Lyme Disease and its Co-Infections, Morgellons Disease and Parasites

Posted by basslakeview @basslakeview, Aug 30, 2018

UPDATED 6/16/2019
Hi,
I am Elizabeth Bass and I live in Southeast Texas very close to Galveston and Houston Texas with my companion Millie, a Yorkie. I moved here in March 2018 from Northeast Texas (Longview/Tyler) with a scalp condition that keeps morphing into something else, each time getting worse. It began in May 2016, and here it is 2019 and I still have "it," but I've learned a whole lot I never really wanted to know.

I have no idea what exactly is wrong with me, but because of what I found in July 2018 on my pillow I'm thinking Morgellons because I found the same looking thing someone else had posted and they were talking about Morgellons. I have attached two photos, one close up and the other is the original so you can have an idea of the actual size.

I also have these white sparkly/shiny critters on every inch of my body, especially my hair/scalp, and face/neck. They can only be seen if I take a picture using my camera with the FLASH ON. Otherwise, no one would know there is anything wrong with me.

This was discovered by accident when in May 2016 I got my long hair all cut off. Right after that (about a month) my head started itching in the upper center back. I couldn't see anything in a mirror so I picked up my phone and took a picture. I still couldn't see very well so I turned the flash on. THAT WAS IT!! (I saw more than I wanted to see.) At first I thought I had bed bugs and did everything I could to get rid of them, including lice treatment. Then I started seeing these shiny, sparkly-looking things. I accidentally caught some of them on camera flying around my head. I kept trying everything I could to rid myself of "them," but nothing has worked so far. However, it is now June 2019 and "the condition" only changes (morphs). It never goes away. I have seen 9 dermatologists, 2 derm PAs, 2 internists, and 2 GPs, a total of 16 (maybe more), counting the one I'm with now since "it" began. My hair fell out in that spot, I had lesions where the hair was missing, and when a new lesion would begin it was always itchy, then that hair would fall out, too. My hair grew back, but not quite as thick.

The fever and rash went away, but the achiness and lethargy/fatigue has stayed with me all these years. About a year or two after that fever, and after going to many, many doctors between Shreveport, Dallas, Tyler, and Houston, one of them said I have Fibromyalgia & Chronic Fatigue. I simply took his word for it. I was so very tired of seeing doctors, doing lab work, driving and working a full time, stressful job. I needed a break!

Then in 1999 I lost my left kidney to an oncocytoma (tumor the size of a softball), benign. Lost my gallbladder in 2004, had carpal tunnel surgery on both wrists at the same time in 2005. I don't think there's much left. I had already had a thyroidectomy in my 20s (Graves Disease), and a hysterectomy in 1986. Then, the BIGGEST loss of my life…my only child in 2013. I honestly did not think I was going to make it.

I had told every single one of ALL those doctors the story of the high fever and rash and how my GP thought it was Lymes, but lab was negative, and not ONE of them (nor me) simply thought of running another Lyme test until last year 2018. On Sept 18, 2018, my 72nd birthday the results were in and I was at my doctor's office with my sister to get the results. That test came back with all sorts of red flags, 30 years later!

Now I am 72 and the second antibiotic I'm on is not doing anything. After one month on Doxycycline (had to stop because my liver didnt like it) and two months on Clindamycin I haven't noticed anything positive, but that doesn't mean nothing is happening, RIGHT?!!. For some reason she didn't put me on anything else right away after the Doxy. Maybe I had to give my liver time to heal. She never said why, and I forget to ask these questions. I think I am going to simply start feeling POSITIVE about things no matter which way they go!!

UPDATE: I finally found a doctor who 'seems' to want to help me. She ran a Lyme test on my blood and was very excited she could help me which was very encouraging as you can imagine.

I have had Lyme Disease and a co-infection called Rocky Mountain Spotted Fever (since 1988-1990ish, 30 years ago). I remember it like it was yesterday. I had a high fever, achiness all over like a flu sickness, and a rash. It was not a flu. And the first thing he said to me was, "It looks like Lymes Disease to me!" Unfortunately, the lab report came back negative and neither one of us thought to do another test.

