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basslakeview
@basslakeview

Posts: 67
Joined: Feb 15, 2017

Morgellons Disease and Parasites

Posted by @basslakeview, Thu, Aug 30 4:11pm

I am Elizabeth Bass and I live in Southeast Texas very close to Galveston and Houston Texas. I moved here in March 2018 from Northeast Texas (Longview) with this scalp condition. Well…it started out as just my scalp. Now it's my entire body, every inch.

I have no idea what exactly is wrong with me, but because of what I found in July 2018 on my pillow I'm thinking Morgellons Disease is one illness. I have attached pictures of what I found on my couch pillow which made me think Morgellons Disease. (See photos below).

I also have these white sparkly,/shiny critters on every inch of my body. They can only be seen if I take a picture using my camera with the FLASH ON. Otherwise, no one would know there is anything wrong with me.

This was discovered by accident when in May 2016 I got my long hair all cut off. Right after that (about a month) my head started itching in the upper center back. I couldnt see anything in a mirror so I picked up my phone and took a picture. I still couldnt see very well so I turned the flash on. THAT WAS IT!! I saw more than I wanted to see. At first I thought I had bed bugs and did everything I could to get rid of them, including lice treatment. Then I started seeing these shiny, sparkly-looking things. I accidentally caught some of them on camera flying around my head. I kept trying everything I could to rid myself of these pests, but nothing has worked so far.

I will post a couple of pictures of what I found that made me think Morgellons. I DO think I may have other parasites as well, but at this point I don't know for certain. No doctor will do anything to help me figure this out. They don't even want to see a picture.

UPDATE: Since the last paragraph I have found out that I have had Rocky Mountain Spotted Fever (in 1991). Now, after a lot of lab work and two other tests, I also find out I have had Lyme Disease since the fever, 17 years ago. I also have the Demodex Mite infestation, which isn't anything new since I found, after learning about the demodex, that EVERYONE has the demodex mites, but more so once you get older and if you get ill, too. An eye doctor I went to says I need cataract surgery on both eyes, but the reason I went to see him in the first place was because of having the Demodex mites in my eyeballs, eyelids (top and bottom) and I showed him a pcture of them, yet he opted to make it out to be about Cataract surgery. I already have an apppointment to see a different eye surgeon for a second opinion because I have a feeling that cutting on my eyes with Demodex on the surface and inside under the surface of my eyeballs does not seem like a smart thing to do, but I am not an expert. I do not claim to be, but I have learned to depend on my gut feelings when it comes to my health. Most doctors do not even know what to do about mites or parasites. Our medical schools do not teach them how to treat these conditions.

REPLY

Incredible and unbelievable!! Is that a living THING that lives on you? Where do they come from? I am itching all over and have been for some time,but I attributed it to dry skin. Now I am wondering — and worried, since the itching is chronic.

It was inside my skin. I didn't see it come out and don't know where on my body it came from. I think because my scalp is the most involved part of this disease, it had to have come from there. It was on a pillow on my couch just exactly in a spot where it had to have come from my head.

I haven't been able to speak to a professional that knows about Morgellons so I have only what I can learn off the internet. There is research going on all over the world. I just watched a video from the Charles E. Holman Foundation in Austin Texas that was very enlightening. Some have it much worse than I.

@basslakeview

It was inside my skin. I didn't see it come out and don't know where on my body it came from. I think because my scalp is the most involved part of this disease, it had to have come from there. It was on a pillow on my couch just exactly in a spot where it had to have come from my head.

I haven't been able to speak to a professional that knows about Morgellons so I have only what I can learn off the internet. There is research going on all over the world. I just watched a video from the Charles E. Holman Foundation in Austin Texas that was very enlightening. Some have it much worse than I.

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Can I ask what are symptoms
Do you have burning on the skin.
I get tiny tiny little spots that burn and tingle itch. Then become a hive. Muscle bone aches etc but Lyme tests are negative. Sometimes the spots have tiny scabs.

@basslakeview

It was inside my skin. I didn't see it come out and don't know where on my body it came from. I think because my scalp is the most involved part of this disease, it had to have come from there. It was on a pillow on my couch just exactly in a spot where it had to have come from my head.

I haven't been able to speak to a professional that knows about Morgellons so I have only what I can learn off the internet. There is research going on all over the world. I just watched a video from the Charles E. Holman Foundation in Austin Texas that was very enlightening. Some have it much worse than I.

