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Lyme Disease and its Co-Infections, Morgellons Disease and Parasites
UPDATED 6/16/2019
Hi,
I am Elizabeth Bass and I live in Southeast Texas very close to Galveston and Houston Texas with my companion Millie, a Yorkie. I moved here in March 2018 from Northeast Texas (Longview/Tyler) with a scalp condition that keeps morphing into something else, each time getting worse. It began in May 2016, and here it is 2019 and I still have "it," but I've learned a whole lot I never really wanted to know.
I have no idea what exactly is wrong with me, but because of what I found in July 2018 on my pillow I'm thinking Morgellons because I found the same looking thing someone else had posted and they were talking about Morgellons. I have attached two photos, one close up and the other is the original so you can have an idea of the actual size.
I also have these white sparkly/shiny critters on every inch of my body, especially my hair/scalp, and face/neck. They can only be seen if I take a picture using my camera with the FLASH ON. Otherwise, no one would know there is anything wrong with me.
This was discovered by accident when in May 2016 I got my long hair all cut off. Right after that (about a month) my head started itching in the upper center back. I couldn't see anything in a mirror so I picked up my phone and took a picture. I still couldn't see very well so I turned the flash on. THAT WAS IT!! (I saw more than I wanted to see.) At first I thought I had bed bugs and did everything I could to get rid of them, including lice treatment. Then I started seeing these shiny, sparkly-looking things. I accidentally caught some of them on camera flying around my head. I kept trying everything I could to rid myself of "them," but nothing has worked so far. However, it is now June 2019 and "the condition" only changes (morphs). It never goes away. I have seen 9 dermatologists, 2 derm PAs, 2 internists, and 2 GPs, a total of 16 (maybe more), counting the one I'm with now since "it" began. My hair fell out in that spot, I had lesions where the hair was missing, and when a new lesion would begin it was always itchy, then that hair would fall out, too. My hair grew back, but not quite as thick.
The fever and rash went away, but the achiness and lethargy/fatigue has stayed with me all these years. About a year or two after that fever, and after going to many, many doctors between Shreveport, Dallas, Tyler, and Houston, one of them said I have Fibromyalgia & Chronic Fatigue. I simply took his word for it. I was so very tired of seeing doctors, doing lab work, driving and working a full time, stressful job. I needed a break!
Then in 1999 I lost my left kidney to an oncocytoma (tumor the size of a softball), benign. Lost my gallbladder in 2004, had carpal tunnel surgery on both wrists at the same time in 2005. I don't think there's much left. I had already had a thyroidectomy in my 20s (Graves Disease), and a hysterectomy in 1986. Then, the BIGGEST loss of my life…my only child in 2013. I honestly did not think I was going to make it.
I had told every single one of ALL those doctors the story of the high fever and rash and how my GP thought it was Lymes, but lab was negative, and not ONE of them (nor me) simply thought of running another Lyme test until last year 2018. On Sept 18, 2018, my 72nd birthday the results were in and I was at my doctor's office with my sister to get the results. That test came back with all sorts of red flags, 30 years later!
Now I am 72 and the second antibiotic I'm on is not doing anything. After one month on Doxycycline (had to stop because my liver didnt like it) and two months on Clindamycin I haven't noticed anything positive, but that doesn't mean nothing is happening, RIGHT?!!. For some reason she didn't put me on anything else right away after the Doxy. Maybe I had to give my liver time to heal. She never said why, and I forget to ask these questions. I think I am going to simply start feeling POSITIVE about things no matter which way they go!!
UPDATE: I finally found a doctor who 'seems' to want to help me. She ran a Lyme test on my blood and was very excited she could help me which was very encouraging as you can imagine.
I have had Lyme Disease and a co-infection called Rocky Mountain Spotted Fever (since 1988-1990ish, 30 years ago). I remember it like it was yesterday. I had a high fever, achiness all over like a flu sickness, and a rash. It was not a flu. And the first thing he said to me was, "It looks like Lymes Disease to me!" Unfortunately, the lab report came back negative and neither one of us thought to do another test.
Yet, for some reason, I keep replaying one of my favorite songs in my head, Eric Clapton's, "NO MORE TEARS IN HEAVEN." (It makes me smile because I know I WILL see my son again and be able to talk to him.)
Ever heard of of the song? Check it out. Just Google it and listen.
USEFUL WEBSITES:
(https://thecehf.org).
To contact them: http://thecehf.org/contact.html
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6287027/ (You have to create a sign in with a password, but it's very simple and it's free.)
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What about your diet? Please see my other post. Significant progress can be made… keep hope : ) 💖💪
These practices make your body inhospitable to parasites/Morgellons. Non-chlorine bleach (which is hydrogen peroxide) in the laundry. Also Oxy Clean detergent. We have gone through lots to get my friend back on track…. only certain shampoos and soaps- Alaffia black soap with Neem for hair, Argan oil for conditioner, borax to exfoliate. Baths with Borax/peroxide. EDTA as Ted from Earth Clinic recommends. In bath- and/or as shampoo. Green tea- to help “cool” the body and emotions. Diatomaceous earth. Wormwood….. lots tried- she’s doing so much better now!!!
