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tleever
@tleever

Posts: 6
Joined: Aug 06, 2018

Migraine for 28 days and counting HELP

Posted by @tleever, Mon, Aug 6 11:46am

I have had migraines as long as I can remember. I get cluster migraines as well as status migraines. Sometimes they last a short time and others up to 3 days. I was taking Fioricet or sumatriptan which seemed to work for the most part.

This time it’s been different…I got a migraine 7/10/2018 and have had it consistently for 28 days now with Aura everyday. I have seen a Neurologist and was prescribed a variety of medications at different appointments. They are:
Prednisone 60mg (6) days then taper off for (5) days
Midrin
Naratriptan
Sumatriptan Nasal Spray

I was also given samples of Zomig.

All of the medications minus Midrin brought down the intensity of the pain for a short period but, nothing has broken the cycle yet. Midrin put me out for a day and a half but, I woke up with headache.

Neurologist has been wanting to admit me to the hospital for IV treatment but, I really don’t want to be in hospital unless I know it will for sure help. I have a lot of responsibilities at work that won’t allow a hospital stay. To top it off because I’ve had this migraine for so long my boss called me in for a meeting about my performance. I essentially got into trouble because my head hurts so bad I can’t think or function properly. I fear that my job is in jeopardy and if I am out for a few days in hospital maybe that would be the excuse to let me go.

I had an MRI which showed a hyperintense signal. Neurologist doesn’t think this is anything to be concerned about.

I went to ER on July 26th and they gave me a migraine cocktail that made me sleepy but, didn’t help the migraine. The attending physician wanted to admit me but, gave me the option to go home and rest. Migraine was slightly better in the morning but, rapidly increased intensity throughout the day.

Has anyone experienced something like this? What should I do to get rid of the migraine? Any recommendations are appreciated. Thank you in advance .

REPLY

I don't like your boss! I have WMD and my thinking has slowed down some. You make me feel so grateful that I am self employed. I have turned most of my work load over to my daughter but I do have trouble staying on task so I totally understand how difficult this is for you. Different cause with same result!

Good luck with your efforts. Migraines are terrible. My daughter suffers as do several friends. I once found a coworker curled up ON HER DESK in the dark because she had a migraine but felt she could not leave. She works for the Department Of Defense. You are not alone. As well as seeking medical help I hope your are doing all the things at home that can be done to avoid the migraines. My daughter had MANY food triggers and now she has her headaches down from several a week to a few a year. She can't have any alcohol or chocolate. Some cheese bothers her also.

We humans are really fragile and must be our own best advocates for good health!

Nancy

@nancywootten

I don't like your boss! I have WMD and my thinking has slowed down some. You make me feel so grateful that I am self employed. I have turned most of my work load over to my daughter but I do have trouble staying on task so I totally understand how difficult this is for you. Different cause with same result!

Good luck with your efforts. Migraines are terrible. My daughter suffers as do several friends. I once found a coworker curled up ON HER DESK in the dark because she had a migraine but felt she could not leave. She works for the Department Of Defense. You are not alone. As well as seeking medical help I hope your are doing all the things at home that can be done to avoid the migraines. My daughter had MANY food triggers and now she has her headaches down from several a week to a few a year. She can't have any alcohol or chocolate. Some cheese bothers her also.

We humans are really fragile and must be our own best advocates for good health!

Nancy

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I have never had a migraine that lasted this long. It’s scary. The pressure with my job doesn’t help.

My son has had episodes like that also. Had extreme dizziness, too. He had to go to ER for I vs because of severe vomiting for days.Beware of anyone giving Compezene for nausea or any drugs in that chemical family. They are often included in the ER migraine cocktail. They can have severe neurological side affects, especially in young men. The side effects can become permanent. It is described as extreme feelings of panic. "Fright and Flight". There are much safer drugs for nausea. With my son's current Botox injections, he has the long lasting and major severe migraines, less often. I am so sorry for your situation!

@skk15

My son has had episodes like that also. Had extreme dizziness, too. He had to go to ER for I vs because of severe vomiting for days.Beware of anyone giving Compezene for nausea or any drugs in that chemical family. They are often included in the ER migraine cocktail. They can have severe neurological side affects, especially in young men. The side effects can become permanent. It is described as extreme feelings of panic. "Fright and Flight". There are much safer drugs for nausea. With my son's current Botox injections, he has the long lasting and major severe migraines, less often. I am so sorry for your situation!

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When I went to ER I specially asked them not to give compezine. It gives me the same feelings. I go into a panic attack that last for several hours. It makes me feel like I need to go home RIGHT NOW! Horrible drug.

Yes, we know it is a horrible experience! The last time we were admandant about no Compezene, but then they gave a drug in the same chemical family, and within minutes my son had the same reaction. Unfortunately, it lasted for a year, with random panic attacks. Upon investigation, we found the more exposure to the drug, the greater the risk for permanent neurological damage. His finally went away, thank goodness! His life is difficult enough without drug induced issues! At Mayo, the hospital oncology unit found this in young people so often, that their protocol "prohibits" the use of these drugs for nausea. They use something else. Glad you are aware of this danger.

