Lyme Disease and its Co-Infections, Morgellons Disease and Parasites

Posted by basslakeview @basslakeview, Aug 30, 2018

UPDATED 6/16/2019
Hi,
I am Elizabeth Bass and I live in Southeast Texas very close to Galveston and Houston Texas with my companion Millie, a Yorkie. I moved here in March 2018 from Northeast Texas (Longview/Tyler) with a scalp condition that keeps morphing into something else, each time getting worse. It began in May 2016, and here it is 2019 and I still have "it," but I've learned a whole lot I never really wanted to know.

I have no idea what exactly is wrong with me, but because of what I found in July 2018 on my pillow I'm thinking Morgellons because I found the same looking thing someone else had posted and they were talking about Morgellons. I have attached two photos, one close up and the other is the original so you can have an idea of the actual size.

I also have these white sparkly/shiny critters on every inch of my body, especially my hair/scalp, and face/neck. They can only be seen if I take a picture using my camera with the FLASH ON. Otherwise, no one would know there is anything wrong with me.

This was discovered by accident when in May 2016 I got my long hair all cut off. Right after that (about a month) my head started itching in the upper center back. I couldn't see anything in a mirror so I picked up my phone and took a picture. I still couldn't see very well so I turned the flash on. THAT WAS IT!! (I saw more than I wanted to see.) At first I thought I had bed bugs and did everything I could to get rid of them, including lice treatment. Then I started seeing these shiny, sparkly-looking things. I accidentally caught some of them on camera flying around my head. I kept trying everything I could to rid myself of "them," but nothing has worked so far. However, it is now June 2019 and "the condition" only changes (morphs). It never goes away. I have seen 9 dermatologists, 2 derm PAs, 2 internists, and 2 GPs, a total of 16 (maybe more), counting the one I'm with now since "it" began. My hair fell out in that spot, I had lesions where the hair was missing, and when a new lesion would begin it was always itchy, then that hair would fall out, too. My hair grew back, but not quite as thick.

The fever and rash went away, but the achiness and lethargy/fatigue has stayed with me all these years. About a year or two after that fever, and after going to many, many doctors between Shreveport, Dallas, Tyler, and Houston, one of them said I have Fibromyalgia & Chronic Fatigue. I simply took his word for it. I was so very tired of seeing doctors, doing lab work, driving and working a full time, stressful job. I needed a break!

Then in 1999 I lost my left kidney to an oncocytoma (tumor the size of a softball), benign. Lost my gallbladder in 2004, had carpal tunnel surgery on both wrists at the same time in 2005. I don't think there's much left. I had already had a thyroidectomy in my 20s (Graves Disease), and a hysterectomy in 1986. Then, the BIGGEST loss of my life…my only child in 2013. I honestly did not think I was going to make it.

I had told every single one of ALL those doctors the story of the high fever and rash and how my GP thought it was Lymes, but lab was negative, and not ONE of them (nor me) simply thought of running another Lyme test until last year 2018. On Sept 18, 2018, my 72nd birthday the results were in and I was at my doctor's office with my sister to get the results. That test came back with all sorts of red flags, 30 years later!

Now I am 72 and the second antibiotic I'm on is not doing anything. After one month on Doxycycline (had to stop because my liver didnt like it) and two months on Clindamycin I haven't noticed anything positive, but that doesn't mean nothing is happening, RIGHT?!!. For some reason she didn't put me on anything else right away after the Doxy. Maybe I had to give my liver time to heal. She never said why, and I forget to ask these questions. I think I am going to simply start feeling POSITIVE about things no matter which way they go!!

UPDATE: I finally found a doctor who 'seems' to want to help me. She ran a Lyme test on my blood and was very excited she could help me which was very encouraging as you can imagine.

