Lyme Disease and its Co-Infections, Morgellons Disease and Parasites

Posted by basslakeview @basslakeview, Aug 30, 2018

UPDATED 6/16/2019
Hi,
I am Elizabeth Bass and I live in Southeast Texas very close to Galveston and Houston Texas with my companion Millie, a Yorkie. I moved here in March 2018 from Northeast Texas (Longview/Tyler) with a scalp condition that keeps morphing into something else, each time getting worse. It began in May 2016, and here it is 2019 and I still have "it," but I've learned a whole lot I never really wanted to know.

I have no idea what exactly is wrong with me, but because of what I found in July 2018 on my pillow I'm thinking Morgellons because I found the same looking thing someone else had posted and they were talking about Morgellons. I have attached two photos, one close up and the other is the original so you can have an idea of the actual size.

I also have these white sparkly/shiny critters on every inch of my body, especially my hair/scalp, and face/neck. They can only be seen if I take a picture using my camera with the FLASH ON. Otherwise, no one would know there is anything wrong with me.

This was discovered by accident when in May 2016 I got my long hair all cut off. Right after that (about a month) my head started itching in the upper center back. I couldn't see anything in a mirror so I picked up my phone and took a picture. I still couldn't see very well so I turned the flash on. THAT WAS IT!! (I saw more than I wanted to see.) At first I thought I had bed bugs and did everything I could to get rid of them, including lice treatment. Then I started seeing these shiny, sparkly-looking things. I accidentally caught some of them on camera flying around my head. I kept trying everything I could to rid myself of "them," but nothing has worked so far. However, it is now June 2019 and "the condition" only changes (morphs). It never goes away. I have seen 9 dermatologists, 2 derm PAs, 2 internists, and 2 GPs, a total of 16 (maybe more), counting the one I'm with now since "it" began. My hair fell out in that spot, I had lesions where the hair was missing, and when a new lesion would begin it was always itchy, then that hair would fall out, too. My hair grew back, but not quite as thick.

The fever and rash went away, but the achiness and lethargy/fatigue has stayed with me all these years. About a year or two after that fever, and after going to many, many doctors between Shreveport, Dallas, Tyler, and Houston, one of them said I have Fibromyalgia & Chronic Fatigue. I simply took his word for it. I was so very tired of seeing doctors, doing lab work, driving and working a full time, stressful job. I needed a break!

Then in 1999 I lost my left kidney to an oncocytoma (tumor the size of a softball), benign. Lost my gallbladder in 2004, had carpal tunnel surgery on both wrists at the same time in 2005. I don't think there's much left. I had already had a thyroidectomy in my 20s (Graves Disease), and a hysterectomy in 1986. Then, the BIGGEST loss of my life…my only child in 2013. I honestly did not think I was going to make it.

I had told every single one of ALL those doctors the story of the high fever and rash and how my GP thought it was Lymes, but lab was negative, and not ONE of them (nor me) simply thought of running another Lyme test until last year 2018. On Sept 18, 2018, my 72nd birthday the results were in and I was at my doctor's office with my sister to get the results. That test came back with all sorts of red flags, 30 years later!

Now I am 72 and the second antibiotic I'm on is not doing anything. After one month on Doxycycline (had to stop because my liver didnt like it) and two months on Clindamycin I haven't noticed anything positive, but that doesn't mean nothing is happening, RIGHT?!!. For some reason she didn't put me on anything else right away after the Doxy. Maybe I had to give my liver time to heal. She never said why, and I forget to ask these questions. I think I am going to simply start feeling POSITIVE about things no matter which way they go!!

UPDATE: I finally found a doctor who 'seems' to want to help me. She ran a Lyme test on my blood and was very excited she could help me which was very encouraging as you can imagine.