Yet, for some reason, I keep replaying one of my favorite songs in my head, Eric Clapton's, "NO MORE TEARS IN HEAVEN." (It makes me smile because I know I WILL see my son again and be able to talk to him.)

Ever heard of of the song? Check it out. Just Google it and listen.

USEFUL WEBSITES:

(https://thecehf.org).
To contact them: http://thecehf.org/contact.html

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6287027/ (You have to create a sign in with a password, but it's very simple and it's free.)

@basslakeview

I only had burning skin once and it didn't last but half a day if that long, just things biting me that no one can see, but I'd U take a picture while its biting me I see it. I posted some pictures. Have you seen them?

I'm pretty sure I have Morgellons (some scientist say this is not a parasite, but a disease caused from Lyme disease) because of what I've found on my pillow and other specimens on my bed or after a bath. I've kept them in Ziploc bags. Just can't find a doctor to help me get through this before it gets worse.

I'll post more photos. Check them out if you know of anyone who has parasite problems or Morgellons Disease..

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Someone mentioned the use of a corticosteroid. I too have Morgellon's and was told never to use steroids as they make lyme disease worse. It is difficult to find a doctor, but I've been told there is a good one in Fon du Lac, WI. His name is Dr. Meress. I have not seen him and he is pricey, but it might be worthwhile to look him up on-line and make a phone call. Best of luck. I can empathize.

REPLY
@shelby99

I’m so sorry. Ginger Savely notes she has seen many causes that it’s affected the family although it is not contagious. You all got it from the same source and it is still unknown if there is some genetic immune system issue that predisposes one to this. Is there a way you all can seek treatment from a Lyme literate doctor?

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I’ll look into it. How could it not be contagious??? It has to be. I feel the worse of it. My blood work has come back low thyroid low vitamin D and B….
I feel like there’s underlying infection.
My 12 year old has two lumps one on back of his neck and the other on this shoulder blade. Odd!
My 9 year old itches like crazy
We all have overwhelming fatiqie. My hair is falling out and I am 103 lbs. I lost so much weight
I will call around and check. We are in Wisconsin so I’m not syre there’s much here

REPLY
@lita0417

I’ll look into it. How could it not be contagious??? It has to be. I feel the worse of it. My blood work has come back low thyroid low vitamin D and B….
I feel like there’s underlying infection.
My 12 year old has two lumps one on back of his neck and the other on this shoulder blade. Odd!
My 9 year old itches like crazy
We all have overwhelming fatiqie. My hair is falling out and I am 103 lbs. I lost so much weight
I will call around and check. We are in Wisconsin so I’m not syre there’s much here

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I’m so sorry. I know it seem odd and it especially feels like it could be contagious. No one in my household suffers but me and it’s been a very long time for me suffering. But also it what the research has come up with. I kinda get it though as a friend of mine went to a park with her family and shortly there after they all got Lyme disease. So either you caught it together and/ or there is a genetic link to predisposes one to this. Atleast that’s what I read in the research. Is Dr Meress a Lyme literate doctor? Thus far I think they are the only ones treating this stuff. You can also contact the Charles e foundation for help. Best of luck.

REPLY
@shelby99

I’m so sorry. I know it seem odd and it especially feels like it could be contagious. No one in my household suffers but me and it’s been a very long time for me suffering. But also it what the research has come up with. I kinda get it though as a friend of mine went to a park with her family and shortly there after they all got Lyme disease. So either you caught it together and/ or there is a genetic link to predisposes one to this. Atleast that’s what I read in the research. Is Dr Meress a Lyme literate doctor? Thus far I think they are the only ones treating this stuff. You can also contact the Charles e foundation for help. Best of luck.

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Oh sorry combined that info regarding dr meress from the post above you.

