Lyme Disease and its Co-Infections, Morgellons Disease and Parasites

Posted by basslakeview @basslakeview, Aug 30, 2018

UPDATED 6/16/2019
Hi,
I am Elizabeth Bass and I live in Southeast Texas very close to Galveston and Houston Texas with my companion Millie, a Yorkie. I moved here in March 2018 from Northeast Texas (Longview/Tyler) with a scalp condition that keeps morphing into something else, each time getting worse. It began in May 2016, and here it is 2019 and I still have "it," but I've learned a whole lot I never really wanted to know.

I have no idea what exactly is wrong with me, but because of what I found in July 2018 on my pillow I'm thinking Morgellons because I found the same looking thing someone else had posted and they were talking about Morgellons. I have attached two photos, one close up and the other is the original so you can have an idea of the actual size.

I also have these white sparkly/shiny critters on every inch of my body, especially my hair/scalp, and face/neck. They can only be seen if I take a picture using my camera with the FLASH ON. Otherwise, no one would know there is anything wrong with me.

This was discovered by accident when in May 2016 I got my long hair all cut off. Right after that (about a month) my head started itching in the upper center back. I couldn't see anything in a mirror so I picked up my phone and took a picture. I still couldn't see very well so I turned the flash on. THAT WAS IT!! (I saw more than I wanted to see.) At first I thought I had bed bugs and did everything I could to get rid of them, including lice treatment. Then I started seeing these shiny, sparkly-looking things. I accidentally caught some of them on camera flying around my head. I kept trying everything I could to rid myself of "them," but nothing has worked so far. However, it is now June 2019 and "the condition" only changes (morphs). It never goes away. I have seen 9 dermatologists, 2 derm PAs, 2 internists, and 2 GPs, a total of 16 (maybe more), counting the one I'm with now since "it" began. My hair fell out in that spot, I had lesions where the hair was missing, and when a new lesion would begin it was always itchy, then that hair would fall out, too. My hair grew back, but not quite as thick.

The fever and rash went away, but the achiness and lethargy/fatigue has stayed with me all these years. About a year or two after that fever, and after going to many, many doctors between Shreveport, Dallas, Tyler, and Houston, one of them said I have Fibromyalgia & Chronic Fatigue. I simply took his word for it. I was so very tired of seeing doctors, doing lab work, driving and working a full time, stressful job. I needed a break!

Then in 1999 I lost my left kidney to an oncocytoma (tumor the size of a softball), benign. Lost my gallbladder in 2004, had carpal tunnel surgery on both wrists at the same time in 2005. I don't think there's much left. I had already had a thyroidectomy in my 20s (Graves Disease), and a hysterectomy in 1986. Then, the BIGGEST loss of my life…my only child in 2013. I honestly did not think I was going to make it.

I had told every single one of ALL those doctors the story of the high fever and rash and how my GP thought it was Lymes, but lab was negative, and not ONE of them (nor me) simply thought of running another Lyme test until last year 2018. On Sept 18, 2018, my 72nd birthday the results were in and I was at my doctor's office with my sister to get the results. That test came back with all sorts of red flags, 30 years later!

Now I am 72 and the second antibiotic I'm on is not doing anything. After one month on Doxycycline (had to stop because my liver didnt like it) and two months on Clindamycin I haven't noticed anything positive, but that doesn't mean nothing is happening, RIGHT?!!. For some reason she didn't put me on anything else right away after the Doxy. Maybe I had to give my liver time to heal. She never said why, and I forget to ask these questions. I think I am going to simply start feeling POSITIVE about things no matter which way they go!!

UPDATE: I finally found a doctor who 'seems' to want to help me. She ran a Lyme test on my blood and was very excited she could help me which was very encouraging as you can imagine.

I have had Lyme Disease and a co-infection called Rocky Mountain Spotted Fever (since 1988-1990ish, 30 years ago). I remember it like it was yesterday. I had a high fever, achiness all over like a flu sickness, and a rash. It was not a flu. And the first thing he said to me was, "It looks like Lymes Disease to me!" Unfortunately, the lab report came back negative and neither one of us thought to do another test.

Yet, for some reason, I keep replaying one of my favorite songs in my head, Eric Clapton's, "NO MORE TEARS IN HEAVEN." (It makes me smile because I know I WILL see my son again and be able to talk to him.)

Ever heard of of the song? Check it out. Just Google it and listen.

USEFUL WEBSITES:

(https://thecehf.org).
To contact them: http://thecehf.org/contact.html

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6287027/ (You have to create a sign in with a password, but it's very simple and it's free.)