I have had Lyme Disease and a co-infection called Rocky Mountain Spotted Fever (since 1988-1990ish, 30 years ago). I remember it like it was yesterday. I had a high fever, achiness all over like a flu sickness, and a rash. It was not a flu. And the first thing he said to me was, "It looks like Lymes Disease to me!" Unfortunately, the lab report came back negative and neither one of us thought to do another test.

Yet, for some reason, I keep replaying one of my favorite songs in my head, Eric Clapton's, "NO MORE TEARS IN HEAVEN." (It makes me smile because I know I WILL see my son again and be able to talk to him.)

Ever heard of of the song? Check it out. Just Google it and listen.

USEFUL WEBSITES:

(https://thecehf.org).
To contact them: http://thecehf.org/contact.html

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6287027/ (You have to create a sign in with a password, but it's very simple and it's free.)

@basslakeview

Shelby. Thanks so much for the kind and gentle words. I needed to read that for sure. When I got Cindy's note I was mortified after all the kind words she had for me before. I didnt know what I said that made her react that way, but I certainly apologized and offered to give the money back to her and pay for someone else to go next year. I didnt know what else to do.
I had to let it go right now. I have too much on my mind right now and the conference fell the week before my only child's birthday and the day he died
. But that's life.
I thank God for it, and hope I learn from it as well.
Elizabth

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I have everything you have going on times 5, its slowly killing me

20190514_162218

Liked by basslakeview

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@dbbaker41

I found your post and feel like you could be my twin. I also took pics of my scalp because I thought I had lice and was terrified! I have never had lice so I did treat myself for them and it cleared a little bit. But let me back up and say this all started almost a year ago around the end of July 2018. The right side of my face swelled up with a disfiguring lesion that burned sooo bad I left work early and went to my family physician. The PA I saw that day had no idea other than maybe a cyst and gave me Mupurcin ointment and eventually it got better but spread to other parts of my face and left lighter skin pigment. I also had a horrible rash on the calf of right leg. Long story short I have been to the ER twice, both times told I had a picking disorder and to stop picking. Two different dermatologists. The first barely looked at me and offered me acne medication. Insulting since I'm 51 and know what acne is. The second one treated me for folliculitis and a bad staph infection on my body. Which I did have staphylococcus, from the open wounds no doubt. I requested a lyme test by primary MD and it came back a false positive. Whatever that means. Makes no sense to me. But since my symptoms were that of Lyme I was prescribed Dicocyclime and have been on it for about 9 months now. It helped a little, but not much. Do to so much fatigue stress and brain fog I quit my job and now I have no insurance and my husband switched jobs and we are without insurance right now. So I feel hopeless. Within the last two weeks I have had a major relapse and my only hope at this point is maybe the Mayo Clinic can help me. But I am so grateful to find some validation because my family thinks I'm going crazy. I know I am not and I too believe my gut feelings. Nutrition and rest are important, but I can't really afford all the herbs I need and healthy foods. And stress just gets worse do to the financial hardship this has escalated to. How are you doing now?

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Times 5

20190514_162630

Liked by basslakeview

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@basslakeview

Just a standard LabCorp Lyme Test I suppose. I didnt ask the doctor. It showed Lyme and co-infection, RMSF.

I am getting ready to send another to IGenex Lab. EVERYTHING done in that lab has to do with Lyme and its co-infections. That is all they do in that lab, and unless you have Medicare, you have to pay cash up front, then file your own insurance. Then test is done. They take credit cards. There are other tests on IGenex that are even more expensive but my doctor went with this one..

Elizabeth

Hope that helps. Mine cost $1346.00. You can go to their website and read all about it and I think there is a price list. And what kind of tests they do.

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Hi Elizabeth. How are you making out? Any updates? Were you able to get copies of your test results?

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@shelby99

Hi Elizabeth. How are you making out? Any updates? Were you able to get copies of your test results?