REPLY
@sickandtired1

Someone mentioned the use of a corticosteroid. I too have Morgellon's and was told never to use steroids as they make lyme disease worse. It is difficult to find a doctor, but I've been told there is a good one in Fon du Lac, WI. His name is Dr. Meress. I have not seen him and he is pricey, but it might be worthwhile to look him up on-line and make a phone call. Best of luck. I can empathize.

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I hear you! My head was very bad and all inflamed so everytime I went to a Derm they brought out the shot (kenalog – i think). And it never made it better, never ever!! The topical crap made it worse too. And of course when I refused to do either after years of suffering then I was a resistant patient. Like really ya not noticing the shit didn’t help one bit doc?

REPLY

One (1) full year now, living with these things foriegn to us for 53 years. Suddenly these biting, stinging pests appear on my scene. And, it gets worse! Hairy, linty, shiny intrusive creatures! This is only one of many new unidentified pests to trespass into my, and my girlfriends lives.

CM190323-141305002

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Hi Elizabeth my name is Tami. Omg I’m so sorry that you are going through this. I never would have dreamed someone else has gone through what I have. I wouldn’t ever wish this disease on my worst enemy. You are the first person that has ever posted anything like I have gone through. I am alll alone with my illness. I have never told anyone since my husband and past doctors couldn’t find anything on the test that they ran. I keep it to myself. It’s been about 4 or 5 years since I started to see the white fluffy and black specs. After my husband left me I had to pretend it’s not real. I just have walked away and tell myself nope. Not doing this…..Now things have taken a crazy turn. These things are still here but insanely a lot bigger. They get on the ants and make them like a zombie. They eat them from the inside out. So gross I saw the whole thing. Without a camera this time. They are in my garage and look really big now it’s scary. I have them all in my eyes too. I use slow mo on my phone and can see them crawling on each other. I have always needed someone to talk to about this. Can we chat sometime.? I have kids and I’m worried. My daughter doesn’t know what we have. If I say anything she will Think that I’m still crazy. I’m just getting custody back soon. My daughter is really depressed and itchy in the scalp too. I could use a friend like you to talk too. Can u look me up on Facebook ? Then we can private message there. My last name is Wilson and I’m in Santa Rosa Ca. Look forward to talk soon.

REPLY
@lita0417

Hi. I don’t even know where to begin with this. My life had been so destroyed. I have three younger boys that have symptoms as well.
I try everything!!!! And being in Wisconsin there is not a doctor that will listen or believe this is a thing.
My two older children do not talk to me, they think I went crazy and am on drugs. Omg that alone hurts!!! One of the younger boys does not believe me but I try to understand. I tell them “ we believe in God and cannot see Him but we have faith in the word” my ex husband whom I was going to remarry when this started also didn’t believe me and after 17 years you think you would know that your wife does not go from smiles and an e-commerce business making money , doing her hair,turning into a basket case OVER NIGHT CUZ SHE IS CRAZY!!!
This has been a nightmare and I am always trying to show them pics, images of these hell razors only to get a I don’t see anything response. I had a decent income and helped play for my oldest sons car, I ran into an issue at my bank and withdrew all my 14,000.00 , had him put it in his bank until I chose another bank… well needless to say when he stopped talks by to me he spent all of it! And on top of that my daughter got 3,000 from him out of my money for school that I was going to help pay for when I got the money back. So they both just broke my heart. She lied and said she didn’t get anything from him . Until I found out she did and then lied about the amount so I went her the picture of the transfers and cashiers check … I co signed for his car, put the deposit down for that as well as paid for my daughters class so she could get an admin position. She got the position Abd not even a call to say thanks mom.
I don’t know what to do!!! My savings from my business account is gone from trying to fight this disease. Behind on rent, I could never figure out how my 9 year old is had symptoms autistic and I read autistic hikdren are affected.
But thank everything I do I do so they won’t feel wgat I do.
It hurts! Emotional Abd physically I get sick. Pain, stinging that last for hours upon hours so I don’t get much rest. .
I have spent my life helping others , I teach my children to be good people, I have always supported them and their interests . However I must not have dine as well as I thought since I’m a disowned mother who means so little.
I have 3 grandchildren and I miss them every single day! I miss my daughter, my son, my business, my sanity! I don’t let my grandchildren come here out of fear they will get this as well! And I have pics video Abd etc tgat look just like your images!
I’m running out of ideas ! I’ve tried everything! And I mean EVERYTHING!
Now I’m behind on so many bills as well as memories . I pray this ends soon and I mean SOON!
I am so sorry you have to experience this too!
When my 9 year old says mom they need to go , they bully me, they should go to the neighbors house I tell him “we don’t want that ! We have to pray!!!!!
Thank you for sharing. I’m crying right now because I kept telling myself this isn’t possible!!!! The things that happen to me are unbelievable!
Please take care and if you would like a few pointers your more than welcome to contact me.
I take supplements and glycerin to bed ….
Oh these are in my house, vehicle, garage, basement…. I don’t know why this is happening but I’m truly sorry you had to experience this
With love and sending prayers

