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Lyme Disease and its Co-Infections, Morgellons Disease and Parasites
UPDATED 6/16/2019
Hi,
I am Elizabeth Bass and I live in Southeast Texas very close to Galveston and Houston Texas with my companion Millie, a Yorkie. I moved here in March 2018 from Northeast Texas (Longview/Tyler) with a scalp condition that keeps morphing into something else, each time getting worse. It began in May 2016, and here it is 2019 and I still have "it," but I've learned a whole lot I never really wanted to know.
I have no idea what exactly is wrong with me, but because of what I found in July 2018 on my pillow I'm thinking Morgellons because I found the same looking thing someone else had posted and they were talking about Morgellons. I have attached two photos, one close up and the other is the original so you can have an idea of the actual size.
I also have these white sparkly/shiny critters on every inch of my body, especially my hair/scalp, and face/neck. They can only be seen if I take a picture using my camera with the FLASH ON. Otherwise, no one would know there is anything wrong with me.
This was discovered by accident when in May 2016 I got my long hair all cut off. Right after that (about a month) my head started itching in the upper center back. I couldn't see anything in a mirror so I picked up my phone and took a picture. I still couldn't see very well so I turned the flash on. THAT WAS IT!! (I saw more than I wanted to see.) At first I thought I had bed bugs and did everything I could to get rid of them, including lice treatment. Then I started seeing these shiny, sparkly-looking things. I accidentally caught some of them on camera flying around my head. I kept trying everything I could to rid myself of "them," but nothing has worked so far. However, it is now June 2019 and "the condition" only changes (morphs). It never goes away. I have seen 9 dermatologists, 2 derm PAs, 2 internists, and 2 GPs, a total of 16 (maybe more), counting the one I'm with now since "it" began. My hair fell out in that spot, I had lesions where the hair was missing, and when a new lesion would begin it was always itchy, then that hair would fall out, too. My hair grew back, but not quite as thick.
The fever and rash went away, but the achiness and lethargy/fatigue has stayed with me all these years. About a year or two after that fever, and after going to many, many doctors between Shreveport, Dallas, Tyler, and Houston, one of them said I have Fibromyalgia & Chronic Fatigue. I simply took his word for it. I was so very tired of seeing doctors, doing lab work, driving and working a full time, stressful job. I needed a break!
Then in 1999 I lost my left kidney to an oncocytoma (tumor the size of a softball), benign. Lost my gallbladder in 2004, had carpal tunnel surgery on both wrists at the same time in 2005. I don't think there's much left. I had already had a thyroidectomy in my 20s (Graves Disease), and a hysterectomy in 1986. Then, the BIGGEST loss of my life…my only child in 2013. I honestly did not think I was going to make it.
I had told every single one of ALL those doctors the story of the high fever and rash and how my GP thought it was Lymes, but lab was negative, and not ONE of them (nor me) simply thought of running another Lyme test until last year 2018. On Sept 18, 2018, my 72nd birthday the results were in and I was at my doctor's office with my sister to get the results. That test came back with all sorts of red flags, 30 years later!
Now I am 72 and the second antibiotic I'm on is not doing anything. After one month on Doxycycline (had to stop because my liver didnt like it) and two months on Clindamycin I haven't noticed anything positive, but that doesn't mean nothing is happening, RIGHT?!!. For some reason she didn't put me on anything else right away after the Doxy. Maybe I had to give my liver time to heal. She never said why, and I forget to ask these questions. I think I am going to simply start feeling POSITIVE about things no matter which way they go!!
UPDATE: I finally found a doctor who 'seems' to want to help me. She ran a Lyme test on my blood and was very excited she could help me which was very encouraging as you can imagine.
I have had Lyme Disease and a co-infection called Rocky Mountain Spotted Fever (since 1988-1990ish, 30 years ago). I remember it like it was yesterday. I had a high fever, achiness all over like a flu sickness, and a rash. It was not a flu. And the first thing he said to me was, "It looks like Lymes Disease to me!" Unfortunately, the lab report came back negative and neither one of us thought to do another test.
Yet, for some reason, I keep replaying one of my favorite songs in my head, Eric Clapton's, "NO MORE TEARS IN HEAVEN." (It makes me smile because I know I WILL see my son again and be able to talk to him.)
Ever heard of of the song? Check it out. Just Google it and listen.
USEFUL WEBSITES:
(https://thecehf.org).
To contact them: http://thecehf.org/contact.html
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6287027/ (You have to create a sign in with a password, but it's very simple and it's free.)
