Mid-dermal elastolysis (MDE): What treatment did you get?
Hi! Today I got diagnosed with mid-dermal elastylosis. I am 31 years old and feel really scared of what I will look like in a few years.. My chest is already wrinkled and my stomach is full with bumpy rashes. It’s also spreading on my back. I went to the doctor today expecting to get treatment to get rid of the rashes, but instead I found out I have a disease with no good treatment. Meaning I will probably always look like this, and it will get worse.. I am really torn and sad. I will start treatment in a few days with Isotretionin (a medicine primarily used for acne) to try to slow it down.
Does anyone have experience with this disease? What treatment did you get?