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Hi I am Tami and I also suffer as you do. Please don’t give up, We need to fight back. I believe that There are so many of us that have noticed this disease and we’re gonna figure it out I’m gonna figure it out I really feel very blessed right now because I have found the site and I no longer feel like I’m alone unfortunately we all have this disease it’s everywhere I have just come to me for pedicures and I see the little white cotton fibers on her skin and then the black specs it freaks me out but I have to stay calm and maybe they’ll figure it out . I can’t talk about this with anyone this is the first time in four years that I’ve actually discussed it with anyone and I feel like I’m on fire I am so excited that I have a support now and I think together we could win this I have my own theories of what’s going on but my advice to you and to anybody else is don’t show pictures to anybody and less it’s like me or somebody else that suffering too I wouldn’t share pictures or videos to anyone. Unless somebody comes to you and show you a picture first I would not for it to anyone just because people get freaked out and like you said I think you’re crazy and that’s the last thing that we need we have to go about this the right way I am going to see an eye doctor and I’m just gonna play it cool and play stupid and hopefully he will want to teach me maybe you can show me what’s wrong with my eyes because I can see something moving and I don’t even need my phone anymore they’re big directly huge in my garage they’re probably the size of I would say a quarter it’s unbelievable.Hang in there and sometimes we just have to turn around and say not now I can’t deal with this right now I do it all the time.It helps me to stay positive but I’m pretty much a happy person most the time fun loving caring so when I get down and scared I just say it’s OK to walk away from it take a time out .Warring about this disease all the time every minute of every day is exhausting and I just can’t I have to walk away so I hope that helps you stay positive you can

Liked by capausz, price1975

REPLY
@desi1

@mariao
We had to HEPA filter air purifiers and it didn't make any difference are air quality test came back the same before and after but that doesn't mean someone else may have had a different experience. I have spoke with somebody who is in I guess you say remission or isn't affected as bad by the disease anymore and he swears by an ozone generator. California well not allow me to have one delivered here is the only reason I have not got one yet. So I guess there's two answers depending on what kind of air purifier looking for my suggestion is to research ozone generators and anything from the government or medical world may say don't make a difference because they aren't expensive expensive and they do the job 4 certain things. I totally believe that they help in this situation. Ozonated water ozonated olive oil I've read about both of those being a big benefit health-wise but have no personal experience to speak on.

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Thanks. Yes purifiers are very expensive. That is the reason I asked. I don't have any doctor because as you know most physicians in Southern California don't believe Morgellon is physical disease.