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My name is Kristin Solovy, I live in Warren, Michigan and I am 26 years old and have Morgellons disease. I am literally living in hell and can't take it much longer…the symptoms and mental stress have pretty much destroyed my life, body and soul. I can't get help from anyone in the medical community or my family because they believe all the lies and b******* let's put out there about this being a mental disease. It is really discouraging I know that you're suffering and nobody will help us. I pray that the PEMP T treatment is the answer.
Hello Kristinsolovy my name is Beryl …..I understand your despair and that you feel just awful and think that there is no help out there but this thing is starting to get recognized and it is possible to get help …..may I suggest that you read as much as you can from people on this site that have this same experience and are having success in manageing their plight……talk to them and they will be only too pleased to help and in turn you will hopefully feel more in control……best of luck ….Beryl
Everything that Elizabeth said… I tested positive for Lyme and tickborn co-infections through the lab DNA Connexions. I am making progress with the doxycycline, but going to see a doctor in Spring Texas for an actual schedule/plan. The more I learn, the less likely I feel that doxycycline alone is going to fix these problems. Also, study up on the connection between lime and parasites. There are numerous studies about both, and what I am finding through experience and through my research is that tackling the parasites will cut down the time required on antibiotics by quite a lot… from years for healing down to months instead. I know it sounds gross and noone wants to think about parasites. Believe me… I didn’t! But I have felt and looked so much better since starting there. This is an awful disease, But I know healing is possible! Hang in there!
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2 ReactionsMy observations exactly. I had to stop the Doxycycline because my lab work after 1 month showed that my liver and kidney didn't like it.
Be sure to get your doctor to do labs on you once a month the whole time you're taking the antibiotics or any long term drug. You don't want to end up losing your kidney or liver. That's where the drugs cycle through before excretion. I didn't know that and ended up with a tumor the size of a softball inside my left kidney. Not exaggerating. I saw the film. That was in 1999, 7 years after eating Ibuprofen like candy because the pain from the Lyme Disease was so painful. The doctor told me I could take up to 9 a day, but I don't think he realized I took him literally. Then 2004 I lost my gallbladder. Not sure why on that one.
Now I can't take ANY kind of anti-mmatory like Aleve, Àspirin, Ibuprofen, and Excedrin (which was the best one). I can take Tylenol which does nothing so I've been on Methadone after trying other Rx drugs. Methadone is the only one that doesn't make me woozy and high feeling. I had to find something that didn't mess with my brain since I had to work. Been on that since after 1999 when kidney came out.
I am also encouraged. Mine now is mostly in my scalp and hair.
But I noticed I had those strange coarse black hairs I could hardly see coming out on the top of my hands and fingers. Then a lesion. I started putting menthol hand lotion on my hands and they disappeared for a while, then yesterday noticed they are trying to come back.
I also notice as I watch everything anywhere on my body with my Note 8, 12 MP phone camera (camera is a Sony), then zoom in, to see better, there's a pattern to these things. The hair will show up through the skin. I can't just grab the tweezers and pull them out because they are part of me. It hurts a lot to try that. It looks as if they are woven in with my skin. It's a foreign thing to my body so it makes me wonder why MY BODY is now making it. That's when the hand lotion comes in, but when I do that the hairs actually break down into tiny black dots and you can see the outline of the hairs with the dots for just a little while, then the dots turn into white things, and then they seem
to gather together and turn into something else. My nickname for these particular critters I call "blackeyes", then somehow there is a biofilm being made by something. At first I thought the black hairs were involved in making the biofilm. Now, since it is a grayish color, I have another theory. I think the black dots and the white things that look like just short logs rap around the black dots (those are now the "Blackeyes"). Somehow, after those things happen then comes the biofilm. I finally got the biofilm out of my eyebrows. Now when I zoom in on my eyebrows they look normal.
I am posting a few pictures soon.
Elizabeth
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1 ReactionStill suffering Elizabeth ….it's Beryl……if only there was someone interested enough to want to put a stop to this thing and study it …..like they do with the common cold …..I know there isant the money in it ……but you know this thing is not going to stay small and could start to spread in the population …it is so resistant to any attack that we know …..maybe that is why the medical people don't what to see it as being a real happening thing…..keep fighting …..you never know you might be the one to make the breakthough…….Beryl
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1 ReactionHere is a link to a very caring and informative.
https://www.facebook.com/groups/1663980937185728/come on over to
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1 ReactionHi. I don’t even know where to begin with this. My life had been so destroyed. I have three younger boys that have symptoms as well.
I try everything!!!! And being in Wisconsin there is not a doctor that will listen or believe this is a thing.
