, and not ONE of them (nor me) simply thought of running another Lyme test until last year 2018. On Sept 18, 2018, my 72nd birthday the results were in and I was at my doctor's office with my sister to get the results. That test came back with all sorts of red flags, 30 years later!

Now I am 72 and the second antibiotic I'm on is not doing anything. After one month on Doxycycline (had to stop because my liver didnt like it) and two months on Clindamycin I haven't noticed anything positive, but that doesn't mean nothing is happening, RIGHT?!!. For some reason she didn't put me on anything else right away after the Doxy. Maybe I had to give my liver time to heal. She never said why, and I forget to ask these questions. I think I am going to simply start feeling POSITIVE about things no matter which way they go!!

UPDATE: I finally found a doctor who 'seems' to want to help me. She ran a Lyme test on my blood and was very excited she could help me which was very encouraging as you can imagine.

I have had Lyme Disease and a co-infection called Rocky Mountain Spotted Fever (since 1988-1990ish, 30 years ago). I remember it like it was yesterday. I had a high fever, achiness all over like a flu sickness, and a rash. It was not a flu. And the first thing he said to me was, "It looks like Lymes Disease to me!" Unfortunately, the lab report came back negative and neither one of us thought to do another test.

Yet, for some reason, I keep replaying one of my favorite songs in my head, Eric Clapton's, "NO MORE TEARS IN HEAVEN." (It makes me smile because I know I WILL see my son again and be able to talk to him.)

Ever heard of of the song? Check it out. Just Google it and listen.

USEFUL WEBSITES:

(https://thecehf.org).
To contact them: http://thecehf.org/contact.html

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6287027/ (You have to create a sign in with a password, but it's very simple and it's free.)

@basslakeview

I use it in wash, too, but never heard of putting it on hair. Maybe it was someone else who wrote that about putting out on your hair.

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N of Longview rural family farm. House in Dallas

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@shelby99

Elizabeth the doxy comment was just for that specific person while determining whether or not to see a LLMD. Doxy alone is t going to fix Morgellons but it better than the other stuff she was using in my opinion. I realize your original doctor thought Lyme and then the negative test prevailed but that does negate the fact that you underwent decades of medical issues because of that failure. My problem is why is the same stupid shit occurring 30 years later. But at any rate, I know of and took the igenex test. I took the full test. You did not cause the full test is over 2000. Who decided that you take the less expensive test if it is covered for you? I am concerned for you in that there is another test by igenex for babesia. I don’t think you took it based on the price you’ve noted. Do you know what the test covers? Did you decide on the partial test or did someone else? Were you tested for babesia?

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Hi Elizabeth I looked up the igenex and they’ve changed the form from when I did it so hopefully you were able to get a test that test for all coinfections!!

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Has anyone tried magnetic treatment?

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I was so fatigued my doctor tested my blood (I think only because she thought I was on drugs due to major weight loss) my tests finally came back with thyroid very very low vitamin D and B… I can’t keep up with this! Feel so alone… want to give up! Tried calling the lymes literate doctors around and they all want lots of cash for all of us! I am going through so much because my children missed school. But on a good note my teenagers know there’s something not right. They go thru pain, fatigue… God I use to pray and pray and I don’t know if he’s even hearing me anymore!

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I just feel like a big bunch of nothing. Waisted life . Taking space

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No friends. No life… I miss what I use to be. Good or bad lol I just miss being something.

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@lita0417, I am so very sorry. I sense your pain, your discouragement, your hopelessness, etc. I have no quick answers for you, but I have felt all the emotions you are currently experiencing. Life is so danged rough sometimes that we wonder if we can get through the next moment, much less the day or the week or any future. Please believe me when I tell you I am proof that miracles do happen. Hang on. I am rooting for you, and I know many other good people here are also sending good thoughts your way.

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@capausz

@lita0417, I am so very sorry. I sense your pain, your discouragement, your hopelessness, etc. I have no quick answers for you, but I have felt all the emotions you are currently experiencing. Life is so danged rough sometimes that we wonder if we can get through the next moment, much less the day or the week or any future. Please believe me when I tell you I am proof that miracles do happen. Hang on. I am rooting for you, and I know many other good people here are also sending good thoughts your way.

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Thank you so very much for your kind words, Lita (My assumption. I apologize if it's wrong.)

Yes it's been a very interesting last 3 years with all this crazy medical mysteries that seem to have taken over my body. I am, thankful, and more than grateful to my God for no physical pain so far anyway. The only pain has been "mental," and some days aren't so bad.

I probably need to write an update to my profile page because things are changing all the time. I don't know if you've read everything I've written to others, but there are updates with time progression of this condition goes on.

I found out in Sept (2018) I have had Lyme Disease and Rocky Mountain Spotted Fever since around 1990, maybe even two or three years before that. It's been about 30 years with no treatment since no doctor really knows what to do with me. But there is more information every day on the internet.

