Lyme Disease and its Co-Infections, Morgellons Disease and Parasites

Posted by basslakeview @basslakeview, Aug 30, 2018

UPDATED 6/16/2019
Hi,
I am Elizabeth Bass and I live in Southeast Texas very close to Galveston and Houston Texas with my companion Millie, a Yorkie. I moved here in March 2018 from Northeast Texas (Longview/Tyler) with a scalp condition that keeps morphing into something else, each time getting worse. It began in May 2016, and here it is 2019 and I still have "it," but I've learned a whole lot I never really wanted to know.

I have no idea what exactly is wrong with me, but because of what I found in July 2018 on my pillow I'm thinking Morgellons because I found the same looking thing someone else had posted and they were talking about Morgellons. I have attached two photos, one close up and the other is the original so you can have an idea of the actual size.

I also have these white sparkly/shiny critters on every inch of my body, especially my hair/scalp, and face/neck. They can only be seen if I take a picture using my camera with the FLASH ON. Otherwise, no one would know there is anything wrong with me.

This was discovered by accident when in May 2016 I got my long hair all cut off. Right after that (about a month) my head started itching in the upper center back. I couldn't see anything in a mirror so I picked up my phone and took a picture. I still couldn't see very well so I turned the flash on. THAT WAS IT!! (I saw more than I wanted to see.) At first I thought I had bed bugs and did everything I could to get rid of them, including lice treatment. Then I started seeing these shiny, sparkly-looking things. I accidentally caught some of them on camera flying around my head. I kept trying everything I could to rid myself of "them," but nothing has worked so far. However, it is now June 2019 and "the condition" only changes (morphs). It never goes away. I have seen 9 dermatologists, 2 derm PAs, 2 internists, and 2 GPs, a total of 16 (maybe more), counting the one I'm with now since "it" began. My hair fell out in that spot, I had lesions where the hair was missing, and when a new lesion would begin it was always itchy, then that hair would fall out, too. My hair grew back, but not quite as thick.

The fever and rash went away, but the achiness and lethargy/fatigue has stayed with me all these years. About a year or two after that fever, and after going to many, many doctors between Shreveport, Dallas, Tyler, and Houston, one of them said I have Fibromyalgia & Chronic Fatigue. I simply took his word for it. I was so very tired of seeing doctors, doing lab work, driving and working a full time, stressful job. I needed a break!

Then in 1999 I lost my left kidney to an oncocytoma (tumor the size of a softball), benign. Lost my gallbladder in 2004, had carpal tunnel surgery on both wrists at the same time in 2005. I don't think there's much left. I had already had a thyroidectomy in my 20s (Graves Disease), and a hysterectomy in 1986. Then, the BIGGEST loss of my life…my only child in 2013. I honestly did not think I was going to make it.

I had told every single one of ALL those doctors the story of the high fever and rash and how my GP thought it was Lymes, but lab was negative, and not ONE of them (nor me) simply thought of running another Lyme test until last year 2018. On Sept 18, 2018, my 72nd birthday the results were in and I was at my doctor's office with my sister to get the results. That test came back with all sorts of red flags, 30 years later!

Now I am 72 and the second antibiotic I'm on is not doing anything. After one month on Doxycycline (had to stop because my liver didnt like it) and two months on Clindamycin I haven't noticed anything positive, but that doesn't mean nothing is happening, RIGHT?!!. For some reason she didn't put me on anything else right away after the Doxy. Maybe I had to give my liver time to heal. She never said why, and I forget to ask these questions. I think I am going to simply start feeling POSITIVE about things no matter which way they go!!

UPDATE: I finally found a doctor who 'seems' to want to help me. She ran a Lyme test on my blood and was very excited she could help me which was very encouraging as you can imagine.

