Lyme Disease and its Co-Infections, Morgellons Disease and Parasites

Posted by basslakeview @basslakeview, Aug 30, 2018

UPDATED 6/16/2019
Hi,
I am Elizabeth Bass and I live in Southeast Texas very close to Galveston and Houston Texas with my companion Millie, a Yorkie. I moved here in March 2018 from Northeast Texas (Longview/Tyler) with a scalp condition that keeps morphing into something else, each time getting worse. It began in May 2016, and here it is 2019 and I still have "it," but I've learned a whole lot I never really wanted to know.

I have no idea what exactly is wrong with me, but because of what I found in July 2018 on my pillow I'm thinking Morgellons because I found the same looking thing someone else had posted and they were talking about Morgellons. I have attached two photos, one close up and the other is the original so you can have an idea of the actual size.

I also have these white sparkly/shiny critters on every inch of my body, especially my hair/scalp, and face/neck. They can only be seen if I take a picture using my camera with the FLASH ON. Otherwise, no one would know there is anything wrong with me.

This was discovered by accident when in May 2016 I got my long hair all cut off. Right after that (about a month) my head started itching in the upper center back. I couldn't see anything in a mirror so I picked up my phone and took a picture. I still couldn't see very well so I turned the flash on. THAT WAS IT!! (I saw more than I wanted to see.) At first I thought I had bed bugs and did everything I could to get rid of them, including lice treatment. Then I started seeing these shiny, sparkly-looking things. I accidentally caught some of them on camera flying around my head. I kept trying everything I could to rid myself of "them," but nothing has worked so far. However, it is now June 2019 and "the condition" only changes (morphs). It never goes away. I have seen 9 dermatologists, 2 derm PAs, 2 internists, and 2 GPs, a total of 16 (maybe more), counting the one I'm with now since "it" began. My hair fell out in that spot, I had lesions where the hair was missing, and when a new lesion would begin it was always itchy, then that hair would fall out, too. My hair grew back, but not quite as thick.

The fever and rash went away, but the achiness and lethargy/fatigue has stayed with me all these years. About a year or two after that fever, and after going to many, many doctors between Shreveport, Dallas, Tyler, and Houston, one of them said I have Fibromyalgia & Chronic Fatigue. I simply took his word for it. I was so very tired of seeing doctors, doing lab work, driving and working a full time, stressful job. I needed a break!

Then in 1999 I lost my left kidney to an oncocytoma (tumor the size of a softball), benign. Lost my gallbladder in 2004, had carpal tunnel surgery on both wrists at the same time in 2005. I don't think there's much left. I had already had a thyroidectomy in my 20s (Graves Disease), and a hysterectomy in 1986. Then, the BIGGEST loss of my life…my only child in 2013. I honestly did not think I was going to make it.

I had told every single one of ALL those doctors the story of the high fever and rash and how my GP thought it was Lymes, but lab was negative, and not ONE of them (nor me) simply thought of running another Lyme test until last year 2018. On Sept 18, 2018, my 72nd birthday the results were in and I was at my doctor's office with my sister to get the results. That test came back with all sorts of red flags, 30 years later!

Now I am 72 and the second antibiotic I'm on is not doing anything. After one month on Doxycycline (had to stop because my liver didnt like it) and two months on Clindamycin I haven't noticed anything positive, but that doesn't mean nothing is happening, RIGHT?!!. For some reason she didn't put me on anything else right away after the Doxy. Maybe I had to give my liver time to heal. She never said why, and I forget to ask these questions. I think I am going to simply start feeling POSITIVE about things no matter which way they go!!

UPDATE: I finally found a doctor who 'seems' to want to help me. She ran a Lyme test on my blood and was very excited she could help me which was very encouraging as you can imagine.

I have had Lyme Disease and a co-infection called Rocky Mountain Spotted Fever (since 1988-1990ish, 30 years ago). I remember it like it was yesterday. I had a high fever, achiness all over like a flu sickness, and a rash. It was not a flu. And the first thing he said to me was, "It looks like Lymes Disease to me!" Unfortunately, the lab report came back negative and neither one of us thought to do another test.

Yet, for some reason, I keep replaying one of my favorite songs in my head, Eric Clapton's, "NO MORE TEARS IN HEAVEN." (It makes me smile because I know I WILL see my son again and be able to talk to him.)

Ever heard of of the song? Check it out. Just Google it and listen.

USEFUL WEBSITES:

(https://thecehf.org).
To contact them: http://thecehf.org/contact.html

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6287027/ (You have to create a sign in with a password, but it's very simple and it's free.)

@tia5364

Name of doc?

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Well if you could get the doxycycline from your primary physician at least you could see if that helps get rid of it. Otherwise I’d highly recommend Lyme literate doctor in your area or even Dr Ginger Savely. Just because I’d be surprised if your not dealing with Morgellons. It will cost you to see a Lyme literate doctor but you’d save yourself from buying a ton of things that probably won’t work.

Liked by basslakeview

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I was controlling Morgellon following my own home made treatment. Unfortunately, I had a family illness and I did not have the time to follow treatment. My back, again, has lesions

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@shelby99

Well if you could get the doxycycline from your primary physician at least you could see if that helps get rid of it. Otherwise I’d highly recommend Lyme literate doctor in your area or even Dr Ginger Savely. Just because I’d be surprised if your not dealing with Morgellons. It will cost you to see a Lyme literate doctor but you’d save yourself from buying a ton of things that probably won’t work.

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I don't know any Lyme literate doctor. I live in Riverside county, California.