Liked by desi1

REPLY
@creative

I thought I the only one that was have those issues, My Hair is not mine.my hair has been behaving like in a stereo typical Medusian fashion,attempting to slither it's way into my eyes,ears, full body, keeping me up all night and making my life a living Hell. Morgellons can alter DNA and effectively Hijack your hair. This has been on going for 3years. Long story short, after all the doctors I saw, the came up with The" Dislousional "label on me. I was devastated by the Erogentness of this Doctors, especially the Dermatologist, which has a 5 years Restaining order against me , and yes I lost it when I found out she had lied to me about my biopsy tests and I wanted to know why she would do that to me, i was going thru hell, suicidal ect. well she Rolled her eyes at me and tryed turn away from me. I grab her collared jacket and Said do you remember me crying out for help to you, then I was grabbed by staff and now I had everybody's attention . Well now I've been black balled from all her Doctors friends. I cant win from losing, and so iam still suffering from it, I dont trust doctors and iam scared to death iam going to die from it.

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I started using a lice comb two years ago. Some nights I spend two hours taking away from my head those "look alike hair" fibers. Not every day, sometimes in ten minute I am done. I don't know if you are using a lice comb, but it helps a great deal to get rid of all of those "look alike hair" fibers.
I thought I was going bald until I realized that were Morgellon fibers tangling my hair. So, don't panic thinking you are losing your own hair when you use the lice comb because is not your hair. If you use a lice comb every night your hair will start looking healthier.
Please, don't argue with any physician, dermatologist, etc.
You are not going to die from Morgellon ! There are people that are dealing with Morgellon during two decades. Of course, they are bored and tired of Morgellon. However, they are still alive!

REPLY
@shelby99

I hear you! My head was very bad and all inflamed so everytime I went to a Derm they brought out the shot (kenalog – i think). And it never made it better, never ever!! The topical crap made it worse too. And of course when I refused to do either after years of suffering then I was a resistant patient. Like really ya not noticing the shit didn’t help one bit doc?

Jump to this post

Your head is inflammed due to Morgellons fibers that look like your own hair. Those fibers tangle your hair, and produce inflammation on your scalp.
A very nice person told me to use a lice comb to get rid of the fibers and I really feel much better!. Be patient because you will spend sometimes one or two hours getting rid of those fibers, other times just ten minutes.
Put a towel around your neck and shoulder to cover your clothes while your are using the lice comb. After that use a lint roller on your clothes because you will notice a great deal of debris and small fibers on your clothes.
After that just shampoo your hair. I use a medicated anti-fungal shampoo mixed with anti-bacterial soap. Then, I use a generous amount of coconut oil conditioner for extra dry hair.
I thought I was going bald until I realized that were Morgellon fibers tangling my hair. If you use a lice comb every night your hair and scalp will start looking healthier.
Also change pillow covers and sheets every night.
Lice combs and lint rollers for ever ! when you suffer from Morgellons
Best wishes,
Maria

REPLY
@dimminati

One (1) full year now, living with these things foriegn to us for 53 years. Suddenly these biting, stinging pests appear on my scene. And, it gets worse! Hairy, linty, shiny intrusive creatures! This is only one of many new unidentified pests to trespass into my, and my girlfriends lives.

Jump to this post

I am experiencing the same thing for more than five years ! Your best tools are:
-Lint rollers (one for your clothes. The other for your own skin (it does not hurt).
-Lice comb (to get rid of the fibers that look like your hair).
– Buy cheap polyester sheets and pillow covers and change them every day
– Use medicated anti fungal shampoo mixed with antibacterial soap
– Use coconut oil conditioner for extra dry hair. (generous amount)
– Use on your affected areas a moisturizer mixed with antibacterial lotion and with anti-fungal lotion (inexpensive – over the counter)
– Don't drink sugary drinks.
– Don't use your laptop at night.
– Lower your sugar intake.
– Walk, socialize

REPLY
@lita0417

I’ll look into it. How could it not be contagious??? It has to be. I feel the worse of it. My blood work has come back low thyroid low vitamin D and B….
I feel like there’s underlying infection.
My 12 year old has two lumps one on back of his neck and the other on this shoulder blade. Odd!
My 9 year old itches like crazy
We all have overwhelming fatiqie. My hair is falling out and I am 103 lbs. I lost so much weight
I will call around and check. We are in Wisconsin so I’m not syre there’s much here

