Male breast cancer: Anyone other men out there with breast cancer?

Posted by racing212 @racing212, Jul 25, 2019

Any one know anything about it I’m a 50 yo male. I had a mammogram and it showed a mass

Hi @racing212,

I moved your message to the Breast Cancer group to make it easier to connect with others who might have similar symptoms.
Breast cancer in men is usually detected as a hard lump underneath the nipple and areola. Even though males do not develop milk-producing breasts, a man’s breast cells and tissue can still develop cancer. https://www.nationalbreastcancer.org/male-breast-cancer

Here are some posts on Connect that might interest you:
– A Male Mammogram Brings Relief, Life and Marketing Lessons https://connect.mayoclinic.org/2016/10/13/a-male-mammogram-brings-relief-life-and-marketing-lessons/
https://connect.mayoclinic.org/discussion/male-breast-cancer-mayo-clinic/

I’m also tagging @wolfbauer and @colleenyoung to see if they might be able to shed more light on the results of your mammogram. In the meantime, may I if your doctor has offered an explanation? Were you experiencing symptoms that led to the need for a mammogram?

REPLY

I have pain and hard lumps.

REPLY
@racing212

I have pain and hard lumps.

Jump to this post

@racing212, have you had a follow-up appointment with your doctor to review the results of the mammogram and the pain and lumps you're experiencing?

REPLY

Not yet. She wants to do another ultrasound first.. And thats in August

REPLY
@robbiemilammusicman

I am just now starting my journey with male breast cancer. Cannot find any support groups for men, just the ladies – no offense to the ladies. Just want to talk with someone about their experience and what to possibly expect. I am scheduled for surgery on Monday, January 6th for breast and lymph node removal but oncologist is suggesting that I do chemo first then the surgery. Extremely overwhelmed and confused. not feeling well either.

Jump to this post

@robbiemilammusicman
Dear Robbie. Although I'm a woman, I can sympathize and identify with how overwhelming a breast cancer diagnosis, and its subsequent treatment can be. While you wait to find a support group here, you may be interested in an excellent overview of male breast cancer from the American Cancer Society at https://www.cancer.org/cancer/breast-cancer-in-men/treating/chemotherapy.html. Best of luck to you on this journey.

REPLY

I am just now starting my journey with male breast cancer. Cannot find any support groups for men, just the ladies – no offense to the ladies. Just want to talk with someone about their experience and what to possibly expect. I am scheduled for surgery on Monday, January 6th for breast and lymph node removal but oncologist is suggesting that I do chemo first then the surgery. Extremely overwhelmed and confused. not feeling well either.

REPLY
@robbiemilammusicman

I am just now starting my journey with male breast cancer. Cannot find any support groups for men, just the ladies – no offense to the ladies. Just want to talk with someone about their experience and what to possibly expect. I am scheduled for surgery on Monday, January 6th for breast and lymph node removal but oncologist is suggesting that I do chemo first then the surgery. Extremely overwhelmed and confused. not feeling well either.

Jump to this post

Hi @robbiemilammusicman, I'd like to add my welcome to Mayo Clinic Connect. You'll notice that I moved your message to an existing discussion about male breast cancer. I did this so that you can connect with @racing212 and @wolfbauer.

Robbie, you're so right that the land of breast cancer is usually dominated by women talking about breast cancer. Men get breast cancer too. You are most welcome here and will definitely learn from and with others who have breast cancer. While there are differences in the journey with male breast cancer, there are also similarities.

You mention that you are overwhelmed -that's understandable – and confused. Please ask questions. We might be able to help diffuse the confusion. What symptoms are making you not feel well. Are you still scheduled for surgery on Monday or have you decided to do chemo first to shrink the tumor?

REPLY

Hello. I just recently joined Mayo Clinic Connect and have been looking for some sort of connection with anyone having lymph nodes removed. Unlike Robbie, I had no breast cancer – lymph node cancer only. I had squamous cell carcinoma in my lymph nodes in the right arm pit. The doctor (Breast Doctor) had to remove all of the nodes. This was in April. Since this time I have been slowly looking for some sort of support group – men/women whomever. Obviously, like Robbie, the support for specifically males appear to be non-existent. That said, I do not care about the gender – just looking for "folks" who have had lymph nodes removed and their experience with it. Right now I am experiencing greater deal of pain since the first of October then what I have had in the past. My doctor (I saw her on Oct 10th) said that it was due to scar's healing and the impact of the 6 weeks of radiation. Thanks in advance for any advice.

