Lyme Disease and its Co-Infections, Morgellons Disease and Parasites

Posted by basslakeview @basslakeview, Aug 30, 2018

UPDATED 6/16/2019
Hi,
I am Elizabeth Bass and I live in Southeast Texas very close to Galveston and Houston Texas with my companion Millie, a Yorkie. I moved here in March 2018 from Northeast Texas (Longview/Tyler) with a scalp condition that keeps morphing into something else, each time getting worse. It began in May 2016, and here it is 2019 and I still have "it," but I've learned a whole lot I never really wanted to know.

I have no idea what exactly is wrong with me, but because of what I found in July 2018 on my pillow I'm thinking Morgellons because I found the same looking thing someone else had posted and they were talking about Morgellons. I have attached two photos, one close up and the other is the original so you can have an idea of the actual size.

I also have these white sparkly/shiny critters on every inch of my body, especially my hair/scalp, and face/neck. They can only be seen if I take a picture using my camera with the FLASH ON. Otherwise, no one would know there is anything wrong with me.

This was discovered by accident when in May 2016 I got my long hair all cut off. Right after that (about a month) my head started itching in the upper center back. I couldn't see anything in a mirror so I picked up my phone and took a picture. I still couldn't see very well so I turned the flash on. THAT WAS IT!! (I saw more than I wanted to see.) At first I thought I had bed bugs and did everything I could to get rid of them, including lice treatment. Then I started seeing these shiny, sparkly-looking things. I accidentally caught some of them on camera flying around my head. I kept trying everything I could to rid myself of "them," but nothing has worked so far. However, it is now June 2019 and "the condition" only changes (morphs). It never goes away. I have seen 9 dermatologists, 2 derm PAs, 2 internists, and 2 GPs, a total of 16 (maybe more), counting the one I'm with now since "it" began. My hair fell out in that spot, I had lesions where the hair was missing, and when a new lesion would begin it was always itchy, then that hair would fall out, too. My hair grew back, but not quite as thick.

The fever and rash went away, but the achiness and lethargy/fatigue has stayed with me all these years. About a year or two after that fever, and after going to many, many doctors between Shreveport, Dallas, Tyler, and Houston, one of them said I have Fibromyalgia & Chronic Fatigue. I simply took his word for it. I was so very tired of seeing doctors, doing lab work, driving and working a full time, stressful job. I needed a break!

Then in 1999 I lost my left kidney to an oncocytoma (tumor the size of a softball), benign. Lost my gallbladder in 2004, had carpal tunnel surgery on both wrists at the same time in 2005. I don't think there's much left. I had already had a thyroidectomy in my 20s (Graves Disease), and a hysterectomy in 1986. Then, the BIGGEST loss of my life…my only child in 2013. I honestly did not think I was going to make it.

I had told every single one of ALL those doctors the story of the high fever and rash and how my GP thought it was Lymes, but lab was negative, and not ONE of them (nor me) simply thought of running another Lyme test until last year 2018. On Sept 18, 2018, my 72nd birthday the results were in and I was at my doctor's office with my sister to get the results. That test came back with all sorts of red flags, 30 years later!

Now I am 72 and the second antibiotic I'm on is not doing anything. After one month on Doxycycline (had to stop because my liver didnt like it) and two months on Clindamycin I haven't noticed anything positive, but that doesn't mean nothing is happening, RIGHT?!!. For some reason she didn't put me on anything else right away after the Doxy. Maybe I had to give my liver time to heal. She never said why, and I forget to ask these questions. I think I am going to simply start feeling POSITIVE about things no matter which way they go!!

UPDATE: I finally found a doctor who 'seems' to want to help me. She ran a Lyme test on my blood and was very excited she could help me which was very encouraging as you can imagine.

I have had Lyme Disease and a co-infection called Rocky Mountain Spotted Fever (since 1988-1990ish, 30 years ago). I remember it like it was yesterday. I had a high fever, achiness all over like a flu sickness, and a rash. It was not a flu. And the first thing he said to me was, "It looks like Lymes Disease to me!" Unfortunately, the lab report came back negative and neither one of us thought to do another test.

