Connect
Mayo's facility for cancer patients
I contacted Mayo Clinic via mails, and after several interactions and submission of forms and documents and reports demanded I was disappointedly turned down. I believe Mayo has the capacity to handle my NET case. Can you please re-review as I need to visit your clinic for treatment
Like
Helpful
HugInterested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.
Hi @netpatient, welcome to Mayo Clinic Connect and the NETs support group. I'm sorry to hear that your appointment request was denied. It sounds like you took the right steps to get an appointment. If you would like a re-review, please contact the Appointment Office at the location you applied to:
Phoenix/Scottsdale, Arizona
602-932-9549
8 a.m. to 5 p.m.
Mountain time, Monday through Friday
Jacksonville, Florida
904-944-3223
8 a.m. to 5 p.m.
Eastern time, Monday through Friday
Rochester, Minnesota
507-516-4593
7 a.m. to 6 p.m.
Central time, Monday through Friday
You may also ask if there is appointment availability at another location if you're willing to travel.
@netpatient, I should also add, now that you're here, will you join the NETs support group discussions? Click this link and introduce yourself here:
– Welcome to the NETs Group! Come say hi. https://connect.mayoclinic.org/discussion/welcome-to-our-new-group/
OK. Thank you Director Colleenyoung. I will act accordingly
Why on earth do you refuse to treat people? I don’t understand that at all. My daughter is newly diagnosed, terrified and wants the expertise of a specialist there to treat her very rare carcinoid tumor
Hi @shari0912, I can imagine both you and your daughter are very frightened. Unfortunately at times, Mayo Clinic has more requests for appointments than available openings. May I ask which Mayo location your daughter applied to? Did her local oncologist submit the referral or did she self-refer?
-
Like -
Helpful -
Hug
1 Reaction@shari0912 and @netpatient, I would like to invite you to the monthly NETs Support Group meeting hosted by Mayo Clinic. They are held on Zoom the first Thursday every month from 5:30 to 7:00 p.m. Eastern time. It is an opportunity to speak with leading NETs experts and to connect with other NETs patients and family members.
See details and register here:
– Neuroendocrine Cancer Support Group Meeting https://connect.mayoclinic.org/event/neuroendocrine-cancer-support-group-meeting-fl-1-110/
The next meeting is March 3 with a focus on genetics.
-
Like -
Helpful -
Hug
1 ReactionHello @shari0912
I am sorry to hear that you were not able to get an appointment for your daughter. I have had three surgeries for carcinoid cancer of the upper digestive tract and I understand how difficult it is to face cancer and a rare cancer is even more frightening.
I'm not sure where your daughter is located but the Carcinoid Cancer Foundation has a listing of doctors who specialize in carcinoid cancer. Here is a link to the website, https://www.carcinoid.org/for-patients/treatment/find-a-doctor/.
Going to a university hospital system can be a good idea as well. These facilities are research oriented and have top-notch specialists. I do not live near a Mayo Clinic campus but I do live near a renowned university hospital in Michigan.
Has your daughter looked for another Carcinoid Specialist?
-
Like -
Helpful -
Hug
1 ReactionShe was accepted!! Thank you Mayo Clunic!
-
Like -
Helpful -
Hug
3 ReactionsFantastic. Throwing **confetti**. Which location?
Feel free to ask questions as you prepare for your visit. You might find the discussions in the Visiting Mayo Clinic group to be helpful
– Visiting Mayo Clinic https://connect.mayoclinic.org/group/traveling-to-mayo-clinic/
-
Like -
Helpful -
Hug
1 ReactionThat is such good news, @shari0912. Do you have an appointment date and time scheduled now? I'm sure you will be pleased with the consultation.
How far is the Mayo facility from where your daughter lives?