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Oh you poor soul is there nothing that anyone can do to rid you of this….
Perhaps you should go to a vet as I had a German Shepard that had just what you describe , couldn't see them with the naked eye but the vet said it was from cows…..I might sound flippant but I can assure you that my heart goes you to you with this torment , itching is terrible especially as you know it is these, mites that are coursing it ……I think you I'll get some action now, hope so anyway….Beryl

@12061948

Can I ask what are symptoms
Do you have burning on the skin.
I get tiny tiny little spots that burn and tingle itch. Then become a hive. Muscle bone aches etc but Lyme tests are negative. Sometimes the spots have tiny scabs.

Jump to this post

I've had those symptoms as well, however, I have to say I think I have more than Morgellons. I have other symptoms as well. I plan to post more pictures I've taken over these past 2+ years. The best thing I think I've done is read, read, read books, internet articles, google Morgellons and other parasites. There's a whole lot of education out there. Until I found that first thing in the picture I posted in the beginning, I had no idea I had Morgellons. I've found I cannot depend on medical doctors always to heal me. They know NOTHING about parasites. I've been to 12 between Longview, TX and Houston TX. As you read and learn from others, some have been to many, many more. One woman has lost her home and family because no one believed her and she's all alone.
Check out these websites and many others:
http://www.thecehf.org/morgellons-disease-patient-resources.html
http://www.debridingsoap.com/Thank-You-Download.html
https://www.dovepress.com/history-of-morgellons-disease-from-delusion-to-definition-peer-reviewed-fulltext-article-CCID

@12061948

Can I ask what are symptoms
Do you have burning on the skin.
I get tiny tiny little spots that burn and tingle itch. Then become a hive. Muscle bone aches etc but Lyme tests are negative. Sometimes the spots have tiny scabs.

Jump to this post

One more thing. Burning skin, some say, is a symptom of a fungal infection. I've had that, too, on the back of my neck. I was given advice to use peppermint oil (100% pure, about 15-20 drops or a little more) into a bath of water when you bathe. Here's another website: when it opens, click on "Download Brochure".
http://www.thecehf.org/the-cehf-brochure.html
There is a list of symptoms.

@capausz

Incredible and unbelievable!! Is that a living THING that lives on you? Where do they come from? I am itching all over and have been for some time,but I attributed it to dry skin. Now I am wondering — and worried, since the itching is chronic.

Jump to this post

Capausz,
You CANNOT see most parasites with the naked eye. I started taking pictures of the back of my head first because I couldn't see anything in a mirror looking backwards using a hand mirror. I picked up my cell phone one day over two years ago and took a picture, then zoomed in, but with the first picture I didn't use a flash so I still couldn't see anything. After that I realized I HAD TO USE IT WITH MY FLASH FORCED ON all the time. Sunlight does not produce the same results. I had just had my long hair all cut off so it was very short and I started losing ALL my hair in the middle back about the size of a small hand. There were lesions. BUT…with the camera I could see things in my hair and on my scalp that horrified me. From then on I was taking pictures anywhere I felt something biting me (before I brushed them away or scratched). I found a place on the internet that has a debriding soap that has helped me tremendously, but I'm still fighting them.
I've posted the website on another person's reply. Check out those websites. If you just google "debriding soap for parasites" you will probably find it. If you can't find them, let me know.
God bless.
Elizabeth

More photos as requested…

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@basslakeview

More photos as requested…

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Elizabeth, my sister has been having the same problem you have. She got help from John Koo, M.D., a dermatologist who works with Murase at UCSF. She is going through menopause which is likely the cause of formication, the feeling of insects crawling across or underneath your skin. She has been help greatly by pimozide treatment. It has almost eliminated all of the formication. She has an occasional flair up, but for the most part she has been able to get relief. She was very reluctant to starting the treatment, but now knows that it has saved her life. I hope that you find a doctor willing to treat your formication and all it effects on your whole being including emotional and mental. Be open minded to who and what can and will help you and you will come through it and be able to live your life again. I wish you well in your journey to health. peace

@basslakeview

Capausz,
You CANNOT see most parasites with the naked eye. I started taking pictures of the back of my head first because I couldn't see anything in a mirror looking backwards using a hand mirror. I picked up my cell phone one day over two years ago and took a picture, then zoomed in, but with the first picture I didn't use a flash so I still couldn't see anything. After that I realized I HAD TO USE IT WITH MY FLASH FORCED ON all the time. Sunlight does not produce the same results. I had just had my long hair all cut off so it was very short and I started losing ALL my hair in the middle back about the size of a small hand. There were lesions. BUT…with the camera I could see things in my hair and on my scalp that horrified me. From then on I was taking pictures anywhere I felt something biting me (before I brushed them away or scratched). I found a place on the internet that has a debriding soap that has helped me tremendously, but I'm still fighting them.
I've posted the website on another person's reply. Check out those websites. If you just google "debriding soap for parasites" you will probably find it. If you can't find them, let me know.
God bless.
Elizabeth

Jump to this post

Hello my name is Beryl and I have read your disturbing post…..
First may I say how sorry I am for your torment and go on to say that I had a German Shepard dog that seemed to have the same thing ….this was in Wales ……the vet said that he had caught it from cattle…..as far as I can remember he gave us something to bath him in ……perhaps the vets know more about this than doctors …..maybe to ask around a few surgeries wouldn't be a bad idea….sorry again for you plight……Beryl.

