I am Elizabeth Bass and I live in Southeast Texas very close to Galveston and Houston Texas. I moved here in March 2018 from Northeast Texas (Longview/Tyler) with this scalp condition. Well…it started out as just my scalp. Now it's my entire body, every inch.
I have no idea what exactly is wrong with me, but because of what I found in July 2018 on my pillow I'm thinking Morgellons Disease is one illness. I have attached pictures of what I found on my couch pillow which made me think Morgellons Disease. (See photos below).
I also have these white sparkly/ shiny critters on every inch of my body, especially my hair/scalp. They can only be seen if I take a picture using my camera with the FLASH ON. Otherwise, no one would know there is anything wrong with me.
This was discovered by accident when in May 2016 I got my long hair all cut off. Right after that (about a month) my head started itching in the upper center back. I couldnt see anything in a mirror so I picked up my phone and took a picture. I still couldnt see very well so I turned the flash on. THAT WAS IT!! I saw more than I wanted to see. At first I thought I had bed bugs and did everything I could to get rid of them, including lice treatment. Then I started seeing these shiny, sparkly-looking things. I accidentally caught some of them on camera flying around my head. I kept trying everything I could to rid myself of these pests, but nothing has worked so far.
I will post a couple of pictures of what I found that made me think Morgellons. I DO think I may have other parasites as well, but at this point I don't know for certain. No doctor will do anything to help me figure this out. They don't even want to see a picture.
UPDATE: I finally found a doctor who wants to help and has. Since the last paragraph I have found out that I have had Lyme and Rocky Mountain Spotted Fever (since 1991, 27 years ago). I remember it like it was yesterday. I had a high fever and a rash. My doctor was my friend, thank God!! And the first thing he thought of was Lymes Disease because of the rash, I suppose, because I don't remember having the classic bullseye rash
I also have what looks like Demodex Mite infestation on my eyes, eyelids (top and bottom). I have been to two ophthalmalogists, but all they seem to be interested in is doing cataract surgery. They did not want to talk about mites at all. (Shame on them). I went to those two and then I did some research and came up with a third (a neuro opthalmalogist) who's name was on the Lymes website and right in Houston, only an hour away. If he does the same thing (then its SHAME ON ME!!) I will go to an Optometrist. I am bound to find someone here who knows something about what these things are that are having a field day on my eyes, lids top and bottom of both eyes. One doctor who had a PhD and an MD behind her name said, as she looked at only one eye for not more than 5 seconds (may have been less, said "I don't know what those things are. But they're not Demodex mites"!! and walks out of the room, with a definite attitude.
My take on the second surgeon:
Would anyone want a surgeon to cut on their eyes when they can see critters of all different shapes and sizes going and doing things on your eyes, eyelids, and you are losing your lashes, top and bottom, and in your eyebrows and still think I want to talk about cutting on my eye? Are they stupid? Of course not! But they dont seem to have any common sense. What is God trying to teach me here? There are more doctors than people in this area.
There's a medical school in Galveston. I would probably get more attention by letting the medical students tell me what those things are.
And I had tried to show them both a pcture of them, yet they opted to make it out to be about Cataract surgery. I have a feeling that cutting on my eyes with those critters on the surface does not seem like a smart thing to do, but who am I? I am not an expert, but sometimes I feel like I might know a little bit more than some doctors.
I do not claim to be smarter, but I have learned to depend on my gut feelings when it comes to my health. Most doctors do not even know what to do about mites or parasites. Our medical schools do not teach them how to treat these conditions.