I have had Lyme Disease and a co-infection called Rocky Mountain Spotted Fever (since 1988-1990ish, 30 years ago). I remember it like it was yesterday. I had a high fever, achiness all over like a flu sickness, and a rash. It was not a flu. And the first thing he said to me was, "It looks like Lymes Disease to me!" Unfortunately, the lab report came back negative and neither one of us thought to do another test.

Yet, for some reason, I keep replaying one of my favorite songs in my head, Eric Clapton's, "NO MORE TEARS IN HEAVEN." (It makes me smile because I know I WILL see my son again and be able to talk to him.)

Ever heard of of the song? Check it out. Just Google it and listen.

USEFUL WEBSITES:

(https://thecehf.org).
To contact them: http://thecehf.org/contact.html

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6287027/ (You have to create a sign in with a password, but it's very simple and it's free.)

Interested in more discussions like this? Go to the Skin Health group.

@shelby99

Best of luck and I agree about buying Ginger’s book and comparing symptoms, seeking treatment from a Lyme literate doctor, and fighting the good fight. Although I can’t help playing the devils advocate too here. Maybe because my symptoms began in 2009 or because it came immediately after several mandated vaccines. I’ve recently noticed a surge of psychopaths in white coats ( dermatologist and psychiatrist) who are writing research articles dated 2018 and beyond about treating our delusions. Our medical system is corrupt. Never knowing anything about the cause of ailments but for some reason know everything thing else (like vaccines are safe, Morgellons is delusions, Lyme is fake, PANDAS is MH issues, etc etc). I know someone who committed suicide because of this shit and it is something that is more common than not. She knew she had all the symptoms but like all of us we’d rather have a parasite than this. We don’t do as the cdc says and get excited because we found an answer. We don’t want this and people just don’t go delusional overnight and than start injuring themselves too. In a Country where we are concerned about Cruel and Unusual Punishment to illegal aliens I can only hope Hell is big enough for those who allow or I my case caused by vaccinations our suffering.

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Additionally, as some of my lengthy post was deleted. The person who killed herself did not have the funds to pay for a Lyme doctor and knew it wasn’t a quick fix. She was hopeless and her visit to a dermatologist greatly added to her grief. I know for myself that in 1995 when I had a 105.5 fever and was misdiagnosed as having mono for a second time and then getting Morgellons 20 plus years later after mandated vaccines that something is very very wrong with our system. I’m sorry but it is not ok for hardworking honest citizens in this country to be treated this way.

REPLY

Hello, Shelby99.
This is Elizabeth. I didnt even think about vaccines causing any of this. I don't know why i haven't, because I sometimes wonder about vaccines. I DO get a flu shot every year, a pneumonia vaccine (because my dr said I have had it about 3 times, and everytime it will get worse) and with me having asthma occasionally it would be really bad if I got pneumonia,, plus this past year i got a Shingles vaccine because I watched my dad and my sister suffer through that.

I don't know where you are living right now. I am in Texas. Texas and many other states, (and I think there is a "National" Lyme Disease Association) have a Lyme website. They (at least Texas) has some extremely useful information. So does the Charles E. Holman Morgellons Association. Lots of good helpful links in that one for sure. Dr. Savely, who is very well known for her involvement in trying to find a cure works there, too. She has written books on Morgellons. Dr. Middleveen, Veterinarian, in Canada is very much involved in the scientific research. I haven't researched to see if she has a website. I've been super busy here right now.

There is going to be a "12 Annual Morgellons Conference" in Austin, Texas on April 6-7, 2019 which I'm registered to go to. I'm so excited about meeting some of the professionals involved with Lyme and Morgellons. There is usually doctors and scientists from all over the world there, too.
The website address for the Holman Morgellons site is: http//thecehf.org . It will have many links in it. Be patient because it's a very large website with a LOT of information. The first page used to have the conference information on it with a link for the agenda, too.