It’s off-label but I have been successful with 50 to 100 mgs of Trazadone. It absolutely just bandages the pain and doesn’t get rid of the migraine. However, it’s the only instant relief I have ever gotten after trying everything else under the sun. Midrin worked when I was younger but eventually stopped. My mom uses Imitrex with success. But after suffering from extended pain like you’re describing, I took a chance on using Trazadone for it and it worked!

@menville

It’s off-label but I have been successful with 50 to 100 mgs of Trazadone. It absolutely just bandages the pain and doesn’t get rid of the migraine. However, it’s the only instant relief I have ever gotten after trying everything else under the sun. Midrin worked when I was younger but eventually stopped. My mom uses Imitrex with success. But after suffering from extended pain like you’re describing, I took a chance on using Trazadone for it and it worked!

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I currently take Trazadone for chronic back pain & neuropathy to help me sleep. So far it hasn't helped.

@skk15

Yes, we know it is a horrible experience! The last time we were admandant about no Compezene, but then they gave a drug in the same chemical family, and within minutes my son had the same reaction. Unfortunately, it lasted for a year, with random panic attacks. Upon investigation, we found the more exposure to the drug, the greater the risk for permanent neurological damage. His finally went away, thank goodness! His life is difficult enough without drug induced issues! At Mayo, the hospital oncology unit found this in young people so often, that their protocol "prohibits" the use of these drugs for nausea. They use something else. Glad you are aware of this danger.

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It amazes me that Dr's know about this side effect and still choose to order it.

Liked by Ron Rubenzer

@skk15

Yes, we know it is a horrible experience! The last time we were admandant about no Compezene, but then they gave a drug in the same chemical family, and within minutes my son had the same reaction. Unfortunately, it lasted for a year, with random panic attacks. Upon investigation, we found the more exposure to the drug, the greater the risk for permanent neurological damage. His finally went away, thank goodness! His life is difficult enough without drug induced issues! At Mayo, the hospital oncology unit found this in young people so often, that their protocol "prohibits" the use of these drugs for nausea. They use something else. Glad you are aware of this danger.

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Cost/benefit. Everything has side effects. Ethanol, nicotine, caffeine ( caffeine is THE most preferred drug in the world.), all have side effects. Sunshine even has side effects. Living has side effects. Check with Medscape- NOT the internet. Ask your Doctor. Average life span in 1900 was about 48 (but no Med side effects). From a guy who has been through 20 years of non- stop medical treatment. Take care my friend. Peace Dr Ron – Your well-being is my commitment

@skk15

Yes, we know it is a horrible experience! The last time we were admandant about no Compezene, but then they gave a drug in the same chemical family, and within minutes my son had the same reaction. Unfortunately, it lasted for a year, with random panic attacks. Upon investigation, we found the more exposure to the drug, the greater the risk for permanent neurological damage. His finally went away, thank goodness! His life is difficult enough without drug induced issues! At Mayo, the hospital oncology unit found this in young people so often, that their protocol "prohibits" the use of these drugs for nausea. They use something else. Glad you are aware of this danger.

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Understood. It just makes me feel panicked and crazy. I get very sleepy which isn't a bad thing but, going in and out of sleep and a panicked state is miserable.

I just had 23 in a row. I am desperate too.. I have 4 autoimmune diseases as well. I started doing Botox for the migraines and it cut them in half. However, I just read info on Botox activating your immune system. Don’t know what to do. Hope you find relief soon.

I have tried almost every pain med out there and none of them helps my chronic migraine pain, is there anyone who has had relief with any treatment and what was it?

@jbarb

I have tried almost every pain med out there and none of them helps my chronic migraine pain, is there anyone who has had relief with any treatment and what was it?

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Hello @jbarb, welcome to Connect. You may notice I moved your discussion and combined it with a discussion titled, "Migraine for 28 days and counting, help." I did this so the members discussing migraine pain and management would see your message and so you could read some of their previous posts. If you are replying by email, you can click on VIEW & REPLY to be taken to the new location.

@jbarb, you mention that you have tried pain meds with no help. If you don't mind sharing, are you working with a medical professional to try out different treatment options?

@JustinMcClanahan

Hello @jbarb, welcome to Connect. You may notice I moved your discussion and combined it with a discussion titled, "Migraine for 28 days and counting, help." I did this so the members discussing migraine pain and management would see your message and so you could read some of their previous posts. If you are replying by email, you can click on VIEW & REPLY to be taken to the new location.

@jbarb, you mention that you have tried pain meds with no help. If you don't mind sharing, are you working with a medical professional to try out different treatment options?

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May I recommend to all migraine sufferers. Make an appointment with a qualified Nutritionist who has his/her four year degree, (has to be a nutritionist) they will organize test that ur Doctor in most cases does not even know about, as they work completely separate to the drug side of medicine. They are wonderful people with an amaunt of knowledge

Sorry message went by mistake and not checked. ( amount of knowledge) go for it you might be plesently surprised. Also try drinking a lot of water. Good luck.

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