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Mid dermal elastolysis
Hello:
I’ve just been diagnosed with this skin condition called mid dermal elastolysis, which is apparently quite rare. Has anyone had this or know anything about treatment? There doesn’t seem to be much out there…
Thank you
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HugInterested in more discussions like this? Go to the Skin Health Support Group.
I was just diagnosed with mid derm elastolysis also. I was not able to find a lot of information on this condition either. What has been your experience with this skin condition?
Greetings. From what I understand in talking with one of our experts, this is a rare condition that can be difficult to treat. Even a google search turns up limited information. This seems to be one of the better ones. Good luck!
https://escholarship.org/uc/item/7hw4n8s0
Hi, I was just diagnosed with this as well and am doing extensive research to understand disease progression and identify potential treatments. I was hoping to connect with others who have been diagnosed so we can collect some information and see if anything has proven effective.
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1 ReactionHi, I was just diagnosed also and would love to exchange information about your experience with the disease.
Hi, @ocean85, and welcome to Connect. I hope you don’t mind that I moved your post, along with the whole discussion on mid-dermal elastolysis, over here to the Skin Health group, where I thought it fit best. Hoping you can meet some of the other members who have previously discussed this condition here.
How are you feeling about this diagnosis?
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1 ReactionHi @ocean85,
Welcome to the Skin Health group on Connect. Mid-dermal elastolysis (MDE) is indeed a rare disorder, manifested by fine wrinkling of the skin and mid-dermal loss of elastic fibers.
I was digging through Connect’s discussions, trying to find members who may have discussed this condition, but the only activity seems to be on this thread. I want to assure you that we will keep you connected and introduce you to any new members who may be looking for this topic. In the meantime, I hope @jstreed and @rebd3 will return to share their experiences.
I did find this journal article about the clinical features and differential diagnoses of MDE, which you may wish to view:
– Mid-dermal elastolysis: A female-centric disease; case report and updated review of the literature: http://www.sciencedirect.com/science/article/pii/S2352647515000416
@ocean85, do you spend a lot of time outdoors? Where did you first notice the symptoms? May I ask what your doctor has suggested in terms of treatment and progression? We look forward to getting to know you.