Yet, for some reason, I keep replaying one of my favorite songs in my head, Eric Clapton's, "NO MORE TEARS IN HEAVEN." (It makes me smile because I know I WILL see my son again and be able to talk to him.)

Ever heard of of the song? Check it out. Just Google it and listen.

USEFUL WEBSITES:

(https://thecehf.org).
To contact them: http://thecehf.org/contact.html

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6287027/ (You have to create a sign in with a password, but it's very simple and it's free.)

@maliney

This kills me!
I’m an esthetician too and I can’t fix this.

Best so far is a mix of liquid fenbendazole and ivermectin mixed with tea tree oil, ACV and water in a spray bottle. Sprayed on skin asap.
Internal ivermectin and antibiotics. Clean diet and borax.

I’m much better now, but not fully back to normal. My scalp is still A disaster and I’m desperately fighting to keep it away from my face.

Slime cement go away please

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Slime cement. Haha. That’s a good one. I call it super glue. At one point I swore some ghost was pouring super glue on my head. Lol!! It gets better but I still have superglue/ slime cement in some areas.

Liked by TIhoustonTX2

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@shelby99

Yeah not!! I lived with this for almost 10 years. Ivermectin internally externally and even tried injecting it. Surprised I survived but it didn’t help much. Believe me I had to research what a horse/cow is given and I tried it all. Ivermectin makes me laugh cause man I took it for years on end. I put perithium on my head for 8 hours a day for 6 months straight. I didn’t care if I died actuallly I was praying too verses living another day with it. I’m telling you I been through all the crazy symptoms plus including teeth going black, etc

You name it I’m telling you I did. Including all the clays, diet, etc Spent a ton of money on holistic, Chinese med, oh God etc etc. But I don’t disagree with taking a mixture of antibiotics and antiparasitic. I’ve been on Alinia for 2.5 years and had Malarone too (dewormers). Maybe I had this crap worse than you but please don’t tell people all they need is ivermectin. People are killing themselves because of this crap and if ivermectin etc doesn’t work for them long term then hopelessness sets in fast.

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@shelby99
I just had to go back and re read you are messages all the different formats between all the different sites gets confusing but I'm so ecstatic to hear that you're better now boy would I love an hour or 2 to pick your brain did you ever try the fenbeni if so what was your experience?? And I have 1 other 1 that I must ask it's about the hair because it truly is killing me to lose it out of everything the miserable nights being awake for 2 days and then sleeping for 3 hours and them being awake for another 4 days none of that killing me but losing my hair now that's a killer lol how many but my parents house change quite drastically I feel my wife says otherwise but you say you didn't notice that it helped and it may have actually done worse my reasoning behind wanting to shave is the constant feeling or not feeling the constant movement on my head I mean it's almost never ending unless I spray either the silver or the Apple cider vinegar mixture even sometimes to poolshockp and the kleen freework but its very temporary all of them I convinced myself that if I can see my scalp I'd be able to torture at more the parasite not my scalp what was your experience.? I have some gnarly video I'm pictures of the different animals I can find in my hair at any given time🤯

Edit to add the one thing I find in 99% of my pictures is this figure that I call ghost

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@shelby99

That looks like mold on your head. I know this isn’t a cure but there is cloramine (I can’t remember the spelling but it’s an antifungal cream you can buy at Walmart) I’m sure I went through cases of it in the past. It does help!! Not a cure though. I replied to another girl about looking up Dr Ritchie Shoemaker. He’s a mold and biotoxins expert. I had problems with mold (I’m on antifungals for 4 years now). And that’s oral prescriptions. Contact dr Shoemaker please. Yes in regard to parasites. Atleast from what I went through I’m positive they’re at the very least attracted to the infections. Im shaking remembering being like you.