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I wanted to tell Elizabeth Bass that perhaps she has bird mites DGalleono. The shiny things she see on her scalp are eggs like nits. The burning in her neck is the area they like to burrow.It seems everything is called Morgellons I don't think that is what she has. I seem to have the same symptoms and have found no solution. I'm puzzled why the medical community doesn't study these mites. They are devastating and many people need help.

Liked by basslakeview

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@1kayk

I wanted to tell Elizabeth Bass that perhaps she has bird mites DGalleono. The shiny things she see on her scalp are eggs like nits. The burning in her neck is the area they like to burrow.It seems everything is called Morgellons I don't think that is what she has. I seem to have the same symptoms and have found no solution. I'm puzzled why the medical community doesn't study these mites. They are devastating and many people need help.

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You can see those mites esp with a microscope. They are from an abandoned birds nest. And I’ve heard some people say they started to get Morgellons getting rid of a bird nest. Elizabeth has a lengthy history (unfortunately many years without knowing of Lyme disease and Rocky Mountain fever) which was not treated. That seems to be the classic Morgellon cause. She should not mess around but tea tree and other essential oils wouldn’t hurt. Honestly I feel when one has one or more untreated infection and the immune system isn’t working right that other infections can occur including parasitic.

Liked by basslakeview

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@1kayk

I wanted to tell Elizabeth Bass that perhaps she has bird mites DGalleono. The shiny things she see on her scalp are eggs like nits. The burning in her neck is the area they like to burrow.It seems everything is called Morgellons I don't think that is what she has. I seem to have the same symptoms and have found no solution. I'm puzzled why the medical community doesn't study these mites. They are devastating and many people need help.

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You could try using a steamer on your walls Etc. Also Amazon sells permethrin 10% for cows and horses. Not the healthiest thing to use but it is probably one of the better bug killers. You can also spray items with it to detract. You’d know if that was the issue cause you’d find relief after spraying/using.

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@shelby99

You can see those mites esp with a microscope. They are from an abandoned birds nest. And I’ve heard some people say they started to get Morgellons getting rid of a bird nest. Elizabeth has a lengthy history (unfortunately many years without knowing of Lyme disease and Rocky Mountain fever) which was not treated. That seems to be the classic Morgellon cause. She should not mess around but tea tree and other essential oils wouldn’t hurt. Honestly I feel when one has one or more untreated infection and the immune system isn’t working right that other infections can occur including parasitic.

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I agree! Thanks Shelby.

I havent given up. Simply very busy, tired and fatigued, then there are days when I try to get up and be active, but simply can't even get out of bed. I try to basically be in tune with my body's needs. If it needs rest that's what it gets.

Then there are days of optimism, hope, and thankfulness for the people around me. Including you guys.

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@shelby99

You can see those mites esp with a microscope. They are from an abandoned birds nest. And I’ve heard some people say they started to get Morgellons getting rid of a bird nest. Elizabeth has a lengthy history (unfortunately many years without knowing of Lyme disease and Rocky Mountain fever) which was not treated. That seems to be the classic Morgellon cause. She should not mess around but tea tree and other essential oils wouldn’t hurt. Honestly I feel when one has one or more untreated infection and the immune system isn’t working right that other infections can occur including parasitic.

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Thanks again, Shelby. If it looks as if I'm going backwards it's because I am. I started with the newest post, because I sometimes can't get on as often as I like, it takes me too long to find where I left off.
🥰
p.s. Here are some new photos. Would love to see more photos from others as well.

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Do you guys have, what my sister calls, little red freckles here and there on your body? I have had them for years. They're usually flat and tiny (like a freckle).

The other night, after my shower I noticed a few that have gotten bigger so I took a picture and zoomed in to about 200X (just a guess). There were two close together, but I could only zoom in on one at a time. This one (1st one I placed on here), to me, looked a little more intriguing than the other 3.