REPLY
@chipmaria

Hello. I just recently joined Mayo Clinic Connect and have been looking for some sort of connection with anyone having lymph nodes removed. Unlike Robbie, I had no breast cancer – lymph node cancer only. I had squamous cell carcinoma in my lymph nodes in the right arm pit. The doctor (Breast Doctor) had to remove all of the nodes. This was in April. Since this time I have been slowly looking for some sort of support group – men/women whomever. Obviously, like Robbie, the support for specifically males appear to be non-existent. That said, I do not care about the gender – just looking for "folks" who have had lymph nodes removed and their experience with it. Right now I am experiencing greater deal of pain since the first of October then what I have had in the past. My doctor (I saw her on Oct 10th) said that it was due to scar's healing and the impact of the 6 weeks of radiation. Thanks in advance for any advice.

Jump to this post

@chipmaria
I had invasive breast cancer (3/7 nodes cancerous with one eroding into the lymphatic system) and a second lesion was neuroendocrine ca. My suggestion would be for your doctor to refer you to a physical therapist that specializes in lymphatic massage to help alleviate the pain and any symptoms you may experience with axillary web (cording). What especially helped me has also been wearing a "swell spot," but this is something the physical therapist can discuss with you. All the best to you.

REPLY
@trixie1313

@chipmaria
I had invasive breast cancer (3/7 nodes cancerous with one eroding into the lymphatic system) and a second lesion was neuroendocrine ca. My suggestion would be for your doctor to refer you to a physical therapist that specializes in lymphatic massage to help alleviate the pain and any symptoms you may experience with axillary web (cording). What especially helped me has also been wearing a "swell spot," but this is something the physical therapist can discuss with you. All the best to you.

Jump to this post

Hi Trixie – and thank you for replying so quickly. I was assigned a physical therapist who specializes in men and women who have had lymph nodes removed. She provided me with some good guidance and exercises specifically for the arm. I was pretty good doing the exercises and the discomfort was not that bad; however, right around Oct 1 it started to get worse-sharp pains. I met with the doctor on October 10th and she said that it was due to scar tissue healing and the impact on the radiation (6 weeks). At the present time it is at a pain level ranging from 3-6 and it is 24/7. I contacted the doctor on November 12th and she prescribed me 100 mg of Gabapentin 2 capsules three times a day. I have taken these and nothing happens. It is extremely difficult to sleep at night; however, I do take about an hour nap in the afternoon due to being so tired from not sleeping the night before. Not sure what a "sell spot" is – but I will look into it. Thanks again Trixie.

REPLY

Hi @chipmaria, I'd like to add my welcome. Can you help me understand? Because the cancer was found in the lymph nodes in your armpit, you are being treated by a breast cancer specialist. Am I understanding that correctly? Was the lymph node biopsied to determine it was breast cancer related rather than a lymphoma? I'm curious.

I'd also like to bring @racing212 and @agingrobert into this discussion.

Now on to your questions about lymph care post surgery and radiation. You can read more from @trixie1313 and others in these discussions.
– Lumpectomy scar healing time https://connect.mayoclinic.org/discussion/lumpectomy-scar-healing-time/
– Cording / Axillary Web Syndrome (AWS) https://connect.mayoclinic.org/discussion/cording-axillary-web-syndrome-aws/

Have you also been given advice and guidance about prevention of lymphedema?

REPLY
@chipmaria

Hi Trixie – and thank you for replying so quickly. I was assigned a physical therapist who specializes in men and women who have had lymph nodes removed. She provided me with some good guidance and exercises specifically for the arm. I was pretty good doing the exercises and the discomfort was not that bad; however, right around Oct 1 it started to get worse-sharp pains. I met with the doctor on October 10th and she said that it was due to scar tissue healing and the impact on the radiation (6 weeks). At the present time it is at a pain level ranging from 3-6 and it is 24/7. I contacted the doctor on November 12th and she prescribed me 100 mg of Gabapentin 2 capsules three times a day. I have taken these and nothing happens. It is extremely difficult to sleep at night; however, I do take about an hour nap in the afternoon due to being so tired from not sleeping the night before. Not sure what a "sell spot" is – but I will look into it. Thanks again Trixie.

Jump to this post

@chipmaria
Not sure how it works for men, but the below site gives you examples of the different swell spots available which help break up lymph flow plus helps to soften up ridges caused by radiation. Gabapentin may help with the pain, but then your problem would still continue. I would ask your physical therapist for more help along those lines. For myself, because I wound up with two surgeries and 30 treatments of radiation in three areas due to the two different areas of cancer in my breast as well as the lymph node eroding into the lymphatics, I could not sleep comfortable in my bed for about 9 months or more and so slept in my LaZyBoy recliner. It was explained to me by my surgeon that some of the sharp pains were from nerves regrowing – they have mostly gone away for me.
(for examples of swell spots: https://lymphedemastore.com/swell-spot-breast/).

REPLY
Please sign in or register to post a reply.
  Request Appointment