Mayo Clinic Connect
I was diagnosed with this tumor on my left sphenoid bone in back of head May 2016. Had Gamma Knife Radiation in Pittsburgh in July. Just had mri to compare. No shrinkage. A little growth. Now what?
I homed-in on your message @dianerock in order to share information on a breakthrough by Duke University researchers on treatment of malignant tumors of the brain. However, I wonder whether that would be an excessive response to your case. Meningioma’s are rarely malignant; although they grow gradually in the tissues that protect the brain and nervous tissues, only about one tumor in 10 becomes malignant. Even so, if growth continues — usually slowly — it can cause problems by putting pressure on the nervous tissues it surrounds.
There is more information available at http://www.mayoclinic.org/tests-procedures/brain-stereotactic-radiosurgery/home/ovc-20215376. Another source I ran across is http://www.webmd.com/cancer/brain-cancer/meningioma-causes-symptoms-treatment. As I understand this information, there is a variety of conditions involved and a variety of treatments for meningiomas. I think a long discussion with your surgeon or neurologist would be your best hope of getting a picture of the future for you, and you may feel still better after a second opinion with another physician with recognized expertise in the field. The two web sites might give you the half-dozen strategic questions you could use to drive the conversation with those doctors.
Welcome to Connect, @dianerock.
I moved your message to the Brain Tumor group https://connect.mayoclinic.org/group/brain-tumor-support-group/. Here you will find several members talking about meningiomas. Please meet @07ram @pegorr @carma @barbarabx @lindalb @55soon @user_che69bc66 @kimf @eleanor1931seminara1931 @lindajean and @debb2010.
You may also be interested in reading and joining in these discussions:
– multiple meningioma brain tumors http://mayocl.in/2j4Pxln
– I’ve survived three brain tumors!!! One done with Cyberknife http://mayocl.in/2j4WEtX
– Meningioma: I’m scared to watch and wait http://mayocl.in/2d9egF3
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