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I'm just curious how many of you wear medic alerts since your transplants? I've talked with my husband about it but he's reluctant too wear anything. I think it's because he doesn't want to wear "jewelry".
@jakedduck1 If your bracelet is sterling, can't you just clean it yourself with a good silver cleaner? I generally do unless I really destroy the finish by forgetting to take something off when I am in the chlorinated pool.
For those of you who have had transplants and wear these bracelets, what do you put on them, just "liver transplant patient"? If I do choose to get one I would like gold since I spend a lot of time in the pool but solid gold sure is pricey. I don't believe that gold-filled lasts long if wearing constantly, I've never had it.
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Mine is inscribed with: (this will depend on how many lines are available for message)
and since it is from Medic Alert, it also has:
CALL IMMEDIATELY (Medic Alert has its contact phone stamped into the metal)
XXXXXXXXXXX (My identification number)
I printed off a card that you can write your info. on , there are several online…mine was free but some of the nicer ones cost a bit.
thank you Rosemary for the info you gave me on als….I really appreciate it as I am so new to this disease and my husband and I have been married for 66 yrs and I cant imagine life without him…..I am praying for a miracle……Jan
@rosemarya Thanks. I will have to give this some thought. It never occurred to me before this was brought up in conversation and it was never suggested at MGH.
I don't know if anyone mentioned it to us or if we read it somewhere.
Here is what I can locate in my printed materials that I have kept for my own Liver transplant reference and my kidney transplant reference.
I find it interesting that, whenever I have gone to the ER the attending nurse takes a look at mine. I'm not sure why, though.
You should carry a letter from your doctor with you. If you joined MedicAlert you could have it stored electronically with them. Think about it.
Since your a member already you should have an advance directive on file.
@jakedduck1, Thanks for looking after my best interests!
I do have my PCP listed. In my case, as a transplant recipient at Mayo Clinic, I have a 24/7 phone contact with Mayo Transplant Dept. and this is prominent in my patient information.
I am not sure what kind of a letter that you are referring to.
@allegro, I am glad that you found the information helpful to learn about this disease. I can only try to imagine your fear and shock at this new diagnosis for your husband. Wow, 65 yrs is beautiful! I have 22 yrs to go to catch up to you.
You say that you are new to this disease. Did your doctor give you any information to read? What did he tell you about the rate of progression for your husband?
If you choose a card in your wallet also list your medications Name of your doctor, phone number any allergies, insurance information, letter from your doctor if you have a transplant, all medical conditions, blood type etc.
I use Carezone.com
I will do many of the same things and more. I keep the app on my homescreen so emergency info is easy for snyone to find.
I talked to my "favorite" firefighter today. He explained to me his experience as a First Responder.
-As a professional firefighter with EMT training and certification, his role is to treat accident victims until the ambulance and medics arrive (matter of minutes) Mostly they work to stop bleeding, open airways… They only carry only a few medications. Then the EMT takes over and transport patient to the nearest trauma center. (usually 4 minutes away for his district) So it would be the trauma team who would be checking the medical ID's – if the patient is unconscious, or unable to communicate or alone with no one to speak for them. He said that the EMT's might need to check information if there is a long transport (rural areas) or if there is an airlift transport.
-He said that the EMT training manual does include information about the neck or bracelet IDs.
-Firefighters and EMT's will NOT go thru someone's purse or wallet. But , they do send the purse along to the trauma center with the patient.
We are all different. We all have different needs. This is his experience, and his department's standard of practice. It might give you some ideas to consider.
@rosemarya Just yesterday I was in class for CERT [community emergency response team], and the firefighters brought this same thing up. We were going through field First Aid training. I had spoken to my husband earlier this week after reading this thread. He was supposed to wear an alert when he was on PD before the transplant, but never did. Not sure if he understands it is a measure of care and concern for me, that he has info available to emergency personnel. Not everyone carries a phone everywhere, and an emergency can happen at any time. I am leaning towards Medic Alert, for the ability to store data.
@rosemarya I spoke to my husband, and ordered him a bracelet. It will give me peace of mind. I also ordered one for me, as I am a CKD patient (stage 3b), and allergic to bee stings and some medications. I feel the annual fee is a small price to pay for ease of mind. Both of these are through Medic Alert, thanks to all the information people shared here and my own research on the internet.
@gingerw, I hope that you, your husband, and I never need to use it!
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