Another excellent website that is connected to many more all around the world…..
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6287027/

@mariao

We can control Morgellon by using different home made remedies like Boric acid powder. Unfortunately, at the present time there is not cure because to most physicians we are "delusional" and they don't pay attention to our symptoms and ailments. They just don't believe us.
Please, explain us how you use Boric acid power in your hair. I think we should help each other by sharing information.

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Another good website to do searches and read scientific journals and research papers is here, but you have to create a sign in, that's all. It's simple and it's free to everyone…..
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6287027/

@shelby99

Well if you could get the doxycycline from your primary physician at least you could see if that helps get rid of it. Otherwise I’d highly recommend Lyme literate doctor in your area or even Dr Ginger Savely. Just because I’d be surprised if your not dealing with Morgellons. It will cost you to see a Lyme literate doctor but you’d save yourself from buying a ton of things that probably won’t work.

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Hi Shelby,
I tried Doxy for a month but my liver and my only kidney didnt like it. Been on Clindamycin now for almost 2 months, but I'm going to stop it until I get lab reports back. Probably about 3-4 weeks. We're sending off to IGenex Inc, a privately owned lab that only tests for Lyme and its co-infections. The only insurance they take is Medicare. Nothing else. The test my dr ordered is $1346.28.

@shelby99

Yeah that’s another one I still put in laundry and sometimes use on area rugs then vacuum. I left my head in it too a few times or probably more. DE is another I put everywhere but I’ve read some people complaining of things from that stuff. How long have you been at this? I say this cause I’m one who truly believes you could catch something from those things too. So your like chasing your tail trying to get rid of something that is attracted to you because you got something they like. I know this sounds hard to do but have you tried to fast. Like fast for 24 hours. There some guy out there who sells a debriding soap and swears it’s a diet thing. It wasn’t for me and that soap was a joke in comparison to other things I tried back in the day. But thinking if you notice a difference by fasting then at least you’ve ruled out diet.

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Are you talking about R.K. in New Jersey? Have you read his book? I've talked to him on the phone a few times, read the book, and it actually makes a lot of sense. My problem with the diet is the very beginning, it's a DIET. But I dont remember there being fasting involved, but I forget a lot of things!

In the beginning you're suppose to go completely off sugar and eat a lot of meat. I'm not a vegetarian, but dont really like meat unless it's an expensive steak or filet mignon, and I absolutely HATE diets. LOL. ❤🤪

@shelby99

Well if you could get the doxycycline from your primary physician at least you could see if that helps get rid of it. Otherwise I’d highly recommend Lyme literate doctor in your area or even Dr Ginger Savely. Just because I’d be surprised if your not dealing with Morgellons. It will cost you to see a Lyme literate doctor but you’d save yourself from buying a ton of things that probably won’t work.

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Also, make sure your doctor makes you do lab work that first few months to make sure Doxy isnt upsetting your liver or kidneys.

@basslakeview

Are you talking about R.K. in New Jersey? Have you read his book? I've talked to him on the phone a few times, read the book, and it actually makes a lot of sense. My problem with the diet is the very beginning, it's a DIET. But I dont remember there being fasting involved, but I forget a lot of things!

In the beginning you're suppose to go completely off sugar and eat a lot of meat. I'm not a vegetarian, but dont really like meat unless it's an expensive steak or filet mignon, and I absolutely HATE diets. LOL. ❤🤪

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Thank you for your response Elizabeth…I appreciate it more than you know! I am actually posting for my sweet girlfriend…she is not doing that well…I have read your story & although you say you aren’t a trooper…you are.

@basslakeview

Another good website to do searches and read scientific journals and research papers is here, but you have to create a sign in, that's all. It's simple and it's free to everyone…..
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6287027/

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Great articles. Time to do some reading. Thank you!