I am also 0.
I cannot open the file. Maria
Paula:
I have this condition for about 7 or 8 years. I used to have my back covered by skin lesions. At the present time my problem is limited to my hair and scalp.
My back got cleared because I finally understood that no physician will believe me, so I created my own treatment:
-I vacuum my home every day.
-I use gloves, long sleeves and cover my hair while gardening.
-I use a lint roller in my bed, my clothes, and some times even in my back !
-Some times I wash my hair with a shampoo for dry hair mixed with antibacterial soap. At other times, I use an anti-fungal shampoo. I condition my hair with coconut oil and I leave it on my hair for about 4 minutes.
-I wash and change sheets, pajamas, etc every day.
-I comb my hair with a lice comb several times per day and for about 30 minutes. (I throw away the "look alike hair" fibers). You will notice that the fibers are tangled into your hair, they are not attached to your skin like real hair.
-I moisturize my skin using a lotion for dry skin, mixed with a triple antibiotic ointment and some drops of tea tree.
– I try not to eat sugary foods or drinks.
– I try to eat gluten free.
– I walk every day and relax.
After a year my back got clear ! I still have problems with my hair but in much lesser degree. So, I am much, much better.
I live in California. I don't know any doctor that can help me and I am afraid to be labeled "delusional".
Please, don't expect people, friends, family or physicians to believe you, because, most of them consider this illness just delusions.
I finally understood that no physician will believe me, so I created my own treatment. My back used to be covered by sores and rashes and I did not get any sympathy from any physician. All of them, thought that my lesions were self inflicted. So, after getting depressed for a short time I decided to create my own treatment:
-I vacuum my home every day.
-I use gloves, long sleeves and cover my hair while gardening.
-I use a lint roller in my bed, my clothes, and some times even in my back !
-Some times I wash my hair with a shampoo for dry hair mixed with antibacterial soap. At other times, I use an anti-fungal shampoo. I condition my hair with coconut oil and I leave it on my hair for about 4 minutes.
-I wash and change sheets, pajamas, etc every day.
-I comb my hair with a lice comb several times per day and for about 30 minutes. (I throw away the "look alike hair" fibers). You will notice that the fibers are tangled into your hair, they are not attached to your skin like real hair.
-I moisturize my skin using a lotion for dry skin, mixed with a triple antibiotic ointment and some drops of tea tree.
– I try not to eat sugary foods or drinks.
– I try to eat gluten free.
– I walk every day and relax.
-I cut my hair.
My back used to be full of sores and after a year my back got clear ! I still have problems with my hair but in much lesser degree. So, I am much, much better.
I live in Southern California. I don't know any doctor that can help me and I am afraid to be labeled "delusional", but I am much better. I am enjoying life again.
Best wishes. Maria
That’s what I think CEHF is missing- the environmental component. There is DEFINITELY an environmental component!
So glad you have experienced progress.
Have my concerns regarding questions of environmental factor or factors.
I have spent countless hours like most of you trying to figure this out. I spent the weeks, even months vacuuming everything, washing sheets every day, especially pillowcases, not touching my kids or family, etc. I received very little relief until the lyme connection was made. I can honestly say after almost 2 months on antibiotics, herbal supplements, liver detoxification (As much as possible while being on antibiotics) as well as occassional parasitic treatment including ivermectin and Albenzanole, I am on the road to recovery.
What I realized early on is this infection creates a very sticky substance/ biofilm that protects the bacteria and/ or parasites. I believe the moregellons/ fibers are simply a combination of the infection as well as our own hair and skin that is manipulated because of the infection and biofilm clogging our pores, organs and natural detoxification system. I also think we are shedding skin, hair, and debris that have been manipulated due to this insane infection, which leads us to believe and feel we are covered by bugs. I’m not saying there is not a bug or parasite involved, that is probably a big part of this and there have been numerous studies proving parasites are a huge part of lyme. But I’m not sure they are bugs that are living in our environment based on what I have seen and the progress I’ve made.
This infection has affected our bodies in a way that hair and skin/pores are not functioning and releasing the way they naturally would. I have seen massive amounts of fiber and hair in the toilet, which I know is disgusting, but I did not start seeing this happened until at least a month on antibiotics. I also realized if I do not eat appropriately and drink plenty of water, my organs are not going to begin functioning normally. I believe this disease has wreaked havoc on all of my organs, causing the fatigue, digestive issues, poor skin, etc. So like many have said, my suggestion would be to start from the inside out. My Heart truly goes out to everyone struggling with this, and I know my own battle has not been won & this will be a journey, but I also believe that God has some awesome life lessons and an amazing future in store for all of us who don’t give up.
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3 ReactionsHello Thurst, this is Beryl……I have been reading your posts and am so pleased that you are making such good headway in your fight, and the way you are challenging your situation,……I admire the way you are sharing your experience with others that are fighting this condition ……Have you ever questioned a big animal vet to see if they have any information as it does seem to effect animals also and has been known in their world for q long time ……If a cow has this and the farmer calls in the vet he doesn't say it's your imagination to the cow does he….sounds a bit silly but true…….Beryl
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