You are right, in that it is almost impossible to find a doctor who will even "admit" he has even heard about Morgellons. They usually look at you with this blank stare, or change the subject real fast to something else. I had one derm PA tell me I have "parasitic psychosis" and gave me a prescription for a psychotic drug. I already knew it was coming so I wasn't surprised at all. I didn't say a word, just smiled and left the office, never to return again.

I have so many stories it's crazy. I've been dealing with this over 27 years. Since 1991. In 1999 I lost my left kidney (oncocytoma, benign), then 2004 my Gallbladder (don't remember what they told me about the reason why).

I would love to see some of your pictures. I have searched looking to find what that stuff is in my hair and on my scalp and skin. I've also found black hairs coming out of my hands. I tried pulling one out with tweezers, but never again. It hurt like crazy. I ended up putting a menthol-type hand lotion on them. When I did that they immediately broke down into tiny black & white dots. Then that mixes together and form a gray biofilm. I really think Chronic Lyme turns into Morgellons when you've had Lyme Disease for 27 years.

I would love for us to compare pictures. I took some two nights ago and couldn't believe my eyes!! Sometimes I accidentally catch something in the air behind or around my hair.

REPLY

Hello, @shelby99 1st off I wanted to tell you that I'm so sorry about your friend but know exactly how she must have felt because I have come very close myself. I'm not sure of your Aware or not there is a Facebook group called more gelon's and the science behind it and it's a community full of wonderful people who have sworn off doctors vaccines antibiotics the government in general. Discoverment is more cruel and unusual to S citizens than any other in the world because they're sneaky and underhanded about it whereas most just go out and shoot you this government injects you fool via vaccines the food we eat the air we breathe and the water we drink. While the doctor's book is a good one she to never admits the truth and rightfully so I believe that she has to air to the sight of if I don't say it doesn't exist in order to be able to help the people the way she does. There is hope and help for each and every morgellons suffer via each other we are our best hope. I hope that you come and join the Facebook group and share your stories don't be alarm there's a lot of gruesome pictures and heart wrenching stories but it will help you get to the bottom of your disease and how to treat it to make you comfortable. I currently am on a protocol called firm and although it's helping I can't seem to knock sugar out of my diet so it's a slow go. Most people don't wanna hear that you have to change your eating habits that's when it becomes O doctor give me a pill but this is one disease that we can fight not cure but manage ourselves with no needs from any of the psychopaths in white Coats. I feel like you I want everybody in the world to know how shifty these doctors and this government really are but in the mean time I wanna get myself some relief and quality of life before I to slip and the lights go off. If you ever need somebody to chat with Feel free to email me or message me I try to make myself Get more involved with others otherwise this disease and all of the bacteria parasites fungus and algae that exist alongside of it will tell me to stay in the dark by myself with the lights off don't listen to it. I've posted in this group before with no replies don't expect to get any this time but just wanted to offer up any help I can in any way I can. Much love,

PSI 100% agree that it is passed along by vaccinations TB shots food water Chem trails which means air so every Avenue for us to sustain life we can grab ahold of this and while I believe all of us have it only some of us are allergic and affected. Please please if you vaccinate stop if you get flu shots stop if you plan on doing it to your children think about them living with this

REPLY
@annieemac

Thanks for your article. As for me I have had this feeling of pin prick sensation as if something was biting and crawling under my skin, always itchy especially late at night with no relief. I have had this for many years. I've tried scabies cream numerous times and was told by a doctor it was dry skin and to use moisturiser which I found did not help at all. I've lived with this for a very long time, it is very embossing when I'm around people and cannot control the urge to scratch. I have not found any fibres, I haven't really looked for them. I will be getting a microscope just out of curiosity to be able to see for myself after doing a lot of reading on Morgellons. Once again thank you for your article

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@annieemac
Would love to know what you find out? If you don't mind keep us posted.