I have had Lyme Disease and a co-infection called Rocky Mountain Spotted Fever (since 1988-1990ish, 30 years ago). I remember it like it was yesterday. I had a high fever, achiness all over like a flu sickness, and a rash. It was not a flu. And the first thing he said to me was, "It looks like Lymes Disease to me!" Unfortunately, the lab report came back negative and neither one of us thought to do another test.

Yet, for some reason, I keep replaying one of my favorite songs in my head, Eric Clapton's, "NO MORE TEARS IN HEAVEN." (It makes me smile because I know I WILL see my son again and be able to talk to him.)

Ever heard of of the song? Check it out. Just Google it and listen.

USEFUL WEBSITES:

(https://thecehf.org).
To contact them: http://thecehf.org/contact.html

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6287027/ (You have to create a sign in with a password, but it's very simple and it's free.)

@shelby99

Doctors are not what they used to be. I could go on but I won’t. I’d think you have been on the bird mite blog. I believe you and believe them. Morgellons is really too but it is not bird mites. One good thing is you have identified as bird mites. Are they in your home? I’ve heard that’s a tough one to irradiate but possible. One other safe thing you can do is bath in Epson salt. Also put some in your shampoo and wash hair daily with it. Most bugs don’t like salt. I think things are getting resistant today but I know Amazon back in the day probably thought I owned a farm. Haha. There is a pour on ivermectin for cattle and there is also the big guns permethrin 10%. Don’t use too much of it on you cause it really not good for you. Although I’ll be honest and tell ya I put that crap on me for 6 months straight 8 hours or more daily. I was desperate and didn’t care if it killed me by that point. Like I said I never found a mite anywhere so my problem is Morgellons but I’ve heard many in your shoes too. Another safe oil is rosemary. It smells good too. I would dilute it either. Rub in head etc. let’s us know how you make out too. We care!!

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Thank you, you wouldn't believe the things I certainly tried looking for a cure. Boric acid powder makes them jump out of your hair when u shampoo.

Liked by basslakeview

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@1kayk

Thank you, you wouldn't believe the things I certainly tried looking for a cure. Boric acid powder makes them jump out of your hair when u shampoo.

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Yeah that’s another one I still put in laundry and sometimes use on area rugs then vacuum. I left my head in it too a few times or probably more. DE is another I put everywhere but I’ve read some people complaining of things from that stuff. How long have you been at this? I say this cause I’m one who truly believes you could catch something from those things too. So your like chasing your tail trying to get rid of something that is attracted to you because you got something they like. I know this sounds hard to do but have you tried to fast. Like fast for 24 hours. There some guy out there who sells a debriding soap and swears it’s a diet thing. It wasn’t for me and that soap was a joke in comparison to other things I tried back in the day. But thinking if you notice a difference by fasting then at least you’ve ruled out diet.

Liked by basslakeview

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@shelby99

Yeah that’s another one I still put in laundry and sometimes use on area rugs then vacuum. I left my head in it too a few times or probably more. DE is another I put everywhere but I’ve read some people complaining of things from that stuff. How long have you been at this? I say this cause I’m one who truly believes you could catch something from those things too. So your like chasing your tail trying to get rid of something that is attracted to you because you got something they like. I know this sounds hard to do but have you tried to fast. Like fast for 24 hours. There some guy out there who sells a debriding soap and swears it’s a diet thing. It wasn’t for me and that soap was a joke in comparison to other things I tried back in the day. But thinking if you notice a difference by fasting then at least you’ve ruled out diet.

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I have fasted . They are in my teeth. Mint toothpaste and Listerine, however, they come back. I don't know the difference with Morgellons it's seem like things Drs. Don't know just get classified that way. If you have eggs in your hair, they are eating your hair and that is some kind of mite. I have collected mine in abag with scotch tape and taken them to Dr. Some Drs. Just ignore. This last Dr. Sent them to lab. Don't have results yet. I hope your symptoms get better. I'm in E. Tx now and as much as I have sprayed yard and house, I know they are in yard. Not just chiggers it is in the country. I think u were in same E. TX area I was wondering if they are spreading in fields. Ag people say ,no, they just go away. Ha!