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@shelby99
Well I just now I'm seeing this one about mode and you are the 2nd person that's told me that from the 1 gentleman I consider close to expert on this condition he said he saw some old some algae parasite And the fungus I'm going to look up the good doctor you speak of I have and will continue to swear off and to by audix however do not begrudge anybody who chooses to take them if they work for them then that's great but on like a sponge when it comes to this I wanna know everything there is to know because I swear if I ever even get a little bit better I will be on a mission to find those women men and even children out there that are alone and do feel hopeless and helpless in suicidal and try my very best point them in the right direction or at least be there for them in whatever capacity possible. Right now today I feel like I don't wanna go on another day but I know that that will pass and tomorrow hopefully will be better than today I know you know what I'm talking about.
I stated in one of the above posts that we moved because although I believe I've had some of this for many many years I believe that toxic mold brought it out in a house that we rent it for 3 years well this is a brand new 1 gentleman lived in here for maybe for the 6 months I am a young kid and his 20th very good kid well last night I made discoveries of Magellan's in the bathroom that aren't for me I've only been here for a weekend this is a build-up this to go with everything else last night was horrible but what happened with your environmental situation?

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@thurst

1.) For those of you who have mentioned it getting worse before it gets better, about how long into treatment would you say the “worst” begins. And when I say treatment, I mean antibiotics (And improved nutrition and supplementation), but what would you all consider treatment? I have been on doxycycline for close to 2 months, and I am supposed to begin a regimen of three different antibiotics next week. In the meantime I have been taking and eating as many probiotics as possible.

2.) Also, is anyone else on this for him aware of the MTHFR gene mutations and if you have one or both? I just found out I have both and I am B 12 deficient. I also know this means your body does not detoxify as well as it should, so I’m wondering if the sluggish liver is part of what triggers this or makes us susceptible. Elizabeth, I know you have mentioned your liver.

I’m Already so much better (for now anyway), but 3 years of this is way too many for me, I cannot imagine what some of you have gone through for so much longer.

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I’ve heard that is actually the best case senerio- worse before better atleast according to my Lyme doc. That was not the case for me. Its been a snail like crawl of improvement (worse case senecio in her opinion). And that was with me doing 7 years prior of every antiparasitic and all other types of treatment and protocols mentioned before going to the Lyme doc. I’m not a fan of a ton of antibiotics but wtf else can one do with the cards I had to deal with.

Liked by desi1

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@desi1

@shelby99
Well I just now I'm seeing this one about mode and you are the 2nd person that's told me that from the 1 gentleman I consider close to expert on this condition he said he saw some old some algae parasite And the fungus I'm going to look up the good doctor you speak of I have and will continue to swear off and to by audix however do not begrudge anybody who chooses to take them if they work for them then that's great but on like a sponge when it comes to this I wanna know everything there is to know because I swear if I ever even get a little bit better I will be on a mission to find those women men and even children out there that are alone and do feel hopeless and helpless in suicidal and try my very best point them in the right direction or at least be there for them in whatever capacity possible. Right now today I feel like I don't wanna go on another day but I know that that will pass and tomorrow hopefully will be better than today I know you know what I'm talking about.
I stated in one of the above posts that we moved because although I believe I've had some of this for many many years I believe that toxic mold brought it out in a house that we rent it for 3 years well this is a brand new 1 gentleman lived in here for maybe for the 6 months I am a young kid and his 20th very good kid well last night I made discoveries of Magellan's in the bathroom that aren't for me I've only been here for a weekend this is a build-up this to go with everything else last night was horrible but what happened with your environmental situation?

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Honestly I real don’t know how my environment got better. 1) my home was not mold infested but my work place was so maybe that was helpful 2) I went nuts back in the day omg my ptsd is flaring right now but honestly everything and anything for years on end. Lord I even washed my head and body with insect growth regular (don’t do that!)
I can honestly say I have no feeling that my home is the culprit at this point. But I spent thousands trying to get rid of something unknown and I really don’t think that was what worked but cleaning steaming and any safe measures may be helpful. I do think contacting dr Shoemaker will help you!! I’m no expert whatsoever and don’t want anyone to do the things I did in desperation.

