1. < Bones, Joints & Muscles

mixed connective tissue disease

Posted by charbaby @charbaby, Aug 26, 2011

I have been diagnosed in the last 6 mo. first the labs came back lupus, speckled. No typical butterfly rash on face. The rash was on my chest where I was briefly exposed to sun. I am olive skinned never even had a bad sunburn! They did steroids and that didn't help. Referred to a derm who did a biopsy of the area involved that came back dermatomyositis, scleraderma. Now the chest rash is gone and I have both arms covered in a raised rash, tissue is broken down on the right arm. Infection set in and I can't describe the miserable itch. Anyone out there that has anything like this nightmare! I am on methotrexate.

Interested in more discussions like this? Go to the Bones, Joints & Muscles Support Group.

charlie1953 | @charlie1953 | Dec 31, 2021
In reply to @katie "Charbaby, First of all, thanks for being my friend and for praying for me. I will..." + (show)
@katie

Charbaby,
First of all, thanks for being my friend and for praying for me. I will pray for you also. Prayer is what has gotten me through this experience thus far. To answer your questions: I am 51 years old. My diagnosis was based upon lab work for (ANA, Compliment tests). I have insurance through the hospital where I work (we are self-insured and I have a 2,000 deductible).I am 2 hours away from both the University of Louisville and Vanderbilt University. I had a biopsy of a hive and the surgeon did not order the right tests on my biopsy, so my initial biospy was inconclusive. I have no Rheumatologist or Dermatologist.The Theumatologist denied my case. I am still struggling to find someone who can help me or even cares to help me. My primary physician is young and new to practice. I have an appointment with him next week to dicsuss where to go from here. I am just struggling as to what direction to take. I am a Registered Nurse with a Doctor of Nursing Practice degree. I believe that my healthcare providers think that I am supposed to know what to do. I do not have a clue about this,as my degree focuses on advanced nursing care, research and education.

Jump to this post

Sorry your having to deal with all this
I seen several drs they all have a different diagnosis
Scleroderma and crest
One yes raynauds one no
They just keep adding to my list
I’m going to keep on trying

REPLY
View MoreView Less
Please sign in or register to post a reply.