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Thea
@thea

Posts: 2
Joined: Jan 17, 2012

MENINGIOMA PRESSING ON THE TRIGEMINAL NERVE - MEDIUM SIZED

Posted by @thea, Jan 17, 2012

HI EVERYONE:
I LIVE IN NEW YORK AND LAST WEEK RECEIVED THE RESULTS OF MY MRI.
I AM HAVING SEVERE FACE PAIN IN THE LOWER RIGHT SIDE OF MY FACE AND GUMS. AT FIRST AND FOR THE LAST TWO AND A HALF YEARS MY ONCOLOGICAL DENTIST, INDICATED THAT I HAD CLASSICAL TRIGEMINAL NEURALGIA. WELL ABOUT 6 WEEKS AGO THE FACE PAIN RETURNED AND DIDN’T GO AWAY. I’M ON CARBAMAZAPINE WHICH REALLY ISN’T DOING MUCH OF ANYTHING. THE MRI INDICATES A MEDIUM SIZED MENINGIOMA PRESSING ON MY TRIGEMINAL NERVE, PLUS SOME INVASION INTO THE EAR CANAL WHICH HAS BEGUN TO EFFECT MY HEARING. THE NEUROSURGEON WON’T BE ABLE TO HELP ME FOR AT LEAST 4 WEEKS AWAY. MEANWHILE I DON’T KNOW WHO IS THE BEST DOCTOR TO GO TO FOR MY PROBLEM. EVEN IF I DO GO TO THE MAYO CLINIC IN MINNEAPOLIS,
I DON’T KNOW ANYONE OUT THERE, I DON’T KNOW HOW I WOULD BE ABLE TO LIVE OUT THERE MYSELF WHILE GOING THROUGH TREATMENT. ANY IDEAS?

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Alex Simon
@alexsimon

Posts: 179
Joined: Feb 08, 2011
Posted by @alexsimon, Feb 3, 2012

Hello Thea -
We cannot give out medical advice via this site but if you are interseted in seeing a Mayo Clinic physician please click on the “request an appointment” link on the upper right hand corner of your screen.

Also there is some other information available online: http://www.mayoclinic.com/health/trigeminal-neuralgia/DS00446


Thea
@thea

Posts: 2
Joined: Jan 17, 2012
Posted by @thea, Feb 3, 2012

AMAZINGLY: WHEN THE MRI CAME BACK, I ENDED UP HAVING MENENGIOMA (TUMOR), pressing on my Trigeminal Nerve, and effecting my ear canal. I was pretty shocked. (no pun intended). I finally decided to go with a doctor
at Columbia Presbyterian Hospital in New York, simply because I didn’t know how
I would deal with going to a hospital in the middle of the country, with no friends there, no apartment, no idea how I would handle such a thing, and no one to talk to about it. I even feel pretty isolated here in NY City, but at least I have my apartment here. I am scared. My operation is set for the 15th of February. Thea

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