My two older children do not talk to me, they think I went crazy and am on drugs. Omg that alone hurts!!! One of the younger boys does not believe me but I try to understand. I tell them “ we believe in God and cannot see Him but we have faith in the word” my ex husband whom I was going to remarry when this started also didn’t believe me and after 17 years you think you would know that your wife does not go from smiles and an e-commerce business making money , doing her hair,turning into a basket case OVER NIGHT CUZ SHE IS CRAZY!!!
This has been a nightmare and I am always trying to show them pics, images of these hell razors only to get a I don’t see anything response. I had a decent income and helped play for my oldest sons car, I ran into an issue at my bank and withdrew all my 14,000.00 , had him put it in his bank until I chose another bank… well needless to say when he stopped talks by to me he spent all of it! And on top of that my daughter got 3,000 from him out of my money for school that I was going to help pay for when I got the money back. So they both just broke my heart. She lied and said she didn’t get anything from him . Until I found out she did and then lied about the amount so I went her the picture of the transfers and cashiers check … I co signed for his car, put the deposit down for that as well as paid for my daughters class so she could get an admin position. She got the position Abd not even a call to say thanks mom.
I don’t know what to do!!! My savings from my business account is gone from trying to fight this disease. Behind on rent, I could never figure out how my 9 year old is had symptoms autistic and I read autistic hikdren are affected.
But thank everything I do I do so they won’t feel wgat I do.
It hurts! Emotional Abd physically I get sick. Pain, stinging that last for hours upon hours so I don’t get much rest. .
I have spent my life helping others , I teach my children to be good people, I have always supported them and their interests . However I must not have dine as well as I thought since I’m a disowned mother who means so little.
I have 3 grandchildren and I miss them every single day! I miss my daughter, my son, my business, my sanity! I don’t let my grandchildren come here out of fear they will get this as well! And I have pics video Abd etc tgat look just like your images!
I’m running out of ideas ! I’ve tried everything! And I mean EVERYTHING!
Now I’m behind on so many bills as well as memories . I pray this ends soon and I mean SOON!
I am so sorry you have to experience this too!
When my 9 year old says mom they need to go , they bully me, they should go to the neighbors house I tell him “we don’t want that ! We have to pray!!!!!
Thank you for sharing. I’m crying right now because I kept telling myself this isn’t possible!!!! The things that happen to me are unbelievable!
Please take care and if you would like a few pointers your more than welcome to contact me.
I take supplements and glycerin to bed ….
Oh these are in my house, vehicle, garage, basement…. I don’t know why this is happening but I’m truly sorry you had to experience this
With love and sending prayers
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2 ReactionsI lived in the San Francisco bay area. I am a Morgellons and targeting sufferer for more than 10 years. Please see my free PDF:
ON MORGELLONS A TECHNICAL DISEASE by Dave Huber
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2 ReactionsNew user, been fighting my own case of something…2-3 years now on my damn face.
In short, lots of posts sound similaR to mine. Here are some things I'm keying in on to try to figure this out. At least my issues. Just stumbled across this site but if any questions I can provide more back story/details later. It's getting late in Houston.
*keep in mind the life cycle of different parasites or bugs.
Eggs, nits, nimphs, larvae, pupea, cocoon etc.
1 parasite could look like several things depending on the stage.
I dont have threads in my things cocoon. These tiny (1/2 mm) are silken like. But I could imagine a clothes moth could have bc a cocoon that has threads or hair in it.
I'm certain I have either a rare flea type dgoing this damage. I say rare because mine have burrowed. Usually the females who lay the eggs. Flea eggs are extremely hard to get rid of, cocoons are almost impenatrateable. You have to kill the adults before they lay eggs b4 you can be rid if them.
I also have some worms that I'm assuming came from my fleas which bring their own parasites – ie. Diff worms.
Starting albendozale tomorrow. Been taking ivermectin oral/topical too long. The oral has not helped. The topical has helped to reduce numbers along with topical permethrin.
I'm still figuring this out, have been to derm who said demodex. Maybe had that too, but this isnt that. I'll go back soon.
Once I find out what this is for sure and cure myself, I will be on a mission until I'm dead and buried to eradicate every little critter I can find.
Get better yall and dont soo trying to get better.
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3 ReactionsHi- what has helped a good friend of mine with this is going gluten, dairy, soy, and sugar free. Also- supplementing boron, considering possible imbalances in minerals/metals. Having mercury filling removed. Also, acupuncture. There are many other things she has done. Staying alkaline is big- drink potassium citrate solution to help with this or lemon juice- test with ph strips- see what keeps you alkaline. Keep stress and anxiety as low as possible (not easy with this crap). Also- go non gmo & organic as much as possible. Cutting out gluten was the biggest turn around- all gluten!!! & all sugar! then dairy, then soy.
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