REPLY
@basslakeview

Hello, Shelby99.
This is Elizabeth. I didnt even think about vaccines causing any of this. I don't know why i haven't, because I sometimes wonder about vaccines. I DO get a flu shot every year, a pneumonia vaccine (because my dr said I have had it about 3 times, and everytime it will get worse) and with me having asthma occasionally it would be really bad if I got pneumonia,, plus this past year i got a Shingles vaccine because I watched my dad and my sister suffer through that.

I don't know where you are living right now. I am in Texas. Texas and many other states, (and I think there is a "National" Lyme Disease Association) have a Lyme website. They (at least Texas) has some extremely useful information. So does the Charles E. Holman Morgellons Association. Lots of good helpful links in that one for sure. Dr. Savely, who is very well known for her involvement in trying to find a cure works there, too. She has written books on Morgellons. Dr. Middleveen, Veterinarian, in Canada is very much involved in the scientific research. I haven't researched to see if she has a website. I've been super busy here right now.

There is going to be a "12 Annual Morgellons Conference" in Austin, Texas on April 6-7, 2019 which I'm registered to go to. I'm so excited about meeting some of the professionals involved with Lyme and Morgellons. There is usually doctors and scientists from all over the world there, too.
The website address for the Holman Morgellons site is: http//thecehf.org . It will have many links in it. Be patient because it's a very large website with a LOT of information. The first page used to have the conference information on it with a link for the agenda, too.

You are right, in that it is almost impossible to find a doctor who will even "admit" he has even heard about Morgellons. They usually look at you with this blank stare, or change the subject real fast to something else. I had one derm PA tell me I have "parasitic psychosis" and gave me a prescription for a psychotic drug. I already knew it was coming so I wasn't surprised at all. I didn't say a word, just smiled and left the office, never to return again.

I have so many stories it's crazy. I've been dealing with this over 27 years. Since 1991. In 1999 I lost my left kidney (oncocytoma, benign), then 2004 my Gallbladder (don't remember what they told me about the reason why).

I would love to see some of your pictures. I have searched looking to find what that stuff is in my hair and on my scalp and skin. I've also found black hairs coming out of my hands. I tried pulling one out with tweezers, but never again. It hurt like crazy. I ended up putting a menthol-type hand lotion on them. When I did that they immediately broke down into tiny black & white dots. Then that mixes together and form a gray biofilm. I really think Chronic Lyme turns into Morgellons when you've had Lyme Disease for 27 years.

I would love for us to compare pictures. I took some two nights ago and couldn't believe my eyes!! Sometimes I accidentally catch something in the air behind or around my hair.

Jump to this post

Hi Elizabeth! I will look for you at the Conference! I’m excited you are going! I wish everyone could go too. I know the financial burdens are really tough. We have lost so much but know my health is so important. I too have struggled years n years on end. It’s hard to put anger aside but unless I do I cannot proceed forward. I feel for all of us! I think the worst is that Morgellons are on my face and I used to be an esthetician & cosmetologist. That hit hards on me. :(.
Thinking of you all. We must keep fighting this horrific battle !!

PS: just a few pages of Dr Savely’s book. 😊

REPLY
@shelby99

Additionally, as some of my lengthy post was deleted. The person who killed herself did not have the funds to pay for a Lyme doctor and knew it wasn’t a quick fix. She was hopeless and her visit to a dermatologist greatly added to her grief. I know for myself that in 1995 when I had a 105.5 fever and was misdiagnosed as having mono for a second time and then getting Morgellons 20 plus years later after mandated vaccines that something is very very wrong with our system. I’m sorry but it is not ok for hardworking honest citizens in this country to be treated this way.