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@1kayk

I have fasted . They are in my teeth. Mint toothpaste and Listerine, however, they come back. I don't know the difference with Morgellons it's seem like things Drs. Don't know just get classified that way. If you have eggs in your hair, they are eating your hair and that is some kind of mite. I have collected mine in abag with scotch tape and taken them to Dr. Some Drs. Just ignore. This last Dr. Sent them to lab. Don't have results yet. I hope your symptoms get better. I'm in E. Tx now and as much as I have sprayed yard and house, I know they are in yard. Not just chiggers it is in the country. I think u were in same E. TX area I was wondering if they are spreading in fields. Ag people say ,no, they just go away. Ha!

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When you take a bag with specimens to your doctor, she/he may consider you "delusional". They follow a very old protocol that consider that one of the symptoms of "delusional infestation" is to collect specimens in bags.
That old protocol is the cause that nobody is really paying attention to our ailment and we must rely in our own home made remedies.

w.ncbi.nlm.nih.gov/pmc/articles/PMC2772366/ (delusional infestation) This article is one of those that point that people that collect specimens in bags, etc are supposedly to be "delusional". This wrong assumption is the cause of our lack of medical assistance

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@1kayk

Thank you, you wouldn't believe the things I certainly tried looking for a cure. Boric acid powder makes them jump out of your hair when u shampoo.

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We can control Morgellon by using different home made remedies like Boric acid powder. Unfortunately, at the present time there is not cure because to most physicians we are "delusional" and they don't pay attention to our symptoms and ailments. They just don't believe us.
Please, explain us how you use Boric acid power in your hair. I think we should help each other by sharing information.

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@shelby99

I’m not surprised at all even though it sounds unbelievable. I was full of rashes, wounds, and big bald spots of my head and was told I had delusions of parasites cause although unlike you having the culprit, it still felt like that. I’m so sorry. That’s exactly why I said they make the situation worse. Funny, I wanted to buy a huge bird cage and jump in to have my husband bring me to a vet in 2010 I was so upset. 5 years later a vet is the one who did the biopsies for the Morgellons study. I hope shit will hit the fan someday. I wanted to stop paying for my medical plan at the time because I felt why am I paying for this shit.

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I don't know anything about the biopsies. Where I can find information regarding that matter?

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@1kayk

Well, actually I captured about 30 in a clear snap bag took them to the Dermatologist in Longview, my ear was totally encrusted with Mites like you've seen a doggie with mites in their ears , I was in pain and the Dermatologist P.A. said I was crazy threw my samples away in the trash and said I should see a physciatrist. I finally got some antibiotic cream for my ear although he said for my neck. What the ? K

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Five or six decades ago an investigator classified people that captured organism as "delusional parasitosis" or "delusional infestation" (see article below). So, don't take any sample to any doctor they will label you "delusional"
That old investigation is one of the causes why nobody pay attention to us. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2772366/

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@mariao

We can control Morgellon by using different home made remedies like Boric acid powder. Unfortunately, at the present time there is not cure because to most physicians we are "delusional" and they don't pay attention to our symptoms and ailments. They just don't believe us.
Please, explain us how you use Boric acid power in your hair. I think we should help each other by sharing information.

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I just sprinkled it in my hair making sure I rubbed it into my scalp I waited a few minutes and shampooed. The first time u use it the parasites will run out. Luke everything the oarasutes become adapted and less will run out. It hasn't hurt my hair and it does not burn. It feels like baby powder. I don't use it all the time. Also a hair conditioner called sulphur 88 $4.00 at family Dollar is good but greasy. Have to shampoo several times. Good luck

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@mariao

When you take a bag with specimens to your doctor, she/he may consider you "delusional". They follow a very old protocol that consider that one of the symptoms of "delusional infestation" is to collect specimens in bags.
That old protocol is the cause that nobody is really paying attention to our ailment and we must rely in our own home made remedies.

w.ncbi.nlm.nih.gov/pmc/articles/PMC2772366/ (delusional infestation) This article is one of those that point that people that collect specimens in bags, etc are supposedly to be "delusional". This wrong assumption is the cause of our lack of medical assistance

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I was shocked and hurt to be treated that way. I did find a Dr. to take my specimens and send them to lab. Have to pay that visit before I go back to get results. Best wishes

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@mariao

I don't know any Lyme literate doctor. I live in Riverside county, California.

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I have used that liquid bandage called New Skin on lesions. After a shower or bath I use baby oil all over and a thick cream moisture barrier ointment name Soothe and Cool.

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@mariao

I don't know any Lyme literate doctor. I live in Riverside county, California.

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You could contact the Charles e Holman foundation who maybe able to help you locate one in your area. Also ILADS has a doctor search. Just google it to locate who is in your area

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@mariao

I don't know anything about the biopsies. Where I can find information regarding that matter?

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I can’t dowbload on this site (probably just me) but I know a moderated posted one of the research articles by MJ Middelveen a few pages back. You can google MJ Middelveen who is a Vet whose done research on the subject

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@shelby99

You could contact the Charles e Holman foundation who maybe able to help you locate one in your area. Also ILADS has a doctor search. Just google it to locate who is in your area

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Thank you so much. I wonder if SW Medical Library will let me back in to do research. I'll inquire. Bless you!

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Hey guys..anyone have any run-ins with Collembola??? If so, any tips on controlling or eliminating these things???

Liked by price1975

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@price1975

Hey guys..anyone have any run-ins with Collembola??? If so, any tips on controlling or eliminating these things???

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Yes, a wealth of information. Go to this website: http://bestmorgellonscure.com/Blog.html
or Google: Richard Kuhns B.S. Ch.E., Author of "How to Get Your Life Back from Morgellons and Other Skin Parasites, 8th edition". He was giving away his book as an email attachment, but I went ahead and bought a paperback one. I cant read a book on a computer. Would rather have paper to write on, take notes, highlighter marker, etc.

He has a lot of good information on his websites. There is the blog one (above) and there's another where you can get supplies, medicinal products, creams, etc…

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