Screenshot_20190513-002714_Gallery

Screenshot_20190516-202309_Gallery

Screenshot_20190516-202210_Gallery

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@1kayk

I wanted to tell Elizabeth Bass that perhaps she has bird mites DGalleono. The shiny things she see on her scalp are eggs like nits. The burning in her neck is the area they like to burrow.It seems everything is called Morgellons I don't think that is what she has. I seem to have the same symptoms and have found no solution. I'm puzzled why the medical community doesn't study these mites. They are devastating and many people need help.

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Elizabeth, I also have land in NE tx. I'm wondering if there is something going around with mites. I talked with a AG person he wasn't very fortcoming. I don't live in E Tx.but come often and this is where I apparently got near bird mites. Although I never saw any bird nests. I have been to 3 Drs. here.. the last Dr. Ran lab tests don't know yet. I'm appalled the Doctors don't know how to treat this problem. Years ago I worked as a research assistant for a Chief of staff at a Dallas hospital. I went to SW medical library to get his info for JAMA. Why doesn't some Doctor research this mite problem? I would do research but, I m not qualified as a Doctor. Maybe, people who have this awful problem would fund a Doctor it someone to study it.

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@basslakeview

Do you guys have, what my sister calls, little red freckles here and there on your body? I have had them for years. They're usually flat and tiny (like a freckle).

The other night, after my shower I noticed a few that have gotten bigger so I took a picture and zoomed in to about 200X (just a guess). There were two close together, but I could only zoom in on one at a time. This one (1st one I placed on here), to me, looked a little more intriguing than the other 3.

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That looks like a type of mole but if it’s a new occurrence of them you probably should have it checked out to be on the safe side. I don’t know if anyone else here gets it but I never have. I’m sorry you haven’t been feeling well.

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@1kayk

Elizabeth, I also have land in NE tx. I'm wondering if there is something going around with mites. I talked with a AG person he wasn't very fortcoming. I don't live in E Tx.but come often and this is where I apparently got near bird mites. Although I never saw any bird nests. I have been to 3 Drs. here.. the last Dr. Ran lab tests don't know yet. I'm appalled the Doctors don't know how to treat this problem. Years ago I worked as a research assistant for a Chief of staff at a Dallas hospital. I went to SW medical library to get his info for JAMA. Why doesn't some Doctor research this mite problem? I would do research but, I m not qualified as a Doctor. Maybe, people who have this awful problem would fund a Doctor it someone to study it.

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My best advice would be fund a vet! I’d also think that the issue would be “why that particular mite is easily irradiated with dawn dish detergent in an infested pet bird and/or bird owner”. From your post I get the notion that you have already identified that particular mite as your issue. I never identified that mite or any mite for that matter in regard to my health problems although I certainly researched every possibility back in the day. I read many bird owners discuss how they took care of their infested bird and/or people who said they’re homes were infested and could see that mite even crawling over the walls. I would have to believe that maybe it is not the mite but the sufferer. For instance, a sick bird may never get rid of the mites. Or like an animal who can’t get rid of mange. Just my input but if you believe you brought something on you to your home then I’d think eventually you’d be able to get rid of it.
Believe me please when I say I’m not trying to discredit your experience because I’ve been through Hell and still trying to crawl my way back. I just know every Fin possibility I went through back in the day and wouldn’t want anyone to have to do the same.

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@shelby99

My best advice would be fund a vet! I’d also think that the issue would be “why that particular mite is easily irradiated with dawn dish detergent in an infested pet bird and/or bird owner”. From your post I get the notion that you have already identified that particular mite as your issue. I never identified that mite or any mite for that matter in regard to my health problems although I certainly researched every possibility back in the day. I read many bird owners discuss how they took care of their infested bird and/or people who said they’re homes were infested and could see that mite even crawling over the walls. I would have to believe that maybe it is not the mite but the sufferer. For instance, a sick bird may never get rid of the mites. Or like an animal who can’t get rid of mange. Just my input but if you believe you brought something on you to your home then I’d think eventually you’d be able to get rid of it.
Believe me please when I say I’m not trying to discredit your experience because I’ve been through Hell and still trying to crawl my way back. I just know every Fin possibility I went through back in the day and wouldn’t want anyone to have to do the same.