Jump to this post

@shelby99 hi! I too am a suffer of sorts and too much to go into but somebody, some group or something powerful seems to be taking over me and my home. Too many things come back in my mind to power and corruption. I think there has been for a long time games in place to thin the population or control us. I am at the point that I honestly do not know what to believe anymore. I don’t know where everything started in mylife but the struggle to stay here in my home and have no one to turn to for help is definitely overwhelming. Not only do I think that I am a sufferer of morgellons, I am fighting mold and fungus like no other now and I was a previously Lyme disease patient on IV rocephin for 2.5 yrs and another 5 after that on IV vancomycin and alternating with zyvox fighting skin infection (morgellons). The skin infection healed and so did the Lyme disease or so they say but now my bf has it and the filaments are in my home and air too with the mold and fungus. I clean areas and come back in a couple of days to find film over everything. I clean and clean and can’t keep up My dog has it too. My air quality in my home is so bad and have no money or not so I know where to turn for help. I am 2 miles from Hurricane Harvey flooding and this is when my life took another bad turn. Now it rains nonstop and the environment has hanged drastically. I can’t find anyone to help me and even my insurance company says that I do not have coverage for mold. I live in Houston TX and registered for assistance but since I did not flood I am getting no help as well. My dog is a mess. I keep breaking out in rashes and have more moles and skin marks on me than I know what to do about. Maybe I am just paranoid. Part of me thinks that I am just realizing I am getting old. Nonetheless the financial, mental and physical struggle is real. I can’t aleep from worrying what this is doing to me and what long term effects this is going to have on me. No one seems to be able to tell me where to go for help. I have no family that understands. Went to church and they don’t get it. I’m like seeking help and getting nowhere. I’m scared and terrified of losing my life what little I have left. I lost my husband 4 yrs ago and there was no life insurance or mortgage insurance as we struggled financially and he also was disabled due to an accident when he was only 17. Now the only thing I have left for retirement and survival is my home and it’s slipping from my hands. There is so much more and now i don’t even trust my own doctor anymore. It as if I am in for the fight for absolute survival and cannot even enjoy any part of life anymore. I dream of moving or taking a real vacation. It has been 20 years since I have seen anything outside of the norm. Maybe I am truly losing my mind. Sorry for just emptying my worries for others to read. This is so much for anyone and I feel for all is us. There are things in common and things that are different with each person’s story or belief. I guess the issue is how do we determine what is really happening to all of us and how do we as individuals regain control of our lives and put a stop to whatever this is.

REPLY
@desi1

Hello, @shelby99 1st off I wanted to tell you that I'm so sorry about your friend but know exactly how she must have felt because I have come very close myself. I'm not sure of your Aware or not there is a Facebook group called more gelon's and the science behind it and it's a community full of wonderful people who have sworn off doctors vaccines antibiotics the government in general. Discoverment is more cruel and unusual to S citizens than any other in the world because they're sneaky and underhanded about it whereas most just go out and shoot you this government injects you fool via vaccines the food we eat the air we breathe and the water we drink. While the doctor's book is a good one she to never admits the truth and rightfully so I believe that she has to air to the sight of if I don't say it doesn't exist in order to be able to help the people the way she does. There is hope and help for each and every morgellons suffer via each other we are our best hope. I hope that you come and join the Facebook group and share your stories don't be alarm there's a lot of gruesome pictures and heart wrenching stories but it will help you get to the bottom of your disease and how to treat it to make you comfortable. I currently am on a protocol called firm and although it's helping I can't seem to knock sugar out of my diet so it's a slow go. Most people don't wanna hear that you have to change your eating habits that's when it becomes O doctor give me a pill but this is one disease that we can fight not cure but manage ourselves with no needs from any of the psychopaths in white Coats. I feel like you I want everybody in the world to know how shifty these doctors and this government really are but in the mean time I wanna get myself some relief and quality of life before I to slip and the lights go off. If you ever need somebody to chat with Feel free to email me or message me I try to make myself Get more involved with others otherwise this disease and all of the bacteria parasites fungus and algae that exist alongside of it will tell me to stay in the dark by myself with the lights off don't listen to it. I've posted in this group before with no replies don't expect to get any this time but just wanted to offer up any help I can in any way I can. Much love,

PSI 100% agree that it is passed along by vaccinations TB shots food water Chem trails which means air so every Avenue for us to sustain life we can grab ahold of this and while I believe all of us have it only some of us are allergic and affected. Please please if you vaccinate stop if you get flu shots stop if you plan on doing it to your children think about them living with this

Jump to this post

@desi1 Wow please read my response to Shelby99 as you I happen to agree with. We are part of a powerful experiment of some sort I’m beginning to think or we are being controlled. Times are changing quickly now. Pls I know I am not totally crazy. Maybe they the powers that be are making me this way or this infestation or whatever is going on is changing how I view the world now. Pls message me back if you care to respond.