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@1kayk

I have fasted . They are in my teeth. Mint toothpaste and Listerine, however, they come back. I don't know the difference with Morgellons it's seem like things Drs. Don't know just get classified that way. If you have eggs in your hair, they are eating your hair and that is some kind of mite. I have collected mine in abag with scotch tape and taken them to Dr. Some Drs. Just ignore. This last Dr. Sent them to lab. Don't have results yet. I hope your symptoms get better. I'm in E. Tx now and as much as I have sprayed yard and house, I know they are in yard. Not just chiggers it is in the country. I think u were in same E. TX area I was wondering if they are spreading in fields. Ag people say ,no, they just go away. Ha!

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Have you definitely identified it as that bird mite or do you think it’s a different mite. (I read something about a rat mite too). How long have you dealt with this? Asking cause I still would think if you can’t get rid of it then there is a underlying reason. I seen a lot with my own situation but it always went back to it being me not what was going on. If that makes sense. If you have been doing this and did the fast etc etc. without much success then if I were you I’d start researching functional medicine doctors with a specialty in Lyme just so you can get help with an underlying issue. Otherwise you’ll drive yourself batty trying to find a fix that you may never find. Just my point of view after being in my situation going on year 10 in a couple months.

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@shelby99

Have you definitely identified it as that bird mite or do you think it’s a different mite. (I read something about a rat mite too). How long have you dealt with this? Asking cause I still would think if you can’t get rid of it then there is a underlying reason. I seen a lot with my own situation but it always went back to it being me not what was going on. If that makes sense. If you have been doing this and did the fast etc etc. without much success then if I were you I’d start researching functional medicine doctors with a specialty in Lyme just so you can get help with an underlying issue. Otherwise you’ll drive yourself batty trying to find a fix that you may never find. Just my point of view after being in my situation going on year 10 in a couple months.

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The fasting made the mites eat other areas . I don't eat much anyway,no sugar.. lost weight. I have used sulfur88 hair conditioner cost 4.00$: it's greasy. I guess, about last yr. I was at farm bugs appeared. Went Dr. Longview thinking going to same local area Dr would know something. No help.that was oct been to 3 Dr now.They have no knowledge about parasites. Unbelievable! They just appeared in countryside.

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@1kayk

The fasting made the mites eat other areas . I don't eat much anyway,no sugar.. lost weight. I have used sulfur88 hair conditioner cost 4.00$: it's greasy. I guess, about last yr. I was at farm bugs appeared. Went Dr. Longview thinking going to same local area Dr would know something. No help.that was oct been to 3 Dr now.They have no knowledge about parasites. Unbelievable! They just appeared in countryside.

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I’m no stranger to your dismay. Not sure if you’ve seen it but I’ll say it again. I was mandated a ton of vaccinations and got this crap w/in 48 hours so I could go on and on about your concern but that’s not getting me any healthier. So that’s an issue that hopefully someday the shit will hit the fan on. In regard to you I’m sorry and realize you say it’s mites and not Morgellons but I’d think you’d be surprised if you read the book from Dr Savely who says many of her patients came to her complaining about bird mites. You may want to see if you can get an appt with her. She atleast will not dismiss you. I honestly believe you may find you cant get rid of it because something more is going on. For one you’ve done a lot trying to get rid of it to no avail. That was my point earlier is some people struggle to get rid of a mite but eventually after trying all under the sun they get rid of it. The ones who can’t have other problems too. You got to do what’s best for you but please don’t disregard the option of ruling out Morgellons until you actually do.