The only assumption I can come up with is that the Lyme and the RMSF have morphed into something that no one knows how to treat except with heavy antibiotics…the Lyme treatments. Problem with that (for me at least) is I lost my left kidney in 1999, and gallbladder in 2004. And my liver didn't like the first antibiotic regimen (Doxycycline). My doctor has had me on a low dose of Clindamycin since the Doxycycline, but, personally, I don't think it's doing much good. I have an intuition it's just not strong enough, but what do I know?!!!

That's about it today. I will post more updated pictures, too.

I appreciate your encouragement, kind words, and especially a prayer (to your God) for me.

What seems to be your problem, and I would love to read about your miracle, too?

Elizabeth 🥀♥️

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@lita0417

No friends. No life… I miss what I use to be. Good or bad lol I just miss being something.

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I have had those exact feelings for the last 6 years, Lita. I lost my precious only child in 2013. I think I slept through the next 3 years until this new illness began then I was between the illness and my grief until my sister and brother-in-law moved me closer to them. I was encouraged by the move, but after sleeping for nearly 6 years, I had lost all my muscle and physical strength. The sell of my home, the move, and all the decisions just about did me in. I am just now having some good days of which I am so thankful to God for. The past 6 years have been a living nightmare and it gets so tiring listening to all the cliches people say to me. Just a hug with no words was all I needed and human company…just someone to come over and sit with me. No need for words. Just watch TV or listen to them talk about themselves was okay.

But I understand how they felt, too, now. It's been a long road to this point. Still some days, or even a whole week, here and there, I will catch myself wanting to go to sleep and not wake up

It is so much better than it was and I am so thankful for any good thing that might happen.

Hang in there and keep writing to me.. BTW, where do you live…not exactly, but state, or country?

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@1kayk

I just sprinkled it in my hair making sure I rubbed it into my scalp I waited a few minutes and shampooed. The first time u use it the parasites will run out. Luke everything the oarasutes become adapted and less will run out. It hasn't hurt my hair and it does not burn. It feels like baby powder. I don't use it all the time. Also a hair conditioner called sulphur 88 $4.00 at family Dollar is good but greasy. Have to shampoo several times. Good luck

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Do you ever leave the sulfur conditioner in overnight with like a plastic cap to sleep in? I do that sometimes and it seems to "thin the herd" some.
Mine use to be these shiny looking organisms. It wasn't really bug-looking things, but some could fly. I accidentally caught them on camera, but you can't see them without the flash on.
Now it seems to be less of them and more other things like other white things, different shapes and sizes. Then my hair started looking like it wasn't hair anymore. A lot of the so-called hair was bigger and somehow branched into 3 or four more, then ….

I'm going to stop there or everyone will really think I am a mental case. One dermatologist PA said I had "parasitic psychosis"!!! That was early on! (Now, after reading scientific research papers, she probably wouldn't know what to call me.) Well, she would have made me angry had I not been waiting for at least one of the 8, at that point she was the 9th, to say that. I had already read somewhere that's what they were telling people. Why are they (physicians) so afraid to simply say, "I don't know?" There is not ONE thing wrong with anyone saying that.
I don't get it!!

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@lita0417

Has anyone tried magnetic treatment?

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I have read about it, but haven't tried it.

Have you been treated with the regular Lyme Disease treatments…. antibiotics?

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@lita0417

I was so fatigued my doctor tested my blood (I think only because she thought I was on drugs due to major weight loss) my tests finally came back with thyroid very very low vitamin D and B… I can’t keep up with this! Feel so alone… want to give up! Tried calling the lymes literate doctors around and they all want lots of cash for all of us! I am going through so much because my children missed school. But on a good note my teenagers know there’s something not right. They go thru pain, fatigue… God I use to pray and pray and I don’t know if he’s even hearing me anymore!

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Have you ever been tested for Lyme Disease?

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@shelby99

Hi Elizabeth I looked up the igenex and they’ve changed the form from when I did it so hopefully you were able to get a test that test for all coinfections!!

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Shelby,
I still have not done that yet, but I will on Monday. I have do do it Mondat, Tuesday or Wednesday or have to wait till the next week.
BUT. I also was suppose to go to my regular lab, too, and it's been at least a month since I was suppose to do both of those.
I got really down this past month. Could not get it together enough to do it.
Elizabeth.

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@shelby99

Hi Elizabeth I looked up the igenex and they’ve changed the form from when I did it so hopefully you were able to get a test that test for all coinfections!!

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Yes, I think mine is. I know the cost is $1,346.00.

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@1kayk

N of Longview rural family farm. House in Dallas

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Kay,
When I worked, one of my working buddies lives out that way on a lot of acreage, kind of a family compound.
I had never been to her home or seen it, but she loves it
I worked at Hallsville ISD and lived in Longview, but just off of Hwy 80 almost to the Hallsville City Limit sign. I lived on a little private lake called "Highway Lake". Even though I was in Longview with a Longview address I lived also in Harrison County. When we had a house phone it was a Hallsvile prefix.
Elizabeth

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