@shelby99

You can see those mites esp with a microscope. They are from an abandoned birds nest. And I’ve heard some people say they started to get Morgellons getting rid of a bird nest. Elizabeth has a lengthy history (unfortunately many years without knowing of Lyme disease and Rocky Mountain fever) which was not treated. That seems to be the classic Morgellon cause. She should not mess around but tea tree and other essential oils wouldn’t hurt. Honestly I feel when one has one or more untreated infection and the immune system isn’t working right that other infections can occur including parasitic.

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Shelby,
Just one little correction, I was tested for Lyme Disease in 1991. The test came back negative and then the doctor retired, otherwise, I feel he might have done another one later. Funny thing is. I even told most all the other doctors I've seen over the past 27 years that story, too.
I think sometimes we. As the person sick or dying, should try to do anything our gut tells us. You know, that little thought we get during the day or night that makes you wonder if it could be true, or maybe I should mention this or that. Write them down as they come into your mind and then tell doctor about it. That's the way God speaks to us.
Love & Prayers to EVERYONE. I 🤔🙏❤

@price1975

Thank you for your response Elizabeth…I appreciate it more than you know! I am actually posting for my sweet girlfriend…she is not doing that well…I have read your story & although you say you aren’t a trooper…you are.

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Thank you, Price 1975. You are a trooper, too! ❤

Look at yourself writing to help someone you love! I don't know anyone (including myself) who has ever had someone do that for them.

That's love and selflessness. There are not too many who do things that take time and effort to help others.

I would love to have a friend or family member like that.

@mariao

I don't know any Lyme literate doctor. I live in Riverside county, California.

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Is that North or South CA.?
Have you tried the CA Lyme website?

Texas has one and there is also a national one as well. Try doing some internet searching. The Texas website address is http://www.txlda.org. maybe CA's is similar: http://www.calda.org

The National Lyme Disease Assoc's web URL is:
https://lymediseaseassociation.org/contact-us/

They all have a "contact us" section. Write them an email asking for a list of Lyme literate doctors in CA. Maybe that will bring in some information.

Also, I just ran across one I'm going to investigate. It is
Home – ILADS
Search domain http://www.ilads.org.
https://www.ilads.org
ILADS is a nonprofit, international, multi-disciplinary medical society, dedicated to the diagnosis and appropriate treatment of Lyme and its associated diseases. ILADS promotes understanding of Lyme through research and education and strongly supports physicians and other health care professionals dedicated to advancing the standard of care.

They probably have a "contact us" section, too. Even though it's for doctors, it wouldnt hurt to let them know a patient's plight to find a Lyme literate doctor.

A good website to do your own searches that has SO MUCH INFORMATION and all you have to do is make yourself a member – simple and free: https://health.gov/nhic/

Good luck and prayers to you!
Elizabeth. 🙏
James Ch 1
p.s. Keep us posted here!

@mariao

When you take a bag with specimens to your doctor, she/he may consider you "delusional". They follow a very old protocol that consider that one of the symptoms of "delusional infestation" is to collect specimens in bags.
That old protocol is the cause that nobody is really paying attention to our ailment and we must rely in our own home made remedies.

w.ncbi.nlm.nih.gov/pmc/articles/PMC2772366/ (delusional infestation) This article is one of those that point that people that collect specimens in bags, etc are supposedly to be "delusional". This wrong assumption is the cause of our lack of medical assistance

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We need to send a "Contact Us" email to that web address asking them if they might think about taking that old adage down off their website. That might help all of us who are desperate. Allso, copy the URL address and send it with the email so they will know exactly where it is.

Or send me the URL address where you found it, and I will do it.
😊 Elizabeth

@shelby99

Yeah that’s another one I still put in laundry and sometimes use on area rugs then vacuum. I left my head in it too a few times or probably more. DE is another I put everywhere but I’ve read some people complaining of things from that stuff. How long have you been at this? I say this cause I’m one who truly believes you could catch something from those things too. So your like chasing your tail trying to get rid of something that is attracted to you because you got something they like. I know this sounds hard to do but have you tried to fast. Like fast for 24 hours. There some guy out there who sells a debriding soap and swears it’s a diet thing. It wasn’t for me and that soap was a joke in comparison to other things I tried back in the day. But thinking if you notice a difference by fasting then at least you’ve ruled out diet.