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@shelby99

I’m no stranger to your dismay. Not sure if you’ve seen it but I’ll say it again. I was mandated a ton of vaccinations and got this crap w/in 48 hours so I could go on and on about your concern but that’s not getting me any healthier. So that’s an issue that hopefully someday the shit will hit the fan on. In regard to you I’m sorry and realize you say it’s mites and not Morgellons but I’d think you’d be surprised if you read the book from Dr Savely who says many of her patients came to her complaining about bird mites. You may want to see if you can get an appt with her. She atleast will not dismiss you. I honestly believe you may find you cant get rid of it because something more is going on. For one you’ve done a lot trying to get rid of it to no avail. That was my point earlier is some people struggle to get rid of a mite but eventually after trying all under the sun they get rid of it. The ones who can’t have other problems too. You got to do what’s best for you but please don’t disregard the option of ruling out Morgellons until you actually do.

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Your right to pursue all imput. Although I see the mites, can catch the mites and take fir microscope review. They look like bird mites, act like bird mites etc. I'm sure there's more to it if your immune system isn't getting rid of them. I do wish you the best.. I guess the only vaccine I got was a flu shot last year. Got a bad cold after getting it. Weird stuff happens as u get older. 💓 K

Liked by shelby99

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@1kayk

Your right to pursue all imput. Although I see the mites, can catch the mites and take fir microscope review. They look like bird mites, act like bird mites etc. I'm sure there's more to it if your immune system isn't getting rid of them. I do wish you the best.. I guess the only vaccine I got was a flu shot last year. Got a bad cold after getting it. Weird stuff happens as u get older. 💓 K

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That’s very frustrating. I’d try and get some type of specimen cups where you can preserve them and capture as many as you can. Don’t bring them to a dermatologist cause I honestly think they’ll just make your situation worse. I really hope you can get rid of it and let us know how your doing because maybe someone will come up with a solution and/ or you’ll be able to help another suffer. It’s so frustrating and wrong.

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@shelby99

That’s very frustrating. I’d try and get some type of specimen cups where you can preserve them and capture as many as you can. Don’t bring them to a dermatologist cause I honestly think they’ll just make your situation worse. I really hope you can get rid of it and let us know how your doing because maybe someone will come up with a solution and/ or you’ll be able to help another suffer. It’s so frustrating and wrong.

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Well, actually I captured about 30 in a clear snap bag took them to the Dermatologist in Longview, my ear was totally encrusted with Mites like you've seen a doggie with mites in their ears , I was in pain and the Dermatologist P.A. said I was crazy threw my samples away in the trash and said I should see a physciatrist. I finally got some antibiotic cream for my ear although he said for my neck. What the ? K

Liked by shelby99

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@1kayk

Well, actually I captured about 30 in a clear snap bag took them to the Dermatologist in Longview, my ear was totally encrusted with Mites like you've seen a doggie with mites in their ears , I was in pain and the Dermatologist P.A. said I was crazy threw my samples away in the trash and said I should see a physciatrist. I finally got some antibiotic cream for my ear although he said for my neck. What the ? K

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I’m not surprised at all even though it sounds unbelievable. I was full of rashes, wounds, and big bald spots of my head and was told I had delusions of parasites cause although unlike you having the culprit, it still felt like that. I’m so sorry. That’s exactly why I said they make the situation worse. Funny, I wanted to buy a huge bird cage and jump in to have my husband bring me to a vet in 2010 I was so upset. 5 years later a vet is the one who did the biopsies for the Morgellons study. I hope shit will hit the fan someday. I wanted to stop paying for my medical plan at the time because I felt why am I paying for this shit.