Liked by desi1, TIhoustonTX2

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@desi1

@shelby99
I just had to go back and re read you are messages all the different formats between all the different sites gets confusing but I'm so ecstatic to hear that you're better now boy would I love an hour or 2 to pick your brain did you ever try the fenbeni if so what was your experience?? And I have 1 other 1 that I must ask it's about the hair because it truly is killing me to lose it out of everything the miserable nights being awake for 2 days and then sleeping for 3 hours and them being awake for another 4 days none of that killing me but losing my hair now that's a killer lol how many but my parents house change quite drastically I feel my wife says otherwise but you say you didn't notice that it helped and it may have actually done worse my reasoning behind wanting to shave is the constant feeling or not feeling the constant movement on my head I mean it's almost never ending unless I spray either the silver or the Apple cider vinegar mixture even sometimes to poolshockp and the kleen freework but its very temporary all of them I convinced myself that if I can see my scalp I'd be able to torture at more the parasite not my scalp what was your experience.? I have some gnarly video I'm pictures of the different animals I can find in my hair at any given time🤯

Edit to add the one thing I find in 99% of my pictures is this figure that I call ghost

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I am by no means cured but much better than I was for like the last 10 years. Yes I tried all antiparasitic (for a horse, cow, fin pig) you name it. I honestly think antifungal helped more than antiparasitics for me. But that’s my experience. Please contact Cindy Casey at the Charles e Holman foundation. She can guide you to a Lyme literate doctor in your area. That doctor can give you a combo of all 3.

Liked by desi1, shello2u

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@desi1

@shelby99
I just had to go back and re read you are messages all the different formats between all the different sites gets confusing but I'm so ecstatic to hear that you're better now boy would I love an hour or 2 to pick your brain did you ever try the fenbeni if so what was your experience?? And I have 1 other 1 that I must ask it's about the hair because it truly is killing me to lose it out of everything the miserable nights being awake for 2 days and then sleeping for 3 hours and them being awake for another 4 days none of that killing me but losing my hair now that's a killer lol how many but my parents house change quite drastically I feel my wife says otherwise but you say you didn't notice that it helped and it may have actually done worse my reasoning behind wanting to shave is the constant feeling or not feeling the constant movement on my head I mean it's almost never ending unless I spray either the silver or the Apple cider vinegar mixture even sometimes to poolshockp and the kleen freework but its very temporary all of them I convinced myself that if I can see my scalp I'd be able to torture at more the parasite not my scalp what was your experience.? I have some gnarly video I'm pictures of the different animals I can find in my hair at any given time🤯

Edit to add the one thing I find in 99% of my pictures is this figure that I call ghost

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I’m sorry if I was abrupt and didn’t answer all of your questions. My experience was absolutely the most horrible thing I’d ever imagine and I can relate to some of the things you’ve said and could add but I don’t think that’s going to help you. Yes I felt the same way about getting down to the scalp and reason I shaved it. Maybe it helped a little idk. To do it was horrifying too and that’s why I said what I said. My goal was to be helpful. I don’t want to scare anyone because of my experience. I still get the crawlies- everyday and often but not constantly I have extremely good hygiene which is a pain because I’m so tired all the time that the last thing I want to do is wash my head and body. I use salicyl acid acid shampoo and add epson salt to it. I use tea tree a lot too. But I must say the thing that helped me the most is seeking treatment from a Lyme literate doctor. My sanity will be shot for the rest of my life and I’ll probably never feel safe in this country but I’m sleeping better and not in hysterical tears daily. I don’t have much of a life but I got this far. I don’t want anyone else to be suicidal because of this disease and the lack of help by conventional medicine. If you think you can beat this on your own than you have my blessing. I hope you can but always remember you have other options (Lyme literate doctor).

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@basslakeview

Hello, Shelby99.
This is Elizabeth. I didnt even think about vaccines causing any of this. I don't know why i haven't, because I sometimes wonder about vaccines. I DO get a flu shot every year, a pneumonia vaccine (because my dr said I have had it about 3 times, and everytime it will get worse) and with me having asthma occasionally it would be really bad if I got pneumonia,, plus this past year i got a Shingles vaccine because I watched my dad and my sister suffer through that.