REPLY
@basslakeview

Hello, Shelby99.
This is Elizabeth. I didnt even think about vaccines causing any of this. I don't know why i haven't, because I sometimes wonder about vaccines. I DO get a flu shot every year, a pneumonia vaccine (because my dr said I have had it about 3 times, and everytime it will get worse) and with me having asthma occasionally it would be really bad if I got pneumonia,, plus this past year i got a Shingles vaccine because I watched my dad and my sister suffer through that.

I don't know where you are living right now. I am in Texas. Texas and many other states, (and I think there is a "National" Lyme Disease Association) have a Lyme website. They (at least Texas) has some extremely useful information. So does the Charles E. Holman Morgellons Association. Lots of good helpful links in that one for sure. Dr. Savely, who is very well known for her involvement in trying to find a cure works there, too. She has written books on Morgellons. Dr. Middleveen, Veterinarian, in Canada is very much involved in the scientific research. I haven't researched to see if she has a website. I've been super busy here right now.

There is going to be a "12 Annual Morgellons Conference" in Austin, Texas on April 6-7, 2019 which I'm registered to go to. I'm so excited about meeting some of the professionals involved with Lyme and Morgellons. There is usually doctors and scientists from all over the world there, too.
The website address for the Holman Morgellons site is: http//thecehf.org . It will have many links in it. Be patient because it's a very large website with a LOT of information. The first page used to have the conference information on it with a link for the agenda, too.

You are right, in that it is almost impossible to find a doctor who will even "admit" he has even heard about Morgellons. They usually look at you with this blank stare, or change the subject real fast to something else. I had one derm PA tell me I have "parasitic psychosis" and gave me a prescription for a psychotic drug. I already knew it was coming so I wasn't surprised at all. I didn't say a word, just smiled and left the office, never to return again.

I have so many stories it's crazy. I've been dealing with this over 27 years. Since 1991. In 1999 I lost my left kidney (oncocytoma, benign), then 2004 my Gallbladder (don't remember what they told me about the reason why).

I would love to see some of your pictures. I have searched looking to find what that stuff is in my hair and on my scalp and skin. I've also found black hairs coming out of my hands. I tried pulling one out with tweezers, but never again. It hurt like crazy. I ended up putting a menthol-type hand lotion on them. When I did that they immediately broke down into tiny black & white dots. Then that mixes together and form a gray biofilm. I really think Chronic Lyme turns into Morgellons when you've had Lyme Disease for 27 years.

I would love for us to compare pictures. I took some two nights ago and couldn't believe my eyes!! Sometimes I accidentally catch something in the air behind or around my hair.