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@1kayk

Well, actually I captured about 30 in a clear snap bag took them to the Dermatologist in Longview, my ear was totally encrusted with Mites like you've seen a doggie with mites in their ears , I was in pain and the Dermatologist P.A. said I was crazy threw my samples away in the trash and said I should see a physciatrist. I finally got some antibiotic cream for my ear although he said for my neck. What the ? K

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Oh did the antibiotics cream help your ear? Just thinking that that might be a peice if the puzzle missing for you. And if you are unable to get rid of it I’d still consider dr Savery. I have to take antiparasitic, antibacterial, and antifungal daily well now I’m being treated for babesia but soon I’ll be resuming the protocol. It’s a long slow road but it certainly better than it was. Also, I’ve said on this site before too that although I never found one culprit like yourself (and I would have) I was like an insect magnet. I’d find all sought of bugs but always different insect cause they loved my rotting body I guess. Like I was the walking dead

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@shelby99

Oh did the antibiotics cream help your ear? Just thinking that that might be a peice if the puzzle missing for you. And if you are unable to get rid of it I’d still consider dr Savery. I have to take antiparasitic, antibacterial, and antifungal daily well now I’m being treated for babesia but soon I’ll be resuming the protocol. It’s a long slow road but it certainly better than it was. Also, I’ve said on this site before too that although I never found one culprit like yourself (and I would have) I was like an insect magnet. I’d find all sought of bugs but always different insect cause they loved my rotting body I guess. Like I was the walking dead

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I keep asking if there is a medication. I was told nothing that's when I asked for Ivermectin. I will ask for antiparasitic medication. A bee flew in my ear a few days ago those little yellow ones. Had to go Dr. Better now w ear drops.maybe I m a bug magnet. I go for walks alot looks like mosquitos are starting. I haven't pursued the debriding soap. I don't order on internet. I have found blacktar soap looking for sulphur soap locally. I try everything. Costs alot ya know. I keep thinking the new thing will work.

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@1kayk

I keep asking if there is a medication. I was told nothing that's when I asked for Ivermectin. I will ask for antiparasitic medication. A bee flew in my ear a few days ago those little yellow ones. Had to go Dr. Better now w ear drops.maybe I m a bug magnet. I go for walks alot looks like mosquitos are starting. I haven't pursued the debriding soap. I don't order on internet. I have found blacktar soap looking for sulphur soap locally. I try everything. Costs alot ya know. I keep thinking the new thing will work.

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That’s the funny thing is mosquitoes used to love me until this began. Bees love me though now but I had necrotic tissue on my head too. I also had bugs fly in my ears etc before treatment. I would not waste your time buying the debriding soap. That’s mild in compared to the things you’ve tried that don’t work. You could try Neem though (pills and ointment). I found the better it is the more it stinks. It didn’t do much for me. Nothing did much including ivermectin, etc. I know things are expensive and when it doesn’t work then it’s just wasted money. I honestly think you have more going on than you think or would ever want to even fathom. Just the bee going in your ear etc. wow I had those similar things happening all the time. I’m still afraid when I see a little fly near me.

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@shelby99

That’s the funny thing is mosquitoes used to love me until this began. Bees love me though now but I had necrotic tissue on my head too. I also had bugs fly in my ears etc before treatment. I would not waste your time buying the debriding soap. That’s mild in compared to the things you’ve tried that don’t work. You could try Neem though (pills and ointment). I found the better it is the more it stinks. It didn’t do much for me. Nothing did much including ivermectin, etc. I know things are expensive and when it doesn’t work then it’s just wasted money. I honestly think you have more going on than you think or would ever want to even fathom. Just the bee going in your ear etc. wow I had those similar things happening all the time. I’m still afraid when I see a little fly near me.

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Oh ivermectin is a type of antiparasitic medication. I honestly don’t think one medication is going to help you but if you can get one then try doxycycline. It’s a antibacterial but works like a antiparasitic in some respects. That way you could take that internally and use things externally like neem and sulfur soap. See where you are at that point.

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@basslakeview

Where is this Lyme doctor?

I've been looking for someone who is knowledgeable. My doctor is wonderful. She just doesnt know a lot about "Chronic" Lymes (Morgellons) or Parasites and what to do. I do all the research. Then she does the medical part. She is the only doctor willing to help that I have found so far. She is in Houston, Texas.

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Name of doc?

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