Mixed connective tissue disease - Looking for support
Hi everyone.. I’m new to this. So I have no idea how it works. My name is Liyana and I’m 29 year old woman who went from the never sit still lady to the can’t get out of bed Lady….two months ago I was tested and we discovered that me being sick all the time and out of shape is because I have mixed connective tissue disease. I have never felt so scared in my life. We have two little boys one is 4 and the oldest is 6. I can’t even enjoy play time with them because I just don’t have the energy to do anything lately. I haven’t started treatment yet. And I so scared to start it. In February I had a unexplained miscarriage and few weeks ago I had another. But now I know why. It’s so difficult for me because while others are having new babies I’m loosing them. I really would love to have a daughter still but being so sick all the time I doubt it will happen. I don’t have friends anymore because I’m no fun. So ya. A online doctor suggested that I go on Mayo Clinic and speak to others who has the same or similar condition because it will help me deal with it and understand it better. So I’m trying it now because I feel like no one around me understands what I’m feeling. I hope I can make some friends here.