Jump to this post

I have this condition for a long time. I used to panic, cry and get depressed until I decided to fight with my own tools:

1. I cut my hair, so the fibers from my hair won't infect my back. (It works)
2. I bought a lice comb. I use the lice comb every night, to take away the fibers that tangle my hair. (The fibers look like your hair, but it is not your hair). At first, I spent one of two hours taking away fibers, now just ten minutes. (Use the lint roller on your clothes or towel after using the lice comb)
3. I bought several lint rollers. I use it on my clothes and even in my back.
4. I use a medicated anti-fungal shampoo mixed with anti-bacterial liquid soap
5. I use coconut oil conditioner. I apply a generous amount on my head.
6. I buy over the counter anti-fungal lotion and antibiotic lotion, that I mixed with a moisturizer. I apply the mixture on my skin.
7. I bought cheap polyester sheets and pillow cover. I change sheets and pillow cover every day.
8. I stop drinking soda or sugary drinks.
9. I eat less sugar.
10. I try not to use my laptop at night (bugs are attracted to light).
11. I walk a lot, talk to my friends…

My best wishes to you and your chlldren.

Maria

Liked by capausz

REPLY
@lita0417

I’ll look into it. How could it not be contagious??? It has to be. I feel the worse of it. My blood work has come back low thyroid low vitamin D and B….
I feel like there’s underlying infection.
My 12 year old has two lumps one on back of his neck and the other on this shoulder blade. Odd!
My 9 year old itches like crazy
We all have overwhelming fatiqie. My hair is falling out and I am 103 lbs. I lost so much weight
I will call around and check. We are in Wisconsin so I’m not syre there’s much here

Jump to this post

@lita0417
You mentioned that your 12 year old has a lump on her shoulder and that last week this is what I've been dealing with. What I have learned is they like the throat and shoulder area they will kind of build up there and to soak something like a towel in really warm Epsom salt water make it really strong to a lot of Epsom salt suck that the towel hot squeeze it out and put it on the lumps it does offer some relief I am just now starting to deal with a painful part of this and it's no joke I'm still so everybody that has to deal with this I can't imagine a 12 year old or a nine-year-old.
I hope that people wake up to this condition because I live in Southern California San Diego and I see it everywhere everywhere I go I see someone with it or it and I seriously hope that somebody can soon convince whoever the powers Maybe that people are getting sick and dying from this.

Liked by capausz

REPLY
@mariao

Your head is inflammed due to Morgellons fibers that look like your own hair. Those fibers tangle your hair, and produce inflammation on your scalp.
A very nice person told me to use a lice comb to get rid of the fibers and I really feel much better!. Be patient because you will spend sometimes one or two hours getting rid of those fibers, other times just ten minutes.
Put a towel around your neck and shoulder to cover your clothes while your are using the lice comb. After that use a lint roller on your clothes because you will notice a great deal of debris and small fibers on your clothes.
After that just shampoo your hair. I use a medicated anti-fungal shampoo mixed with anti-bacterial soap. Then, I use a generous amount of coconut oil conditioner for extra dry hair.
I thought I was going bald until I realized that were Morgellon fibers tangling my hair. If you use a lice comb every night your hair and scalp will start looking healthier.
Also change pillow covers and sheets every night.
Lice combs and lint rollers for ever ! when you suffer from Morgellons
Best wishes,
Maria

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I didn’t think I was going bald. I had huge big ass bald spots. Like half my head was gone at some points during this debacle. No one could have denied the hair loss. No camera needed when you have big gaping gaps of hair missing all over your head! Yeah of course I used a lice comb. I used everything and anything I thought would help since my thousand visits to doctors left me more sick. Maybe I had a bad case but taking handfuls of oral antibiotics seems to have stopped that hairloss. Go figure! Lyme doctor is the only one who has helped me!!

REPLY
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