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Thank you for your reply. I have always been healthy and had a good immune system. These mites you can certainly see and feel and they leave marks in your skin. Terrible. I have just tried Ivermectin fir 2 mo. It did not seem to help. Maybe I haven't done it long enough. I just know these things are biting and eating me up. I've tried everything I can't find any medicine. Dawn doesn't deter then I use it daily . U bath in baby oil use tea tree oil, lemon oil, I be tried all the narural remedies. I see alot if people have the same issue and I wonder,if we can go to the Moon why can't we get a mite parasite off a human. People have a strange misconception the parasite will just stay on you a short while. Wrong , they move to your hair,ears,teeth,back,etc. I just wondered why no Doctor or medical community was researching how to get rid of them. Best wishes

Liked by capausz

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@1kayk

Thank you for your reply. I have always been healthy and had a good immune system. These mites you can certainly see and feel and they leave marks in your skin. Terrible. I have just tried Ivermectin fir 2 mo. It did not seem to help. Maybe I haven't done it long enough. I just know these things are biting and eating me up. I've tried everything I can't find any medicine. Dawn doesn't deter then I use it daily . U bath in baby oil use tea tree oil, lemon oil, I be tried all the narural remedies. I see alot if people have the same issue and I wonder,if we can go to the Moon why can't we get a mite parasite off a human. People have a strange misconception the parasite will just stay on you a short while. Wrong , they move to your hair,ears,teeth,back,etc. I just wondered why no Doctor or medical community was researching how to get rid of them. Best wishes

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Doctors are not what they used to be. I could go on but I won’t. I’d think you have been on the bird mite blog. I believe you and believe them. Morgellons is really too but it is not bird mites. One good thing is you have identified as bird mites. Are they in your home? I’ve heard that’s a tough one to irradiate but possible. One other safe thing you can do is bath in Epson salt. Also put some in your shampoo and wash hair daily with it. Most bugs don’t like salt. I think things are getting resistant today but I know Amazon back in the day probably thought I owned a farm. Haha. There is a pour on ivermectin for cattle and there is also the big guns permethrin 10%. Don’t use too much of it on you cause it really not good for you. Although I’ll be honest and tell ya I put that crap on me for 6 months straight 8 hours or more daily. I was desperate and didn’t care if it killed me by that point. Like I said I never found a mite anywhere so my problem is Morgellons but I’ve heard many in your shoes too. Another safe oil is rosemary. It smells good too. I would dilute it either. Rub in head etc. let’s us know how you make out too. We care!!

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@shelby99

Doctors are not what they used to be. I could go on but I won’t. I’d think you have been on the bird mite blog. I believe you and believe them. Morgellons is really too but it is not bird mites. One good thing is you have identified as bird mites. Are they in your home? I’ve heard that’s a tough one to irradiate but possible. One other safe thing you can do is bath in Epson salt. Also put some in your shampoo and wash hair daily with it. Most bugs don’t like salt. I think things are getting resistant today but I know Amazon back in the day probably thought I owned a farm. Haha. There is a pour on ivermectin for cattle and there is also the big guns permethrin 10%. Don’t use too much of it on you cause it really not good for you. Although I’ll be honest and tell ya I put that crap on me for 6 months straight 8 hours or more daily. I was desperate and didn’t care if it killed me by that point. Like I said I never found a mite anywhere so my problem is Morgellons but I’ve heard many in your shoes too. Another safe oil is rosemary. It smells good too. I would dilute it either. Rub in head etc. let’s us know how you make out too. We care!!

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Oh 91% alcohol too. You can put in spay bottle and spray home items car etc. hand sanitizer for body. And windex sprayed on items too. If I think of anything else I’ll let ya know.

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