@capausz

Incredible and unbelievable!! Is that a living THING that lives on you? Where do they come from? I am itching all over and have been for some time,but I attributed it to dry skin. Now I am wondering — and worried, since the itching is chronic.

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Capausz,
You may just have dry skin. Do you put lotion on? Does it help the itching? Do you have any sores (lesions) that won't heal? Do you feel things biting you, like a mosquito or knat? Taking a picture with your cell phone (FLASH HAS TO BE ON) of where you are feeling a bite (before you scratch or swish it away) can sometimes let you know what is biting you.
Hang in there!

REPLY

Hello dear basslake view- I'm glad you got a discussion going about your troubling and confusing skin symptoms. Interesting about parasites in cows and you are living in Texas, cattle country. We can learn much from fellow bloggers. You are searching to find what is causing your pustules, giving a name to what is causing the symptoms inside and outside your skin. Taking an antidepressant is going to help the stress and I and wondering if you have tried getting a corticosteroid shot to calm the inflammation inside your skin which is giving causing the burning, itching and pain. True this will not solve your mystery or get to the root of what is causing it or give it a name, but you could get relief. I have Allergic Contact Dermatitis and even controlling my contacts I still need an annual corticosteroid shot, Kenalog 40 when the internal skin pain, itching and stinging return after about 11 months from getting a shot. You may not want this shot giving you relief until you get a diagnosis, as it may calm your skin but still it's a consideration.

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@basslakeview

Thank you so much and I am really happy your sister found help. Most doctors recommend a psychotic-type drug, usually giving a diagnosis of "parasitic psychosis." The drug, I heard, really DOES help calm people down. I have also been prescribed the same type of drug, and I'm going to take it. However, I still believe what my camera shows me. I do NOT believe it's all in my mind, but I welcome anything that will help at this point. I will take it for a little while to help me until someone finds a cure or I cure myself.
I commend you for caring for your sister. Look at you. On here, not because of yourself, but for your sister. You are a VERY special person. There aren't very many people like you.

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Elizabeth, I'm so glad that you are going to take what was prescribed you. I do believe it will help you, but you need to take it as prescribed and not just when you want. Take it even if you think you're getting better. Please do not self medicate. I've seen what my sister has done to herself in attempts to rid herself of bugs. She has used toxic horse cream and other harmful toxic agents that have left scars all over her body. She has even gone as far as convincing her PCP to prescribe a pesticide. Please do not go that route. If you are feeling no one will listen or help you please seek out a therapist or psychologist. This doesn't mean it is all in your head, but talking things out with a good therapist can help you grow and understand yourself and others. I believe you can heal from what is afflicting you weather it is Morgellons or not but it won't be an easy road. I would suggest that you start with the doctor that prescribed you the “psychotic-type” drug. Thank you for your compliments. I have found that reaching out to help others has helped me with my own health. I have been diagnosed with trigeminal neuralgia and possible parkinson's. I still am hoping that I too can find some relief from my health conditions. wishing us peace from what ails us. Sharon

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My doctors and I have been guilty of assuming symptoms were based on one autoimmune disease and it turns out it is not the original disease but another new one with some overlapping symptoms which are unrelated to the first.

I have thought about the sparkly flecks on your skin and that made me think about my banning of my granddaughters glittery wardrobe when she comes to visit. In the laundry and around the house it takes months to eradicate the sloughed glitter. I wonder if you are making the assumption that your rash/pustules are connected to the same cause. Could it be that you are using a grooming product or you are in contact with another source with mica. Mica is much finer than glitter. Many lotions and makeup contain mica, as it adds a shine to our skin. It can even be in fabrics. Even residual amounts could be left in laundry and slough around the home. As a test, when you see these sparkly flecks on your skin can you check a family member, preferably your spouse if you share the same bed. Also would like to know if you have others living in the same house and if so do they share the same symptoms: pustules, sparkles, rash and itch. If Morganella, have you learned if they infest a group who cohabitate or do they prefer one person for some reason?
More homework for you in your search for answers.

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@basslakeview

I'm certainly not a medical expert, but I don't see a problem with that. Did you have a tick?

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No I have never had a tick , but my dogs used to get them in the countryside in England and I think grease used to do the trick …..
I have looked at your photos and it looks as if you may have some areas that have got infected and may need an antibiotic , see what the doc says ….you say you are going to the vets with your dog ….please post what he says it might just be the link that helps you find the reason for your torment……good luck Beryl

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@12061948

Can I ask what are symptoms
Do you have burning on the skin.
I get tiny tiny little spots that burn and tingle itch. Then become a hive. Muscle bone aches etc but Lyme tests are negative. Sometimes the spots have tiny scabs.