I don't know where you are living right now. I am in Texas. Texas and many other states, (and I think there is a "National" Lyme Disease Association) have a Lyme website. They (at least Texas) has some extremely useful information. So does the Charles E. Holman Morgellons Association. Lots of good helpful links in that one for sure. Dr. Savely, who is very well known for her involvement in trying to find a cure works there, too. She has written books on Morgellons. Dr. Middleveen, Veterinarian, in Canada is very much involved in the scientific research. I haven't researched to see if she has a website. I've been super busy here right now.

There is going to be a "12 Annual Morgellons Conference" in Austin, Texas on April 6-7, 2019 which I'm registered to go to. I'm so excited about meeting some of the professionals involved with Lyme and Morgellons. There is usually doctors and scientists from all over the world there, too.
The website address for the Holman Morgellons site is: http//thecehf.org . It will have many links in it. Be patient because it's a very large website with a LOT of information. The first page used to have the conference information on it with a link for the agenda, too.

You are right, in that it is almost impossible to find a doctor who will even "admit" he has even heard about Morgellons. They usually look at you with this blank stare, or change the subject real fast to something else. I had one derm PA tell me I have "parasitic psychosis" and gave me a prescription for a psychotic drug. I already knew it was coming so I wasn't surprised at all. I didn't say a word, just smiled and left the office, never to return again.

I have so many stories it's crazy. I've been dealing with this over 27 years. Since 1991. In 1999 I lost my left kidney (oncocytoma, benign), then 2004 my Gallbladder (don't remember what they told me about the reason why).

I would love to see some of your pictures. I have searched looking to find what that stuff is in my hair and on my scalp and skin. I've also found black hairs coming out of my hands. I tried pulling one out with tweezers, but never again. It hurt like crazy. I ended up putting a menthol-type hand lotion on them. When I did that they immediately broke down into tiny black & white dots. Then that mixes together and form a gray biofilm. I really think Chronic Lyme turns into Morgellons when you've had Lyme Disease for 27 years.

I would love for us to compare pictures. I took some two nights ago and couldn't believe my eyes!! Sometimes I accidentally catch something in the air behind or around my hair.

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Hi Elizabeth
I was thinking of you since I just got my script from a compound pharmacy. I also take low dose naltrexone which can only be obtained via a compound pharmacy. At any rate, it always comes with a pamphlet. The pharmacy has a lot of items that are stated to be their top 6 Lyme/ mold disease formulations. It’s not antibiotics and I know you have kidney issues. I’d love to get the pamphlet to you so maybe you could show your doctor and see if it’s ok for you.

Liked by TIhoustonTX2

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@shelby99

Hi Elizabeth
I was thinking of you since I just got my script from a compound pharmacy. I also take low dose naltrexone which can only be obtained via a compound pharmacy. At any rate, it always comes with a pamphlet. The pharmacy has a lot of items that are stated to be their top 6 Lyme/ mold disease formulations. It’s not antibiotics and I know you have kidney issues. I’d love to get the pamphlet to you so maybe you could show your doctor and see if it’s ok for you.

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Pic is me and Ian, 2007.

Thank you. I would love to see it. I am interested in everything.

DSC00952

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@shelby99

Hi Elizabeth
I was thinking of you since I just got my script from a compound pharmacy. I also take low dose naltrexone which can only be obtained via a compound pharmacy. At any rate, it always comes with a pamphlet. The pharmacy has a lot of items that are stated to be their top 6 Lyme/ mold disease formulations. It’s not antibiotics and I know you have kidney issues. I’d love to get the pamphlet to you so maybe you could show your doctor and see if it’s ok for you.