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Hi- I've tried so many things. The problem is mites are thousands of yrs. old and they adapt to overcome every treatment. Sulphur ,88 is also a hair product u can also use on your skin. It will make them jump out of your hair and skin. It doesn't kill them, but does eliminate some.

@1kayk

Thank you, you wouldn't believe the things I certainly tried looking for a cure. Boric acid powder makes them jump out of your hair when u shampoo.

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Thanks, Kay. I'm going to try that as soon as you get back to me! Can you tell me how it's administered?
How much Borax?
Do you put it into a shampoo or do you just mix with water and pour it over hair? Does it need to sit on hair for an hour or so, then rinsed out?
Anything else I should know about the Borax? Like should it not be mixed with anything but water? I would think it could be mixed with anything. Isn't it mostly earth?

I am trying to figure out how to get the BIOFILM to stop wrapping me in a cacoon-like web. It's everywhere, LITERALLY!! It's in my hair, skin and now it's in both my eyes, lips, inside mouth, and in ears. I have to use an eyewash often in order to see better. (I've attached pictures of it on my eyes.)

I was on FB last night on a page called (I hope I'm right): "Morgellons and Parasites." People have even started sending in photos of themselves trying to share what they have had to do on their own. Some are poor, no insurance, and completely desperate or have given up..

There is one who has completely given up. He lives by himself in a 350 year old cabin inherited by his family. He has a humorous personality and seems to be trying to keep it light, at least on the FB page, but he has to be in a lot of mental and physical gut-wrenching pain.

It was very hard and difficult to read what was happening with the people on that web page to say the least, but it has made me aware of how many of us are out here on our own, in despair, trying to heal ourselves and although I dont have very much money, I do have excellent insurance. There is simply not enough Lyme literate doctors to help everyone. Nor are there enough compassionate people to talk to, except on this web page and they are helping each other the best they can. It makes me feel more compassion for others, too, so I joined them. I am alone, too. My husband died in 2010 and my only child (age 33) died April 21, 2013. It has been a 6-year learning curve for me…being "alive alone" is no picnic and adding illness on top of grief was almost too much for me last September, but I am much better mentally. No one I knew except one of my sisters and a work friend, cared and saw it happening to me. That was my reason for moving from North Texas to South Texas where my sister is most of the time. She and hubby leave 6 months out of the year every year to get away from the heat in Southeast Texas, although, except for the humidity, it really isnt as hot as North Texas. We are right on the Gulf of Mexico and there is always that tropical breeze blowing off the water. She is on the Bolivar Peninsula and I am just north of Galveston on the Bay area. We were raised in Beaumont, Texas so the move was like a full circle coming home feeling. I didnt realize how much I needed to get back home.

I am posting pictures of what the BIOFILM looks like. It's not a parasite. It's what the Lyme/Morgellon Disease is capable of doing. It is like something from a science fiction book. The scientists are thinking that this new stuff (Morgellons) comes from Lyme Disease. Their studies show 98% of EVERYONE they've studied has or has had Lyme and/or its' co-infection(s).
♥️

@1kayk

Hi- I've tried so many things. The problem is mites are thousands of yrs. old and they adapt to overcome every treatment. Sulphur ,88 is also a hair product u can also use on your skin. It will make them jump out of your hair and skin. It doesn't kill them, but does eliminate some.

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Where do you buy it? The Sulfur 88?

@basslakeview

Where do you buy it? The Sulfur 88?

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I bought it at Family Dollar store $4.00. It's greazy so have to shampoo 2-3 times use mint and teatree shampoo . dollar store also. The first time I used 88 on my skin the mites ran out. I also use baby oil with aloevera and vit. E.dollar store $2.59. also any conditioner with Dimethicone lots have it smothers then. Good luck!