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Thank you for your response
I have been researching your condition and it sounds like it has some connection to Lyme disease. The bacteria etc.
there is a PCR ANIGEN GENETIC TESTING. I THINK THE GROUP IN AUSTIN COULD PROBABLY DIRECT YOU WHERE TO GET THE TEST.
ALSO I THINK MAYO CLINIC DOES PCR TESTING FOR LYME.

REPLY
@gardeningjunkie

Hello dear basslake view- I'm glad you got a discussion going about your troubling and confusing skin symptoms. Interesting about parasites in cows and you are living in Texas, cattle country. We can learn much from fellow bloggers. You are searching to find what is causing your pustules, giving a name to what is causing the symptoms inside and outside your skin. Taking an antidepressant is going to help the stress and I and wondering if you have tried getting a corticosteroid shot to calm the inflammation inside your skin which is giving causing the burning, itching and pain. True this will not solve your mystery or get to the root of what is causing it or give it a name, but you could get relief. I have Allergic Contact Dermatitis and even controlling my contacts I still need an annual corticosteroid shot, Kenalog 40 when the internal skin pain, itching and stinging return after about 11 months from getting a shot. You may not want this shot giving you relief until you get a diagnosis, as it may calm your skin but still it's a consideration.

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I only had burning skin once and it didn't last but half a day if that long, just things biting me that no one can see, but I'd U take a picture while its biting me I see it. I posted some pictures. Have you seen them?

I'm pretty sure I have Morgellons (some scientist say this is not a parasite, but a disease caused from Lyme disease) because of what I've found on my pillow and other specimens on my bed or after a bath. I've kept them in Ziploc bags. Just can't find a doctor to help me get through this before it gets worse.

I'll post more photos. Check them out if you know of anyone who has parasite problems or Morgellons Disease..

REPLY
@gardeningjunkie

My doctors and I have been guilty of assuming symptoms were based on one autoimmune disease and it turns out it is not the original disease but another new one with some overlapping symptoms which are unrelated to the first.

I have thought about the sparkly flecks on your skin and that made me think about my banning of my granddaughters glittery wardrobe when she comes to visit. In the laundry and around the house it takes months to eradicate the sloughed glitter. I wonder if you are making the assumption that your rash/pustules are connected to the same cause. Could it be that you are using a grooming product or you are in contact with another source with mica. Mica is much finer than glitter. Many lotions and makeup contain mica, as it adds a shine to our skin. It can even be in fabrics. Even residual amounts could be left in laundry and slough around the home. As a test, when you see these sparkly flecks on your skin can you check a family member, preferably your spouse if you share the same bed. Also would like to know if you have others living in the same house and if so do they share the same symptoms: pustules, sparkles, rash and itch. If Morganella, have you learned if they infest a group who cohabitate or do they prefer one person for some reason?
More homework for you in your search for answers.

Jump to this post

I wish that's all it was. Do any of these glitter materials fly because these do. Look at my posted pictures and you can see them. I accidentally caught them in flight. You have to open the photo on a good monitor then zoom in. I have indicated with arrows or written something next to them.

Screenshot_20180730-005646_Gallery

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Mica is just a mineral and wouldn't fly, it could be airborne with any air movement just as sloughed skin cells could be. You have the advantage of seeing the movement, whereas the photos we see are only one dimensional. You do have a very good macro camera len taking good close up photos. The photos came through clearly
.
You do seem to be on target about Morganella as I just read that crystalized particles can be sloughed from the skin of those with Morganella. These are reportedly not live parasites but epithelial cells composed of collagen and keratin. Just like even healthy skin sloughs cells.

It seems like those suggesting Lyme Disease are close to what is causing your symptoms. Lyme is caused by a parasite, but the tick giving the infective bacteria is long gone. Evidently Lyme is chronic meaning, no cure. The bacteria is Borrelia Burgdorferi.