Liked by gardeningjunkie

@basslakeview

Capausz,
You CANNOT see most parasites with the naked eye. I started taking pictures of the back of my head first because I couldn't see anything in a mirror looking backwards using a hand mirror. I picked up my cell phone one day over two years ago and took a picture, then zoomed in, but with the first picture I didn't use a flash so I still couldn't see anything. After that I realized I HAD TO USE IT WITH MY FLASH FORCED ON all the time. Sunlight does not produce the same results. I had just had my long hair all cut off so it was very short and I started losing ALL my hair in the middle back about the size of a small hand. There were lesions. BUT…with the camera I could see things in my hair and on my scalp that horrified me. From then on I was taking pictures anywhere I felt something biting me (before I brushed them away or scratched). I found a place on the internet that has a debriding soap that has helped me tremendously, but I'm still fighting them.
I've posted the website on another person's reply. Check out those websites. If you just google "debriding soap for parasites" you will probably find it. If you can't find them, let me know.
God bless.
Elizabeth

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It's me again Beryl …..everything needs oxygen but like a tick it can dig in and servive a bath ….well I think that is right ……what about picking a patch that you can see and keeping thick Vaseline on it for the day…..I might sound potty but it might be interesting to see what happens and i don't think it would hurt anything……good luck…..

@beryl

Hello my name is Beryl and I have read your disturbing post…..
First may I say how sorry I am for your torment and go on to say that I had a German Shepard dog that seemed to have the same thing ….this was in Wales ……the vet said that he had caught it from cattle…..as far as I can remember he gave us something to bath him in ……perhaps the vets know more about this than doctors …..maybe to ask around a few surgeries wouldn't be a bad idea….sorry again for you plight……Beryl.

Jump to this post

Beryl, I have a little Yorkie I'm taking to the Veterinarian Tuesday. She's been scratching like crazy. I can't see anything on her because her hair is so thick. (I'm also going to get it all cut off.) Its very hard to treat a long haired dog.
I've also heard and read about Morgellons in cow and horse hooves.

@beryl

It's me again Beryl …..everything needs oxygen but like a tick it can dig in and servive a bath ….well I think that is right ……what about picking a patch that you can see and keeping thick Vaseline on it for the day…..I might sound potty but it might be interesting to see what happens and i don't think it would hurt anything……good luck…..

Jump to this post

I'm certainly not a medical expert, but I don't see a problem with that. Did you have a tick?

@numbskull

Elizabeth, my sister has been having the same problem you have. She got help from John Koo, M.D., a dermatologist who works with Murase at UCSF. She is going through menopause which is likely the cause of formication, the feeling of insects crawling across or underneath your skin. She has been help greatly by pimozide treatment. It has almost eliminated all of the formication. She has an occasional flair up, but for the most part she has been able to get relief. She was very reluctant to starting the treatment, but now knows that it has saved her life. I hope that you find a doctor willing to treat your formication and all it effects on your whole being including emotional and mental. Be open minded to who and what can and will help you and you will come through it and be able to live your life again. I wish you well in your journey to health. peace

Jump to this post

Thank you so much and I am really happy your sister found help. Most doctors recommend a psychotic-type drug, usually giving a diagnosis of "parasitic psychosis." The drug, I heard, really DOES help calm people down. I have also been prescribed the same type of drug, and I'm going to take it. However, I still believe what my camera shows me. I do NOT believe it's all in my mind, but I welcome anything that will help at this point. I will take it for a little while to help me until someone finds a cure or I cure myself.
I commend you for caring for your sister. Look at you. On here, not because of yourself, but for your sister. You are a VERY special person. There aren't very many people like you.

@beryl

Oh you poor soul is there nothing that anyone can do to rid you of this….
Perhaps you should go to a vet as I had a German Shepard that had just what you describe , couldn't see them with the naked eye but the vet said it was from cows…..I might sound flippant but I can assure you that my heart goes you to you with this torment , itching is terrible especially as you know it is these, mites that are coursing it ……I think you I'll get some action now, hope so anyway….Beryl

Jump to this post

Going to a Vet Tuesday (for my little dog who is scratching herself like crazy). And, yes, I hope he's an older person with more knowledge, and will be able to help us both.

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