Jump to this post

Hi Elizabeth. I honestly believe the vaccine indirectly caused it. Hopefully not caused as then I was contaminated on purpose. Not like that hasn’t happend though (Tuskegee). Vaccines screw with your immune system at the very least. I’m very against them now of course. Funny I had the real measels, mumps, chicken pox and even worse illness but the MMR and HepB vaccine knocked me into this shit with 2 days. All I know is they are not good for me!
I have the Morgellons book and have spoken to Cindy Casey for years. I’m in RI and really can’t afford to go to the conference but Im hoping to next year so maybe we can all meet up someday. I’m really glad your going!! I see a Lyme literate doctor here in RI. She’s great. I’ve been on tons of antibiotics for years. As of now I’m on rifampin, doxy, alinia, fluconazole, nystatin, and low dose naltrexone. It’s been a very long road but much better than I was in past. At this point, I get very bad head pain. Some moments are better than others but the pain is 24/7. I get this superglue like substance (prob biofilm) and small bumps. Chronic fatigue like symptoms and some weird symptoms that come and go (pains in different areas). I really don’t take pictures and have no need to at this point because it’s nothing like it used to be. In 2010 I had to wear a baseball cap if I left the house because I was so bald etc. I do have a picture I took in 2016 inwhich I had a huge linelike bald spot going up my head with wounds but I took that picture because by that point I was so traumatized etc and went out of work.
And Yes that is exactly what seems to be the issue thus far -Untreated long term Lyme causing Morgellons. Honestly given my experience I feel the immune system just goes on a brink from it but who knows.
Girl I get severe anxiety remembering about the things I’ve seen in the past. Crazy shit but you can email me. If you’d like to talk about it. I posted on this site a week or so ago and think I mentioned some of it.
Not sure if you or anyone else uses this but I live pouring tea tree on me (along with a shitload of pills). It helps numb and cool the area (yes menthol like).

REPLY
@morgellonsintx2

@desi1 Wow please read my response to Shelby99 as you I happen to agree with. We are part of a powerful experiment of some sort I’m beginning to think or we are being controlled. Times are changing quickly now. Pls I know I am not totally crazy. Maybe they the powers that be are making me this way or this infestation or whatever is going on is changing how I view the world now. Pls message me back if you care to respond.

Jump to this post

I’m sorry you are having such a hard time. I know how you feel unfortunately. At one point I wondered if I died and didn’t know it but was actually in Hell (haha). I can laugh today but it’s been almost 10 years for me. I wrote back to Elizabeth too so you can view my comments. I was a well grounded person in the past but after dealing with this shit nothing would surprise me. I think the shit can definitely cause one to have at the very least severe anxiety and a view of the world as being Unsafe.
With that all said though, have you sought info from Charles e Holman foundation. My Lyme doctor treats me with antifungal too. Yes mold is a big problem with Lyme so I’ve heard. I have another tip for you cause funny mold was a big issue for me too. Look up dr Shoemaker. He offers a lot of tips for mold exposure. There is a cholesterol powder you can take (cholestermine or something like that). Actually I get a medication (low dose naltrexone from a compound pharmacy and they have it). My Lyme literate doctor prescribes some stuff via a compound pharmacy. Also can you and your family move? That maybe your best option when dealing with mold. Mold will make a dog sick too. I know a couple of people who went through it. They both moved their family out cause it was so bad.

REPLY
@desi1

Hello, @shelby99 1st off I wanted to tell you that I'm so sorry about your friend but know exactly how she must have felt because I have come very close myself. I'm not sure of your Aware or not there is a Facebook group called more gelon's and the science behind it and it's a community full of wonderful people who have sworn off doctors vaccines antibiotics the government in general. Discoverment is more cruel and unusual to S citizens than any other in the world because they're sneaky and underhanded about it whereas most just go out and shoot you this government injects you fool via vaccines the food we eat the air we breathe and the water we drink. While the doctor's book is a good one she to never admits the truth and rightfully so I believe that she has to air to the sight of if I don't say it doesn't exist in order to be able to help the people the way she does. There is hope and help for each and every morgellons suffer via each other we are our best hope. I hope that you come and join the Facebook group and share your stories don't be alarm there's a lot of gruesome pictures and heart wrenching stories but it will help you get to the bottom of your disease and how to treat it to make you comfortable. I currently am on a protocol called firm and although it's helping I can't seem to knock sugar out of my diet so it's a slow go. Most people don't wanna hear that you have to change your eating habits that's when it becomes O doctor give me a pill but this is one disease that we can fight not cure but manage ourselves with no needs from any of the psychopaths in white Coats. I feel like you I want everybody in the world to know how shifty these doctors and this government really are but in the mean time I wanna get myself some relief and quality of life before I to slip and the lights go off. If you ever need somebody to chat with Feel free to email me or message me I try to make myself Get more involved with others otherwise this disease and all of the bacteria parasites fungus and algae that exist alongside of it will tell me to stay in the dark by myself with the lights off don't listen to it. I've posted in this group before with no replies don't expect to get any this time but just wanted to offer up any help I can in any way I can. Much love,