I decided it was time to read more about Morganella, as my knowledge is based on years of managing my eczema so the itchy skin and rash posting you did got my attention and though I could help, of course now turns out you have a different disease. Best I found about Morganella was http://www.thecehf.org and there is a surprising abundance of information, although some sites believe it is caused by alien parasites making a host of your body. I skipped those postings. Evidently Morganella can be brought on by a parasite like a tick, flea or other biting insects and also lives in public places, but it is not the live insect causing the symptoms inside and outside you now, it is the bacteria Borrelia that infects and the body once bitten or brought in contact with in a public place. Similar to how lyme disease causes an infection but the live tick is long gone, your insect infected with Morganella is not the issue now. As you mentioned a frequent diagnosis by doctors is "delusions of parasitosis" which you received also. It's amazing to me how they can ignore your documented symptoms. This bacteria, Borrelia, is a spirochetal bacterium, that does what you are finding, it does create fiber strands inside the skin which can erupt and be ejected externally. The sloughed skin does not contain the live bacteria or any parasite. Your body is ridding itself of an diseased waste product. It is not considered a contagious disease, but they do find that multiple family members can have it because of close contact. Do any other your other family members show symptoms?

What I didn't read about was a treatment, is it an antibiotic for the Morganella bacteria? As mentioned a form of this bacteria which causes Lyme is chronic, is Morganella also chronic and perhaps has the same treatment to minimize symptoms. So many diseases are chronic, as my multiple forms of eczema are, but with knowledge and treatments I am back to living a relatively normal and very productive life.

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@gardeningjunkie

Mica is just a mineral and wouldn't fly, it could be airborne with any air movement just as sloughed skin cells could be. You have the advantage of seeing the movement, whereas the photos we see are only one dimensional. You do have a very good macro camera len taking good close up photos. The photos came through clearly
.
You do seem to be on target about Morganella as I just read that crystalized particles can be sloughed from the skin of those with Morganella. These are reportedly not live parasites but epithelial cells composed of collagen and keratin. Just like even healthy skin sloughs cells.

It seems like those suggesting Lyme Disease are close to what is causing your symptoms. Lyme is caused by a parasite, but the tick giving the infective bacteria is long gone. Evidently Lyme is chronic meaning, no cure. The bacteria is Borrelia Burgdorferi.

I decided it was time to read more about Morganella, as my knowledge is based on years of managing my eczema so the itchy skin and rash posting you did got my attention and though I could help, of course now turns out you have a different disease. Best I found about Morganella was http://www.thecehf.org and there is a surprising abundance of information, although some sites believe it is caused by alien parasites making a host of your body. I skipped those postings. Evidently Morganella can be brought on by a parasite like a tick, flea or other biting insects and also lives in public places, but it is not the live insect causing the symptoms inside and outside you now, it is the bacteria Borrelia that infects and the body once bitten or brought in contact with in a public place. Similar to how lyme disease causes an infection but the live tick is long gone, your insect infected with Morganella is not the issue now. As you mentioned a frequent diagnosis by doctors is "delusions of parasitosis" which you received also. It's amazing to me how they can ignore your documented symptoms. This bacteria, Borrelia, is a spirochetal bacterium, that does what you are finding, it does create fiber strands inside the skin which can erupt and be ejected externally. The sloughed skin does not contain the live bacteria or any parasite. Your body is ridding itself of an diseased waste product. It is not considered a contagious disease, but they do find that multiple family members can have it because of close contact. Do any other your other family members show symptoms?

What I didn't read about was a treatment, is it an antibiotic for the Morganella bacteria? As mentioned a form of this bacteria which causes Lyme is chronic, is Morganella also chronic and perhaps has the same treatment to minimize symptoms. So many diseases are chronic, as my multiple forms of eczema are, but with knowledge and treatments I am back to living a relatively normal and very productive life.

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Well…I had replied with a quite long reply, but I somehow lost it.
What do you use to look at the pictures? Phone, computer or tablet? I bought a new phone. The camera is really awesome. It's a 12MP Sony camera in a Samsung Note 8 phone.
The pic on the left is really all my hair. And there is many bizarre things going on inside it, but most of it is underneath the top layer down to the scalp, none of which can be seen with the naked eye. I always take my pictures with the flash forced on, even in sunlight. I cannot see anything without the flash.
The pic on the right I just took two days ago.

Screenshot_20180905-020739_Gallery

Screenshot_20180904-020858_Prime Photos

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@basslakeview

Well…I had replied with a quite long reply, but I somehow lost it.
What do you use to look at the pictures? Phone, computer or tablet? I bought a new phone. The camera is really awesome. It's a 12MP Sony camera in a Samsung Note 8 phone.
The pic on the left is really all my hair. And there is many bizarre things going on inside it, but most of it is underneath the top layer down to the scalp, none of which can be seen with the naked eye. I always take my pictures with the flash forced on, even in sunlight. I cannot see anything without the flash.
The pic on the right I just took two days ago.

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I use my laptop and have great clarity with your photos

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@gardeningjunkie

I use my laptop and have great clarity with your photos

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That's great to hear. You're the first to tell me how they look on anything other than mine.

