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rhb

Mild Cognitive Impairment

Posted by @rhb in Brain & Nervous System, Nov 11, 2011

Diagnosed in 2010. 8 months later through intensive program and medication tests show no further deterioration. Are there any others out there dealing with this diagnosis?

Sheila386 likes this
sheila386

Posted by @sheila386, Nov 14, 2011

In October, 2011 I was diagnosed with frontaltemporal dementia and it affected my cognitive functions. I, too, am looking for someone who has been down this road who can give me some information

rhb

Posted by @rhb, Nov 14, 2011

Two good resources are Wilder foundation Memory Club--a 10 week program full of information and support, and the Meeting of the Minds held on March 17. A fantastic program put on by Mayo and Alzheimer's Association. Would also suggest you find a physician who works with this type of disease. Gather all the information you can and also get financial things in order for down the line. An eldercare attorney can help with this.

goldbergu12

Posted by @goldbergu12, May 8, 2012

Sheila: Looking for similar information as you are as indicated in my earlier "discussion" input. Would love to hear from you and exchange information. Goldbergu12

goldbergu12

Posted by @goldbergu12, May 15, 2012

Goldbergu12/Gus to Sheila: I would be delighted to exchange views and information as you suggest. As a starter, I was just in the process of communicating with a doctor I had at Johns Hopkins about an item that came to my attention involving MCI in the context of an existing drug currently used to treat epilepsy which is being tested for MCI relief. You can Google Michela Gallagher - Johns Hopkins re: Memory Impairment. Have you heard anything about it?

sheila386

Posted by @sheila386, May 21, 2012

Sorry to have been so long in replying to your answer. I moved about 4 months ago and am just now getting my compu. back up. To answer your question, no, I have not heard of this drug. I am on Namenda, which I think is pretty standard. Don't feel any better but no worse either, so I guess I am holding. That's ok as long as I don't get any worse, but I don't really know what to expect.

goldbergu12

Posted by @goldbergu12, May 22, 2012

Sheila: How did you or your doctor pick on Namenda? I am curious about the process leading to a decision like that in the context of my being very cynical about doctors who generally are not themselves sufficiently knowledgeable about the study/trials that lead to drugs. I am always weary about side effects which doctors really do not have much of a clue about except the "warnings" that cover every conceivable side effect possible. I guess when it comes to health and disease like AD it seems to come down to hope, luck and risk taking. Good luck with your new move.

amaliee

Posted by @amaliee, Nov 15, 2011

Has anyone suggested CerefolinNAC? It is indicated for patients experiencing MCI and has the combination of ingredients to slow progression of MCI. Helps to protect neurons from oxidatative stress which can result in neuronal destruction.

RHB likes this
rhb

Posted by @rhb, Nov 15, 2011

Thanks for the info. I will look into this.

sheila386

Posted by @sheila386, Nov 16, 2011

Thanks RHB. Am so confused now I don't know how to feel or think. My brain feels like mush. So many questions and trying to dig out the answers is like trying to pull teeth out of a tiger's mouth. Start counseling this month so I am hoping to get some answers then.

rhb

Posted by @rhb, Nov 16, 2011

Is your counselor well acquainted with the issues people with early stage Alzheimer's deal with? If not a practioner in that area I am sure the Alz Association can hook you up with someone. Don't hesitate to call them for help.

sheila386

Posted by @sheila386, Nov 19, 2011

To RHB - Yeah, my counselor is the one that found the frontal temporal dysfunction. I took a bunch of psych tests and he sent them over to my neurologist who put it all together. Am really anxious for my first visit. Maybe I can get some answers to all these questions floating around in my head. Wi ll let you know what I find out.

goldbergu12

Posted by @goldbergu12, May 8, 2012

RHB

Just signed on to this group (5-7-12), having recently been diagnosed MCI by my Neurologist. I went through MRI and blood testing, etc. with a finding that I am typical for aged loss of memory, etc. What I find lacking so far is a resource (medical and/or laypersons) that will better allow me to determine how best to deal with the prognosis other than using my own common sense which is far from an adequate way to go. The "not knowing" stage is by itself food for depression which in turn leads to AD, I am told.

I am looking for all the help I can get and would love to "communicate" with those who are experiencing similar thoughts and feelings. Thanks Goldbergu12

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