PSI 100% agree that it is passed along by vaccinations TB shots food water Chem trails which means air so every Avenue for us to sustain life we can grab ahold of this and while I believe all of us have it only some of us are allergic and affected. Please please if you vaccinate stop if you get flu shots stop if you plan on doing it to your children think about them living with this

Jump to this post

Hi thank you for being so caring. I’m sorry if there was a misunderstanding but I’m actually much better than I was in the past. I’ve posted here before too and Ive seen a Lyme literate doctor for like 3 years now. I posted a few minutes ago back to Elizabeth listing my numerous meds. I wrote that for good reason as it’s been 10 years dealing with Morgellons. Hey I’m angry still. Probably will be til the day I dye. It basically ruined my life but I’m still living. I was mandated to get vaccines. It wasn’t how I wanted to learn their not good for me. I never had a flu shot in my life and never will. I got off of Facebook years ago. The news got pictures of my grandchildren off of it. They were in a bad car accident in which a cop hit them going 87 mph. The news posted their pictures and I was like oh f.. that shit. Facebook revolt but honestly I heard that Pinterest, google, and Facebook will be editing any info that is negative or against vaccines so screw them.

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1.) For those of you who have mentioned it getting worse before it gets better, about how long into treatment would you say the “worst” begins. And when I say treatment, I mean antibiotics (And improved nutrition and supplementation), but what would you all consider treatment? I have been on doxycycline for close to 2 months, and I am supposed to begin a regimen of three different antibiotics next week. In the meantime I have been taking and eating as many probiotics as possible.

2.) Also, is anyone else on this for him aware of the MTHFR gene mutations and if you have one or both? I just found out I have both and I am B 12 deficient. I also know this means your body does not detoxify as well as it should, so I’m wondering if the sluggish liver is part of what triggers this or makes us susceptible. Elizabeth, I know you have mentioned your liver.

I’m Already so much better (for now anyway), but 3 years of this is way too many for me, I cannot imagine what some of you have gone through for so much longer.

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Hi all, I've been following this discussion with interest. Today, there were a few posts that come close to the boundaries of the Community Guidelines (https://connect.mayoclinic.org/page/about-connect/tab/community-guidelines/). I would ask that you please review them, especially bullet 3, which states

3. Be polite.
Do not use obscene or hateful language. Profanity, vulgarity and abusive language are out-of-bounds.

Your frustrations are real. For this reason, the swear words were not removed or edited. Thank you for keeping the community welcoming, safe, inclusive and respectful.

@desi1 and @shelby99, please note that I removed your email addresses. We don't want you to get unwanted spam. It is recommended to use the private message function to exchange personal contact information securely. To send a private message, simply click on a member's @username and then click Send a Private Message.

@basslakeview you mention Marianne Middelveen. I thought you might be interested in 2018 paper:
– Clinical evaluation of Morgellons disease in a cohort of North American patients | Melissa C. Fesler, Marianne J. Middelveen, and Raphael B. Stricker https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5941186/
The study states: "77% of Morgellons Disease (MD) patients had one or more co-infections. This study confirms recent findings that MD occurs in a limited subset of Lyme Disease (LD) patients. The clinical and genetic determinants of MD in LD patients require further study."

I searched for information relevant to vaccines and Morgellons and/or Lyme disease and found nothing on any reputable sites or from evidence-based resources. Before rejecting vaccines, it might be a wise to have a discussion about the risks and benefits with you doctor.

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