I've been offline for a few days so want to apologize for taking so long to reply. I have other issues beside this one and occasionally I have to tend to other things.

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@gardeningjunkie

Mica is just a mineral and wouldn't fly, it could be airborne with any air movement just as sloughed skin cells could be. You have the advantage of seeing the movement, whereas the photos we see are only one dimensional. You do have a very good macro camera len taking good close up photos. The photos came through clearly
.
You do seem to be on target about Morganella as I just read that crystalized particles can be sloughed from the skin of those with Morganella. These are reportedly not live parasites but epithelial cells composed of collagen and keratin. Just like even healthy skin sloughs cells.

It seems like those suggesting Lyme Disease are close to what is causing your symptoms. Lyme is caused by a parasite, but the tick giving the infective bacteria is long gone. Evidently Lyme is chronic meaning, no cure. The bacteria is Borrelia Burgdorferi.

I decided it was time to read more about Morganella, as my knowledge is based on years of managing my eczema so the itchy skin and rash posting you did got my attention and though I could help, of course now turns out you have a different disease. Best I found about Morganella was http://www.thecehf.org and there is a surprising abundance of information, although some sites believe it is caused by alien parasites making a host of your body. I skipped those postings. Evidently Morganella can be brought on by a parasite like a tick, flea or other biting insects and also lives in public places, but it is not the live insect causing the symptoms inside and outside you now, it is the bacteria Borrelia that infects and the body once bitten or brought in contact with in a public place. Similar to how lyme disease causes an infection but the live tick is long gone, your insect infected with Morganella is not the issue now. As you mentioned a frequent diagnosis by doctors is "delusions of parasitosis" which you received also. It's amazing to me how they can ignore your documented symptoms. This bacteria, Borrelia, is a spirochetal bacterium, that does what you are finding, it does create fiber strands inside the skin which can erupt and be ejected externally. The sloughed skin does not contain the live bacteria or any parasite. Your body is ridding itself of an diseased waste product. It is not considered a contagious disease, but they do find that multiple family members can have it because of close contact. Do any other your other family members show symptoms?

What I didn't read about was a treatment, is it an antibiotic for the Morganella bacteria? As mentioned a form of this bacteria which causes Lyme is chronic, is Morganella also chronic and perhaps has the same treatment to minimize symptoms. So many diseases are chronic, as my multiple forms of eczema are, but with knowledge and treatments I am back to living a relatively normal and very productive life.

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Did everything you wrote here come from the Holman Foundation in Austin, TX? Especially the part where it says it's not considered to be contagious? Ive read that's a controversial subject as well. I haven't let anyone into my condo for fear they might get something from me so I've been alone here with my little dog since May when my sister left town. She doesn't show any signs so far, but she doesn't look for any either. However, she would know if she started getting lesions on her skin that won't heal. Most of mine aren't noticeable, except on my scalp. At least not without a camera with a flash or a micro-type tool that's portable enough to look around on someone's body. With my little camera its VERY noticeable.

Thank you so much for all your research. I've also been on that site a lot, and I also ignore the alien science fiction ones as well, but I just happened to catch this photo just the other day (9-3-18), but I didnt see the objects in the photograph until a couple of days later when I was deleting ones that looked as if there was nothing of value in them. I have gotten MUCH MORE CAREFUL about the ones I delete. IT IS QUITE BIZARRE to say the least. ALL objects look as if they are coming from my hair/head.

I'm going to a new doctor (#13) next week (she's an Internist). I've seen her before. I used to drive 10 hrs to see her for my fibromyalgia when all the Neurologists were like the Dermatologists are now…"go see a psychiatrist!" (That was in the early 90s.)

Can't wait to hear what everyone thinks about this one! There will be two of the same photograph. One photo is zoomed in and shows my markings from hair to the objects. Since you say you have a good monitor and you obviously know how to zoom in on a photo using your computer, you may find things I've missed. ***You should be able to see the trail from hair to object as well in the original photo with no markings. It always looks as if it is a part of the photo that is out of focus, but it is not.***

I have more photos similar to these that I will post at some point, especially if you or anyone else is interested.

Hey, if nothing else, it keeps me entertained!!! (I HAVE to joke to keep my sanity.)

Screenshot_20180911-135345_Gallery

20180903_224310

Liked by shelly2562

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It's Beryl wishing you the best of British luck with the new Doctor…..let us know how you get on…….

Liked by mariao

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Your photos clearly show white circular matter. Are they really that size or are the globes just shiny and reflective so it appears magnified.

Liked by mariao

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