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Idk what to do anymore. I just pray… but I find myself praying for my life to be over. I know I have morgellons.
Today I got blood work test results back
Vitamin definition
B we definitely
And low thtrofe
I’m sir ture🤣🤣🤣🥗😃💯hy

Liked by desi1

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@lita0417

Idk what to do anymore. I just pray… but I find myself praying for my life to be over. I know I have morgellons.
Today I got blood work test results back
Vitamin definition
B we definitely
And low thtrofe
I’m sir ture🤣🤣🤣🥗😃💯hy

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You are going to be OK ! We are all going to be OK! We are all in the same boat. We know that we are not delusional and we are surviving !
I guess as time passes by more people are going to be affected, including dermatologists and CDC investigators, so they will have to pay attention to Morgellons!
I just want to ask a question to everybody: Has anybody tried a room air purifier or air-sanitizer? I want to buy one. However, are expensive. So, I was just wondering if anybody has tried a room purified or an air sanitizer.
I hear that some rooms purifiers kill mold/fungus spores, viruses, bacteria, mites, germs, etc.

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@mariao

You are going to be OK ! We are all going to be OK! We are all in the same boat. We know that we are not delusional and we are surviving !
I guess as time passes by more people are going to be affected, including dermatologists and CDC investigators, so they will have to pay attention to Morgellons!
I just want to ask a question to everybody: Has anybody tried a room air purifier or air-sanitizer? I want to buy one. However, are expensive. So, I was just wondering if anybody has tried a room purified or an air sanitizer.
I hear that some rooms purifiers kill mold/fungus spores, viruses, bacteria, mites, germs, etc.

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@mariao Hi! Just saw your post and wanted to say that yes an air purifier has been very helpful in my case. Whatever this is morgellons and mold /fungus has collected on mine. The filters I need to replace after just a couple of weeks as they are really dirty. The cover had collected all kinds of dust filaments and other debris. I know I have more going on in my home than just mold and fungus though. I have seen the thread like filaments under microscope and yes they move and have like a head. They seem to have magnetic polarity as in either attract to my skin or move away from skin. It’s weird. Try an air purifier. You can get a decent one for like your bedroom area for around $60-$80 usd. Best of luck it you and all dealing with this. 💜

Liked by desi1

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@basslakeview

Pic is me and Ian, 2007.

Thank you. I would love to see it. I am interested in everything.

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Awwwe. Love it!!!

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@mariao

You are going to be OK ! We are all going to be OK! We are all in the same boat. We know that we are not delusional and we are surviving !
I guess as time passes by more people are going to be affected, including dermatologists and CDC investigators, so they will have to pay attention to Morgellons!
I just want to ask a question to everybody: Has anybody tried a room air purifier or air-sanitizer? I want to buy one. However, are expensive. So, I was just wondering if anybody has tried a room purified or an air sanitizer.
I hear that some rooms purifiers kill mold/fungus spores, viruses, bacteria, mites, germs, etc.

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I hate to play the devils advocate again. But no they will just be let go from their positions and the biased news won’t publish that! There is too much profit to be made by doing it this way. By the way there is a doctor and a federal attorney who has Morgellons. Of course they had to leave their jobs because of it but they are online and involved with the Charles e Holman foundation. They are hoping to have another movie out soon (skin deep) and you will see both of them being interviewed. Also if you look under Jeremy Murphree Morgellons he has an interview with the doctor who did antibiotics for like 5 plus years.

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@shelby99

I hate to play the devils advocate again. But no they will just be let go from their positions and the biased news won’t publish that! There is too much profit to be made by doing it this way. By the way there is a doctor and a federal attorney who has Morgellons. Of course they had to leave their jobs because of it but they are online and involved with the Charles e Holman foundation. They are hoping to have another movie out soon (skin deep) and you will see both of them being interviewed. Also if you look under Jeremy Murphree Morgellons he has an interview with the doctor who did antibiotics for like 5 plus years.

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Oh and one more thing as I know this was mentioned by the moderator. There are research articles about people being effected by vaccines who were living undiagnosed with Lyme (yes not Morgellons) M. Medeville (not sure if I spelled her name right) could probably confirm that. Cindy Casey confirmed this with the doctors at the foundation

Liked by desi1

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